new to list - from raleigh, nc

[Guest guest]

hi. my name is amy and i'm a mom to 6 month old emma. emma was

diagnosed with torticollis when she was about 5 weeks old, when i

noticed a lump on her neck. at her 3 month pediatrician's visit, i

mentioned that the right side of her head was looking a little flat.

at her 4 month pediatrician's visit, i mentioned it again. the dr.

said he would call me with the name of someone to take her to see.

after 3 weeks of calling his office, i was given the name of a

craniosacral therapist. while i was waiting to hear back from the dr.,

i called and made an appointment with a pediatric neurosurgeon at Duke

(i live in raleigh, nc) that emma's PT recommended. our appt. is next

wednesday, march 27. emma's right side is completely flat, her right

ear is much more forward than her left, and the right side of her

forehead is higher than the left. from what i've read on the web, this

is plagio.

i have a few questions.

1. has anyone else had success with craniosacral therapy? the woman we

are seeing does not take insurance and needs to see emma every week.

of course, i will do anything i can, but it would be reassuring to

hear of some success stories.

2. are there other people on this list from raleigh, nc? anyone who

works for the state (as i do) who has had experience with the state

health plan and whether or not it will cover the doc band? does the

doc band treatment need a referral from her pediatrician, or can that

come from the neurosurgeon?

3. shouldn't someone have warned me about plagio when emma was

diagnosed with torticollis?? her pediatrician or PT? i had really

never heard of it, and now that i'm doing some research, it seems that

torticollis often leads to plagio. i can't help but feel angry that i

did nothing to prevent this from happening.

4. has anyone used an osteopath to treat plagio?

as you can tell, i'm full of questions. emma is my first child. there

is so much to learn about being a mother - and now there's even more!

thanks.

amy

mom to emma (born 9/24/01)

[Guest guest]

Amy,

I'm sorry my reply is so late and no doubt you've received tons of good

answers already so I won't complicate things!! I just wanted to say welcome

and good luck with whichever road you choose. Please keep us posted and let

us know how things go.

Marci (Mom to )

Oklahoma