Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Hi Adrienne, I wonder if it is just a coincidence that my cognitive dysfunction was temporarily eliminated by a Regeneressen product partially comprised of bovine brain tissue and your Pituitropin's bovine material which I would assume must be bovine brain material given the pituitary glands location? Do you know if Pituitropin is screened for the prions which cause mad cow? Also, what country is it made in and how did you acquire it? If it's even just reasonably safe I would like to give it a try. Steve B. " Adrienne G. " <duckblossm@...> wrote: Nil, I am finding that the quantity I take makes a big difference w. some of these things. Although I am not following the YAsko protocol, I am most grateful for the concept of a " sprinkle " of something. Once I realize I have accumlutaed too much effect, I have been opening capsules and just eyeballing smaller doses. I have yet to figure out how to arrive at a constant dose, one that I could take and maintain a specific level, but I have learned to be on the lookout for overstimulation. So now, sometimes I take full dose, sometimes half, sometimes skip a day. It is kind of crazy, but it has its benefits. Adrienne Re: Cognitive problems update - dopamine and CFS. >i agree that there is a dopamine connection to CFS (at least in some > people). what the cause of this is, i don't know. > > i still think there is an infectious under-pinning, but until we find > the root causes, i have been interested in things that might provide > some relief. and to that end i have been reading about the studies of > dopamine agonists (mirapex and requip) in fibromyalgia. > > if you google (fibromyalgia, mirapex or fibromyalgia, requip) you > will find many hits. > > it is an interesting theory that the dopamine parts of our brain have > been effected (by infection, immune system, toxins, etc), but i am > still a little afraid to try the meds that would boost dopamine > levels. > > requip seems to be the most mild, but i'm not sure what i am basing > that on. also, they only seem to help in fibro in higher doses. > > if i ever decide to give them a try i will let you know my > experiences. > > there is a DR in Seattle i believe that is a big proponent of this > treatment and is studying it in depth. > > > i certainly don't think that dopamine is the whole answer, but maybe > it could provide some relief. > > thanks > bill > > > > > >> >> Many group members are highly educated/informed about >> neurotransmitters - I am not. Because of that, I will share some >> personal information that someone could interpret that may help the >> group as well as myself. >> >> Proposed hypothesis: Influencing the neurotransmitter dopamine may >> help clear up the brain fog and cognitive problems associated with >> CFS. If someone knows how to do this with supplements rather than >> medications, kindly share/explain. >> >> Read my story only if you have the energy. >> >> In addition to CFS I have Generalized Anxiety Disorder/Depression. > I >> started having panic attacks at age 17. I won't share my current age >> (funny about that since I'll share all this) but I am in my middle >> years. >> >> I know that many doctors will exclude CFS as a diagnosis if > depression >> is present, however, I have been formally diagnosed with the > illness >> because onset came after an episode of the flu with very high fever >> along with a period of extreme stress. Also, I my other conditions >> never affected my ability to exercise or be a workaholic. >> >> I have taken Xanax along with an antidepressant of some type on and >> off for years. With the SSRI's and SNRI's,(Prozac, Cymbalta, > Effexror) >> I run into problems with the norepinephrine, as it can make me very >> irritable and even more anxious. Thus, I cannot take what is >> considered to be a " therapeutic dose " . >> >> When I started having cognitive difficulties due to CFS, I tried >> Adderral, Provigil, etc., but nothing helped me as well as the anti- >> psychotics, such as Zyprexa, which work on dopamine. For some >> inexplicable reason, medications which work on this particular >> neurotransmitter really help me to stay awake, focus....in short, > give >> me my brain back >> >> Unfortunately, Zyprexa is all over the news with the weight gain >> issues, which is why I stopped taking it in spite of the results. >> >> I am now on Geodon, which is similar to Zyprexa without the weight >> issue ( in fact, it helps you lose weight). >> >> My point is, I think I have been an experiment that may give > evidence >> that influencing dopamine may help CFS. >> >> Perhaps someone in this group can or has simulated the results with >> supplements, which I would rather take than all these #@$%$$@ drugs. >> >> Let me know. >> >> Janice >> > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Steve; I do not know if it is screened. I know my naturopath is an extremely wise and prudent person, and I got it from him: it is a Standard Process product, called Pituitrophin PMG, (6850). It says " made in USA. Is combined w. Ca. and Mg. I have been on it for a year now, I think. Best, Adrienne Re: Cognitive problems update - dopamine and CFS. >i agree that there is a dopamine connection to CFS (at least in some > people). what the cause of this is, i don't know. > > i still think there is an infectious under-pinning, but until we find > the root causes, i have been interested in things that might provide > some relief. and to that end i have been reading about the studies of > dopamine agonists (mirapex and requip) in fibromyalgia. > > if you google (fibromyalgia, mirapex or fibromyalgia, requip) you > will find many hits. > > it is an interesting theory that the dopamine parts of our brain have > been effected (by infection, immune system, toxins, etc), but i am > still a little afraid to try the meds that would boost dopamine > levels. > > requip seems to be the most mild, but i'm not sure what i am basing > that on. also, they only seem to help in fibro in higher doses. > > if i ever decide to give them a try i will let you know my > experiences. > > there is a DR in Seattle i believe that is a big proponent of this > treatment and is studying it in depth. > > > i certainly don't think that dopamine is the whole answer, but maybe > it could provide some relief. > > thanks > bill > > > > > >> >> Many group members are highly educated/informed about >> neurotransmitters - I am not. Because of that, I will share some >> personal information that someone could interpret that may help the >> group as well as myself. >> >> Proposed hypothesis: Influencing the neurotransmitter dopamine may >> help clear up the brain fog and cognitive problems associated with >> CFS. If someone knows how to do this with supplements rather than >> medications, kindly share/explain. >> >> Read my story only if you have the energy. >> >> In addition to CFS I have Generalized Anxiety Disorder/Depression. > I >> started having panic attacks at age 17. I won't share my current age >> (funny about that since I'll share all this) but I am in my middle >> years. >> >> I know that many doctors will exclude CFS as a diagnosis if > depression >> is present, however, I have been formally diagnosed with the > illness >> because onset came after an episode of the flu with very high fever >> along with a period of extreme stress. Also, I my other conditions >> never affected my ability to exercise or be a workaholic. >> >> I have taken Xanax along with an antidepressant of some type on and >> off for years. With the SSRI's and SNRI's,(Prozac, Cymbalta, > Effexror) >> I run into problems with the norepinephrine, as it can make me very >> irritable and even more anxious. Thus, I cannot take what is >> considered to be a " therapeutic dose " . >> >> When I started having cognitive difficulties due to CFS, I tried >> Adderral, Provigil, etc., but nothing helped me as well as the anti- >> psychotics, such as Zyprexa, which work on dopamine. For some >> inexplicable reason, medications which work on this particular >> neurotransmitter really help me to stay awake, focus....in short, > give >> me my brain back >> >> Unfortunately, Zyprexa is all over the news with the weight gain >> issues, which is why I stopped taking it in spite of the results. >> >> I am now on Geodon, which is similar to Zyprexa without the weight >> issue ( in fact, it helps you lose weight). >> >> My point is, I think I have been an experiment that may give > evidence >> that influencing dopamine may help CFS. >> >> Perhaps someone in this group can or has simulated the results with >> supplements, which I would rather take than all these #@$%$$@ drugs. >> >> Let me know. >> >> Janice >> > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Sounds safe Adrienne. Steve " Adrienne G. " <duckblossm@...> wrote: Steve; I do not know if it is screened. I know my naturopath is an extremely wise and prudent person, and I got it from him: it is a Standard Process product, called Pituitrophin PMG, (6850). It says " made in USA. Is combined w. Ca. and Mg. I have been on it for a year now, I think. Best, Adrienne Re: Cognitive problems update - dopamine and CFS. >i agree that there is a dopamine connection to CFS (at least in some > people). what the cause of this is, i don't know. > > i still think there is an infectious under-pinning, but until we find > the root causes, i have been interested in things that might provide > some relief. and to that end i have been reading about the studies of > dopamine agonists (mirapex and requip) in fibromyalgia. > > if you google (fibromyalgia, mirapex or fibromyalgia, requip) you > will find many hits. > > it is an interesting theory that the dopamine parts of our brain have > been effected (by infection, immune system, toxins, etc), but i am > still a little afraid to try the meds that would boost dopamine > levels. > > requip seems to be the most mild, but i'm not sure what i am basing > that on. also, they only seem to help in fibro in higher doses. > > if i ever decide to give them a try i will let you know my > experiences. > > there is a DR in Seattle i believe that is a big proponent of this > treatment and is studying it in depth. > > > i certainly don't think that dopamine is the whole answer, but maybe > it could provide some relief. > > thanks > bill > > > > > >> >> Many group members are highly educated/informed about >> neurotransmitters - I am not. Because of that, I will share some >> personal information that someone could interpret that may help the >> group as well as myself. >> >> Proposed hypothesis: Influencing the neurotransmitter dopamine may >> help clear up the brain fog and cognitive problems associated with >> CFS. If someone knows how to do this with supplements rather than >> medications, kindly share/explain. >> >> Read my story only if you have the energy. >> >> In addition to CFS I have Generalized Anxiety Disorder/Depression. > I >> started having panic attacks at age 17. I won't share my current age >> (funny about that since I'll share all this) but I am in my middle >> years. >> >> I know that many doctors will exclude CFS as a diagnosis if > depression >> is present, however, I have been formally diagnosed with the > illness >> because onset came after an episode of the flu with very high fever >> along with a period of extreme stress. Also, I my other conditions >> never affected my ability to exercise or be a workaholic. >> >> I have taken Xanax along with an antidepressant of some type on and >> off for years. With the SSRI's and SNRI's,(Prozac, Cymbalta, > Effexror) >> I run into problems with the norepinephrine, as it can make me very >> irritable and even more anxious. Thus, I cannot take what is >> considered to be a " therapeutic dose " . >> >> When I started having cognitive difficulties due to CFS, I tried >> Adderral, Provigil, etc., but nothing helped me as well as the anti- >> psychotics, such as Zyprexa, which work on dopamine. For some >> inexplicable reason, medications which work on this particular >> neurotransmitter really help me to stay awake, focus....in short, > give >> me my brain back >> >> Unfortunately, Zyprexa is all over the news with the weight gain >> issues, which is why I stopped taking it in spite of the results. >> >> I am now on Geodon, which is similar to Zyprexa without the weight >> issue ( in fact, it helps you lose weight). >> >> My point is, I think I have been an experiment that may give > evidence >> that influencing dopamine may help CFS. >> >> Perhaps someone in this group can or has simulated the results with >> supplements, which I would rather take than all these #@$%$$@ drugs. >> >> Let me know. >> >> Janice >> > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 The things I worry about, Steve, are the pharmaceuticals. Not that I think all else is safe, just way more likely to be. The pituitrophin made my muscles stronger. Adrienne Re: Cognitive problems update - dopamine and CFS. >i agree that there is a dopamine connection to CFS (at least in some > people). what the cause of this is, i don't know. > > i still think there is an infectious under-pinning, but until we find > the root causes, i have been interested in things that might provide > some relief. and to that end i have been reading about the studies of > dopamine agonists (mirapex and requip) in fibromyalgia. > > if you google (fibromyalgia, mirapex or fibromyalgia, requip) you > will find many hits. > > it is an interesting theory that the dopamine parts of our brain have > been effected (by infection, immune system, toxins, etc), but i am > still a little afraid to try the meds that would boost dopamine > levels. > > requip seems to be the most mild, but i'm not sure what i am basing > that on. also, they only seem to help in fibro in higher doses. > > if i ever decide to give them a try i will let you know my > experiences. > > there is a DR in Seattle i believe that is a big proponent of this > treatment and is studying it in depth. > > > i certainly don't think that dopamine is the whole answer, but maybe > it could provide some relief. > > thanks > bill > > > > > >> >> Many group members are highly educated/informed about >> neurotransmitters - I am not. Because of that, I will share some >> personal information that someone could interpret that may help the >> group as well as myself. >> >> Proposed hypothesis: Influencing the neurotransmitter dopamine may >> help clear up the brain fog and cognitive problems associated with >> CFS. If someone knows how to do this with supplements rather than >> medications, kindly share/explain. >> >> Read my story only if you have the energy. >> >> In addition to CFS I have Generalized Anxiety Disorder/Depression. > I >> started having panic attacks at age 17. I won't share my current age >> (funny about that since I'll share all this) but I am in my middle >> years. >> >> I know that many doctors will exclude CFS as a diagnosis if > depression >> is present, however, I have been formally diagnosed with the > illness >> because onset came after an episode of the flu with very high fever >> along with a period of extreme stress. Also, I my other conditions >> never affected my ability to exercise or be a workaholic. >> >> I have taken Xanax along with an antidepressant of some type on and >> off for years. With the SSRI's and SNRI's,(Prozac, Cymbalta, > Effexror) >> I run into problems with the norepinephrine, as it can make me very >> irritable and even more anxious. Thus, I cannot take what is >> considered to be a " therapeutic dose " . >> >> When I started having cognitive difficulties due to CFS, I tried >> Adderral, Provigil, etc., but nothing helped me as well as the anti- >> psychotics, such as Zyprexa, which work on dopamine. For some >> inexplicable reason, medications which work on this particular >> neurotransmitter really help me to stay awake, focus....in short, > give >> me my brain back >> >> Unfortunately, Zyprexa is all over the news with the weight gain >> issues, which is why I stopped taking it in spite of the results. >> >> I am now on Geodon, which is similar to Zyprexa without the weight >> issue ( in fact, it helps you lose weight). >> >> My point is, I think I have been an experiment that may give > evidence >> that influencing dopamine may help CFS. >> >> Perhaps someone in this group can or has simulated the results with >> supplements, which I would rather take than all these #@$%$$@ drugs. >> >> Let me know. >> >> Janice >> > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Adrienne, how long were you on this stuff before you noticed the increased strength? Steve " Adrienne G. " <duckblossm@...> wrote: The things I worry about, Steve, are the pharmaceuticals. Not that I think all else is safe, just way more likely to be. The pituitrophin made my muscles stronger. Adrienne Re: Cognitive problems update - dopamine and CFS. >i agree that there is a dopamine connection to CFS (at least in some > people). what the cause of this is, i don't know. > > i still think there is an infectious under-pinning, but until we find > the root causes, i have been interested in things that might provide > some relief. and to that end i have been reading about the studies of > dopamine agonists (mirapex and requip) in fibromyalgia. > > if you google (fibromyalgia, mirapex or fibromyalgia, requip) you > will find many hits. > > it is an interesting theory that the dopamine parts of our brain have > been effected (by infection, immune system, toxins, etc), but i am > still a little afraid to try the meds that would boost dopamine > levels. > > requip seems to be the most mild, but i'm not sure what i am basing > that on. also, they only seem to help in fibro in higher doses. > > if i ever decide to give them a try i will let you know my > experiences. > > there is a DR in Seattle i believe that is a big proponent of this > treatment and is studying it in depth. > > > i certainly don't think that dopamine is the whole answer, but maybe > it could provide some relief. > > thanks > bill > > > > > >> >> Many group members are highly educated/informed about >> neurotransmitters - I am not. Because of that, I will share some >> personal information that someone could interpret that may help the >> group as well as myself. >> >> Proposed hypothesis: Influencing the neurotransmitter dopamine may >> help clear up the brain fog and cognitive problems associated with >> CFS. If someone knows how to do this with supplements rather than >> medications, kindly share/explain. >> >> Read my story only if you have the energy. >> >> In addition to CFS I have Generalized Anxiety Disorder/Depression. > I >> started having panic attacks at age 17. I won't share my current age >> (funny about that since I'll share all this) but I am in my middle >> years. >> >> I know that many doctors will exclude CFS as a diagnosis if > depression >> is present, however, I have been formally diagnosed with the > illness >> because onset came after an episode of the flu with very high fever >> along with a period of extreme stress. Also, I my other conditions >> never affected my ability to exercise or be a workaholic. >> >> I have taken Xanax along with an antidepressant of some type on and >> off for years. With the SSRI's and SNRI's,(Prozac, Cymbalta, > Effexror) >> I run into problems with the norepinephrine, as it can make me very >> irritable and even more anxious. Thus, I cannot take what is >> considered to be a " therapeutic dose " . >> >> When I started having cognitive difficulties due to CFS, I tried >> Adderral, Provigil, etc., but nothing helped me as well as the anti- >> psychotics, such as Zyprexa, which work on dopamine. For some >> inexplicable reason, medications which work on this particular >> neurotransmitter really help me to stay awake, focus....in short, > give >> me my brain back >> >> Unfortunately, Zyprexa is all over the news with the weight gain >> issues, which is why I stopped taking it in spite of the results. >> >> I am now on Geodon, which is similar to Zyprexa without the weight >> issue ( in fact, it helps you lose weight). >> >> My point is, I think I have been an experiment that may give > evidence >> that influencing dopamine may help CFS. >> >> Perhaps someone in this group can or has simulated the results with >> supplements, which I would rather take than all these #@$%$$@ drugs. >> >> Let me know. >> >> Janice >> > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Hard to say, Steve. My memory is not that good. Somewhere between 1-5 mos? Adrienne Re: Cognitive problems update - dopamine and CFS. >i agree that there is a dopamine connection to CFS (at least in some > people). what the cause of this is, i don't know. > > i still think there is an infectious under-pinning, but until we find > the root causes, i have been interested in things that might provide > some relief. and to that end i have been reading about the studies of > dopamine agonists (mirapex and requip) in fibromyalgia. > > if you google (fibromyalgia, mirapex or fibromyalgia, requip) you > will find many hits. > > it is an interesting theory that the dopamine parts of our brain have > been effected (by infection, immune system, toxins, etc), but i am > still a little afraid to try the meds that would boost dopamine > levels. > > requip seems to be the most mild, but i'm not sure what i am basing > that on. also, they only seem to help in fibro in higher doses. > > if i ever decide to give them a try i will let you know my > experiences. > > there is a DR in Seattle i believe that is a big proponent of this > treatment and is studying it in depth. > > > i certainly don't think that dopamine is the whole answer, but maybe > it could provide some relief. > > thanks > bill > > > > > >> >> Many group members are highly educated/informed about >> neurotransmitters - I am not. Because of that, I will share some >> personal information that someone could interpret that may help the >> group as well as myself. >> >> Proposed hypothesis: Influencing the neurotransmitter dopamine may >> help clear up the brain fog and cognitive problems associated with >> CFS. If someone knows how to do this with supplements rather than >> medications, kindly share/explain. >> >> Read my story only if you have the energy. >> >> In addition to CFS I have Generalized Anxiety Disorder/Depression. > I >> started having panic attacks at age 17. I won't share my current age >> (funny about that since I'll share all this) but I am in my middle >> years. >> >> I know that many doctors will exclude CFS as a diagnosis if > depression >> is present, however, I have been formally diagnosed with the > illness >> because onset came after an episode of the flu with very high fever >> along with a period of extreme stress. Also, I my other conditions >> never affected my ability to exercise or be a workaholic. >> >> I have taken Xanax along with an antidepressant of some type on and >> off for years. With the SSRI's and SNRI's,(Prozac, Cymbalta, > Effexror) >> I run into problems with the norepinephrine, as it can make me very >> irritable and even more anxious. Thus, I cannot take what is >> considered to be a " therapeutic dose " . >> >> When I started having cognitive difficulties due to CFS, I tried >> Adderral, Provigil, etc., but nothing helped me as well as the anti- >> psychotics, such as Zyprexa, which work on dopamine. For some >> inexplicable reason, medications which work on this particular >> neurotransmitter really help me to stay awake, focus....in short, > give >> me my brain back >> >> Unfortunately, Zyprexa is all over the news with the weight gain >> issues, which is why I stopped taking it in spite of the results. >> >> I am now on Geodon, which is similar to Zyprexa without the weight >> issue ( in fact, it helps you lose weight). >> >> My point is, I think I have been an experiment that may give > evidence >> that influencing dopamine may help CFS. >> >> Perhaps someone in this group can or has simulated the results with >> supplements, which I would rather take than all these #@$%$$@ drugs. >> >> Let me know. >> >> Janice >> > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
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