Guest guest Posted November 10, 2009 Report Share Posted November 10, 2009 I just don't know if the news is so good for those of us, like me, who are desperately ill after decades of CFS. retoviruses aren't good. and the fact that this one replicates so slowly (albeit this is probably why we are still alive), will make it difficult to treat. furthermore, i am pretty sure Velcade will be part of the initial treatment offering and that is $45 000 for less than a year. for those of us in a country other than the US, who would pay for this?? they discovered XMRV in CFS blood in the spring. they have been studying HIV meds, i am sure. if any of them worked well, they would have told us by now. it's going to take years. researchers are interested now and that's great - but not for me. i feel like i am dying NOW. sorry for the pessimism...i am just very very depressed and tired. Quote Link to comment Share on other sites More sharing options...
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