amys SPECT scans for david

[Guest guest]

hi all, please comment, two SPECT test results here...

xenon 133 spect

decreased perfusion adjacent to the dorsoposterior parietal areas

bilaterally and at the posterotemporal occipital junctions bilaterally

more marked on the left

basal gangliar to cerebellar ratio measure .86 on left and .82 on

right both values being low.

perfusiosn to thalami and cerebellum is as expected

conclusion, low basal ganglia to cerebellar cortical ratios are

assosciated wiht fibromyalgia syndrome.

dorsal posterior parietal perfusion are non specific but can be seen

in association with exposure to neurotoxic solvents.

Fred Mishkin MD read this , Harbor UCLA 6/99

I was referred by Dr Akbarpour, now in private practice

from Center for Special immunology CSI orange county/LA

NOW IMPORTANT, after this test I took it to a neurotoxicologist who

wanted the same test again but wiht more or different slices or views????

he insisted I go to a different place perhaps for the equopment or

people he preferred???, so this following test is , I think more

accurate... 9/99

santa monica UCLA J uszler MD director

images of entire head done in a 360* arc , technetium HMPAO injected

perfusion irregularity throughout the cerebral cortices, with greater

decrease in the temporal lobes, assymetrically more so to the left.

attenuation corrected, cross sectional images show moderate

assymmetric decrease throughout the basal ganglia and symmetrical

uptake in the cerebellar hemisphers.

most of the perfusion irregularity through the two cerebral cortices

bilaterally are still wihtin the two standard deviation confidence

range, althoguh most of the left temporal lobe is at somewhat below

normal. the mesial aspect of the right temporal lobe is also at the

borderline low range.

impression

perfusion irregularity throughout the cerebral cortices and the right

sided basal ganglia, particluarly the left temporal lobe is into the

hypoperfusion range.

these findings are of inherent non specific etiology but may be

associated with neurocognitive dysfunction. clinical correlation with

cerebral neuroanatmic imaging and neurophysiologic data may be helpful/

COMMENT FROM AMY..I asked around if toxic solvent profile could also

be caused from mercury, or myco incognitus and the answer I got was

yes.so in other words the diagnosis of toxic solvent are not for sure...

MY HISTORY mold and toxins from root canal. (I would imagine that

mold might cause what we see here???)

mercury toxic off the chart

I ahve always wondered if these alone might be cuasing my ill health

wihtout the FM or CFS.

however I do also have the CFS all the symptoms and FM diagnosis both.

I fit more in the CFS category as my pain is not so bad and limited to

neck and shoulders which is more likely for myofascia or maybe Lyme

related

tested pos for mycoplasma incognitus

not sure re diagnosis for Lyme. but suspect it

does anyone with LYME or mold have any of these findings on SPECT

thanks, amy

here from davids post :

I'm not surprised that a CFS brain is similar to Alzheimer's given

that both glutathione and blood flow in the brain are often shown to

be reduced in both. I suspect the reduced blood flow might be in part

because the cysteine needed from glutathione to make antidiuretic

hormone(ADH) is not as available therefore less of this hormone gets

made to keep blood volume up to normal.

Would you tell us the specific quote or amnormality noted from your

brain SPECT report that indicates toxic solvent exposure and FM? I

know I had a PET scan of my brain where the report stated asymetrical

bilateral hypoperfusion of the thalami, thus indicating poor blood flow.