Guest guest Posted June 15, 2011 Report Share Posted June 15, 2011 hi rick. when did you have your xmrv test? i was negative the 1st time around too but their later test looked for antibodies to more proteins..then i was positive.  i think it is possible for the virus to be causing so much inflammation, that that is what causes the illness. and it replicates nicely in the lymph tissue...and any slowly replicating infection, if not treated for decades, would make you very sick....  im not sure if its XMRV either but 2 more studies have found MLV-like sequences...  who knows  From: RoosterRick <rickstr420@...> Subject: Re: testing for xrmv Received: Wednesday, June 15, 2011, 1:38 PM  I have severe CFS and also tested negative for XMRV. My test was done at VIPDx. I dont believe XMRV is the cause. You can have HIV in the millions of copies per/ml of blood and still be symptom free. If XMRV is what is making us so sick, enough to make our immune system dysfunctional, it would have to be in the blood where its disabling our immune system. And to be able to do that it would have to be found in huge amounts to be able to hamper the billions of white blood cells we have. I think WPI is finding XMRV but in very small hard to detect levels = endogenous retrovirus... Rick > > Hi there, > > I have been tested for the XRMV virus, and also for antibodies to the virus and both tests were negative. > > The XRMV virus is supposedly in your tissues, so it may not be present in the blood when tested. > > Also, the virus might be one where it only shows up if it is active (this is according to my doc). > > I live in Australia, and the tests were carried out in Red Labs in Belgium, as I haven't heard of any place here that does the XRMV testing. > > So even if you do have the testing, the result may be negative. > > I see from all the recent blogs that people have had such a huge variety of tests done ..... I haven't even heard of a lot of those tests, but they may not be done here in Australia. > > I feel that the doctors around the world are all doing different tests, using different medications and applications, and we probably all have different symptoms related to our cfs/cfids, plus additional medical conditions that may or may not affect our cfs. > > We're all " lab rats " hoping one of our doctors will find something that will help us with our symptoms !! > > But I do say that in a positive way, cos if we don't trial and use different meds, we're not going to help anyone else with this horrid condition. > > And what works for one doesn't always work for another person. > > Best wishes to all. > > Lee, Melbourne Australia > > Quote Link to comment Share on other sites More sharing options...
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