Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 Dear rockt999, I tried Ritalin a couple year ago, but didn't find it helpful. It made me feel jittery, without producing much in the way of better brain function. YMMV. Marcia on in Salem, Massachusetts On Jul 8, 2009, at 12:21 PM, rockt999 wrote: > > > Has anyone had success with Piracetam, (http://en.wikipedia.org/wiki/Piracetam > ), or Ritalin for major BRAIN FOG? I've tested +'ve for mycoplasma > pneumoniae, but no viruses or lyme, (though the doc says that 10-20% > of lyme sufferers never test +'ve). I'm taking 300mg doxycycline/ > day. My physical energy isn't terrible - I can walk 10 minutes/day > and grocery shop. But I have a constantly fuzzy head and if I drive, > read, watch t.v., talk or use the computer too much, (ie. 30-40 > minutes), it gets much worse and stays bad for a day or two, > sometimes more depending on how bad I over-do it. I'm desparately > trying to widen the envelope a bit. I tried Ritalin a couple of > years ago and improved nicely for a couple of weeks, then crashed > hard. I'm afraid to try it again. Thought Piracetam might be safer. > > Any input is greatly appreciated. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 As for me: While I was on flagyl and penicill I experienced two days of no brainfog. This implies to me that it might a bacterial issue in the gut.. > > Has anyone had success with Piracetam, (http://en.wikipedia.org/wiki/Piracetam), or Ritalin for major BRAIN FOG? I've tested +'ve for mycoplasma pneumoniae, but no viruses or lyme, (though the doc says that 10-20% of lyme sufferers never test +'ve). I'm taking 300mg doxycycline/day. My physical energy isn't terrible - I can walk 10 minutes/day and grocery shop. But I have a constantly fuzzy head and if I drive, read, watch t.v., talk or use the computer too much, (ie. 30-40 minutes), it gets much worse and stays bad for a day or two, sometimes more depending on how bad I over-do it. I'm desparately trying to widen the envelope a bit. I tried Ritalin a couple of years ago and improved nicely for a couple of weeks, then crashed hard. I'm afraid to try it again. Thought Piracetam might be safer. > > Any input is greatly appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 Hi, I tried Piracetam in the early days and it was okay. No tremendous benefit - I was still working as a programmer and need to be able to think clearly. What was effective was charcoal, blood purifiers, clay. I have since determined that I have an excess of ammonia as well as other toxins (probably mostly my own body waste due to sluggish Phase II liver detoxification). The other thing that has been effective is taking acyclovir, an anti-viral medication. I take 1200mg per day and have been doing so for several years now. I have not experienced any detrimental effects. I prefer to take Valtrex but it is not covered as well under my insurance. So, soaking up toxins and reducing the viral load has made a big difference. But I still have limitations and crash physically if I visit too much with someone, in person or by phone. HTH, Marti > > Has anyone had success with Piracetam, (http://en.wikipedia.org/wiki/Piracetam), or Ritalin for major BRAIN FOG? I've tested +'ve for mycoplasma pneumoniae, but no viruses or lyme, (though the doc says that 10-20% of lyme sufferers never test +'ve). I'm taking 300mg doxycycline/day. My physical energy isn't terrible - I can walk 10 minutes/day and grocery shop. But I have a constantly fuzzy head and if I drive, read, watch t.v., talk or use the computer too much, (ie. 30-40 minutes), it gets much worse and stays bad for a day or two, sometimes more depending on how bad I over-do it. I'm desparately trying to widen the envelope a bit. I tried Ritalin a couple of years ago and improved nicely for a couple of weeks, then crashed hard. I'm afraid to try it again. Thought Piracetam might be safer. > > Any input is greatly appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 I'm doing piracetam right now. I have not noticed a big leap in cognition this time around, but I also taking other things to combat brain fog that I was not taking the first time I tried it. Also, I am in better condition. I'm also taking lion's mane, Huperzine A, Vincocepine, and Bacopa Monnieri Extract for brain fog. I've been taking them all for 6 six months or more. So reintroducing piracetam did not have the same impact as it did when I first took it without the other supplements last August. The first time I took piracetam, I noticed an improvement within hours. When I first started taking them, I struggled with concentration driving, reading a book, remembering things, following topics around my business. I could not work at all. Working more than one half hour exhausted me. Physical exertion was not even part of the equation. Right now, I am working between 6 and 8 hours a day. I set up a blog and did the marketing a few month ago that is doing pretty well, I am working with my husband to develop a web based software application and producing a directory. I days I can write articles faster than before I became aware that I was ill. A couple of weeks ago, I started being able to do bookkeeping without a struggle. It has been almost three years since I could do that. Physical exertion improvements are somewhat mixed bag. I got up to walking about 2 miles a day, but then in the spring I started crashing. I thought perhaps I pushed too hard, but after several attempts at walking one half mile and still crashing, but still being able to do yoga and weight lifting, I believe it was increased exposure to the sun as a result of the season change. Exposure to the sun has made me violently ill in the past. I live in the Northwest, so we do not get much sun in the winter. So I am going to trying walking in the evening when there is less sun later this week. I have experience no side effects from piracetam that I know of and several people I know have taken it with positive results. If you need a source for it let me know. Some brands and suppliers no longer offer it. That is why I had stopped taking it in the first place From: [mailto: ] On Behalf Of rockt999 Sent: Wednesday, July 08, 2009 9:21 AM Subject: Piracetam, Ritalin Has anyone had success with Piracetam, (http://en.wikipedia.org/wiki/Piracetam), or Ritalin for major BRAIN FOG? I've tested +'ve for mycoplasma pneumoniae, but no viruses or lyme, (though the doc says that 10-20% of lyme sufferers never test +'ve). I'm taking 300mg doxycycline/day. My physical energy isn't terrible - I can walk 10 minutes/day and grocery shop. But I have a constantly fuzzy head and if I drive, read, watch t.v., talk or use the computer too much, (ie. 30-40 minutes), it gets much worse and stays bad for a day or two, sometimes more depending on how bad I over-do it. I'm desparately trying to widen the envelope a bit. I tried Ritalin a couple of years ago and improved nicely for a couple of weeks, then crashed hard. I'm afraid to try it again. Thought Piracetam might be safer. Any input is greatly appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 I also see great results with Charcoal and Clay. I herx less, and have more energy. Prior to taking Charcoal I started having pus ooze out of my pores on my neck and chest. When I take charcoal, that does not happen From: [mailto: ] On Behalf Of marti_zavala Sent: Wednesday, July 08, 2009 10:33 AM Subject: Re: Piracetam, Ritalin Hi, I tried Piracetam in the early days and it was okay. No tremendous benefit - I was still working as a programmer and need to be able to think clearly. What was effective was charcoal, blood purifiers, clay. I have since determined that I have an excess of ammonia as well as other toxins (probably mostly my own body waste due to sluggish Phase II liver detoxification). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 Thank you. Sounds very positive. Are you attributing your success to all the supplements mentioned? Is there anything else you're doing that's helped so much? Thanks. > > I'm doing piracetam right now. I have not noticed a big leap in cognition > this time around, but I also taking other things to combat brain fog that I > was not taking the first time I tried it. Also, I am in better condition. > I'm also taking lion's mane, Huperzine A, Vincocepine, and Bacopa Monnieri > Extract for brain fog. I've been taking them all for 6 six months or > more. So reintroducing piracetam did not have the same impact as it did > when I first took it without the other supplements last August. The first > time I took piracetam, I noticed an improvement within hours. > > > > When I first started taking them, I struggled with concentration driving, > reading a book, remembering things, following topics around my business. I > could not work at all. Working more than one half hour exhausted me. > Physical exertion was not even part of the equation. > > > > Right now, I am working between 6 and 8 hours a day. I set up a blog and > did the marketing a few month ago that is doing pretty well, I am working > with my husband to develop a web based software application and producing a > directory. I days I can write articles faster than before I became aware > that I was ill. A couple of weeks ago, I started being able to do > bookkeeping without a struggle. It has been almost three years since I > could do that. > > > > Physical exertion improvements are somewhat mixed bag. I got up to walking > about 2 miles a day, but then in the spring I started crashing. I thought > perhaps I pushed too hard, but after several attempts at walking one half > mile and still crashing, but still being able to do yoga and weight lifting, > I believe it was increased exposure to the sun as a result of the season > change. Exposure to the sun has made me violently ill in the past. I > live in the Northwest, so we do not get much sun in the winter. So I am > going to trying walking in the evening when there is less sun later this > week. > > > > I have experience no side effects from piracetam that I know of and several > people I know have taken it with positive results. If you need a source for > it let me know. Some brands and suppliers no longer offer it. That is why > I had stopped taking it in the first place > > > > From: > [mailto: ] On Behalf Of rockt999 > Sent: Wednesday, July 08, 2009 9:21 AM > > Subject: Piracetam, Ritalin > > > > > > > > > Has anyone had success with Piracetam, > (http://en.wikipedia.org/wiki/Piracetam), or Ritalin for major BRAIN FOG? > I've tested +'ve for mycoplasma pneumoniae, but no viruses or lyme, (though > the doc says that 10-20% of lyme sufferers never test +'ve). I'm taking > 300mg doxycycline/day. My physical energy isn't terrible - I can walk 10 > minutes/day and grocery shop. But I have a constantly fuzzy head and if I > drive, read, watch t.v., talk or use the computer too much, (ie. 30-40 > minutes), it gets much worse and stays bad for a day or two, sometimes more > depending on how bad I over-do it. I'm desparately trying to widen the > envelope a bit. I tried Ritalin a couple of years ago and improved nicely > for a couple of weeks, then crashed hard. I'm afraid to try it again. > Thought Piracetam might be safer. > > Any input is greatly appreciated. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Tried both as well as dexamphetamine and Hydergine, with very little evidence of improvement, certainly not value for money in my case. Caffeine still comes out on top. Interestingly, the best treatment I've found is good old fashioned rigorous discussion (read argument if you like) but the downside is profound post exertional malaise the next day. R Piracetam, Ritalin > Has anyone had success with Piracetam, > (http://en.wikipedia.org/wiki/Piracetam), or Ritalin for major BRAIN FOG? > I've tested +'ve for mycoplasma pneumoniae, but no viruses or lyme, > (though the doc says that 10-20% of lyme sufferers never test +'ve). I'm > taking 300mg doxycycline/day. My physical energy isn't terrible - I can > walk 10 minutes/day and grocery shop. But I have a constantly fuzzy head > and if I drive, read, watch t.v., talk or use the computer too much, (ie. > 30-40 minutes), it gets much worse and stays bad for a day or two, > sometimes more depending on how bad I over-do it. I'm desparately trying > to widen the envelope a bit. I tried Ritalin a couple of years ago and > improved nicely for a couple of weeks, then crashed hard. I'm afraid to > try it again. Thought Piracetam might be safer. > > Any input is greatly appreciated. > > > > ------------------------------------ > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Yes. There are times when I do not take them like after a crash and I notice a loss of cognitive abilities. I added them to my regimen slowly so that I could track changes. However, These positive changes could be due to other steps I have taken that have been working to gradually improve my circumstances. The improvements are gradual and I only seem to notice them when I get frustrated with what I can not do and my husband points out a date when I could not do something I currently can do with little effect. I keep notes, but it is still hard to track, except when looking back. The following is the full list of supplements I have taken for cognition over the past year and what I put on the bottles so I could remember why I was taking them. Bacopa monnieri (Brahmiu ) - enhances learning, academic performance and improves mental ability, strengthen concentration and memory. Rejuvenates the nervous system. huperzine A - improves short term & long term memory, cognitive function, suppresses myasthenia gravis symptoms. ( facial ticks?) Lion's Mane - antioxidant aid in the regulation of lipid levels & in reduction of glucose levels. Brain booster that stimulate neurons to regrow. Vincopetine - has anti-platelet activity; memory enhancement; enhances brain circulation & oxygen utilization; anticonvulsant; exerts anti-oxidant effects through hydroxyl radical scavenging; benefits those with gastric ulcers, epilepsy, tinnitus, and Meniere's Piracetam - a nootropic drug that improves intelligence and ability to concentrate and focus seen within 30 minutes of first dose. Has beneficial effect on blood cell deformability (red cells, white cells and platelets); reduction in blood and plasma viscosity through an increase in cell membrane deformability; a reduction of 30-40% in the plasma concentrations of fibrinogen and von Willebrand's factor,; inhibition of thromboxane synthetase or anti-thromboxane A2; treatment for Raynaud's phenomenon; decrease appetite; helps focal brain lesions; makes you more articulate. Can disrupt sleep When I joined the group last May, I could not get out of bed, but had made dramatic improvements. I was no longer in the overwhelming, extreme pain I had been in for more than a year and I was no longer disfigured with lesions, hives, boils and cysts covering my body. The focus of strategy is tracking people who got better whose profile is similar to mine and attempting to extrapolate trends among them. For instance, almost all of them incorporated walking. Most of them focused on sleep. All of them purposefully exposed themselves to sleep. Almost all of them practice some form of meditation or visualization to prevent triggering stress reactions. Those were the non-medicinal commonalities. Going through past posts and reviewing Ken's Web Site, I decided to revamp my protocol for stage two of my recovery. I will try outline the things I have been doing for the past year that I thinK are working. ~I rotate very high doses of natural antibiotics like Tumeric, Olive Leaf, WormWood ~I did very high doses of D3 (10,000 IU) for more than nine months. My D levels are normal. But I saw extremely dramatic changes when I first started. I just lowered my dose to 4000 IU. ~I follow Pall's Protocol and Yasko Simplified Protocol with a little from Myhill's protocol. This was by accident. As I researched, I would find out about a supplement people said helped them, I found out about Yasko, Pall and Myhill later and it turns out that most of these supplements were in the two Protocols. Whatever I was missing I added if it seemed right for me. One thing I am doing that I have not met anyone else who does it as well, is that whenever I possible, I buy herbs in bulk form that are organic and recently cultivated. 50% of everything I take fits in that category. I did it for several reasons: 1. to lower my costs so that I could by other supplements I felt were important. They are much cheaper 2. So I could try supplements that are part of trends and therefore normally out of reach 3. To trying to get my nutrients from natural sources and avoid harmful additives 4. I noticed the organic bulk stuff was stronger than the pills I purchased probably because they were fresher The negative is I had to buy a low level professional encapsulation machine and I do the pills myself. After 2-3 hours a week. Not so bad with a movie or TV show. However, a year supply of turmeric is about $20. At the doses I take it would have cost me about $300 or more for the year. Magnesium Matate and Malic Acid - without them I experience pain and facial ticks Focusing on creating a sleep protocol. I am still tweaking this one so that I am less groggy in the morning. But the most significant thing I did that caused a dramatic change was increasing my intake of GABA from 1000 mg each night to 2000- 3000 mg each night. Before doing so getting restful REM sleep seemed almost unobtainable, since increasing in April, I sleep most nights, even if I travel and change time zones. Other things I am tweaking for sleep include melatonin, Valerian, kava Kava, skull cap, hops, passion flower, and Jamaica dogwood. Some change I am doing recently has me a little less restful and groggy in the morning, so I do not have my final formula figured out for sleep yet. I believe the following are helping me with energy. I noticed big changes when I added the following individually or when I run out and do not replace them Maca, carnosine (said to help with concentration, avoid when crashing), codonopsis, acetyl Carnitine, Cordyceps, ashwagandha Mushrooms Suehirotake - Schizophyllum commune - contains schizophyllan (SPG) a polysaccharide that activates macrophages and stimulate T cells and natural killer cells. in study 90% chronic fatigue syndrome showed significant improvement accompanied by increased NK cell counts. I also rotate between Reishi and Shiitake Green/Whole Foods - I try to get nutrients naturally from whole food organic sources. I noticed a big jump in energy and productivity when I start buying and encapsulating the following: Acai, Barley Grass, Spirulina, Camu camu, Rodiola, Noni, Mangosteen. They are pretty cheap purchase in bulk. I never had them in pill form because of the cost Alka-Seltzer gold, Grape Seed Extract, Breathing into my hand- seem to prevent me from crashing sometimes Other standouts: B-12 Hydroxocobalamin Activated Charcoal I was on high dose Probiotics course until november. There after I rotated the following- Acidophilus & Bifidu, and saccharomyces boulardii - will block candida in the digestive track and L. Salivarius - helps to normalize the flora of the gut; inhibits the growth of H. pylori. I take regular amounts of probiotics and brewer's yeast (S. cervesiae) - it blocks candida in the digestive track I hope this helps. I take a lot of stuff and I am am always looking for ways to cut back, but when I stop taking many of the stuff listed about, I noticed a negative reaction. As long as I keep improving I will likely stay on this course Tracey PS: Let me know if you need to know the cheapest sources for the any of the items listed From: [mailto: ] On Behalf Of rockt999 Sent: Wednesday, July 08, 2009 1:43 PM Subject: Re: Piracetam, Ritalin Thank you. Sounds very positive. Are you attributing your success to all the supplements mentioned? Is there anything else you're doing that's helped so much? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 In 1994 I discovered that I'd had ADD all my life. It was both a shock and an incredible feeling of relief. As one book title put it, " You mean I'm not crazy, lazy or stupid? " I've also had FM for most of my life and since my mid 20s it's been accompanied by ever increasing, and totally draining fatigue. After the ADD dx I was given an rx for 10 mgs of Ritalin. I gingerly bit off half of a tablet and within 20 minutes was stunned to feel myself " toning up " , both physically and mentally. Even though small children are given 10 mgs, 3x a day, I am very cautious with this medication. I tend to use 10 mgs when I'm feeling both physically and mentally wiped out and there are things I just have to do--------say, income taxes or the like. Sometimes I will take one to try to get that toned up feeling but it doesn't always work. When it does, it's a blessing. I've also used Piracetam, but can't say I've ever noticed much effect. For a link between FM, ADD, and the use of Ritalin, I'd suggest browsing this site: http://addfibro.com/ And in my files, I've saved a study report that I'd found on the web some time ago: Fibromylagia,Chronic fatigue, and adult attention deficit hyperactivity disorder in the adult: a case study. Psychopharmacol Bull. 2007 Winter;40(1):118-26. Young JL, Redmond JC. Rochester Center for Behavioral Medicine, Rochester Hills, MI. PMID: 17285103 Adult attention deficit hyperactivity disorder (ADHD) may share common features with fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS). In an outpatient psychiatric clinic, a number of adult patients who presented primarily with symptoms of ADHD, predominately inattentive type, also reported unexplained fatigue, widespread musculoskeletal pain or a pre-existing diagnosis of CFS or FMS. As expected, ADHD pharmacotherapy usually attenuated the core ADHD symptoms of inattention, distractibility, hyperactivity, and impulsivity. Less expected was the observation that some patients also reported amelioration of pain and fatigue symptoms. The utility of ADHD medications in FMS and CFS states may be their innate arousal and enhanced filtering properties. This model supposes that FMS and CFS are central processing problems rather than peripheral disorders of muscles and joints. **** Sharon From: " rockt999 " <ricor@...> < > Sent: Wednesday, July 08, 2009 12:21 PM Subject: Piracetam, Ritalin > Has anyone had success with Piracetam, (http://en.wikipedia.org/wiki/Piracetam), or Ritalin for major BRAIN FOG? I've tested +'ve for mycoplasma pneumoniae, but no viruses or lyme, (though the doc says that 10-20% of lyme sufferers never test +'ve). I'm taking 300mg doxycycline/day. My physical energy isn't terrible - I can walk 10 minutes/day and grocery shop. But I have a constantly fuzzy head and if I drive, read, watch t.v., talk or use the computer too much, (ie. 30-40 minutes), it gets much worse and stays bad for a day or two, sometimes more depending on how bad I over-do it. I'm desparately trying to widen the envelope a bit. I tried Ritalin a couple of years ago and improved nicely for a couple of weeks, then crashed hard. I'm afraid to try it again. Thought Piracetam might be safer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 rockt999 wrote: > Has anyone had success with Piracetam, (http://en.wikipedia.org/wiki/Piracetam), or Ritalin for major BRAIN FOG? I've tested +'ve for mycoplasma pneumoniae, but no viruses or lyme, (though the doc says that 10-20% of lyme sufferers never test +'ve). I'm taking 300mg doxycycline/day. My physical energy isn't terrible - I can walk 10 minutes/day and grocery shop. But I have a constantly fuzzy head and if I drive, read, watch t.v., talk or use the computer too much, (ie. 30-40 minutes), it gets much worse and stays bad for a day or two, sometimes more depending on how bad I over-do it. I'm desparately trying to widen the envelope a bit. I tried Ritalin a couple of years ago and improved nicely for a couple of weeks, then crashed hard. I'm afraid to try it again. Thought Piracetam might be safer. I've never used drugs to treat brain fog. Ginkgo biloba, CoQ-10, and bilberry cured mine. Jeri <teewinot13@...> @>--->---->~~~~~~~~~~~~~~~~~~~<----<---<@ Dr. Pall's NO/ONOO- Theory/Treatment Discussion Group: TenthParadigmSociety @>----------<---------->----------<----------<----------<@ The Tenth Paradigm Society for CFS, MCS, FM, PTSD, GWS & others: http://www.geocities.com/tenthparadigm @>----------<---------->----------<----------<----------<@ MCS-SinglesConnection: For all singles MCSers 18 and over: MCS-SinglesConnection @>----------<---------->----------<----------<----------<@ MCS-Florida - For All Chemically Sensitive Floridians MCS-Florida ---------- No viruses detected in this outgoing message. Checked by AVG - www.avg.com Version: 8.5.375 / Virus Database: 270.13.8/2226 - Release Date: 07/08/09 21:51:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Welcome to the club !! (Wry smile) Glad the Ritalin worked for you. Regards R Piracetam, Ritalin > > >> Has anyone had success with Piracetam, >> (http://en.wikipedia.org/wiki/Piracetam), or Ritalin for major BRAIN FOG? >> I've tested +'ve for mycoplasma pneumoniae, but no viruses or lyme, >> (though the doc says that 10-20% of lyme sufferers never test +'ve). I'm >> taking 300mg doxycycline/day. My physical energy isn't terrible - I can >> walk 10 minutes/day and grocery shop. But I have a constantly fuzzy head >> and if I drive, read, watch t.v., talk or use the computer too much, (ie. >> 30-40 minutes), it gets much worse and stays bad for a day or two, >> sometimes more depending on how bad I over-do it. I'm desparately trying >> to widen the envelope a bit. I tried Ritalin a couple of years ago and >> improved nicely for a couple of weeks, then crashed hard. I'm afraid to >> try it again. Thought Piracetam might be safer. > > > > ------------------------------------ > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Tracey, thanks for sharing this. Your list of supplements is a bit overwhelming, but it's obviously helping, so that's good. I don't know if I can duplicate it, but I'm doing some of the same things and your list might help me to tweak my regimen. > > Yes. There are times when I do not take them like after a crash and I > notice a loss of cognitive abilities. I added them to my regimen slowly so > that I could track changes. However, These positive changes could be due to > other steps I have taken that have been working to gradually improve my > circumstances. The improvements are gradual and I only seem to notice them > when I get frustrated with what I can not do and my husband points out a > date when I could not do something I currently can do with little effect. I > keep notes, but it is still hard to track, except when looking back. The > following is the full list of supplements I have taken for cognition over > the past year and what I put on the bottles so I could remember why I was > taking them. > > > > Bacopa monnieri (Brahmiu ) - enhances learning, academic performance and > improves mental ability, strengthen concentration and memory. Rejuvenates > the nervous system. > > > > huperzine A - improves short term & long term memory, cognitive function, > suppresses myasthenia gravis symptoms. ( facial ticks?) > > > > Lion's Mane - antioxidant aid in the regulation of lipid levels & in > reduction of glucose levels. Brain booster that stimulate neurons to > regrow. > > > > Vincopetine - has anti-platelet activity; memory enhancement; enhances > brain circulation & oxygen utilization; anticonvulsant; exerts > anti-oxidant effects through hydroxyl radical scavenging; benefits those > with gastric ulcers, epilepsy, tinnitus, and Meniere's > > > > Piracetam - a nootropic drug that improves intelligence and ability to > concentrate and focus seen within 30 minutes of first dose. Has beneficial > effect on blood cell deformability (red cells, white cells and platelets); > reduction in blood and plasma viscosity through an increase in cell membrane > deformability; a reduction of 30-40% in the plasma > concentrations of fibrinogen and von Willebrand's factor,; inhibition of > thromboxane synthetase or anti-thromboxane A2; treatment for Raynaud's > phenomenon; decrease appetite; helps focal brain lesions; makes you more > articulate. Can disrupt sleep > > > > When I joined the group last May, I could not get out of bed, but had made > dramatic improvements. I was no longer in the overwhelming, extreme pain I > had been in for more than a year and I was no longer disfigured with > lesions, hives, boils and cysts covering my body. The focus of strategy is > tracking people who got better whose profile is similar to mine and > attempting to extrapolate trends among them. For instance, almost all of > them incorporated walking. Most of them focused on sleep. All of them > purposefully exposed themselves to sleep. Almost all of them practice some > form of meditation or visualization to prevent triggering stress reactions. > Those were the non-medicinal commonalities. Going through past posts and > reviewing Ken's Web Site, I decided to revamp my protocol for stage two of > my recovery. I will try outline the things I have been doing for the past > year that I thinK are working. > > > > ~I rotate very high doses of natural antibiotics like Tumeric, Olive Leaf, > WormWood > > ~I did very high doses of D3 (10,000 IU) for more than nine months. My D > levels are normal. But I saw extremely dramatic changes when I first > started. I just lowered my dose to 4000 IU. > > ~I follow Pall's Protocol and Yasko Simplified Protocol with a little > from Myhill's protocol. This was by accident. As I researched, I would find > out about a supplement people said helped them, I found out about Yasko, > Pall and Myhill later and it turns out that most of these supplements were > in the two Protocols. Whatever I was missing I added if it seemed right for > me. > > > > One thing I am doing that I have not met anyone else who does it as well, is > that whenever I possible, I buy herbs in bulk form that are organic and > recently cultivated. 50% of everything I take fits in that category. I did > it for several reasons: > > 1. to lower my costs so that I could by other supplements I felt were > important. They are much cheaper > > 2. So I could try supplements that are part of trends and therefore > normally out of reach > > 3. To trying to get my nutrients from natural sources and avoid > harmful additives > > 4. I noticed the organic bulk stuff was stronger than the pills I > purchased probably because they were fresher > > The negative is I had to buy a low level professional encapsulation machine > and I do the pills myself. After 2-3 hours a week. Not so bad with a movie > or TV show. However, a year supply of turmeric is about $20. At the doses > I take it would have cost me about $300 or more for the year. > > > > Magnesium Matate and Malic Acid - without them I experience pain and facial > ticks > > > > Focusing on creating a sleep protocol. I am still tweaking this one so that > I am less groggy in the morning. But the most significant thing I did that > caused a dramatic change was increasing my intake of GABA from 1000 mg each > night to 2000- 3000 mg each night. Before doing so getting restful REM > sleep seemed almost unobtainable, since increasing in April, I sleep most > nights, even if I travel and change time zones. Other things I am tweaking > for sleep include melatonin, Valerian, kava Kava, skull cap, hops, passion > flower, and Jamaica dogwood. Some change I am doing recently has me a > little less restful and groggy in the morning, so I do not have my final > formula figured out for sleep yet. > > > > I believe the following are helping me with energy. I noticed big changes > when I added the following individually or when I run out and do not replace > them > > > > Maca, carnosine (said to help with concentration, avoid when crashing), > codonopsis, acetyl Carnitine, Cordyceps, ashwagandha > > > > Mushrooms > > Suehirotake - Schizophyllum commune - contains schizophyllan (SPG) a > polysaccharide that activates macrophages and stimulate T cells and natural > killer cells. in study 90% chronic fatigue syndrome showed significant > improvement accompanied by increased NK cell counts. > > I also rotate between Reishi and Shiitake > > > > Green/Whole Foods - I try to get nutrients naturally from whole food organic > sources. I noticed a big jump in energy and productivity when I start > buying and encapsulating the following: Acai, Barley Grass, Spirulina, Camu > camu, Rodiola, Noni, Mangosteen. They are pretty cheap purchase in bulk. I > never had them in pill form because of the cost > > > > Alka-Seltzer gold, Grape Seed Extract, Breathing into my hand- seem to > prevent me from crashing sometimes > > > > Other standouts: > > B-12 Hydroxocobalamin > > Activated Charcoal > > > > I was on high dose Probiotics course until november. There after I rotated > the following- Acidophilus & Bifidu, and saccharomyces boulardii - will > block candida in the digestive track and L. Salivarius - helps to > normalize the flora of the gut; inhibits the growth of H. pylori. I take > regular amounts of probiotics and brewer's yeast (S. cervesiae) - it blocks > candida in the digestive track > > > > I hope this helps. I take a lot of stuff and I am am always looking for > ways to cut back, but when I stop taking many of the stuff listed about, I > noticed a negative reaction. As long as I keep improving I will likely > stay on this course > > > > Tracey > > > > PS: Let me know if you need to know the cheapest sources for the any of the > items listed > > > > From: > [mailto: ] On Behalf Of rockt999 > Sent: Wednesday, July 08, 2009 1:43 PM > > Subject: Re: Piracetam, Ritalin > > > > > Thank you. Sounds very positive. Are you attributing your success to all the > supplements mentioned? Is there anything else you're doing that's helped so > much? > > Thanks. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 I need to give you an update on Piracetam. I may be discontinuing to use it starting today, despite liking it. I know this is a complete about face, so let me explain When I started taking it last summer, I had horrible sleep issues. So I did not sense that it impacted on my sleep. However, this time, my circumstances were different. In April, I read several posts and articles on taking high doses of GABA to improve sleep and raise levels of human growth hormone levels in the body. I was already taking 500-1000 mg each night and noticed it helped my sleep, but it was no silver bullet. After upping the dose to 2000-4000 mg per evening and night, My world changed. SERIOUSLY. I would fall asleep within minutes of hitting the pillow. I did not wake up in the night. If I got up to go to the bathroom or someone woke me up, most times I could fall back to sleep. I sleep through the whole night. I felt rested in the morning, I did not have dreams that exhausted me and I could take naps more readily without a struggle. I do not remember when in my life I could sleep like that. I no longer had this psychological dread of going to bed. I looked forward to it. I think it contributed significantly to my recent improvements. About a week or two ago, I noticed some small difficulties with sleep. I did not pay much attention, because I am recovering from what my husband thinks is the swine flu. I thought it was left over breathing issues. Over the past week, despite basically being over the flu, the sleep issues are increasing - just small changes. Last night I did not get to sleep until 3:00 am. However, once there I slept soundly. Normally, this would not be a big deal, but since April, this is abnormal. I recently purchased Piracetam and started taking it about two weeks ago. I never put my label on it. Yesterday, when I posted the information from my label yesterday, I noticed that it said it can disrupt sleep. Over the past month, I have made three changes to my routine. I replaced B6 with P-5-P which is a coemzyme form of B6. I added a coemzymated form of B2 Riboflavin. And I started taking Piracetam again. I think it is the Piracetam that is affecting my sleep. I think increased sleep which has coincided with a rise in my growth hormone levels is part of the reason for my ability to work almost full-time and regularly exercise. Losing sleep could seriously set back my recovery. So I am off of it, at least for now. I may revisit taking it in the mornings only after I get it out of my system. So be warned that it really could affect your sleep. Tracey {Moderator: Trimmed post} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Teewinot <teewinot13@...> wrote: > brain fog. Ginkgo biloba, CoQ-10, and > bilberry cured mine. > > Jeri <teewinot13@...> Ginkgo is a vasodilator and lowers BP, very weakening for about half the people who take it. My father and I were both severely weakened from the first dose. The other half of people for whom it does work may have needed the increased vasodilation. COQ10 and bilberry are not known for cognitive effects but usually have many other positives for the system. You have have discovered a new synergy, that if ginkgo works, then adding the other two may make it even better. Carol W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 I'd look at optimizing all aspects of thyroid and other hormones before doing stimulant meds or substances. The other may still be needed later, but likely in smaller amounts. Carol W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Thanks for your input Carol. I just had T3 and T4 tested and the levels are normal. However, my temperature is always a degree or so low and my brain fog is bad. I would like to try the 's Temperature Syndrome T3 treatment - I have about 10 of the symptoms listed on the WTS site and it kind of seems to make sense... but who knows... Currently being treated with doxycycline, 300 mg/day for mycoplasma pneumoniae. Antibody titer is odwn to about half of where it started, but still feel really crappy. > > I'd look at optimizing all aspects of thyroid and other > hormones before doing stimulant meds or substances. > The other may still be needed later, but likely in smaller amounts. > > Carol W. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Over the years I have bought supplement dispensing containers, that have 7 sections--------I label " awakening " " Breakfast " and so on--------I have 14-------I fill them all every two weeks-------keeps me on schedule and allows me to reorder new supply. I use to find them at Wal-mart---not there anymore-------but if you Goggle pill boxes, and such their out there, for approximately $3 to $4 dollars each. They are approximately 3 x 8 inches, fit in purse for travel. Be sure to wait a few days in between adding new supplements to see how your body reacts----sometimes a week is best. God Bless, Sara > > > > Yes. There are times when I do not take them like after a crash and I > > notice a loss of cognitive abilities. I added them to my regimen slowly so > > that I could track changes. However, These positive changes could be due to > > other steps I have taken that have been working to gradually improve my > > circumstances. The improvements are gradual and I only seem to notice them > > when I get frustrated with what I can not do and my husband points out a > > date when I could not do something I currently can do with little effect. I > > keep notes, but it is still hard to track, except when looking back. The > > following is the full list of supplements I have taken for cognition over > > the past year and what I put on the bottles so I could remember why I was > > taking them. > > > > > > > > Bacopa monnieri (Brahmiu ) - enhances learning, academic performance and > > improves mental ability, strengthen concentration and memory. Rejuvenates > > the nervous system. > > > > > > > > huperzine A - improves short term & long term memory, cognitive function, > > suppresses myasthenia gravis symptoms. ( facial ticks?) > > > > > > > > Lion's Mane - antioxidant aid in the regulation of lipid levels & in > > reduction of glucose levels. Brain booster that stimulate neurons to > > regrow. > > > > > > > > Vincopetine - has anti-platelet activity; memory enhancement; enhances > > brain circulation & oxygen utilization; anticonvulsant; exerts > > anti-oxidant effects through hydroxyl radical scavenging; benefits those > > with gastric ulcers, epilepsy, tinnitus, and Meniere's > > > > > > > > Piracetam - a nootropic drug that improves intelligence and ability to > > concentrate and focus seen within 30 minutes of first dose. Has beneficial > > effect on blood cell deformability (red cells, white cells and platelets); > > reduction in blood and plasma viscosity through an increase in cell membrane > > deformability; a reduction of 30-40% in the plasma > > concentrations of fibrinogen and von Willebrand's factor,; inhibition of > > thromboxane synthetase or anti-thromboxane A2; treatment for Raynaud's > > phenomenon; decrease appetite; helps focal brain lesions; makes you more > > articulate. Can disrupt sleep > > > > > > > > When I joined the group last May, I could not get out of bed, but had made > > dramatic improvements. I was no longer in the overwhelming, extreme pain I > > had been in for more than a year and I was no longer disfigured with > > lesions, hives, boils and cysts covering my body. The focus of strategy is > > tracking people who got better whose profile is similar to mine and > > attempting to extrapolate trends among them. For instance, almost all of > > them incorporated walking. Most of them focused on sleep. All of them > > purposefully exposed themselves to sleep. Almost all of them practice some > > form of meditation or visualization to prevent triggering stress reactions. > > Those were the non-medicinal commonalities. Going through past posts and > > reviewing Ken's Web Site, I decided to revamp my protocol for stage two of > > my recovery. I will try outline the things I have been doing for the past > > year that I thinK are working. > > > > > > > > ~I rotate very high doses of natural antibiotics like Tumeric, Olive Leaf, > > WormWood > > > > ~I did very high doses of D3 (10,000 IU) for more than nine months. My D > > levels are normal. But I saw extremely dramatic changes when I first > > started. I just lowered my dose to 4000 IU. > > > > ~I follow Pall's Protocol and Yasko Simplified Protocol with a little > > from Myhill's protocol. This was by accident. As I researched, I would find > > out about a supplement people said helped them, I found out about Yasko, > > Pall and Myhill later and it turns out that most of these supplements were > > in the two Protocols. Whatever I was missing I added if it seemed right for > > me. > > > > > > > > One thing I am doing that I have not met anyone else who does it as well, is > > that whenever I possible, I buy herbs in bulk form that are organic and > > recently cultivated. 50% of everything I take fits in that category. I did > > it for several reasons: > > > > 1. to lower my costs so that I could by other supplements I felt were > > important. They are much cheaper > > > > 2. So I could try supplements that are part of trends and therefore > > normally out of reach > > > > 3. To trying to get my nutrients from natural sources and avoid > > harmful additives > > > > 4. I noticed the organic bulk stuff was stronger than the pills I > > purchased probably because they were fresher > > > > The negative is I had to buy a low level professional encapsulation machine > > and I do the pills myself. After 2-3 hours a week. Not so bad with a movie > > or TV show. However, a year supply of turmeric is about $20. At the doses > > I take it would have cost me about $300 or more for the year. > > > > > > > > Magnesium Matate and Malic Acid - without them I experience pain and facial > > ticks > > > > > > > > Focusing on creating a sleep protocol. I am still tweaking this one so that > > I am less groggy in the morning. But the most significant thing I did that > > caused a dramatic change was increasing my intake of GABA from 1000 mg each > > night to 2000- 3000 mg each night. Before doing so getting restful REM > > sleep seemed almost unobtainable, since increasing in April, I sleep most > > nights, even if I travel and change time zones. Other things I am tweaking > > for sleep include melatonin, Valerian, kava Kava, skull cap, hops, passion > > flower, and Jamaica dogwood. Some change I am doing recently has me a > > little less restful and groggy in the morning, so I do not have my final > > formula figured out for sleep yet. > > > > > > > > I believe the following are helping me with energy. I noticed big changes > > when I added the following individually or when I run out and do not replace > > them > > > > > > > > Maca, carnosine (said to help with concentration, avoid when crashing), > > codonopsis, acetyl Carnitine, Cordyceps, ashwagandha > > > > > > > > Mushrooms > > > > Suehirotake - Schizophyllum commune - contains schizophyllan (SPG) a > > polysaccharide that activates macrophages and stimulate T cells and natural > > killer cells. in study 90% chronic fatigue syndrome showed significant > > improvement accompanied by increased NK cell counts. > > > > I also rotate between Reishi and Shiitake > > > > > > > > Green/Whole Foods - I try to get nutrients naturally from whole food organic > > sources. I noticed a big jump in energy and productivity when I start > > buying and encapsulating the following: Acai, Barley Grass, Spirulina, Camu > > camu, Rodiola, Noni, Mangosteen. They are pretty cheap purchase in bulk. I > > never had them in pill form because of the cost > > > > > > > > Alka-Seltzer gold, Grape Seed Extract, Breathing into my hand- seem to > > prevent me from crashing sometimes > > > > > > > > Other standouts: > > > > B-12 Hydroxocobalamin > > > > Activated Charcoal > > > > > > > > I was on high dose Probiotics course until november. There after I rotated > > the following- Acidophilus & Bifidu, and saccharomyces boulardii - will > > block candida in the digestive track and L. Salivarius - helps to > > normalize the flora of the gut; inhibits the growth of H. pylori. I take > > regular amounts of probiotics and brewer's yeast (S. cervesiae) - it blocks > > candida in the digestive track > > > > > > > > I hope this helps. I take a lot of stuff and I am am always looking for > > ways to cut back, but when I stop taking many of the stuff listed about, I > > noticed a negative reaction. As long as I keep improving I will likely > > stay on this course > > > > > > > > Tracey > > > > > > > > PS: Let me know if you need to know the cheapest sources for the any of the > > items listed > > > > > > > > From: > > [mailto: ] On Behalf Of rockt999 > > Sent: Wednesday, July 08, 2009 1:43 PM > > > > Subject: Re: Piracetam, Ritalin > > > > > > > > > > Thank you. Sounds very positive. Are you attributing your success to all the > > supplements mentioned? Is there anything else you're doing that's helped so > > much? > > > > Thanks. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 A few years ago, I read info on 's Syndrome and thought the treatment might help get my body temp back to normal. Like you, my T3 & T4 levels tested normal but because I had most of the WTS symptoms, I tried the treatment. On the 10th day my blood pressure elevated to 198 over 130, my pulse raced, and I was taken to emergency. I had to take blood pressure medication for almost 2 years and was then able to wean myself off of it. And my pulse raced at the slightest exhertion for months after trying the WTS protocal. I concluded from my reaction that it's not only important to have some of the 's Syndrome symptoms it's important to actually have 's syndrome. My body temp ran 97.1-97.7, lower when I was bed ridden since CFS onset. Since my first stem cell treatment, it's now 98.something daily. Not always a perfect 98.6 but close.   ________________________________ From: rockt999 <ricor@...> Sent: Friday, July 10, 2009 7:53:38 AM Subject: Re: Piracetam, Ritalin Thanks for your input Carol. I just had T3 and T4 tested and the levels are normal. However, my temperature is always a degree or so low and my brain fog is bad. I would like to try the 's Temperature Syndrome T3 treatment - I have about 10 of the symptoms listed on the WTS site and it kind of seems to make sense... but who knows... Currently being treated with doxycycline, 300 mg/day for mycoplasma pneumoniae. Antibody titer is odwn to about half of where it started, but still feel really crappy. > > I'd look at optimizing all aspects of thyroid and other > hormones before doing stimulant meds or substances. > The other may still be needed later, but likely in smaller amounts. > > Carol W. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 I was treated for 's Syndrome and the protocol is not easy. I did the protocol about 5-6 times over a couple of years and it never captured a normal temperature for me. I gave up on it. Iodoral and Armour have helped my thyroid issues. Also have you had your reverse T3 tested? Here's a good article on RT3 dominance. http://www.custommedicine.com.au/blog/2007/04/17/reverse-t3-dominance/ This article offers a different way to address 's syndrome. But try iodine first. (Iodoral) http://optimox.com/pics/Iodine/opt_Research_I.shtml in Albuquerque _____ From: [mailto: ] On Behalf Of rockt999 Sent: Friday, July 10, 2009 7:54 AM Subject: Re: Piracetam, Ritalin Thanks for your input Carol. I just had T3 and T4 tested and the levels are normal. However, my temperature is always a degree or so low and my brain fog is bad. I would like to try the 's Temperature Syndrome T3 treatment - I have about 10 of the symptoms listed on the WTS site and it kind of seems to make sense... but who knows... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 My Temperature has risen from an average of 96.5 (going as low as 95.7) to an average of 97.5 going as high as 99.1 in 2 months from taking B-12 (Hydroxocobalamin) and FolaPro From Yasko's Simplified Protocol. I saw my temperature go up within the first two weeks of trying the protocol. . I read s first Books, and scoured the Internet for patient stories. The results from 's protocol seem more mixed. From: [mailto: ] On Behalf Of Beck Sent: Friday, July 10, 2009 9:43 AM Subject: RE: Re: Piracetam, Ritalin I was treated for 's Syndrome and the protocol is not easy. I did the protocol about 5-6 times over a couple of years and it never captured a normal temperature for me. I gave up on it. Iodoral and Armour have helped my thyroid issues. Also have you had your reverse T3 tested? Here's a good article on RT3 dominance. http://www.custommedicine.com.au/blog/2007/04/17/reverse-t3-dominance/ This article offers a different way to address 's syndrome. But try iodine first. (Iodoral) http://optimox.com/pics/Iodine/opt_Research_I.shtml in Albuquerque Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 My 'normal' at least for me normal, body temperature is 95.1, sometimes as low as 94.5 but overall it's in the low 95's. My reverse Trii was 544 with a reference range 90-350 pg/ml. I have a T3 and T4 within the reference range but have no measurable DHEA. It's suppose to be 15-170 mcg/dl but they couldn't get a number so it's <15. I've tried almost everything in 's book, but most of the time I became really depressed and even suicidal. Anything that alters my hormones and thus my serotonin causes me to become suicidal. It took me a while to convince MD's that that really was the case, because as you know they all try to push every anti-depressant that is ever produced on people with ME/CFIDS or with FMS to make you sleep better, as they say. I've been through hell and back when I didn't know any better than to go with what they told me. Once I've read and researched Serotonin Syndrome I knew what was causing my horrible dark and dangerous moods and thoughts. Still it took a whole lot of talking and showing papers and still they didn't believe me, so tied up in their 'so by the book' system. I almost ended up being submitted to a mental hospital. It wasn't until 2 years ago when I went to the FFC that my new physician immediately believed me and we did the genetic test, the results came back loud and clear, that anything that will alter my serotonin will cause me serious problems. After a long and dangerous fight I had finally proof that I was not crazy or did too much research online according to other dr's. As one put it, women shouldn't go online to research their illness, that's what dr's are for, it only causes disagreements and arguments. Like being back into the 50's. ;-) The problem with the low temp is also that when I have a fever the thermometer show's 97.5 or 98. to dr's that's a normal temp but I know I have a fever. -- Portland, OR On Jul 10, 2009, at 9:25 AM, Kay Siegrist wrote: > My body temp ran 97.1-97.7, lower when I was bed ridden since CFS > onset. Since my first stem cell treatment, it's now 98.something > daily. Not always a perfect 98.6 but close. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 Have you felt better since this change? > > > > My Temperature has risen from an average of 96.5 (going as low as 95.7) to > an average of 97.5 going as high as 99.1 in 2 months from taking B-12 > (Hydroxocobalamin) and FolaPro From Yasko's Simplified Protocol. I saw my > temperature go up within the first two weeks of trying the protocol. . > > > > I read s first Books, and scoured the Internet for patient stories. > The results from 's protocol seem more mixed. > > From: > [mailto: ] On Behalf Of Beck > Sent: Friday, July 10, 2009 9:43 AM > > Subject: RE: Re: Piracetam, Ritalin > > > > I was treated for 's Syndrome and the protocol is not easy. I did the > protocol about 5-6 times over a couple of years and it never captured a > normal temperature for me. I gave up on it. > Iodoral and Armour have helped my thyroid issues. > Also have you had your reverse T3 tested? Here's a good article on RT3 > dominance. > http://www.custommedicine.com.au/blog/2007/04/17/reverse-t3-dominance/ > This article offers a different way to address 's syndrome. > But try iodine first. (Iodoral) > http://optimox.com/pics/Iodine/opt_Research_I.shtml > in Albuquerque > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 Bought some Gaba yesterday. Took a 500mg capsule, (that's the largest dose the store had - " Now " brand), after lunch and had a great afternoon nap. Took another 500mg at bedtime, (along with my regular melatonin, 200mg 5-HTP and .5mg clonazepam), and slept great... for about 4.5 hours. Then I was wide awake. Finally took another 500mg at about 6 a.m. and slept/napped another 2 hours, but I fell pretty beat this morning. Do you take the the whole higher dose, (2000-4000mg) just before bed and do you know of a brand with higher dose capsules, so you don't have to take so many? Thanks. > > I need to give you an update on Piracetam. I may be discontinuing to use it > starting today, despite liking it. I know this is a complete about face, > so let me explain > > > > When I started taking it last summer, I had horrible sleep issues. So I did > not sense that it impacted on my sleep. However, this time, my > circumstances were different. > > > > In April, I read several posts and articles on taking high doses of GABA to > improve sleep and raise levels of human growth hormone levels in the body. > I was already taking 500-1000 mg each night and noticed it helped my sleep, > but it was no silver bullet. After upping the dose to 2000-4000 mg per > evening and night, My world changed. SERIOUSLY. I would fall asleep within > minutes of hitting the pillow. I did not wake up in the night. If I got up > to go to the bathroom or someone woke me up, most times I could fall back to > sleep. I sleep through the whole night. I felt rested in the morning, I > did not have dreams that exhausted me and I could take naps more readily > without a struggle. I do not remember when in my life I could sleep like > that. I no longer had this psychological dread of going to bed. I looked > forward to it. I think it contributed significantly to my recent > improvements. > > > > About a week or two ago, I noticed some small difficulties with sleep. I > did not pay much attention, because I am recovering from what my husband > thinks is the swine flu. I thought it was left over breathing issues. > Over the past week, despite basically being over the flu, the sleep issues > are increasing - just small changes. Last night I did not get to sleep > until 3:00 am. However, once there I slept soundly. Normally, this would > not be a big deal, but since April, this is abnormal. > > > > I recently purchased Piracetam and started taking it about two weeks ago. I > never put my label on it. Yesterday, when I posted the information from my > label yesterday, I noticed that it said it can disrupt sleep. Over the past > month, I have made three changes to my routine. I replaced B6 with P-5-P > which is a coemzyme form of B6. I added a coemzymated form of B2 > Riboflavin. And I started taking Piracetam again. I think it is the > Piracetam that is affecting my sleep. > > > > I think increased sleep which has coincided with a rise in my growth hormone > levels is part of the reason for my ability to work almost full-time and > regularly exercise. Losing sleep could seriously set back my recovery. So > I am off of it, at least for now. I may revisit taking it in the mornings > only after I get it out of my system. > > > > So be warned that it really could affect your sleep. > > > > Tracey > > > > > {Moderator: Trimmed post} > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 Have you ever tried magnesium oil for increasing DHEA? It definitely raised my levels over a couple of months of applying it daily. Dr Norman Shealy says it is the only natural way to raise DHEA levels. in Albuquerque _____ From: [mailto: ] On Behalf Of Tink Sent: Saturday, July 11, 2009 12:25 AM Subject: Re: Re: Piracetam, Ritalin My 'normal' at least for me normal, body temperature is 95.1, sometimes as low as 94.5 but overall it's in the low 95's. My reverse Trii was 544 with a reference range 90-350 pg/ml. I have a T3 and T4 within the reference range but have no measurable DHEA. It's suppose to be 15-170 mcg/dl but they couldn't get a number so it's <15. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 A couple of positive changes have taken place since starting Yasko Simplified in April. 1. I have gained almost 40 pounds in the past year and a half. I could not stop it. I do not even have that much of an appetite, but I gain anyway. Since then, I can lose a little, but I mostly I am no longer gaining, ( except on 4th of July weekend). Before the temperature rise I could eat on more than 500 - 600 calories per day if I wanted to maintain. I think I can now maintain at 700-800 calories and even loose a little at that level. It does not sound great, but it is an improvement. If I eat more say once in a week, I do not necessarily gain. That was not the case prior to doing the Yasko Simplified Protocol 2. When I first started the Yasko Simplified Protocol I was comfortably working about 2-4 hours a day and exercising 3 days a week. I had to rest an hour for every two ours of work I did. Right now I am working about 6-8 hours a day and I work out ( no aerobics- yoga and weight lifting) about 4-5 days a week. I feel less tired and I have fewer days with brain fog. Also there were more times when I felt I was in danger of crashing from doing to much. Now that does not happen. Let me stress, That I might be also just getting better at recognizing the signs and pulling back on activities in time to prevent as crash. I'm not sure. I could be a combination of both. 3. I can do more complex activities, and do them more quickly than say three months ago. I've been afraid to have business conversations and meetings on the phone, because of the fog. However, recently , they have been going well. Let me stress, that I think that 2,000 - 3,000 mg of GABA is also having a major impact as well. I have not slept deeply through the night in over three years since I first got sick. Now I do most nights. So I think it is it both strategies that are bringing about the most recent positive changes I have been experiencing lately. Tracey From: [mailto: ] On Behalf Of rockt999 Sent: Saturday, July 11, 2009 5:58 AM Subject: Re: Piracetam, Ritalin Have you felt better since this change >My Temperature has risen from an average of 96.5 (going as low as 95.7) to > an average of 97.5 going as high as 99.1 in 2 months from taking B-12 > (Hydroxocobalamin) and FolaPro From Yasko's Simplified Protocol. I saw my > temperature go up within the first two weeks of trying the protocol. . > Quote Link to comment Share on other sites More sharing options...
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