Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Lynnelle <lynnovale@...> wrote: Subject: Re: Brain Scan-Ques for Doctors This sounds like the old brain wave stuff and is likely an expensive waste of money. You can diagnose OCD versus Bipolar from the symptoms. There are set criteria outlined in DSM-IV. Best wishes, Jenike, MD ________ ________ This is exactly what I heard from the dozens of doctors I have been to with my daughter.!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! They are just having a very difficult time diagnosing her because she is so inconsistent, and actually meets the criteria in the DSM-IV for several disorders. Hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Which OCD site are you referring to that Dr. will answer your questions? I would love to send him this actual web site and hear his input on it. I pulled several sites that disputed the brain imagery not being affective for looking at OCD and etc. I called the head person to question this. She said what they did was not the same thing the sites were referring to. I would like these doctors to see the site and give there input on this particular brain imagery. Not to mention, what if there is other issues with the brain from birth etc. They can def. look and rule out other issues. Also, Dr. Phil who is considered top of the line uses this place to send his patients. The way I see it is I am using all my resources to rule out as much as possible. My insurance is actually paying for this scan. It will only cost me $30 so why not? I am desperate right now for any help I can get! Sheree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 In a message dated 5/19/2006 1:06:34 P.M. Eastern Standard Time, Skbradfield@... writes: The way I see it is I am using all my resources to rule out as much as possible. My insurance is actually paying for this scan. It will only cost me $30 so why not? I am desperate right now for any help I can get! Sheree - You can hardly argue with that logic. I agree. Why not? Anyway, I think the doctor you're referring to is Jenike. You can contact him on this support group: _OCD-Support/_ (OCD-Support/) Let us all know what you find out. LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Thanks LT I appreciate your input. We are having such a hard time. I keep praying that at some point I will get an answer to why SSRI's don't help my son?? Sheree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 In a message dated 5/19/2006 1:37:39 P.M. Eastern Standard Time, jtlt@... writes: : _OCD-Support/_ (OCD-Support/) Let us all know what you find out. I couldn't get this web site to come up?? Sheree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 In a message dated 5/19/2006 1:45:09 P.M. Eastern Standard Time, Skbradfield@... writes: I couldn't get this web site to come up?? Sheree - It shouldn't be a problem. You have to join it, just like you did with the parenting group. I just cut & pasted the address from your response & it worked for me... try one more time. If it still fails, email at: _wmueller@..._ (mailto:wmueller@...) She is one of the group moderators & ask her for a link. LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Sheree, Dr. Jenike's email is jenike@... The address LT gave you requires joining the site or something maybe. He might give you more info if you contacted him privately anyway since otherwise there are 2000 members reading everything you ask him and they've been over this subject before. Let us know if you succeed in changing his mind. Lynn --- Skbradfield@... wrote: --------------------------------- Which OCD site are you referring to that Dr. will answer your questions? I would love to send him this actual web site and hear his input on it. I pulled several sites that disputed the brain imagery not being affective for looking at OCD and etc. I called the head person to question this. She said what they did was not the same thing the sites were referring to. I would like these doctors to see the site and give there input on this particular brain imagery. Not to mention, what if there is other issues with the brain from birth etc. They can def. look and rule out other issues. Also, Dr. Phil who is considered top of the line uses this place to send his patients. The way I see it is I am using all my resources to rule out as much as possible. My insurance is actually paying for this scan. It will only cost me $30 so why not? I am desperate right now for any help I can get! Sheree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Sheree, If I'm not mistaken, I believe Dr. Jenike's stance on the brain imaging is strictly concerning a cost/benefit analysis in deciding whether to use a brain scan to diagnose OCD, since OCD can be diagnosed by less expensive means - such as a thorough interview with a well-trained psychologist. However, I think Dr. Phil and others who feel patients can benefit from the brain scans are using them primarily on patients who have multiple or contradictory diagnosis and in situations where any treatment to date has been ineffective. When you look at it this way, maybe both Dr. Jenike and Dr. Phil are correct. For the majority of patients, a brain scan would be of no extra benefit viewing it strictly from a cost/benefit viewpoint. However, if your loved one has multiple issues/diagnoses and isn't getting effective treatment because of the many issues, a brain scan may be helpful (if it does what they say it can) in pinpointing multiple diagnoses, or ruling out some diagnoses. > > Which OCD site are you referring to that Dr. will answer > your questions? > I would love to send him this actual web site and hear his input on it. > I pulled several sites that disputed the brain imagery not being affective > for looking at OCD and etc. I called the head person to question this. She said > what they did was not the same thing the sites were referring to. I would > like these doctors to see the site and give there input on this particular > brain imagery. Not to mention, what if there is other issues with the brain from > birth etc. They can def. look and rule out other issues. > > Also, Dr. Phil who is considered top of the line uses this place to send his > patients. The way I see it is I am using all my resources to rule out as > much as possible. My insurance is actually paying for this scan. It will only > cost me $30 so why not? I am desperate right now for any help I can get! > > Sheree > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 & all, Good information you gave regarding the most helpful brain scans for M. E. Is the MRS scan is readily available in the US? I know Cheney/Shungu did studies showing that M. E. patients definitely have mitochondrial encephalopathy. Do you have any study citations for the MRS showing the abnormal high lactic acid spikes in the hippocampus? You are also right in recommending the brain SPECT scan as the next most valuable. That scan was key to my getting disability along with the abnormal Natural Killer Cell Function test along with a diagnosis of Myalgic Encephalomyelitis provided by my infectious disease specialist at Kaiser. By the way, on the SPECT scan, it's good to walk around the building a few times before the scan to show the abnormality in M. E. more clearly. Dr. Hyde does three scans: one resting, one after exercise & one 24 -48 hours after exercise. Also, there is some explanatory material on the neurological & other tests here: http://www.name-us.org/MECFSExplainPages/TestAbnormalities.htm thanks, Du Pre Poetry website: http://www.angelfire.com/poetry/soareagle/index.html " By words the mind is winged. " Aristophanes Website for National Alliance for Myalgic Encephalomyelitis: http://www.name-us.org Hall wrote: ***The magnetic resonance spectroscopy(MRS) bran scan is probably the most informative of the bran scans for ME/CFS and I would do it first if your doc is willing. Check co-cure.com's archives for more info. on MRS as well as google Dr Cheney's MRS scan datafor his patients. ***MRS scanning has found abnormally high lactic acid spikes near around the hippocampus in PWME brains which indicates mitochondrial dysfunction, a central feature being found in just about all cases through the UKs BioLab testing. An MRI is good for ruling out gross abnormalities such as tumors and obvious areas of brain damage while the SPECT can help verify hypoperfusion in the brain which you almost certainly have with ME/CFS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 Hi, . <isaiah40@...> wrote: > > & all, > Good information you gave regarding the most helpful brain scans for M. > E. > Is the MRS scan is readily available in the US? ***Available, yes. Readily available, I doubt. You'd need to search around for a hospital that does this. I know Cheney/Shungu did > studies showing that M. E. patients definitely have mitochondrial > encephalopathy. > Do you have any study citations for the MRS showing the abnormal high > lactic acid spikes in the hippocampus? ***Check co-cure.com's research archives or google Dr Cheney and MRS to find this info.. *** Quote Link to comment Share on other sites More sharing options...
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