Re: Question about what type of doctor to see

[Guest guest]

i would high tail it to the best infectious disease doctor i could find

________________________________

From: sb2boys <sb2boys@...>

Sent: Sat, September 18, 2010 2:31:37 PM

Subject: Question about what type of doctor to see

 

I go to the VA. I have both Chronic Fatigue Syndrome and Fibromyalgia. My

primary care doctor at the VA has sent me to see the Rheumatologist, who treats

my Fibromyalgia muscle pain and nothing else. Primary care doctor has no idea

who I should even see at the VA for Chronic Fatigue Syndrome. Any ideas? What

type of doctor could help?

Thank you!

Sue

[Guest guest]

Sue where are you located?

Try referral to infectious disease

From: sb2boys <sb2boys@...>

Subject: Question about what type of doctor to see

Date: Saturday, September 18, 2010, 12:31 PM

 

I go to the VA. I have both Chronic Fatigue Syndrome and Fibromyalgia. My

primary care doctor at the VA has sent me to see the Rheumatologist, who treats

my Fibromyalgia muscle pain and nothing else. Primary care doctor has no idea

who I should even see at the VA for Chronic Fatigue Syndrome. Any ideas? What

type of doctor could help?

Thank you!

Sue

[Guest guest]

Richmond, VA area.

>

> Sue where are you located?

> Try referral to infectious disease

[Guest guest]

My Primary Care doctor is referring me to the Endocrinologist. Is this a waste

of time???

>

> I go to the VA. I have both Chronic Fatigue Syndrome and Fibromyalgia. My

primary care doctor at the VA has sent me to see the Rheumatologist, who treats

my Fibromyalgia muscle pain and nothing else. Primary care doctor has no idea

who I should even see at the VA for Chronic Fatigue Syndrome. Any ideas? What

type of doctor could help?

>

> Thank you!

>

> Sue

>

[Guest guest]

Hi Sue,

My time with an endo has been the most beneficial as I had both adrenal and

thyroid issues. Now that I am addressing thyroid (after 9 months of adressing

adrenals), I am feeling stronger, my recovery time is better, my brain fog is

better, my temperature control is better.

Unfortunately, it took a while to find a good one so I wasted alot of time with

bad ones.

I would call the office and ask if the doctor prescribes Armour or T3. If they

only use Synthroid - I was pass and move on.

Unfortunately, like ME/CFIDS, good endos are hard to find. There are several

thyroid groups in the that have good doctor lists.

If you are near Houston, Dr. Vivian is the best.

HTH,

Marti

> >

> > I go to the VA. I have both Chronic Fatigue Syndrome and Fibromyalgia. My

primary care doctor at the VA has sent me to see the Rheumatologist, who treats

my Fibromyalgia muscle pain and nothing else. Primary care doctor has no idea

who I should even see at the VA for Chronic Fatigue Syndrome. Any ideas? What

type of doctor could help?

> >

> > Thank you!

> >

> > Sue

> >

>

[Guest guest]

hi sue. personally, i think CFS is caused by chronic infection. because recent

studies implicate a retrovirus (XMRV / MLV), i would see an infectious disease

doctor. i dont know if the endocrinologist would be a waste of time or not;

perhaps you could take them a copy of the studies and see what they say. they

could probably suggest a treatment for some of the symptoms you are having but

eventually, i think you will need an infectious disease doctor.

________________________________

From: sb2boys <sb2boys@...>

Sent: Sat, September 18, 2010 5:21:47 PM

Subject: Re: Question about what type of doctor to see

 

My Primary Care doctor is referring me to the Endocrinologist. Is this a waste

of time???

>

> I go to the VA. I have both Chronic Fatigue Syndrome and Fibromyalgia. My

>primary care doctor at the VA has sent me to see the Rheumatologist, who treats

>my Fibromyalgia muscle pain and nothing else. Primary care doctor has no idea

>who I should even see at the VA for Chronic Fatigue Syndrome. Any ideas? What

>type of doctor could help?

>

> Thank you!

>

> Sue

>

[Guest guest]

I believe it's a chronic infection too. Past doctors found 4 viruses that keep

reactivating in me. I think it's an immune system disorder and that's why we

get all these viruses and can't fight them off. I don't think it's any one

virus.

>

> hi sue. personally, i think CFS is caused by chronic infection. because recent

> studies implicate a retrovirus (XMRV / MLV), i would see an infectious disease

> doctor. i dont know if the endocrinologist would be a waste of time or not;

> perhaps you could take them a copy of the studies and see what they say. they

> could probably suggest a treatment for some of the symptoms you are having but

> eventually, i think you will need an infectious disease doctor.

>

[Guest guest]

" sb2boys " <sb2boys@...> wrote:

>

>

>

> I believe it's a chronic infection too. Past doctors found

> 4 viruses that keep reactivating in me. I think it's an immune

> system disorder and that's why we get all these viruses and

> can't fight them off. I don't think it's any one virus.

Hormones affect immunity, especially thyroid, also low or high

cortisol.

CFS can be the result of many causes, and shoring up and

balancing hormones is a good thing to do on general principles.

Conventional MD standards and testing re hormones may not

be optimal. Thyroid patient communities can sometimes be more

useful starting places, though these differ in their views and

approaches as well, and I don't recommend self-medicating with

Rx meds.

Carol W.

willis_protocols