Adverse Reaction Question

[Guest guest]

Hi Everyone,

I posted last week with our story. Vax on the 13th (I compromised by

delaying vax...sorry I did now, but hindsight is 20/20) & my son is continuing

to have seizures. (he has a genetic seizure disorder anyhow, but these are " new "

seizures, a new type. My question is this....and I'm not entire sure how to

phrase it, but hopefully someone will understand what I'm trying to ask...His

shots were 2 weeks ago. If this is an encephalopathy, how long will said damage

take to show up on an MRI. With the number of seizures he is having (this

increase in seizures despite increases in ALL of his regular seizure meds PLUS

adding a benzodiazapine & STILL having sz), I'm frankly preparing myself for the

news of permanent damage. I can type that now without sobbing, but the thought

that I allowed them to do this to my son, and allowed myself to be pressured

into this...well, its more than I can or want to deal right now...but no

choice...SO...if this is some kind of physical

damage...is this taking place like right now (a progressive type of thing) or

is this a static, damage is already done, not gonna get worse type of thing or

is it a " gonna get worse for the time being but will eventually stop

progressing " type of thing...I truly don't know what to expect, but am praying

for the best & preparing for the worst with this, but I need to know what is

reasonable to expect from the neurologist at this point (the pediatricians are

now out of the picture and are glad to be rid of me for the time being, they

weren't doing anything but saying he had a cold anyhow...yeah, a cold, that

started two hours after shots, complete with very high fever, no sneezing,

coughing or runny nose, a high pitched scream & not sleeping...oh and those

" little " bothersome constant seizures...crap...I hope I don't get that " strain

of cold virus " ....its a nasty one this year...so y'all better watch out for that

one!....OK, sarcasm aside...I know there are not any set in

stone answers, but as far as tests, etc...what should I be asking for/demanding

at this point. I will be calling the office at 9 to schedule an EEG for today,

which I'm sure is going to show a big change from his last one. OK, any words

of wisdom (other than the obvious, which its too late for) are much appreciated!

Thanks so much, & sorry to come across as crabby...I don't intend to, and I hope

I don't, but I'm sure many of you came here for the same reason & understand my

crankiness! Thank You!

Hugs, Love, Blessings & Bare Feet,

Jen, Cloth Diaperin', babywearin', homeschoolin', God-fearin', barefootin',

kinda crunchy mama of three miracles - , Jonah (6 YEARS OLD!!!) and

(2 YEARS OLD!!!!)

Check out our website for updates on the boys and a bunch of other stuff!

http://www.angelfire.com/amiga2/jenniz

MY BLOG, Mama Musings (an insight into the insanity!):

http://www.angelfire.com/amiga2/jenniz/mamamusings

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