finally, an update on new and anxious:) Got our helmet, got problems

[Guest guest]

Hi, sorry I've been too busy to post for awhile, We finally got Kai's

helmet a week ago today after a month of waiting after he got casted.

Then after we got it we were having trouble getting it to sit right

on Kai's head and having trouble with pressure spots staying too

long. Our orthotist decided he made a mistake and drew the trimline

above his eyes too high, and the trouble we were having positioning

it was because we had to try to get it positioned as low as possible

on his forehead and then it wasn't quite right elsewhere. He's

getting a new helmet made at no cost to us, and are supposed to use

the first one as much as possible until then, but we're having

trouble with red areas and Kai hasn't had it on since yesterday

afternoon. It seems when he sleeps in it he rolls around and it

shifts and slides up on his forehead and gets a red spot there that

is persistent. He also had swelling around one eye yesterday after

taking a long nap in the helmet laying on his stomach and putting

pressure on the part of the helmet that is in front of his ear. We're

a little discouraged I'll admit that he hasn't been able to wear the

helmet much, seems to be such a delay in treatment. But, I believe

God guided us in the first part of the process in such a way, and He

still is in control I do believe, so I'm leaving it up to Him. If

anyone out there prays, I'd appreciate yours, that God will continue

to work in the process. Good to be back on!! (Kai's mom) in

Columbia, Mo.