What reduces Pain in the Calves of the Legs & Blood Pooling in the L

September 28, 2009

Hi Jan,

I too have extreme leg pain, worse with dangling of the legs, or over use. Mine

feels like it is in the bone from my knee down to my ankles. I am taking Vicodin

now for it, as it got too much too handle without it, I was waking up with it

everyday and dealing with them hurting like crazy, and that with the headaches,

brain fog and other joint/body aches was just too much for me. I try to take it

exactly 12 hours apart so I have a constant level, but there are many days when

I still wake up with them screaming at me. It was very concerning to me when it

first started as my Mom passed away from Bone cancer 11 years ago, but I had a

bone scan, and that came up OK.

I sit on the couch with them up most all the time, use stools at the sink,

outside and anywhere possible if I need to stand for any length of time. Light

walking is not too bad while doing it, but it is after that everything ankles,

toes up hurt like crazy for days still. I know it is due to the Othorostatic

Intolerance/Blood pooling, not pumping right, but as of yet I do not know what

else to do to help get it under control. I feel your pain it is very hard to

deal with on so many levels. I also get the muscle fatigue very quickly, and

have learned to try to stay within my " energy envelope " and respect my limits,

it is still hard to do some days, and still easy to over do it with even the

sipmlest tasks. But, I do believe in pacing myself, I think that is very

important. If I can't do something then I tell myself it will wait. I also have

trouble taking showers, so I stretch it far as I can usually, which I hate, but

the alternative is not good either.

Hopefully someone else will have some ideas. I saw another Specialist Thursday,

and the 6 hours in the car were enough to put me down since. Goodluck to you,

and does anyone have any ideas, Thanks, Randy

September 28, 2009

Jan, I have had CFS since 1981 and have had bad leg aches for a long time. But

in the last few years i have begun having it in more generalized areas too. My

doctor sent me for an ultra sound and found nothing. And I don't have any

symptoms of varicose veins, except a few spidery ones. But it kept getting

worse. I couldn't walk either. So my doctor finally sent me to a vein specialist

who did a deep vein ultrasound check from my ankles up to the top of my thighs.

The results came back that I have deep vein insuffiency from my ankles all the

way up. I don't have a tendency to clot, but the blood does pool. I now have to

wear the strongest knee high support hoes all, all the time. It's easier for me

to put them on before I get out of bed. Later my legs swell some, They do make

my legs feel better. I have to wear the 30-40s. But can now be on my feet more.

They used to sell the milder ones at Walmart, but I have to get the others at a

medical supply store. And i have to keep my legs up a lot and sleep on a 6 "

wedge. You could get a pair and see if it helps, but you need to get a good

check up because you could also have another more serious condition that they

need to check for, a deep pulmonary thing.

He said weight is a factor, but my thinner identical twin with cfs too, is now

needing to wear a lighter version. He said it is usually runs in families, and

is made worse by having children due to the amount of fluid you carry during

pregnancy. Mine are worse when i have had more salt. He said my legs could

still get worse, and probably won't improve. You may have to have special ones

made to fit you if you don't fit the store bought size.

I may be wrong, but this sure sounds like my symptoms.

Best to You, Emmy

>

> Hi Jan,

>

> I too have extreme leg pain, worse with dangling of the legs, or over use.

Mine feels like it is in the bone from my knee down to my ankles. I am taking

Vicodin now for it, as it got too much too handle without it, I was waking up

with it everyday and dealing with them hurting like crazy, and that with the

headaches, brain fog and other joint/body aches was just too much for me. I try

to take it exactly 12 hours apart so I have a constant level, but there are many

days when I still wake up with them screaming at me. It was very concerning to

me when it first started as my Mom passed away from Bone cancer 11 years ago,

but I had a bone scan, and that came up OK.

>

> I sit on the couch with them up most all the time, use stools at the sink,