Re: Myhill update?

[Guest guest]

Hi,

In isolation it has improved my symptoms, but there are caveats:

1) In my case I have had gut problems that have hampered my progress

significantly; when I've got the diet / pro-biotic side of things

good then there has been unmistakable benefit.

2) You need to keep taking it - I feel the effects on the day. If I

lower the dose I feel less energetic and clear-headed on that day.

The next day is almost like a clean sheet, if that makes sense. I'm

hoping for a permanent benefit, but I'm hard pushed to see it,

although there could be other " lifestyle " reasons for this - ie lack

of rest.

3) It's expensive. All up, I would budget £100-200 a month. My

thinking here is that this expenditure allows me to (just) keep

earning enough money to cover the expense. I've tried lowering the

dose of some or all components of the Protocol because of the cost

(which has been an incentive for it to not work, if the effect was

purely psycological), but notice a decrease in effectiveness.

4) Don't forget that you need to have the sort of mineral / vitamin

support that Dr Myhill was recommending before she started working

on the " protocol " . I find that missing magnesium or B12 is a mistake.

Hope this helps,

Phil

>

> Just wondering if anyone is making progress w/the Myhill

protocol? Or are you feeling

> worse?

>

> If better, how would you rate your improvement?

>

> Thanks,

>

> Dan

>

[Guest guest]

I have been on Dr Myhill's protocol for 8 months, and had ME for 4 years.

My number of days laid up in bed has gone from an average of 12 days a

month, to only 5 days a month, and my well days are much more productive. I

still have a long way to go, but would say at this stage I have had at least

a 50% improvement.

1) I saunered nearly every day for 7 months, because I have a high

pesticide burden

2) I have followed the " stone age diet " minus the peanuts and Soya

that she allows you to have (Soya seems to cause muscle pain)

3) I did her pulse food intolerance testing with fascinating results.

I also did the Ig Elissa food intolerance blood tests and the results backed

up the pulse testing which was interesting.

4) Had weekly magnesium injections but not B12

5) Plus took all the supplements.

For me I think the magnesium injections are the key. When I stop them I get

very sick again after 2 weeks, and quickly respond well when I start

injecting again. I must get on and have the B12, but I have a lazy GP.

My partner also has ME (for 10yrs) and has been on Dr Myhill's protocol for

2 months. He has had a positive Candida test and did very well on the

Candida diet, plus taking " nutri spore " tablets. He had a terrible 2 week

die off, but is improving in leaps and bounds. I would say he has returned

to 75% of normal. He is just starting to nebulise magnesium and take

sublingual B12 plus all the other supplements. He has masses of food

intolerances, and has also responded well to " the stone age diet " minus

Soya. Since stopping Soya his muscle pain has reduced to zero, (as has

mine). He is now doing 2hr walks and riding our horse again. (lucky thing!)

I hope this of interest.

Best wishes

Tansy

Ps have your tried the Dr Myhill chat room on ?

______________________________________________

This email has been scanned by Netintelligence

http://www.netintelligence.com/email

[Guest guest]

Most defintely of interest.

I wonder if it is the soy I ate yesterday that has hurt me.

Could you please tell me more about nebulizing magnesium. I might want to try

it.

Thanks,

Adrienne

Re: Myhill update?

I have been on Dr Myhill's protocol for 8 months, and had ME for 4 years.

My number of days laid up in bed has gone from an average of 12 days a

month, to only 5 days a month, and my well days are much more productive. I

still have a long way to go, but would say at this stage I have had at least

a 50% improvement.

1) I saunered nearly every day for 7 months, because I have a high

pesticide burden

2) I have followed the " stone age diet " minus the peanuts and Soya

that she allows you to have (Soya seems to cause muscle pain)

3) I did her pulse food intolerance testing with fascinating results.

I also did the Ig Elissa food intolerance blood tests and the results backed

up the pulse testing which was interesting.

4) Had weekly magnesium injections but not B12

5) Plus took all the supplements.

For me I think the magnesium injections are the key. When I stop them I get

very sick again after 2 weeks, and quickly respond well when I start

injecting again. I must get on and have the B12, but I have a lazy GP.

My partner also has ME (for 10yrs) and has been on Dr Myhill's protocol for

2 months. He has had a positive Candida test and did very well on the

Candida diet, plus taking " nutri spore " tablets. He had a terrible 2 week

die off, but is improving in leaps and bounds. I would say he has returned

to 75% of normal. He is just starting to nebulise magnesium and take

sublingual B12 plus all the other supplements. He has masses of food

intolerances, and has also responded well to " the stone age diet " minus

Soya. Since stopping Soya his muscle pain has reduced to zero, (as has

mine). He is now doing 2hr walks and riding our horse again. (lucky thing!)

I hope this of interest.

Best wishes

Tansy

Ps have your tried the Dr Myhill chat room on ?

______________________________________________

This email has been scanned by Netintelligence

http://www.netintelligence.com/email

[Guest guest]

Dr Myhill's treatment nearly killed me. First of all she put me on a

too severe elimination diet. Afer I was on the diet for 6 weeks I

could not digest anything.

I strongly advise against doing her elimination diet.

Her magnesium injections were painful and useless.

Her supplements did not help me either.

THis is just my experience

> >

> > Just wondering if anyone is making progress w/the Myhill

> protocol? Or are you feeling

> > worse?

> >

> > If better, how would you rate your improvement?

> >

> > Thanks,

> >

> > Dan

> >

>

[Guest guest]

Had a slow start with Dr Myhill - her severe low-carb diet caused a

major relapse and I would advise anyone to be very careful with that

diet and if they did want to try it to implement it gradually not

suddenly like I did. Since then however I have been making a gradual

steady improvement. The main factors that have really helped are:

1.sorting out my gut bacteria by first taking antibiotics to kill off

the harmful bacteria as I had no beneficial bacteria at the time and

then taking probiotics to rebalance the gut.

2.B12 injections - I noticed the improvement from them within 24 hours

3. low dose thyroxine

I do take the other supplements she suggests (d-ribose, magnesium, l-

carnitine and COQ10)although not religiously and feel that they do help

my heart feel stronger but the improvement from takin them I would say

i very subtle - maybe 5% or even less.She is now considering giving me

EPD as allergies are a major issue for me.

[Guest guest]

I would myself avoid Myhill protocol. There are much better protocols

to try - the diet made me worse than ever.

I agree with

>

> Dr Myhill's treatment nearly killed me. First of all she put me on a

> too severe elimination diet. Afer I was on the diet for 6 weeks I

> could not digest anything.

> I strongly advise against doing her elimination diet.

> Her magnesium injections were painful and useless.

> Her supplements did not help me either.

> THis is just my experience

>

>

[Guest guest]

Dear ,

Thanks for your post. I must try the B12 aspect of Dr Myhill's

protocol! I am interest that you are taking the low dose thyroxin.

Would it be possible for you to share your TSH/T3/T4 scores before

you started taking the thyroxin? My Dr says my TSH is normal and

refuses to consider testing my T3/T4 or prescribing thyroxin. If

your scores where in the normal range, and yet you still benifited

from Thyroxin, then it would give me the courage to go back and

battle with him again. Dr Myhill has requested these tests be done,

and I am rather court in the middle. Also did you have any symptoms

of a throid problem?

Very greatful

Tansy

>

> Had a slow start with Dr Myhill - her severe low-carb diet caused

a

> major relapse and I would advise anyone to be very careful with

that

> diet and if they did want to try it to implement it gradually not

> suddenly like I did. Since then however I have been making a

gradual

> steady improvement. The main factors that have really helped are:

> 1.sorting out my gut bacteria by first taking antibiotics to kill

off

> the harmful bacteria as I had no beneficial bacteria at the time

and

> then taking probiotics to rebalance the gut.

> 2.B12 injections - I noticed the improvement from them within 24

hours

> 3. low dose thyroxine

> I do take the other supplements she suggests (d-ribose, magnesium,

l-

> carnitine and COQ10)although not religiously and feel that they do

help

> my heart feel stronger but the improvement from takin them I would

say

> i very subtle - maybe 5% or even less.She is now considering

giving me

> EPD as allergies are a major issue for me.

>

>

>

[Guest guest]

" Tansy " <t4tansy@...> wrote:

> My Dr says my TSH is normal and

> refuses to consider testing my T3/T4 or prescribing thyroxin. If

> your scores where in the normal range

Thyroid reference ranges are controversial today, and American

labs have not caught up. Most patients don't know this.

The topic has raged on the internet for about 15 yrs now.

The thyroid patient community prefers TSH under 2.0, and

freeT4 and freeT3 in the upper third of reference range.

There are some who would optimize even more tightly than that.

ALWAYS get copies of your lab results for your permanent records.

Undiagnosed or undertreated hypothyroid cause all manner of

unnecessary suffering.

(see also my Links>Hormones>Thyroid folder* for lots more info)

Carol

willis_protocols

Files. *Links. (non-commercial, not a discussion group)

[Guest guest]

I hadn't heard until now about her strict diet, but I agree -- I personally

don't think a

" one-size-fits-all " diet is right for so many different bodies. Some of us are

heavier, some

are emaciated like myself. And I know from past experience if I don't get

enough

(complex) carbs, I waste away like anyone else on a high-protein diet.

I don't have the link right now, but have read that low carb restrictive diets

are not

necessarily beneficial even in people with bad cases of candida or other fungal

issues.

Yes, the carbs may feed the candida or bad bacteria, but they ALSO feed the GOOD

bacteria. At least according to the article I read.

Thanks for your reply . Perhaps some tweaking would be approrpriate

depending

on the individual.

Dan

>

> Dr Myhill's treatment nearly killed me. First of all she put me on a

> too severe elimination diet. Afer I was on the diet for 6 weeks I

> could not digest anything.

> I strongly advise against doing her elimination diet.

> Her magnesium injections were painful and useless.

> Her supplements did not help me either.

> THis is just my experience

>

>

[Guest guest]

Thankyou Carol and for your replys,

My GP is certainly not progressive! But he is the only GP in our

practice that at least admits that CFS exists... And sadly I can't

move to another practice, as I live in the middle of nowhere in rural

Linconshire (UK).

My TSH is 2.4, does this suggest that my throid may be low or high?

Also thankyou for the info. on prefered refference ranges. I guess I

shall have to go back and try my GP again...

Thanks again

Tansy

[Guest guest]

Thankyou Carol and for your replys,

My GP is certainly not progressive! But he is the only GP in our

practice that at least admits that CFS exists... And sadly I can't

move to another practice, as I live in the middle of nowhere in rural

Linconshire (UK).

My TSH is 2.4, does this suggest that my throid may be low or high?

Also thankyou for the info. on prefered refference ranges. I guess I

shall have to go back and try my GP again...

Thanks again

Tansy

[Guest guest]

Dear Tansy

My TSH was 2.75 (range 0.4 - 4.0) so very similar to yours. My T3 was

4.0 (range 4.0 - 6.8) and my T4 was 12.7 (range 12.0 - 22.0). I

didn't have any symptoms of low thyroid apart from exhaustion and dry

skin.

Hope that helps.

> >

> > Had a slow start with Dr Myhill - her severe low-carb diet caused

> a

> > major relapse and I would advise anyone to be very careful with

> that

> > diet and if they did want to try it to implement it gradually not

> > suddenly like I did. Since then however I have been making a

> gradual

> > steady improvement. The main factors that have really helped are:

> > 1.sorting out my gut bacteria by first taking antibiotics to kill

> off

> > the harmful bacteria as I had no beneficial bacteria at the time

> and

> > then taking probiotics to rebalance the gut.

> > 2.B12 injections - I noticed the improvement from them within 24

> hours

> > 3. low dose thyroxine

> > I do take the other supplements she suggests (d-ribose,

magnesium,

> l-

> > carnitine and COQ10)although not religiously and feel that they

do

> help

> > my heart feel stronger but the improvement from takin them I

would

> say

> > i very subtle - maybe 5% or even less.She is now considering

> giving me

> > EPD as allergies are a major issue for me.

> >

> >

> >

>

[Guest guest]

Tansy, if you really want to know how your thyrlid is, you need to test your

free t3 and free T4. TSH is thyroid stimulating hormone produced by the

pituitary gland; it measures what the pituitary gland is telling the thyroid to

produce, not what the thyroid is actually producing.

There is an excellent book by a UK doctor, Dr. Peatfield, called " Your Thyroid

and How To Keep It Healthy. " It is the best book I have read about the thyroid.

Dr. Peatfield is still consulting, I understand, but he is no longer

prescribing.

Although it is not a good measure, your TSH of 2.4 certainly suggest to me that

your thyroid may be low. Note: I am not a physician.

Re: Myhill update?

Thankyou Carol and for your replys,

My GP is certainly not progressive! But he is the only GP in our

practice that at least admits that CFS exists... And sadly I can't

move to another practice, as I live in the middle of nowhere in rural

Linconshire (UK).

My TSH is 2.4, does this suggest that my throid may be low or high?

Also thankyou for the info. on prefered refference ranges. I guess I

shall have to go back and try my GP again...

Thanks again

Tansy