Re: Re: Mitochondrial Disorders

[Guest guest]

louella - my body has changed - improved?  took antibiotics for years which, i

believe, caused candida (even with tons of probiotics to multiply)...i found out

the hard way from a vitamin news research article which mentionned that when

candida blooms acetaldehyde is produced which is responsible for what i call

'misery days' or 'somebody bring a hammer and hit me on the head so i can end

this days'...anyway, found out that i can't take antibiotics with osr - the

acetaldehye just knocks me flat.. - can, however continue valtrex with no side

effects..i also have a sulfur problem and osr effects that...

osr is supposed to build glutathion....years ago when i first got sick i thought

i was cured after taking immunocal and acylovir for a month or so...needless to

say it didn't last...altho' i stayed with it for a year or more..many people use

osr as a chelator - supposedly i have no metals but i undoubtedly have other

stuff that needn't to be excreted...at the moment have stopped osr - plan to use

it intermittently with diflucan..

deb

________________________________

From: louella m <lmonrovia@...>

Sent: Sun, August 29, 2010 8:35:02 AM

Subject: Re: Mitochondrial Disorders

 

deb...why do u think yr immune system function is improved?

>

> it has been redone..still neg...if it grows out neg will have it redone as i

> have been on ostr a year and i know my immune system is now different..

> deb

>

>  

>

>

> Not sure if you're aware Deb but there's talk over at Phoenix Rising that VIP

>dx

>

>

> will be retesting  those previously reported as negative to XMRV.

>

>  

> " The licensed serology test will detect antibodies to Human Gamma

> Retroviruses that include XMRV and other human MLV-related viruses.

>

> The cost is $249.

>

> Those who previously tested negative by virus culture will receive a

> letter in a few weeks explaining our retest program at no extra cost to

> the patient. "

>

>http://www.forums.aboutmecfs.org/showthread.php?7075-***VIP-DX-ANNOUNCEMENT***-\

Serology-test-is-now-available!!/page3

>3

>

>

> ________________________________

> From: deb obrien <DebOB@...>

>

> Sent: Sat, August 28, 2010 3:53:39 PM

> Subject: Re: Mitochondrial Disorders

>

>  

> hi marti - my first diagnosis was exercise induced mitochondrial

>disease...after

>

>

>

> a biopsy with tissue sent to a well known lady in buffalo, n.y, results came

> back with a slight mito. a slight dysfunction in the respiratory chain

- but

>not

>

>

>

> nearly enough to explain my symptoms...was referred to another neurologist at

> ucsf - told me i had 'neuralgia'...eventually made my way to an i.d. doc whom

i

>

> used to really respect (i had been a nurse - oh so very long ago now) and told

> him i had an infection and to please treat me with everything in his arsenal -

> we ended up in a screaming match!!  that was about the time i quit

believing

>in

>

> mainstream medicine!!  i still believe i have an infection - results for

xmrv

> antibody neg..

> good luck,

> deb

>

> ________________________________

>

>  

> Has anyone here been diagnosed with a mitchondrial disorder? Did that diagnose

> replace your ME/CFIDS or is one of them secondary to the other? Which doctor

>did

>

>

>

> you see? What tests were used to diagnose?

>

> Any thoughts would be appreciated.

>

> I found this website when I was researching POTS. I thought this page of the

> substances toxic to mitochondria might be helpful to others.

>

> http://www.mitoaction.org/blog/medication-exposures-mitochondrial-toxicity

>

> I also found phase change cooling vests that seem to be useful for POTS and

the

>

> heat intolerance associated with ME/CFIDS. Anyone use these? I found several

> websites selling the phase change cooling pads - even a pet supply store

>selling

>

>

>

> the phase change inserts for dog vests. If you can sew, it would be cheaper to

> create your own vest using these inserts.

>

> Thanks,

> Marti

>

>