Re: What tests would you recommend?

[Guest guest]

hi sue. in light of the recent research, the first thing i would do is get the

XMRV/MLV antibody test from VIP diagnostics. you can get a WHOLE bunch of other

immune system tests but i just dont see the point since this retrovirus is

probably what is causing the disease!

good luck

sue

________________________________

From: sb2boys <sb2boys@...>

Sent: Sun, August 29, 2010 7:00:27 PM

Subject: What tests would you recommend?

 

I've had Chronic Fatigue Syndrome and Fibromyalgia for over 25 years now. I've

just continued to get worse, despite any supplements or whatever I've tried.

Only rest helps a tiny bit. I used to have periods of remission; but, I don't

anymore. I'm constantly drawing on energy that I don't have.

I go to the VA for care, since I got sick while in the Army. What tests would

you recommend they do to try to help me out? Adrenals?? I'd really appreciate

any help you could offer. Thank you!

Sue

[Guest guest]

• Home mould and moisture testing.

• Vitamin D (> 125 nmol/L).

• Iron studies (ferritin > 50).

• Urine pH (7.2 or more).

• DNA analysis of intestinal organisms via Metametrix.

• Parasite antibody/antigen testing via Diagnos-Techs.

• Hydrogen breath testing for fructose malabsorption and lactose

intolerance.

• Elimination/provocation testing for food allergies/intolerances.

• IgG food intolerance testing via US BioTek.

• Saliva adrenal hormone profile.

• Thyroid profile.

• Free testosterone, DHEA, estrogen.

[Guest guest]

why spend thousands of dollars for testing that will probably show abnormalities

that are being caused by a retrovirus? i spent about $100 000 over the years and

regret every cent.

________________________________

From: Blake Graham <blakegraham@...>

Sent: Mon, August 30, 2010 1:16:35 AM

Subject: Re: What tests would you recommend?

  • Home mould and moisture testing.

• Vitamin D (> 125 nmol/L).

• Iron studies (ferritin > 50).

• Urine pH (7.2 or more).

• DNA analysis of intestinal organisms via Metametrix.

• Parasite antibody/antigen testing via Diagnos-Techs.

• Hydrogen breath testing for fructose malabsorption and lactose

intolerance.

• Elimination/provocation testing for food allergies/intolerances.

• IgG food intolerance testing via US BioTek.

• Saliva adrenal hormone profile.

• Thyroid profile.

• Free testosterone, DHEA, estrogen.

------------------------------------

This list is intended for patients to share personal experiences with each

other, not to give medical advice.  If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Sue wrote:

> why spend thousands of dollars for testing that will probably show

abnormalities

> that are being caused by a retrovirus? i spent about $100 000 over the years

and

> regret every cent.

There is no proof that CFIDS is caused by a retrovirus. I personally

believe it is nothing more than an opportunistic infection, like so many

others that people with CFIDS acquire. Until there is proof that XMRV

causes CFIDS, you are doing people a disservice by saying that it does.

Been down this road before.

I am not doing anything where XMRV is concerned until the complete facts

are known ... no testing, no anti-retroviral drugs, etc., especially

since MCS is far more of a problem for me than the CFIDS. My CFIDS

resulted from exposure to toxic chemicals. I was healthy until that

point. I know others like me. I treated my CFIDS and greatly improved.

It's the MCS that gives me the greatest problems now. Treatment has

helped that, too.

Jeri <teewinot13@...>

@>--->---->-------------------<----<---<@

Dr. Pall's NO/ONOO- Theory/Treatment Discussion Group:

TenthParadigmSociety

@>----------<---------->-----------------------<----------<----------<@

The Tenth Paradigm - Dr. Pall's Website for CFS/MCS/FM/ETC.:

http://www.thetenthparadigm.org

@>----------<---------->-----------------------<----------<----------<@

MCS-Florida - For All Chemically Sensitive Floridians

MCS-Florida

[Guest guest]

Hi Sue,

I had a ton of test over many years and nothing showed up.

Then someone on one of these sites recommended a venous blood gas test.

(It showed my blood had lots of oxygen but after going though my system it was

still full. Not enough was getting dropped off in to the cells.)

From then on I've been working on my immune system. I've been taking proboost

for about 5 years, its been helping.

Good luck,

Ron

>

> I've had Chronic Fatigue Syndrome and Fibromyalgia for over 25 years now.

I've just continued to get worse, despite any supplements or whatever I've

tried. Only rest helps a tiny bit. I used to have periods of remission; but, I

don't anymore. I'm constantly drawing on energy that I don't have.

>

> I go to the VA for care, since I got sick while in the Army. What tests would

you recommend they do to try to help me out? Adrenals?? I'd really appreciate

any help you could offer. Thank you!

>

> Sue

>

[Guest guest]

I live in IL. Who or what would you recommend for mold testing? joyce

>

> • Home mould and moisture testing.

> • Vitamin D (> 125 nmol/L).

> • Iron studies (ferritin > 50).

> • Urine pH (7.2 or more).

> • DNA analysis of intestinal organisms via Metametrix.

> • Parasite antibody/antigen testing via Diagnos-Techs.

> • Hydrogen breath testing for fructose malabsorption and lactose

> intolerance.

> • Elimination/provocation testing for food allergies/intolerances.

> • IgG food intolerance testing via US BioTek.

> • Saliva adrenal hormone profile.

> • Thyroid profile.

> • Free testosterone, DHEA, estrogen.

>

[Guest guest]

Hi, Joyce.

Dr. Ritchie Shoemaker seems to be the most knowledgeable about mold illness.

For testing a home he recommends the ERMI test, which can be ordered from

www.mycometrix.com in New Jersey.

The way this test works is that they send you a filter cartridge that you attach

to a vacuum cleaner, and then you vacuum a certain area of the floor in the

living room and the master bedroom. You send the cartridge back to the lab, and

they run a DNA analysis to identify and quantify a range of toxic molds. The

results are compared to a data base of a large number of homes, to obtain a

relative moldiness index. This test was developed by the U.S. Environmental

Protection Agency.

Best regards,

Rich

> >

> > • Home mould and moisture testing.

> > • Vitamin D (> 125 nmol/L).

> > • Iron studies (ferritin > 50).

> > • Urine pH (7.2 or more).

> > • DNA analysis of intestinal organisms via Metametrix.

> > • Parasite antibody/antigen testing via Diagnos-Techs.

> > • Hydrogen breath testing for fructose malabsorption and lactose

> > intolerance.

> > • Elimination/provocation testing for food allergies/intolerances.

> > • IgG food intolerance testing via US BioTek.

> > • Saliva adrenal hormone profile.

> > • Thyroid profile.

> > • Free testosterone, DHEA, estrogen.

> >

>

[Guest guest]

Sue,

I can think of many tests that would be helpful to test for as you have to know

what the state of your body is before fixing it, retrovirals or no retrovirals.

For example, I may have XMRV and chronic EBV. No amount of retrovirals will fix

the EBV - I will need long term Valtrex (among other things).

Taking retrovirals will not fix the endocrine system - adrenals and thyroid.

Taking retrovirals will not reduce inflammation from allergies, mold, autoimmune

issues, etc.

The advice to get only the XMRV test seems very short-sighted. Personally, I

think it is a little early for the XMRV test/treatment.

And if I were just coming into this, I would NEVER start retroviral treatment

until my other systems were stabilized and in the best possible condition -

adrenals, thyroid, detoxification, leaky gut, inflammation, good pain

management. IMHO, these should be addressed before starting a heavy protocol of

ANY kind (including Yasko).

Just my thoughts,

Marti

>

> why spend thousands of dollars for testing that will probably show

abnormalities

> that are being caused by a retrovirus? i spent about $100 000 over the years

and

> regret every cent.

>

>

>

>

> ________________________________

> From: Blake Graham <blakegraham@...>

>

> Sent: Mon, August 30, 2010 1:16:35 AM

> Subject: Re: What tests would you recommend?

>

>   • Home mould and moisture testing.

> • Vitamin D (> 125 nmol/L).

> • Iron studies (ferritin > 50).

> • Urine pH (7.2 or more).

> • DNA analysis of intestinal organisms via Metametrix.

> • Parasite antibody/antigen testing via Diagnos-Techs.

> • Hydrogen breath testing for fructose malabsorption and lactose

> intolerance.

> • Elimination/provocation testing for food allergies/intolerances.

> • IgG food intolerance testing via US BioTek.

> • Saliva adrenal hormone profile.

> • Thyroid profile.

> • Free testosterone, DHEA, estrogen.

>

>

>

>

>

> ------------------------------------

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice.  If you are interested in any treatment

> discussed here, please consult your doctor.

[Guest guest]

well..i guess u could be right

________________________________

From: marti_zavala <marti_zavala@...>

Sent: Mon, August 30, 2010 2:19:22 PM

Subject: Re: What tests would you recommend?

 

Sue,

I can think of many tests that would be helpful to test for as you have to know

what the state of your body is before fixing it, retrovirals or no retrovirals.

For example, I may have XMRV and chronic EBV. No amount of retrovirals will fix

the EBV - I will need long term Valtrex (among other things).

Taking retrovirals will not fix the endocrine system - adrenals and thyroid.

Taking retrovirals will not reduce inflammation from allergies, mold, autoimmune

issues, etc.

The advice to get only the XMRV test seems very short-sighted. Personally, I

think it is a little early for the XMRV test/treatment.

And if I were just coming into this, I would NEVER start retroviral treatment

until my other systems were stabilized and in the best possible condition -

adrenals, thyroid, detoxification, leaky gut, inflammation, good pain

management. IMHO, these should be addressed before starting a heavy protocol of

ANY kind (including Yasko).

Just my thoughts,

Marti

>

> why spend thousands of dollars for testing that will probably show

>abnormalities

>

> that are being caused by a retrovirus? i spent about $100 000 over the years

>and

>

> regret every cent.

>

>

>

>

> ________________________________

> From: Blake Graham <blakegraham@...>

>

> Sent: Mon, August 30, 2010 1:16:35 AM

> Subject: Re: What tests would you recommend?

>

>   • Home mould and moisture testing.

> • Vitamin D (> 125 nmol/L).

> • Iron studies (ferritin > 50).

> • Urine pH (7.2 or more).

> • DNA analysis of intestinal organisms via Metametrix.

> • Parasite antibody/antigen testing via Diagnos-Techs.

> • Hydrogen breath testing for fructose malabsorption and lactose

> intolerance.

> • Elimination/provocation testing for food allergies/intolerances.

> • IgG food intolerance testing via US BioTek.

> • Saliva adrenal hormone profile.

> • Thyroid profile.

> • Free testosterone, DHEA, estrogen.

>

>

>

>

>

> ------------------------------------

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice.  If you are interested in any treatment

> discussed here, please consult your doctor.

[Guest guest]

That's over $600! I can't do that. Thank you for suggesting it though.

>

> hi sue. in light of the recent research, the first thing i would do is get the

> XMRV/MLV antibody test from VIP diagnostics. you can get a WHOLE bunch of

other

> immune system tests but i just dont see the point since this retrovirus is

> probably what is causing the disease!

>

> good luck

> sue

[Guest guest]

hi sue, its actually $250. the other test is a culture test which i dont think

you really need.

sue

xoxo

________________________________

From: sb2boys <sb2boys@...>

Sent: Mon, August 30, 2010 6:21:48 PM

Subject: Re: What tests would you recommend?

 

That's over $600! I can't do that. Thank you for suggesting it though.

>

> hi sue. in light of the recent research, the first thing i would do is get the

> XMRV/MLV antibody test from VIP diagnostics. you can get a WHOLE bunch of

other

>

> immune system tests but i just dont see the point since this retrovirus is

> probably what is causing the disease!

>

> good luck

> sue

[Guest guest]

I saw you recommended Mold Testing. My Doctor, who is educated on CFS, did a

live blood analysis and found Black Mold in my blood and she did not prescribe

anything for it.. she just said use the same things you would use for yeast. She

did not act like it was big deal at all. What eliminates Black Mold? Anybody

know?

[Guest guest]

Hi, Baloney.

I think it would be best to do some other testing to see if you do in fact have

mold illness.

Dr. Shoemaker has a FACT test (a visual contrast sensitivity test) on his

website at www.chronicneurotoxins.com . It isn't very expensive, and can be

teken on your computer, though it's more accurate if done with the cardboard eye

chart under specified lighting conditions. This test will determine whether you

have neurotoxins in your brain.

If you do, they could be biotoxins, or mercury, or some of the organic solvent

type toxins.

To find out if you are genomically susceptible to biotoxins, such as from toxic

mold, the next test to take is the LabCorp HLA DR DQ Typing panel. This can be

interpreted by consulting the appendix in Dr. Shoemaker's book Mold Warriors.

If you do have neurotoxins and your are genomically susceptible to mold illness,

then the next thing to do is to run the ERMI test on your home, to see if there

are toxic molds in your living environment. This is available from

www.myometrix.com .

If it turns out that you have high levels of toxic mold in your living

environment, you are genomically susceptible to mold illness, and you have

neurotoxins in your brain, the odds are pretty good that you have mold illness.

Dr. Shoemaker's basic treatment for mold illness is avoidance of exposure to

mold toxins, and cholestyramine treatment.

Quite a few people who have mold illness are finding that they have to exercise

extreme mold avoidance to become well. This can mean moving to a mold-free

home, and getting rid of all your possessions, which can be contaminated with

mold toxins. This may seem very extreme, but I am hearing it from so many

people now that I think it needs to be taken seriously.

I hope this is helpful.

Best regards,

Rich

>

> I saw you recommended Mold Testing. My Doctor, who is educated on CFS, did a

live blood analysis and found Black Mold in my blood and she did not prescribe

anything for it.. she just said use the same things you would use for yeast. She

did not act like it was big deal at all. What eliminates Black Mold? Anybody

know?

>