Guest guest Posted May 1, 2011 Report Share Posted May 1, 2011 i wish we had a central clearinghouse or information center that organized treatment/outcome data in a systematic fashion whereby we could look refer to it to determine......who got well doing what treatments ACE, I think we have all spent lots of money on protocols we hoped would work...or protocols that other people said " cured " them ... if u decide to spend your money on getting amalgams removed, let us know if it helped you..... my own belief, which may be wrong, is there is a very strong bias amongst many " alternative " health practitioners to simply make a buck off of us.....Dr. Teitelbaums website had a link on it for doctors informing them how to make $400,000 working 20 hours per week treating CFS patients if they would pay him to attend his " treating CFS patients " seminars.......the doctor I went to in New York city back in 1990 ended up costing me $10,000 for 3 months of treatment before he died of a cocaine overdose ... a doctor here in honolulu was charging $200/injection of H2O2 which costs about a nickel at a drugstore... your amalgam guy is probably gonna make some nice cash off of you and promise you its gonna help you..... every naturopath, chiropractor, holistic health doctor etc i have ever interviewed has said they have cured some CFS patients....maybe they have...and maybe they havent....I just never meet or hear about any cured CFS patients.... a woman in my building said she recovered from CFS for many years....i asked her how she is doing now....she said terrible but that it was just her thyroid and she is under the care of a compassionate naturopath who is treating her thyroid...not her CFS .. funny how her CFS and thyroid symptoms are similar. thanks for posing the question....i think we need to come together as a group sometimes and ask ourselves....Is anything working? What is real and what is bullshit. aloha Walter Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2011 Report Share Posted May 2, 2011 Walter, could you provide the Dr. T link related to your accusations? I have wandered the lonely trail of different protocals, and spent thousands. The FFC's yes are privately owned---by a former CFS patient. There are many mainstream MD's and integrative doctors who do not know what they are doing. The leading experts in this illness change their own protocals yearly, due to new information. I for one was helped enormously by a doctor at the Atlanta FFC----using Dr. T's protocal. ACE, keep searching. Because we are all in different stages of the illness you will run into the various answers. I personally have in the last 15 years come from bedridden to 80% functional and appreciative of each integrative MD who helped me along the way. God Bless, Sara > > i wish we had a central clearinghouse or information center that organized treatment/outcome data in a systematic fashion whereby we could look refer to it to determine......who got well doing what treatments > > ACE, I think we have all spent lots of money on protocols we hoped would work...or protocols that other people said " cured " them ... if u decide to spend your money on getting amalgams removed, let us know if it helped you..... > > my own belief, which may be wrong, is there is a very strong bias amongst many " alternative " health practitioners to simply make a buck off of us.....Dr. Teitelbaums website had a link on it for doctors informing them how to make $400,000 working 20 hours per week treating CFS patients if they would pay him to attend his " treating CFS patients " seminars.......the doctor I went to in New York city back in 1990 ended up costing me $10,000 for 3 months of treatment before he died of a cocaine overdose ... a doctor here in honolulu was charging $200/injection of H2O2 which costs about a nickel at a drugstore... > > your amalgam guy is probably gonna make some nice cash off of you and promise you its gonna help you..... > > every naturopath, chiropractor, holistic health doctor etc i have ever interviewed has said they have cured some CFS patients....maybe they have...and maybe they havent....I just never meet or hear about any cured CFS patients.... > > a woman in my building said she recovered from CFS for many years....i asked her how she is doing now....she said terrible but that it was just her thyroid and she is under the care of a compassionate naturopath who is treating her thyroid...not her CFS .. funny how her CFS and thyroid symptoms are similar. > > thanks for posing the question....i think we need to come together as a group sometimes and ask ourselves....Is anything working? What is real and what is bullshit. > aloha > Walter > > > > > Quote Link to comment Share on other sites More sharing options...
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