Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Reading back over some older posts here.... , would you conclude then, personally speaking, that autism is genetically carried and triggered or worsened by environment? I'm leaning that way but I know that many find this an unpopular stance. I have a sister who is ADD and her kids are incredibly ADHD. My daughters have some ADD/ADHD traits but are not as severe. My other nephew is out and out autistic. He is younger than the other two (niece and nephew) and therefore got more shots (notably the Hep B at birth and the flu shots but others as well). Plus the combination of our family's genes with his father's could have made the difference. What I hate to hear from friends is that " we don't have that in our family " . Well, we didn't realize we had it our family either and BAM! it hit my sister's child hard. Just curious to hear your point of view on the whole genetics vs. environment issue of autism. Sheri B. --------------------------------- Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Personally, I don't think that there is enough genuine knowledge about genetics to determine that certain illnesses are purely genetic. I'd rather look at the amount of poisoning any ancestors have been subjected to, which has been passed on through to the younger generations, but of course that's very difficult to trace. I wonder, though. Army personnel has always been subjected to vaccines far more than any other group, so do autistic children have fathers/grandfathers/ great-grandfathers with an army history? claudia --- " Sheri B. " <tallchick1966@...> wrote: > Reading back over some older posts here.... > > , would you conclude then, personally > speaking, that autism is genetically carried and > triggered or worsened by environment? I'm leaning > that way but I know that many find this an unpopular > stance. > > I have a sister who is ADD and her kids are > incredibly ADHD. My daughters have some ADD/ADHD > traits but are not as severe. My other nephew is > out and out autistic. He is younger than the other > two (niece and nephew) and therefore got more shots > (notably the Hep B at birth and the flu shots but > others as well). Plus the combination of our > family's genes with his father's could have made the > difference. > > What I hate to hear from friends is that " we don't > have that in our family " . Well, we didn't realize > we had it our family either and BAM! it hit my > sister's child hard. > > Just curious to hear your point of view on the > whole genetics vs. environment issue of autism. > > Sheri B. > > > --------------------------------- > Talk is cheap. Use Messenger to make > PC-to-Phone calls. Great rates starting at 1�/min. > > [Non-text portions of this message have been > removed] > > No trees were killed in the sending of this message. However, a large number of electrons were terribly inconvenienced. 'If you steal from one author, it's plagiarism; if you steal from many, it's research' - Mizner http://lady-karelia.livejournal.com/ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 > , would you conclude then, personally speaking, that autism is genetically carried >and triggered or worsened by environment? I'm leaning that way but I know that many find >this an unpopular stance. Well, as my puts it (age nine) 'Dad gave me the autism gene and Mum gave me the trigger gene!' We have no proof but that is the conclusion that he has come to from watching all the documentaries that we do! One of the side effects on home education! I personally do feel that there is a genetic predisposition, that is triggered by an environmental stimulus. I also know that there is more than one kind of autism. Some is late onset, some is there from birth. Interestingly, we are reading the adult novel 'Sophie's World' at the moment. It is about the history of philosophy, as told by a philosopher to a 14 year old girl. and I had commented that many of the philosophers, from ancient times to the Romantic era, all of whom were men, had very rigid ways of thinking, and would fit the Asperger's model of thinking. Then further on in the book Sophie remarks that all these men had a strange way of thinking and were not really part of the world, as they didn't think about the realities of love, children and tackling day to day life! It was a classic example of male/female brain differences that Simon Baron-Cohan talks about! But there is also another factor that may come into it. Nils Bergman was doing research into kangaroo care, and found that babies that are left to cry and are not kept with their mothers immediately after birth end up with brains that develop differently. The area affected is the amygdala, and area of the brain implicated in autism! After his presentation (it was aimed at breastfeeding counsellors but was an adaptation of the presentation he gives to paediatricians) I went up to him and said that this threw new light on autism. He had many others around him so all he could do was smile that knowing smile, nod his head vigorously and say, 'YES!' And yet there is very little research going on in this direction mainly because western culture is so hell bent on making these little babies 'independent' and getting them away from their mothers! Bergman says all babies should be kangaroo cared for for their first year! That wouldn't fit well with our governments on both sides of the Atlantic which want mothers back to work ASAP and babies left in nurseries. So as the experts say, there are many paths to autism. added: >I wonder, though. Army personnel has always been >subjected to vaccines far more than any other group, >so do autistic children have fathers/grandfathers/ >great-grandfathers with an army history? It is entirely possible that genetic deviation happened many generations ago and that has been passed on. I think that is what is called evolution! If it wasn't for this male way of thinking society wouldn't have progressed the way it did. If we hadn't had Einstein we wouldn't have had...hmmmmmm....atomic bombs? Maybe the autism gene wasn't such a good idea! ;>) But then we wouldn't have had a lot of other advances in society like computers, and we wouldn't be sharing this information with each other either. To quote Tony Attwood, 'Computers were invented by aspies for the benefit of aspies!' Cheers, - who is not an expert but has just found out that she is a philosopher! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Hi Anita, >Though my autistic 5-yr-old son wasn't left to cry, he was separated from me on his 3rd day >right after my milk let down and then for several more days because of an infection that >landed me in the hospital. This breastfeeding/separation trauma is often minimised, but I >KNOW he was terribly affected and began to withdraw soon after. He is a very affectionate >child, I think, because of resuming breastfeeding and giving him the " kangaro care " he >deserved when I was well enough return home to him; unfortunately, not soon enough. too wasn't left to cry. However, the midwife on duty didn't want me sleeping with him (unlike the midwife on his first night) and took him to the office to give me a chance to sleep. I have not idea if he was left to cry, I didn't hear much crying, but it is possible that after I fell asleep he did. But after that night he was always with me. > To be fair though, unlike many other autistic children we know, Henry is not defensive to >touch, but craves deep pressure making hugging, squeezing and kissing (in small doses) >very pleasurable to him. is like this too. At least he is now! he did go through a very defensive stage. I have always said that I am sure he would have been a lot more 'autistic' if I hadn't breastfed him and carried him around with me and had him sleeping with me. > I know this sounds strange, but for this type of neurological damage vs the other, I am very >grateful. I would agree there many paths to many different varieties of autism. Yes, and vaccination may be one of them. But vaccination isn't going to cause all of them. I think that vaccination at best doesn't work, and at worst damages the person, but I wish sometimes that people realised that there is more to autism than vaccination. Cheers, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Jenn, you are having an incredibly profound week. I can't handle all these pearls of wisdom so close together. :oD Slow down girl!! Sue xx > I think that vaccination at best doesn't work, and at worst damages the > person, but I wish sometimes that people realised that there is > more to autism > than vaccination. > > Cheers, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 , May I ask how old is and when you discovered something was different about him? Anita cyberbarn9@... wrote: Hi Anita, too wasn't left to cry. However, the midwife on duty didn't want me sleeping with him (unlike the midwife on his first night) and took him to the office to give me a chance to sleep. I have not idea if he was left to cry, I didn't hear much crying, but it is possible that after I fell asleep he did. But after that night he was always with me. > To be fair though, unlike many other autistic children we know, Henry is not defensive to >touch, but craves deep pressure making hugging, squeezing and kissing (in small doses) >very pleasurable to him. is like this too. At least he is now! he did go through a very defensive stage. I have always said that I am sure he would have been a lot more 'autistic' if I hadn't breastfed him and carried him around with me and had him sleeping with me. Cheers, --------------------------------- Music Unlimited - Access over 1 million songs.Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 >, > > May I ask how old is and when you discovered something was different about him? > > Anita Hi Anita, is now 9 1/2 and a bit. When did I notice that he was different? Well, in the antinatel classes he and one other foetus was always kicking and bouncing around! When we did the relaxation time he would be kicking away and I would end up in fits of giggles with the other mum with an active baby! Interestingly, that baby was a girl and is gifted. I have lost touch so I don't know if she is also on the spectrum. BTW by pregnancy was very stressful. He was a baby that reached milestones early. He was rolling over by four months, sitting by five, and crawled on the week before he was six months. He was up on his feet a couple of weeks later, but didn't let go of my hand till he was one! He spoke early, with his first word being No! That should have prepared me for the oppositional side of things! When he was around a year I mentioned to a friend that he wasn't making much eye contact. I mentioned it to the wrong friend because her nephew was profoundly autistic so she of course said that was fine. Well, he was fine compared to a Kanner's child! By two we were counting sentences not words, and he was definitely a high needs baby. He started dropping sleeps at six months, and by a year he wasn't regularly sleep in the day. By the time he was three I finally accepted that he was Spirited as in Sheedy K. My LLL Leader kept trying to get me to read the book but I was in denial still. Loads of sensory issues we had come to live with by then. Like his hate of clothing! Still, made toilet training easy. he discovered all about peeing very early on! Then when he was four for some reason I suddenly blurted out to my Leader that I wondered if has Asperger's. I really don't know what made me say it as it wasn't something that I had been thinking about, She looked so relieved! She took me aside and told me that she had felt that for quite some time, and would I like to speak to the mum that makes the coffee as she is a volunteer with the local Autism group! I then read, read, and read some more, went to see Tony Attwood speak at a conference, and finally felt really relieved that I now had a reason for 's behaviour; I wasn't a bad parent after all! He did have his first three lots of vaccinations, which were a lot less than what babies get now. But he didn't have any particular reaction. He was never an ill baby, except for one bout of Bronchiolitis when he first went to nursery (one half day a week) just younger than one year. Other than that he has only had the usual childhood illnesses, and they have been brief. He has a restrictive diet, but it is well balanced and there is no evidence of bowl disorder. Change in diet never resulted in change in behaviour, but staying home did. That was when we realised that it was sensory issues that created the problems, not diet. Interestingly, although red sweets made him hyper, it also improved his communication skills and eye contact! By the time he was a year old I had read up on vaccination and he hasn't had any since, and hasn't been to the doctor for years. He was breastfed until he was 6 1/2 by which time he had lost the ability to suck. I put down his constant breastfeeding (it was his main source of nutrition until he was about four!) for both keeping him healthy, and allowing me to connect with him. When he had huge meltdowns (we are talking hours here, not minutes) the only thing that would bring him back to earth was 'mum mum' as he called it. Sorry, I went on a bit there! I must sit down and write a book about it some day, when I have time! HTH, Cheers, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Not at all , I wish I could write more descriptively; I tend to be too brief and to the point. Thanks you for sharing 's story with us. Is he on some sort of sensory diet other than food restrictions? He has so many wonderful skills, it's a shame he is driven to behaviors because of sensory discomfort, though I'm sure there are other contributors. Anita cyberbarn9@... wrote: >, > > May I ask how old is and when you discovered something was different about him? > > Anita Hi Anita, is now 9 1/2 and a bit. When did I notice that he was different? Well, in the antinatel classes he and one other foetus was always kicking and bouncing around! When we did the relaxation time he would be kicking away and I would end up in fits of giggles with the other mum with an active baby! Interestingly, that baby was a girl and is gifted. I have lost touch so I don't know if she is also on the spectrum. BTW by pregnancy was very stressful. He was a baby that reached milestones early. He was rolling over by four months, sitting by five, and crawled on the week before he was six months. He was up on his feet a couple of weeks later, but didn't let go of my hand till he was one! He spoke early, with his first word being No! That should have prepared me for the oppositional side of things! When he was around a year I mentioned to a friend that he wasn't making much eye contact. I mentioned it to the wrong friend because her nephew was profoundly autistic so she of course said that was fine. Well, he was fine compared to a Kanner's child! By two we were counting sentences not words, and he was definitely a high needs baby. He started dropping sleeps at six months, and by a year he wasn't regularly sleep in the day. By the time he was three I finally accepted that he was Spirited as in Sheedy K. My LLL Leader kept trying to get me to read the book but I was in denial still. Loads of sensory issues we had come to live with by then. Like his hate of clothing! Still, made toilet training easy. he discovered all about peeing very early on! Then when he was four for some reason I suddenly blurted out to my Leader that I wondered if has Asperger's. I really don't know what made me say it as it wasn't something that I had been thinking about, She looked so relieved! She took me aside and told me that she had felt that for quite some time, and would I like to speak to the mum that makes the coffee as she is a volunteer with the local Autism group! I then read, read, and read some more, went to see Tony Attwood speak at a conference, and finally felt really relieved that I now had a reason for 's behaviour; I wasn't a bad parent after all! He did have his first three lots of vaccinations, which were a lot less than what babies get now. But he didn't have any particular reaction. He was never an ill baby, except for one bout of Bronchiolitis when he first went to nursery (one half day a week) just younger than one year. Other than that he has only had the usual childhood illnesses, and they have been brief. He has a restrictive diet, but it is well balanced and there is no evidence of bowl disorder. Change in diet never resulted in change in behaviour, but staying home did. That was when we realised that it was sensory issues that created the problems, not diet. Interestingly, although red sweets made him hyper, it also improved his communication skills and eye contact! By the time he was a year old I had read up on vaccination and he hasn't had any since, and hasn't been to the doctor for years. He was breastfed until he was 6 1/2 by which time he had lost the ability to suck. I put down his constant breastfeeding (it was his main source of nutrition until he was about four!) for both keeping him healthy, and allowing me to connect with him. When he had huge meltdowns (we are talking hours here, not minutes) the only thing that would bring him back to earth was 'mum mum' as he called it. Sorry, I went on a bit there! I must sit down and write a book about it some day, when I have time! HTH, Cheers, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 >Thanks you for sharing 's story with us. Is he on some sort of sensory diet other than >food restrictions? I am not quite sure what you mean, so maybe I had better explain his diet. The restrictions he has are all his own. He will eat a food for a while, then refuse to have it again. A good example are fish fingers (sticks) although in our house they have to be called bish mingers! He ate them a lot when he was little, and then suddenly refused to eat them for a couple of years. Then he had them last summer at our friends house, and suddenly they were a favourite again! I recently bought three large bags of them to put in the deep freeze, and what do you know - he's off bish mingers again! For a while he liked to have the same thing on the same day for supper. It was actually quite useful. Monday was pasta, Tuesday bish mingers, Wednesday was rice, and so on. But that stopped when he went off bish mingers. They are probably related but he takes a long time to realise things and formulate the words to tell us about it. We are talking months sometimes years here! He is also restricted by not wanting to eat more than one thing at a time. So meals can be quite long. For insistence he will eat a bowl of frozen peas (still frozen) in winter or fresh ones from the garden in summer while watching TV, while I make supper. Then he will have plain boiled rice for supper, then after supper, he will have a plate of 'ham bacon' (I buy gammon joints from a butcher and turn them into ham myself. He likes slices fried like bacon.) I have always cooked from scratch, and I find it very frustrating to have to make two separate things, especially as I am on my own. I love it when dxh comes because I can do a roast or something like that and there are two people to eat it. As for foods that he reacts to, other then red colouring, there isn't to much trouble as he is self regulating. We have both been vega tested and we are both sensitive to dairy, and was completely cow dairy free until he was around three. We only have small amounts in our diet, and he knows that he has to balance things. So if he has an ice-cream, he will balance it with veggies or fruit, not cheese. If he eats something that results in a behaviour change that he doesn't like, he will not eat it again. The only problem is sometimes he doesn't manage to tell us that, so we have to guess! >He has so many wonderful skills, it's a shame he is driven to behaviors because of sensory discomfort, though I'm sure there are other contributors. Yes, the problem is sorting out what is sensory, what is social, and what is ! Walking for instance, we assumed was a social problem because he became anxious about meeting people while walking the dog. But it turns out that it is physical as we now realise that he has lax joints in particular in his ankles! One really valuable thing was that just before MIL died I was able to talk openly and honestly with her. It turns out that 's dad was just like this! The food issues were the same, the lack of friends by choice, and so on. MIL thought that was much happier than his dad because I was a better parent. But I really think that it was down to his dad going to school, and being home schooled! I try to control the environment to match the child, not the other way round. Sorry, I am rambling again! Apologies to Sheri if this is too OT for this list :>) Cheers, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 By sensory diet, I mean some sort of body brushing, lotioning, perhaps a weighted or bear hug vest. Something along those lines to modulate his nervous system. Anita cyberbarn9@... wrote: >Thanks you for sharing 's story with us. Is he on some sort of sensory diet other than >food restrictions? I am not quite sure what you mean, so maybe I had better explain his diet. --------------------------------- Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 >By sensory diet, I mean some sort of body brushing, lotioning, perhaps a weighted or bear >hug vest. Something along those lines to modulate his nervous system. Oooops! I misunderstood! Sorry! We don't do anything regular, but we do use deep pressure. And he used to love the 'gravity game' where an adult would lie down on top of him. He finds these things soothing. when he was much smaller I knew that deep touch was more acceptable than light touch, so everytime I passed him I would touch him quickly but hard. Eventually I was able to touch him more lightly. Now I can stroke him. We looked into the sound desensitisation but decided that it wasn't a good idea. So much of these therapies are to change or cure the child. We prefer to change the environment. So without the sound therapy, he is now much more able to cope with music and sounds just through maturation more than anything else. After all, his grandfather refused to go into supermarkets because of the noise and smells! If he didn't, why should I expect to! This is where I think that society has created more of a problem for these children that have always been around. We now have all this pressure on getting children into nursery early, going to all the gym and music toddler groups, taking them into huge noisy smelly supermarkets and so on. There is a huge increase in sensory overload these days. And yet, 60 years ago a child before the age of five just hung around the house and maybe went to the local small shop with their mum to get food. So the environment has changed and we are now expected to put our children through all sorts of therapies so that the child can cope with the change in society. Some of them may work, but some of it may just be down the child maturing. Don't get me wrong. If these things work for families and make their lives better then that is fantastic. We all have to make informed choices to do what it best for out families. I recently review a book written by a mum and an OT. They said that society today was overloading babies and small children and encouraged parents to protect their children from this. Unfortunately they had incorrect breastfeeding information in it so I couldn't recommend it, which was a real shame. I hope that answers your questions :>) I asume that you have told the list all about your son, so I won't ask you to do it now and bore the people that already know, but could you direct me to the archives where I could read your story? Cheers, Quote Link to comment Share on other sites More sharing options...
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