Guest guest Posted June 2, 2007 Report Share Posted June 2, 2007 In a message dated 02/06/2007 20:17:37 GMT Standard Time, dawnofthedeadhere@... writes: cs Professor Puri is a world expert on cfs and does have a clue i think he has many patients that are well .- Long-chain polyunsaturated fatty acids and the pathophysiology of myalgic encephalomyelitis (chronic fatigue syndrome) B K Puri ***Sorry - he is clueless. Regards CS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 ly, there's little point in even posting here with people like you around. There are a substantial group of sufferers who can't follow protocols involving whey to raise glutathione levels, or follow a whole range of others because of the reactions they experience. So they need to seek alternatives. And Puri's approach is one of them. If your suggestions were so bloody marvellous, boards like this wouldn't be here. > > > In a message dated 02/06/2007 20:17:37 GMT Standard Time, > dawnofthedeadhere@... writes: > > cs > Professor Puri is a world expert on cfs and does have a clue i think > he has many patients that are well .- > Long-chain polyunsaturated fatty acids and the pathophysiology of > myalgic encephalomyelitis (chronic fatigue syndrome) > B K Puri > > > > ***Sorry - he is clueless. > > > Regards > CS > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Thanks for posting this info on Professor Puri, I may try the vegEPA myself. I've been taking Nordic Naturals fish oils for years which contains DHA and would like to sample EPA without DHA for 3 months to see if there is a difference. I met several people many yrs ago with ME who benefited from Efamol, for me I didn't feel any difference. But I believe fish oils are a very important supplementation to our illness. Nat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Lipid therapy in neurotoxic conditions is a long studied and used protocol coming from some of the most serious researchers and clinicians. The subject is not as simple as Dr Puri implies. Some people with CFS get great benefit from DHA some do not. Many lipid researchers like Dr Kane believe that the EFAs (Essential Fatty Acids) should be balanced according to the most advanced thinking on this subject. We need a wide range of EFAs. Without lipid tests it is impossible to know what lipids are deficient or in excess. Such tests are available but expensive. So best take a wide range of lipids. The EFAs are called essential because they are essential for life and health yet we can not manufacture them and must get them from diet. Some lipids that can be manufactured by the body are not properly produced in case of many problems including chronic liver problems, so we might need supplemetation with various lipids even the non essential ones. There are dozens of clinicians getting good results in CFS using, lipid replacement therapy, methylation pathway error correction, Vit D. So anyone saying that lipids do not have anything to do with CFS are way behind the curve on this subject. Clinicians like Dr Shoemaker and Dr Kane use the neurotoxic model of diseases like CFS and have excellent results in a large percentage of patients. Lipids are important for we PWCs to understand. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2007 Report Share Posted June 4, 2007 In the unlikely event after 3 months after taking EPA without any DHA you feel no benefits have been noticed at all - it is worth having a special red blood cell membrane fatty acid test - this will show up whether or not the EPA and the omega-6 levels are in the normal range. > > Thanks for posting this info on Professor Puri, I may try the vegEPA > myself. I've been taking Nordic Naturals fish oils for years which > contains DHA and would like to sample EPA without DHA for 3 months to > see if there is a difference. > > I met several people many yrs ago with ME who benefited from Efamol, > for me I didn't feel any difference. But I believe fish oils are a > very important supplementation to our illness. > > Nat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2007 Report Share Posted June 4, 2007 Professor Puri like Dr Kane also does the special red blood cell membrane fatty acid test- to measure the EPA and omega levels are in normal range. > > > Lipid therapy in neurotoxic conditions is a long studied and used > protocol coming from some of the most serious researchers and > clinicians. The subject is not as simple as Dr Puri implies. Some > people with CFS get great benefit from DHA some do not. Many lipid > researchers like Dr Kane believe that the EFAs (Essential Fatty Acids) > should be balanced according to the most advanced thinking on this > subject. We need a wide range of EFAs. Without lipid tests it is > impossible to know what lipids are deficient or in excess. Such tests > are available but expensive. So best take a wide range of lipids. The > EFAs are called essential because they are essential for life and > health yet we can not manufacture them and must get them from diet. > Some lipids that can be manufactured by the body are not properly > produced in case of many problems including chronic liver problems, so > we might need supplemetation with various lipids even the non > essential ones. > > There are dozens of clinicians getting good results in CFS using, > lipid replacement therapy, methylation pathway error correction, Vit > D. So anyone saying that lipids do not have anything to do with CFS > are way behind the curve on this subject. Clinicians like Dr Shoemaker > and Dr Kane use the neurotoxic model of diseases like CFS and have > excellent results in a large percentage of patients. Lipids are > important for we PWCs to understand. Liz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2007 Report Share Posted June 4, 2007 In a message dated 04/06/2007 09:10:59 GMT Standard Time, dawnofthedeadhere@... writes: Professor Puri like Dr Kane also does the special red blood cell membrane fatty acid test- to measure the EPA and omega levels are in normal range. ********Kane does more than focus on lipids. She looks at the entire picture. There is no comparison. Regards CS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2007 Report Share Posted June 5, 2007 There's a doctor (psy) in the lowlands that states the ratio of Omeag-3 intake should be 3-4/1 (EPA/DHA)... Liz A Hall <lizahallny@...> wrote: Lipid therapy in neurotoxic conditions is a long studied and used protocol coming from some of the most serious researchers and clinicians. The subject is not as simple as Dr Puri implies. Some people with CFS get great benefit from DHA some do not. Many lipid researchers like Dr Kane believe that the EFAs (Essential Fatty Acids) should be balanced according to the most advanced thinking on this subject. We need a wide range of EFAs. Without lipid tests it is impossible to know what lipids are deficient or in excess. Such tests are available but expensive. So best take a wide range of lipids. The EFAs are called essential because they are essential for life and health yet we can not manufacture them and must get them from diet. Some lipids that can be manufactured by the body are not properly produced in case of many problems including chronic liver problems, so we might need supplemetation with various lipids even the non essential ones. There are dozens of clinicians getting good results in CFS using, lipid replacement therapy, methylation pathway error correction, Vit D. So anyone saying that lipids do not have anything to do with CFS are way behind the curve on this subject. Clinicians like Dr Shoemaker and Dr Kane use the neurotoxic model of diseases like CFS and have excellent results in a large percentage of patients. Lipids are important for we PWCs to understand. Liz --------------------------------- Building a website is a piece of cake. Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2007 Report Share Posted June 5, 2007 and so does Puri have you seen him ? what tests did you have done for your cfs and what are your results ? > ********Kane does more than focus on lipids. She looks at the entire > picture. > There is no comparison. > > > Regards > CS > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2007 Report Share Posted June 5, 2007 I had an RBC Fatty Acids test done a few yrs ago, just checking here, my DHA was at 3.69 (3.20-7.04) and my Eicosapentaenoic is low at 0.40 (0.36-1.92). Nat > In the unlikely event after 3 months after taking EPA without any DHA > you feel no benefits have been noticed at all - it is worth having a > special red blood cell membrane fatty acid test - this will show up > whether or not the EPA and the omega-6 levels are in the normal range. Quote Link to comment Share on other sites More sharing options...
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