Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 , Personally, I think that exactly what you proposed may very well be the case. Dr. Cheney told me that some of us (moi) are " living on Adrenaline " . We or our bodies, in various ways have found ways to make the heart pump, therefore, we are upright more than others. (I was not upright tho, for many years, average 20 hours a day). In this forced pumping way, we " feel better " , appear to be functioning more. Yet the erratic forcing of irregular blood flow is causing more injury and disability in others ways, than those horizontal, with lower cardiac output.. They (the symptoms of CFS, causing need to lie down) are actually protecting the heart and body from other damage, and heart failure. Improved Cardiac output definitely helps " mood " , meaning just helps the brain to work, period! Try putting your feet up and see if your mind feels clearer and relieved. Check out the prior 97 Cardiomyopathy post for what may be happening post-exertion. Not for the faint of " heart " , pardon the pun. Of course, Chocolate also has other elements, including antioxidents and mood elevation. Look up chocolate and mood or " in love " chemical. That part sounds funny, or bogus, but has been written about alot. The Aztecs also used it for various healing properties. Katrina > > Hi all. > > Well I do. > > My problem is that as soon as I eat chocolate my heart rate will > increase and I start to feel a lot better. My mood improves to a high > degree and I feel like having more energy. However if I continue to > eat chocolate on the second day my heart will stay increased and I > will kind of crash. I feel burned out then and since I'm kind of > intolerant to all foods and sugars my skin will get very itchy my > eyes will get red. I don't think that my skin gets itchy because of > an allergic reactions I'm quite sure that it has to do with the > increased heart rate because it's always the same, day 1 great, day 2 > worse + itching. > > I don't know what I should think about it. Chocolate works for me > nearly the same as Cymbalta (I only take one tablet per month). > Perhaps it's the neurotransmitters? > > The important thing is that every time my heart rate is normal for > some days I feel kind of as I always do. Low energy, average mood, > nothing positive. As soon as my heart rate increases my mood gets > very good and my energy levels increase. > Could I have reduced cardiac output or hypercoagulation or impaired > circulation so every time my heart rate increases but whole > body/brain gets supplied with more nutrients and oxygen but because > my heart needs a lot of energy for pumping I crash on the second day? > > Does anyone have similar experiences? > > Greets > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Katrina, the aspect of low cardiac output, impaired circulation and hypercoagulation caught my attention. In some month I will test for hypercoagulation via Hemex. I found this interesting abstract on Phoenix: http://phoenix-cfs.org/IACFS07Lappe.htm It would explain how at least my brain feels most of the time although I have no pain. " Doctors from Barcelona, Spain, and Santiago, Chile, presented their results of SPECT scanning in PWCs compared to patients with depression. Dr. -Quintana showed that cerebral blood flow is decreased in the frontal lobes (only) of depressed patients, but reduced in frontal lobes and brainstem in PWCs. PWCs also have an increase of blood flow in the thalamus (a pain control center). Following exercise (or mental strain such as puzzles, short stories, or cubing numbers) the cerebral blood flow was markedly decreased in frontal, pre-frontal, anterior temporal, and cingulated regions in more than 87% of subjects studied. Increased blood levels of the enzymes elastace and RNaseL correlated with more severe loss of cerebral blood flow. Comment: This is old news, but confirms previous studies in the US. We have known for over a decade that frontal, temporal lobe, and brainstem blood flow is reduced in PWCs, which is thought to cause problems with creativity/motivation/memory (frontal lobes), mood and memory (temporal lobes), and the sleep/fatigue/autonomic centers of the brainstem. We also knew that both exercise and mental exertion exacerbate this reduced blood flow for up to 72 hours! The new twist is that elevated elastase and RNaseL levels correlate with reduced blood flow. " I have increased RNase and Elastase myself. > > > , > > Personally, I think that exactly what you proposed may very well be the case. > > Dr. Cheney told me that some of us (moi) are " living on Adrenaline " . We or our bodies, in various ways have found ways to make the heart pump, therefore, we are upright more than others. (I was not upright tho, for many years, average 20 hours a day). > > In this forced pumping way, we " feel better " , appear to be functioning more. Yet the erratic forcing of irregular blood flow is causing more injury and disability in others ways, than those horizontal, with lower cardiac output.. They (the symptoms of CFS, causing need to lie down) are actually protecting the heart and body from other damage, and heart failure. > > Improved Cardiac output definitely helps " mood " , meaning just helps the brain to work, period! Try putting your feet up and see if your mind feels clearer and relieved. > > Check out the prior 97 Cardiomyopathy post for what may be happening post-exertion. Not for the faint of " heart " , pardon the pun. > > Of course, Chocolate also has other elements, including antioxidents and mood elevation. Look up chocolate and mood or " in love " chemical. That part sounds funny, or bogus, but has been written about alot. The Aztecs also used it for various healing properties. > > Katrina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Dear Manual, I have exactly the same experience as you, with regards to chocolate. After eating some, I feel slightly high, rush about busily, and then crash for a few hours or days.. I don't know much about the biochemistry, but I do know that chocolate contains, caffeine, dairy (unless its dark) and sugar. If I eat any of those substances on there own, I get the same response as if I had eaten chocolate. Blood tests have shown that I have a dairy sensitivity (so if I eat dairy, my body releases adrenaline and it gives me a temporary high.) Caffeine sends me to the moon, and sugar makes me feel jittery. So combining them all into chocolate is enough to make me blissfully high and then crash hard. However if I then add in the consequences of using the energy that has been created by the high, causing a " boom " in activity, it is not surprising that I then go " bust " for a period of time. A big part of my CFS management has been in learning to avoid the foods, people or stimulating situations, that cause my body to release adrenaline. Although I do miss chocolate(!) I have come to the conclusion that the losses from the bust, far out way the gains from the boom... If you add into this the theory that some people with CFS have adrenal burnout, then it becomes even more important to avoid things that put pressure on our adrenals (like caffeine...) A friend of mine is currently manging his CFS using caffine tablets.. Its sad watching him becoming more and more ill as a result. Mmmm Easter eggs, chocolate bunnies... I do miss chocolate! Grin. Tansy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Dear Tansy, I have nearly the same experiences. I have problems with so many foods. At the moment I'm down to rice+meat+olive oil It's really scary and maybe you are right perhaps it's the adrenaline that pushes me. I also crash on the 2nd day. I really don't know what to do or where our problem lies. Leaky gut because of impaired circulation or immune dysfunction? I don't know. > > Dear Manual, > > I have exactly the same experience as you, with regards to > chocolate. After eating some, I feel slightly high, rush about > busily, and then crash for a few hours or days.. I don't know much > about the biochemistry, but I do know that chocolate contains, > caffeine, dairy (unless its dark) and sugar. If I eat any of those > substances on there own, I get the same response as if I had eaten > chocolate. Blood tests have shown that I have a dairy sensitivity > (so if I eat dairy, my body releases adrenaline and it gives me a > temporary high.) Caffeine sends me to the moon, and sugar makes me > feel jittery. So combining them all into chocolate is enough to make > me blissfully high and then crash hard. However if I then add in the > consequences of using the energy that has been created by the high, > causing a " boom " in activity, it is not surprising that I then > go " bust " for a period of time. A big part of my CFS management has > been in learning to avoid the foods, people or stimulating > situations, that cause my body to release adrenaline. Although I do > miss chocolate(!) I have come to the conclusion that the losses from > the bust, far out way the gains from the boom... If you add into > this the theory that some people with CFS have adrenal burnout, then > it becomes even more important to avoid things that put pressure on > our adrenals (like caffeine...) > > A friend of mine is currently manging his CFS using caffine > tablets.. Its sad watching him becoming more and more ill as a > result. > > Mmmm Easter eggs, chocolate bunnies... I do miss chocolate! > > Grin. > > Tansy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 I just happened to be researching some info on histamine this morning. I discovered that chocolate is one of the foods that raises histamine. This could tie in with being an undermethylator.............?? Sharon M Feeling better with increased heart rate? > Hi all. > > Well I do. > > My problem is that as soon as I eat chocolate my heart rate will > increase and I start to feel a lot better. My mood improves to a high > degree and I feel like having more energy. However if I continue to > eat chocolate on the second day my heart will stay increased and I > will kind of crash. I feel burned out then and since I'm kind of > intolerant to all foods and sugars my skin will get very itchy my > eyes will get red. I don't think that my skin gets itchy because of > an allergic reactions I'm quite sure that it has to do with the > increased heart rate because it's always the same, day 1 great, day 2 > worse + itching. > > I don't know what I should think about it. Chocolate works for me > nearly the same as Cymbalta (I only take one tablet per month). > Perhaps it's the neurotransmitters? > > The important thing is that every time my heart rate is normal for > some days I feel kind of as I always do. Low energy, average mood, > nothing positive. As soon as my heart rate increases my mood gets > very good and my energy levels increase. > Could I have reduced cardiac output or hypercoagulation or impaired > circulation so every time my heart rate increases but whole > body/brain gets supplied with more nutrients and oxygen but because > my heart needs a lot of energy for pumping I crash on the second day? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Dear Manual, Well the first thing I would like to give you is a little hope! After four years of CFS, I am now well on the way to recovery.. I can now do four hours of activity a day, including 2 15 minute brisk walks. My partner also had CFS, and masses of food sensitivities, and is now back at work and ridding our horse regurarly. So it is possible to find our way through this... My partners recovery was based on excluding foods he is sensitive to, and using Nyastatin for three months to kill off his candida infection. My recovery is coming along, based on Multiple Chemical Sensitivity. I had high pesticide levels in my body, masses of food sensitivities, plus a sensitivity to mould gas and to gas cooker exhaust. So by changing my cooker, and moving out of a space full of mould, I am now feeling fine. The only thing that is limiting me now is a massive loss of muscle condition. So I am on a graded exercise program and very gently increasing my activity. I also have been on Dr Myhill's protocol for 2 years. Includig Mg injections and sublingual B12. www.drmyhill.co.uk So there is hope! My own pet theory is that I have had multiple chemical sensitivity all my life, but when I moved into a mould infested caravan, the reaction to mould gas made the sensitivities more acute. As a result my mitochondria began to work less well, so I began to rely on my adrenals. Then my adrenals packed up and I finally collapsed. By removing the underlying sensitivity reactions, my mitochondria are beginning to work again, and I am coming back to life... Just a small question, if you are excluding dairy are you also excluding beef? Sometimes people who can't have cow dairy, are also sensitive to beef. Your diet list does not seem to include vegetables, are you sensitive to vegetables (or do you just not like them!)? Have you tried organic, as it could be the pesticide residues that you are reacting to? Good luck in finding the pieces of your own CFS jigsaw puzzle. Best wishes Tansy > > Dear Tansy, > > I have nearly the same experiences. I have problems with so many > foods. At the moment I'm down to rice+meat+olive oil > It's really scary and maybe you are right perhaps it's the adrenaline > that pushes me. I also crash on the 2nd day. > I really don't know what to do or where our problem lies. Leaky gut > because of impaired circulation or immune dysfunction? I don't know. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 tansy any advice how to quit chocolate? i hve tried for years, caffeine too, i did quit coffee like 18 years ago but still like black tea. anyway, i feel like i am going nuts if i go too many days without either,the lethargy and anhedoni gets unbearable? but the roller coaster on is no picnic either. > > > > Dear Manual, > > > > I have exactly the same experience as you, with regards to > > chocolate. After eating some, I feel slightly high, rush about > > busily, and then crash for a few hours or days.. I don't know much > > about the biochemistry, but I do know that chocolate contains, > > caffeine, dairy (unless its dark) and sugar. If I eat any of those > > substances on there own, I get the same response as if I had eaten > > chocolate. Blood tests have shown that I have a dairy sensitivity > > (so if I eat dairy, my body releases adrenaline and it gives me a > > temporary high.) Caffeine sends me to the moon, and sugar makes me > > feel jittery. So combining them all into chocolate is enough to > make > > me blissfully high and then crash hard. However if I then add in > the > > consequences of using the energy that has been created by the high, > > causing a " boom " in activity, it is not surprising that I then > > go " bust " for a period of time. A big part of my CFS management has > > been in learning to avoid the foods, people or stimulating > > situations, that cause my body to release adrenaline. Although I do > > miss chocolate(!) I have come to the conclusion that the losses > from > > the bust, far out way the gains from the boom... If you add into > > this the theory that some people with CFS have adrenal burnout, > then > > it becomes even more important to avoid things that put pressure on > > our adrenals (like caffeine...) > > > > A friend of mine is currently manging his CFS using caffine > > tablets.. Its sad watching him becoming more and more ill as a > > result. > > > > Mmmm Easter eggs, chocolate bunnies... I do miss chocolate! > > > > Grin. > > > > Tansy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Thanks for your answer Tansy. I have a fructose malabsorption like nearly 50% of all PWCs according to Prof De Meirleir have. Moreover I suffer from a great Th2 shift. My Total IgE are above 8.000 with norm being under 100. I'm intolerant to nearly all foods and vegetables most of the time cause problems. Good to hear that you and your husband are doing better. I will take a look at mold issues. Greets > > Dear Manual, > > Well the first thing I would like to give you is a little hope! > After four years of CFS, I am now well on the way to recovery.. I > can now do four hours of activity a day, including 2 15 minute brisk > walks. My partner also had CFS, and masses of food sensitivities, > and is now back at work and ridding our horse regurarly. So it is > possible to find our way through this... > > My partners recovery was based on excluding foods he is sensitive to, > and using Nyastatin for three months to kill off his candida > infection. My recovery is coming along, based on Multiple Chemical > Sensitivity. I had high pesticide levels in my body, masses of food > sensitivities, plus a sensitivity to mould gas and to gas cooker > exhaust. So by changing my cooker, and moving out of a space full of > mould, I am now feeling fine. The only thing that is limiting me now > is a massive loss of muscle condition. So I am on a graded exercise > program and very gently increasing my activity. > > I also have been on Dr Myhill's protocol for 2 years. Includig Mg > injections and sublingual B12. www.drmyhill.co.uk > > So there is hope! > > My own pet theory is that I have had multiple chemical sensitivity > all my life, but when I moved into a mould infested caravan, the > reaction to mould gas made the sensitivities more acute. As a result > my mitochondria began to work less well, so I began to rely on my > adrenals. Then my adrenals packed up and I finally collapsed. By > removing the underlying sensitivity reactions, my mitochondria are > beginning to work again, and I am coming back to life... > > Just a small question, if you are excluding dairy are you also > excluding beef? Sometimes people who can't have cow dairy, are also > sensitive to beef. Your diet list does not seem to include > vegetables, are you sensitive to vegetables (or do you just not like > them!)? Have you tried organic, as it could be the pesticide > residues that you are reacting to? > > Good luck in finding the pieces of your own CFS jigsaw puzzle. > > Best wishes > > Tansy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Dear , I've not come across fructose malabsorption, I must read some of Prof De Meirleir's work. I am sorry I didn't mean to be flippant about you not eating any fruit and veg, your strict diet must be terribly life limiting and stressful for you. I have to exclude about 30 foods and find that bad enough. But it really has helped, so I hope you are getting the benefits too. Again I am no expert on mould, but my own experience is that I am sensitive to the presence of active growing mould, that is releasing its respiratory gases, rather than the mould spores that are normally present in the air. Some people have to live in houses with an air filter to remove the spores, but I am fine, so long as there is no mould growing in the house I am in. It also seems to take 4 days for me to react to it. Some people are instant, or a few hours later, but it takes a few days for me to become sick. Best of luck and best wishes Tansy > Thanks for your answer Tansy. I have a fructose malabsorption like > nearly 50% of all PWCs according to Prof De Meirleir have. Moreover I > suffer from a great Th2 shift. My Total IgE are above 8.000 with norm > being under 100. I'm intolerant to nearly all foods and vegetables > most of the time cause problems. > Good to hear that you and your husband are doing better. I will take > a look at mold issues. > > Greets > > > Quote Link to comment Share on other sites More sharing options...
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