Re: New Retrovirus found.. - Ken's comment

[Guest guest]

thanks for pointing out it is a retro virus and how few there are. i was

thinking it was just another virus again and nothing would come of it.

>

> Hi Ken,

>

> I think you are missing a huge point on this new Retrovirus, in the mere fact

that it is a RETRO virus, not just another virus. There are only 4 know

Retroviruses that have been found in humans, HIV, HTLV-1 HTLV-2, and now the new

XMRV. This could definitely be the underpinning for every other imuune

dysfunctions and extra opportunistic infections in CFS patients. I personally

think it is HUGE news, and so do many others. Many should read Hillary s

blog on the subject, she wrote " Osler's Web " . It is a sad but very accurate

account of events, and lays it all out pretty plainly. I would not discount this

discovery or the potential magnitude in any way, shape or form. The link is

below. JMO, Randy

>

> http://www.oslersweb.com/blog.htm

>

[Guest guest]

I have to agree with Ken. Personally, I am just not that excited about it. Very

similar to past discoveries. The fact that it is a retro virus didn't escape me

(I am sure that it did not escape Ken's attention either) but medical research

is now able to find retro viruses better than they were 10 years ago due to the

AIDs research and better technology.

This discovery reminds me of the ciguatera isotope of 10 years ago. I think Ken

has a very good point, may be more of a result than a cause due to the

immunological changes that occur with the illness.

I was more excited about Kerr's genetic study of 2005 (I think it was 2005) as

being more of the answer as to the cause. The study even identified 7 subsets

of patients. I had hoped to hear the validating studies being completed by now

- does anyone know where this stands?

What is most exciting to me is the acceptance this announcement has received in

mainstream media and hopefully the medical community. Dr. Reeves, whom I would

like to throttle, even had a comment that was more accepting of the possibility

of an infectious agent being the cause so that has to bode well for future

progress and hopefully, research dollars.

Just my thoughts,

Marti

> >

> > Hi Ken,

> >

> > I think you are missing a huge point on this new Retrovirus, in the mere

fact that it is a RETRO virus, not just another virus. There are only 4 know

Retroviruses that have been found in humans, HIV, HTLV-1 HTLV-2, and now the new

XMRV. This could definitely be the underpinning for every other imuune

dysfunctions and extra opportunistic infections in CFS patients. I personally

think it is HUGE news, and so do many others. Many should read Hillary s

blog on the subject, she wrote " Osler's Web " . It is a sad but very accurate

account of events, and lays it all out pretty plainly. I would not discount this

discovery or the potential magnitude in any way, shape or form. The link is

below. JMO, Randy

> >

> > http://www.oslersweb.com/blog.htm

> >

>

[Guest guest]

i've never seen a reaction to any other cfids news like the one on hilary's blog

incluidng hers.

> > >

> > > Hi Ken,

> > >

> > > I think you are missing a huge point on this new Retrovirus, in the mere

fact that it is a RETRO virus, not just another virus. There are only 4 know

Retroviruses that have been found in humans, HIV, HTLV-1 HTLV-2, and now the new

XMRV. This could definitely be the underpinning for every other imuune

dysfunctions and extra opportunistic infections in CFS patients. I personally

think it is HUGE news, and so do many others. Many should read Hillary s

blog on the subject, she wrote " Osler's Web " . It is a sad but very accurate

account of events, and lays it all out pretty plainly. I would not discount this

discovery or the potential magnitude in any way, shape or form. The link is

below. JMO, Randy

> > >

> > > http://www.oslersweb.com/blog.htm

> > >

> >

>

[Guest guest]

Marti,

What do you think Dr. Baraniuk and Dr. Ravindran think of this XMRV?

Lucy

>

> I have to agree with Ken. Personally, I am just not that excited about it.

Very similar to past discoveries. The fact that it is a retro virus didn't

escape me (I am sure that it did not escape Ken's attention either) but medical

research is now able to find retro viruses better than they were 10 years ago

due to the AIDs research and better technology.

>

> This discovery reminds me of the ciguatera isotope of 10 years ago. I think

Ken has a very good point, may be more of a result than a cause due to the

immunological changes that occur with the illness.

>

> I was more excited about Kerr's genetic study of 2005 (I think it was 2005) as

being more of the answer as to the cause. The study even identified 7 subsets

of patients. I had hoped to hear the validating studies being completed by now

- does anyone know where this stands?

>

> What is most exciting to me is the acceptance this announcement has received

in mainstream media and hopefully the medical community. Dr. Reeves, whom I

would like to throttle, even had a comment that was more accepting of the

possibility of an infectious agent being the cause so that has to bode well for

future progress and hopefully, research dollars.

>

> Just my thoughts,

> Marti

>

[Guest guest]

We should all petition for Dr. Reeves to be removed. He has been the

political hindrance in finding the true cause. But with a 99% infection

rate, Mikovitz (I have met with her and spoken to her personally) truly

believes that this is it and both the NIH and American Cancer Society are in

agreement that she may be truly on to something.

[Guest guest]

Hi Lucy,

I haven't been in touch with them in a while. I would be very curious to know

what they think. Their work was more along the lines of Kerr's work (and one

other researcher - really foggy lately).

But they were looking at the CSF - it would be interesting to see if those with

cloudy CSF and/or high CSF pressure have this virus.

Since their study has already been established, I doubt that they can add

another factor.

Let me know if you contact them about this.

Marti

P.S. Thanks, Teewinot - yes, that was it - ciguatoxin epitope. I get foggy

sometimes and I converted it to ciguatera isotope. Geez...

> >

> > I have to agree with Ken. Personally, I am just not that excited about it.

Very similar to past discoveries. The fact that it is a retro virus didn't

escape me (I am sure that it did not escape Ken's attention either) but medical

research is now able to find retro viruses better than they were 10 years ago

due to the AIDs research and better technology.

> >

> > This discovery reminds me of the ciguatera isotope of 10 years ago. I think

Ken has a very good point, may be more of a result than a cause due to the

immunological changes that occur with the illness.

> >

> > I was more excited about Kerr's genetic study of 2005 (I think it was 2005)

as being more of the answer as to the cause. The study even identified 7

subsets of patients. I had hoped to hear the validating studies being completed

by now - does anyone know where this stands?

> >

> > What is most exciting to me is the acceptance this announcement has received

in mainstream media and hopefully the medical community. Dr. Reeves, whom I

would like to throttle, even had a comment that was more accepting of the

possibility of an infectious agent being the cause so that has to bode well for

future progress and hopefully, research dollars.

> >

> > Just my thoughts,

> > Marti

> >

>

[Guest guest]

Marti- I did contact them by email, but I suspect they are inundated with

inquiries. I may try to see if I can get another followup appointment with him

through his office. He spent several hours with me last time explaining things

and offering guidance for me - he is truly a saint and a sweetie. I think I have

a school girl crush on him (grin). JK

Regarding not adding another item to their current study, it is interesting to

note that he and Dr. Ravindran did seem keenly interested in pursuing the many

migraine sufferers that they have found in the course of their research (me

being one of them). I think they are adding that to their current study (the

correlation of migraine incidence in CFS patients.)

Regarding the high spinal fluid pressure, I was one of those few, and in our

followup meeting he did not seem too focused on that finding or its implications

for me specifically. Perhaps the pressure readings are more an artifact of how

the fluid is collected, etc. Who knows. In any case, I have checked out fine by

my ophthalmologist and she has no concerns about me having pseudo tumor cerebri,

so that is good...

Anyway, I will keep you posted if I get any correspondence or calls from Dr. B

or Dr. R or am able to get an appointment with Dr. Baraniuk lined up.

lucy

>

> Hi Lucy,

> I haven't been in touch with them in a while. I would be very curious to know

what they think. Their work was more along the lines of Kerr's work (and one

other researcher - really foggy lately).

>

> But they were looking at the CSF - it would be interesting to see if those

with cloudy CSF and/or high CSF pressure have this virus.

>

> Since their study has already been established, I doubt that they can add

another factor.

>

> Let me know if you contact them about this.

> Marti

[Guest guest]

Hi Lucy,

My thoughts below:

> >

> > Hi Lucy,

> > I haven't been in touch with them in a while. I would be very curious to

know what they think. Their work was more along the lines of Kerr's work (and

one other researcher - really foggy lately).

> >

> > But they were looking at the CSF - it would be interesting to see if those

with cloudy CSF and/or high CSF pressure have this virus.

> >

> > Since their study has already been established, I doubt that they can add

another factor.

> >

> > Let me know if you contact them about this.

> > Marti

>

[Guest guest]

Thank you Randy ...

For clarifying the names of the other RV's..

I've been racking my brain trying to remember them..

Some have said there were 3 and others have said there were now 4.

I knew very well about HIV, have had too many friends die from AIDS,

and use to be on the Hospital Helath & Safety Committee Meetings

back in the 80's " when the shit hit the fan " and we were all

talking HIV & CMV so I forgot about the 2 HTLV-1 HTLV-2.

Seems like n the research world thay just refer to those a one RV.

I agree TOTALLY with the rest of your comments and have been

helping to spread the Truth and not the Rumors via other forums,

blogs and Twitter. We have quite a Twitter Army of ME/CFS now ;-)

Any one here Tweet about this? Please feel free to Join in and

Help us Keep the Info " Correct " and spread it...

I am in Sacramento between the Original Incline Village Outbreak

and the one in .. Here was my local TV broadcast that I called

the TV station for and they uploaded it for me to their website

and then called me back and emailed me the actual exact URL

so I could post it for folks and they gave me permission to do so.

So here's more from Dr Mikovits from my local news on Thurs.

http://www.kcra.com/video/21256489/index.html

When we found out that DrOz was gonna have his own TV show

we started sending him medical articles, and as you know there are

many websites of medical conditions that do NOT even list ME or CFS,

but I guess we " broke on thru to the other side " as we within the

first week of his programming already had a section of his website

with our own category. Now we are sending him THis new Info

and maybe we can get him to do a show with Dr & Mikovits

and we can get some National Coverage and more PR and some

Respect after all of these years...

Guess we JUST GOT our National Coverage.

Now we need to get him to Update his CFS page already ;-)

Loved that NPR interview with Dr , did all of you catch that?

Let me know if not and I 'll post the link for ya...

I guess I assume most of you know all of this stuff so I haven't

bothered posting here much.. have been spending more time

trying to educate the public and Raise Awareness..

Anyway, have hardly been able to sleep the last few days

as I have been SO excited and we've been burning the Midnight oil

spreading the word, as the articles are coming out faster than

we can spread the info across all of the Social Media platforms..

One HUGE step for ME/CFS... can remember the day easily..

Same day as Moon Explosion and Obama receiving the Nobel..

Like it or not it was a Historic day for ALL of us.. ;-)

*hugs* to Everyone...

>

> I think you are missing a huge point on this new Retrovirus, in the mere fact

that it is a RETRO virus, not just another virus. There are only 4 know

Retroviruses that have been found in humans, HIV, HTLV-1 HTLV-2, and now the new

XMRV. This could definitely be the underpinning for every other imuune

dysfunctions and extra opportunistic infections in CFS patients. I personally

think it is HUGE news, and so do many others. Many should read Hillary s

blog on the subject, she wrote " Osler's Web " . It is a sad but very accurate

account of events, and lays it all out pretty plainly. I would not discount this

discovery or the potential magnitude in any way, shape or form. The link is

below. JMO, Randy

>

> http://www.oslersweb.com/blog.htm

>