Re: coagulation issues/jaw problems/ON in cfids // MTHFR, antiphospholipid antibody

[Guest guest]

Dear Amy

I'm sorry I can't answer your questions. I think I've had some of the

tests you mention, but I'm too sick to look for them. I was recently

dx'd with osteomyelitis (dx'd w/hypercoagulation in 2006) and then

osteonecrosis in part of my jaw with the latest oral ultrasound.

My DO wants me to have oral debridement but the local Univ docs don't

agree. They are simply relying on a visual examination of my mouth

and there is no open gaping wound so they think it looks fine. The

ultrasound, x-ray's, etc mean nothing to them.

Kendra

On Sat, Jun 4, 2011 at 3:46 PM, amy <amydent9@...> wrote:

> http://www.maxillofacialcenter.com/NICOcause.html

>

>

> has anyone been tested for thrombophilia, hypofibrinolysis

> antiphospholipid sydrome, factor V Leiden mutation

> hyperhomocysteinemia, homozygosity for MTHFR or CBS, protein c deficient or

protein s deficiency

>

> please email me directly to discuss

>

> thank you.

> Amy

[Guest guest]

We did all of our testing though Hemex Lab. Unfortunately Dr. Berg retired.

My suggestion would be to contact them and see who in your area works with them.

It actually makes things easier if the MD works with them because their papers

on CFIDS and coagulation would likely be accepted with less resistance...

http://www.hemex.com/coagulation_tests.html

As a FYI, our MD did send out blood out to a local lab for a few of the

measurements on occasion; with the same results as Hemex. Hemex simply offers

broader testing because they specialize in coagulation issues.

>

> http://www.maxillofacialcenter.com/NICOcause.html

>

>

> has anyone been tested for thrombophilia, hypofibrinolysis

> antiphospholipid sydrome, factor V Leiden mutation

> hyperhomocysteinemia, homozygosity for MTHFR or CBS, protein c deficient or

protein s deficiency

>

> please email me directly to discuss

>

> thank you.

> Amy

>

[Guest guest]

Ken

Didn't Hemex sell their coagulation profile testing to Labcorp? That

was what I read last year.

Supposedly, you can now order their profiles thru Labcorp.

Kendra

On Sun, Jun 5, 2011 at 2:15 PM, Ken L <ken.lassesen@...> wrote:

> We did all of our testing though Hemex Lab. Unfortunately Dr. Berg retired.

>

> My suggestion would be to contact them and see who in your area works with

them. It actually makes things easier if the MD works with them because their

papers on CFIDS and coagulation would likely be accepted with less resistance...

>

> http://www.hemex.com/coagulation_tests.html

>

> As a FYI, our MD did send out blood out to a local lab for a few of the

measurements on occasion; with the same results as Hemex. Hemex simply offers

broader testing because they specialize in coagulation issues.

>

>

>>

>> http://www.maxillofacialcenter.com/NICOcause.html

>>

>>

>> has anyone been tested for thrombophilia, hypofibrinolysis

>> antiphospholipid sydrome, factor V Leiden mutation

>> hyperhomocysteinemia, homozygosity for MTHFR or CBS, protein c deficient or

protein s deficiency

>>

>> please email me directly to discuss

>>

>> thank you.

>> Amy

[Guest guest]

Berg's ISAC panel still available thru Esoterix..esoterix.com..need a doc with

an account there.

been trying to find a doc in chicago with an account, but Esoterix can't tell

me.. some regulation or other.

> >>

> >> http://www.maxillofacialcenter.com/NICOcause.html

> >>

> >>

> >> has anyone been tested for thrombophilia, hypofibrinolysis

> >> antiphospholipid sydrome, factor V Leiden mutation

> >> hyperhomocysteinemia, homozygosity for MTHFR or CBS, protein c deficient or

protein s deficiency

> >>

> >> please email me directly to discuss

> >>

> >> thank you.

> >> Amy

>