Re: Marly Silverman Interview

[Guest guest]

Hi Cort,

Thanks for this interview. Marly Silverman sounds like a great

person to have on our side. I hope that our cause is finally picking

up a little momentum at the NIH and CDC. The second kickoff of the

CDC Awareness Campaign was the most successful event of its type that

I have seen. It generated many very positive and helpful news

stories with the clear message that this is a real, serious illness.

I'm looking forward to reports from the IACFS conference.

I also wanted to thank you for the Dorothy Wall interview. I read

her book, " Encounters With The Invisible " and I thought that it was

probably the best I had read at communicating how difficult it is to

have ME/CFIDS.

If anyone feels misunderstood or would like to help those around you

understand what it is you are going through or would just like to

read an accurate description of your experience, read this book.

Over and over she hits the nail on the head in describing the ordeal

that we go through.

Cort, your Phoenix Rising project is a great resource and I really

appreciate all the work you put into it.

Tom

[Guest guest]

Yes, Marly is very impressive. I too think the CDC campaign was very helpful. I

kept having people without CFS come up and tell me about it. I'm glad your read

Dorothy's book - I too that was best book I've read on CFS. She really hits, as

you say, dead on. Thanks for the nice comments!

Cort

Tomcy6 <tomcy6@...> wrote:

Hi Cort,

Thanks for this interview. Marly Silverman sounds like a great

person to have on our side. I hope that our cause is finally picking

up a little momentum at the NIH and CDC. The second kickoff of the

CDC Awareness Campaign was the most successful event of its type that

I have seen. It generated many very positive and helpful news

stories with the clear message that this is a real, serious illness.

I'm looking forward to reports from the IACFS conference.

I also wanted to thank you for the Dorothy Wall interview. I read

her book, " Encounters With The Invisible " and I thought that it was

probably the best I had read at communicating how difficult it is to

have ME/CFIDS.

If anyone feels misunderstood or would like to help those around you

understand what it is you are going through or would just like to

read an accurate description of your experience, read this book.

Over and over she hits the nail on the head in describing the ordeal

that we go through.

Cort, your Phoenix Rising project is a great resource and I really

appreciate all the work you put into it.

Tom

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