Re: Re: Cognitive problems update - dopamine and CFS.

[Guest guest]

Hi all

I would like to share my experience with you. Some time ago I started trying

l-methionine. It helped me with my brain functioning and I was happy with

it.After some time I started sleeping less, smoking a lot and developing

something like hypomania .It did not occur to me that the cause could be

l-methionine since it made my brain feel much more clear and helped me with

my daily life..Than I finally realized problem could be l-methionine.

Stopped it. It took me some time to go back to where I was before.I am

thinking it might have an effect of increasing effect on dopamine.Does

anyone have any idea if this could be true?Such things make me more and more

reluctant to try new supplements.

bw

Nil

Re: Cognitive problems update - dopamine and

CFS.

>i agree that there is a dopamine connection to CFS (at least in some

> people). what the cause of this is, i don't know.

>

> i still think there is an infectious under-pinning, but until we find

> the root causes, i have been interested in things that might provide

> some relief. and to that end i have been reading about the studies of

> dopamine agonists (mirapex and requip) in fibromyalgia.

>

> if you google (fibromyalgia, mirapex or fibromyalgia, requip) you

> will find many hits.

>

> it is an interesting theory that the dopamine parts of our brain have

> been effected (by infection, immune system, toxins, etc), but i am

> still a little afraid to try the meds that would boost dopamine

> levels.

>

> requip seems to be the most mild, but i'm not sure what i am basing

> that on. also, they only seem to help in fibro in higher doses.

>

> if i ever decide to give them a try i will let you know my

> experiences.

>

> there is a DR in Seattle i believe that is a big proponent of this

> treatment and is studying it in depth.

>

>

> i certainly don't think that dopamine is the whole answer, but maybe

> it could provide some relief.

>

> thanks

> bill

>

>

>

>

>

>>

>> Many group members are highly educated/informed about

>> neurotransmitters - I am not. Because of that, I will share some

>> personal information that someone could interpret that may help the

>> group as well as myself.

>>

>> Proposed hypothesis: Influencing the neurotransmitter dopamine may

>> help clear up the brain fog and cognitive problems associated with

>> CFS. If someone knows how to do this with supplements rather than

>> medications, kindly share/explain.

>>

>> Read my story only if you have the energy.

>>

>> In addition to CFS I have Generalized Anxiety Disorder/Depression.

> I

>> started having panic attacks at age 17. I won't share my current age

>> (funny about that since I'll share all this) but I am in my middle

>> years.

>>

>> I know that many doctors will exclude CFS as a diagnosis if

> depression

>> is present, however, I have been formally diagnosed with the

> illness

>> because onset came after an episode of the flu with very high fever

>> along with a period of extreme stress. Also, I my other conditions

>> never affected my ability to exercise or be a workaholic.

>>

>> I have taken Xanax along with an antidepressant of some type on and

>> off for years. With the SSRI's and SNRI's,(Prozac, Cymbalta,

> Effexror)

>> I run into problems with the norepinephrine, as it can make me very

>> irritable and even more anxious. Thus, I cannot take what is

>> considered to be a " therapeutic dose " .

>>

>> When I started having cognitive difficulties due to CFS, I tried

>> Adderral, Provigil, etc., but nothing helped me as well as the anti-

>> psychotics, such as Zyprexa, which work on dopamine. For some

>> inexplicable reason, medications which work on this particular

>> neurotransmitter really help me to stay awake, focus....in short,

> give

>> me my brain back

>>

>> Unfortunately, Zyprexa is all over the news with the weight gain

>> issues, which is why I stopped taking it in spite of the results.

>>

>> I am now on Geodon, which is similar to Zyprexa without the weight

>> issue ( in fact, it helps you lose weight).

>>

>> My point is, I think I have been an experiment that may give

> evidence

>> that influencing dopamine may help CFS.

>>

>> Perhaps someone in this group can or has simulated the results with

>> supplements, which I would rather take than all these #@$%$$@ drugs.

>>

>> Let me know.

>>

>> Janice

>>

>

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

[Guest guest]

Correct. It happened to me the same, I had 5 wonderful days, and then after that

a terrible period started... I am still trying to recover from that! It made me

anxious as well, worse than before trying it.

Massimo

Re: Cognitive problems update - dopamine and

CFS.

>i agree that there is a dopamine connection to CFS (at least in some

> people). what the cause of this is, i don't know.

>

> i still think there is an infectious under-pinning, but until we find

> the root causes, i have been interested in things that might provide

> some relief. and to that end i have been reading about the studies of

> dopamine agonists (mirapex and requip) in fibromyalgia.

>

> if you google (fibromyalgia, mirapex or fibromyalgia, requip) you

> will find many hits.

>

> it is an interesting theory that the dopamine parts of our brain have

> been effected (by infection, immune system, toxins, etc), but i am

> still a little afraid to try the meds that would boost dopamine

> levels.

>

> requip seems to be the most mild, but i'm not sure what i am basing

> that on. also, they only seem to help in fibro in higher doses.

>

> if i ever decide to give them a try i will let you know my

> experiences.

>

> there is a DR in Seattle i believe that is a big proponent of this

> treatment and is studying it in depth.

>

>

> i certainly don't think that dopamine is the whole answer, but maybe

> it could provide some relief.

>

> thanks

> bill

>

>

>

>

>

>>

>> Many group members are highly educated/informed about

>> neurotransmitters - I am not. Because of that, I will share some

>> personal information that someone could interpret that may help the

>> group as well as myself.

>>

>> Proposed hypothesis: Influencing the neurotransmitter dopamine may

>> help clear up the brain fog and cognitive problems associated with

>> CFS. If someone knows how to do this with supplements rather than

>> medications, kindly share/explain.

>>

>> Read my story only if you have the energy.

>>

>> In addition to CFS I have Generalized Anxiety Disorder/Depression.

> I

>> started having panic attacks at age 17. I won't share my current age

>> (funny about that since I'll share all this) but I am in my middle

>> years.

>>

>> I know that many doctors will exclude CFS as a diagnosis if

> depression

>> is present, however, I have been formally diagnosed with the

> illness

>> because onset came after an episode of the flu with very high fever

>> along with a period of extreme stress. Also, I my other conditions

>> never affected my ability to exercise or be a workaholic.

>>

>> I have taken Xanax along with an antidepressant of some type on and

>> off for years. With the SSRI's and SNRI's,(Prozac, Cymbalta,

> Effexror)

>> I run into problems with the norepinephrine, as it can make me very

>> irritable and even more anxious. Thus, I cannot take what is

>> considered to be a " therapeutic dose " .

>>

>> When I started having cognitive difficulties due to CFS, I tried

>> Adderral, Provigil, etc., but nothing helped me as well as the anti-

>> psychotics, such as Zyprexa, which work on dopamine. For some

>> inexplicable reason, medications which work on this particular

>> neurotransmitter really help me to stay awake, focus....in short,

> give

>> me my brain back

>>

>> Unfortunately, Zyprexa is all over the news with the weight gain

>> issues, which is why I stopped taking it in spite of the results.

>>

>> I am now on Geodon, which is similar to Zyprexa without the weight

>> issue ( in fact, it helps you lose weight).

>>

>> My point is, I think I have been an experiment that may give

> evidence

>> that influencing dopamine may help CFS.

>>

>> Perhaps someone in this group can or has simulated the results with

>> supplements, which I would rather take than all these #@$%$$@ drugs.

>>

>> Let me know.

>>

>> Janice

>>

>

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

[Guest guest]

Nil, I am finding that the quantity I take makes a big difference w. some of

these things. Although I am not following the YAsko protocol, I am most grateful

for the concept of a " sprinkle " of something.

Once I realize I have accumlutaed too much effect, I have been opening capsules

and just eyeballing smaller doses. I have yet to figure out how to arrive at a

constant dose, one that I could take and maintain a specific level, but I have

learned to be on the lookout for overstimulation. So now, sometimes I take full

dose, sometimes half, sometimes skip a day. It is kind of crazy, but it has its

benefits.

Adrienne

Re: Cognitive problems update - dopamine and

CFS.

>i agree that there is a dopamine connection to CFS (at least in some

> people). what the cause of this is, i don't know.

>

> i still think there is an infectious under-pinning, but until we find

> the root causes, i have been interested in things that might provide

> some relief. and to that end i have been reading about the studies of

> dopamine agonists (mirapex and requip) in fibromyalgia.

>

> if you google (fibromyalgia, mirapex or fibromyalgia, requip) you

> will find many hits.

>

> it is an interesting theory that the dopamine parts of our brain have

> been effected (by infection, immune system, toxins, etc), but i am

> still a little afraid to try the meds that would boost dopamine

> levels.

>

> requip seems to be the most mild, but i'm not sure what i am basing

> that on. also, they only seem to help in fibro in higher doses.

>

> if i ever decide to give them a try i will let you know my

> experiences.

>

> there is a DR in Seattle i believe that is a big proponent of this

> treatment and is studying it in depth.

>

>

> i certainly don't think that dopamine is the whole answer, but maybe

> it could provide some relief.

>

> thanks

> bill

>

>

>

>

>

>>

>> Many group members are highly educated/informed about

>> neurotransmitters - I am not. Because of that, I will share some

>> personal information that someone could interpret that may help the

>> group as well as myself.

>>

>> Proposed hypothesis: Influencing the neurotransmitter dopamine may

>> help clear up the brain fog and cognitive problems associated with

>> CFS. If someone knows how to do this with supplements rather than

>> medications, kindly share/explain.

>>

>> Read my story only if you have the energy.

>>

>> In addition to CFS I have Generalized Anxiety Disorder/Depression.

> I

>> started having panic attacks at age 17. I won't share my current age

>> (funny about that since I'll share all this) but I am in my middle

>> years.

>>

>> I know that many doctors will exclude CFS as a diagnosis if

> depression

>> is present, however, I have been formally diagnosed with the

> illness

>> because onset came after an episode of the flu with very high fever

>> along with a period of extreme stress. Also, I my other conditions

>> never affected my ability to exercise or be a workaholic.

>>

>> I have taken Xanax along with an antidepressant of some type on and

>> off for years. With the SSRI's and SNRI's,(Prozac, Cymbalta,

> Effexror)

>> I run into problems with the norepinephrine, as it can make me very

>> irritable and even more anxious. Thus, I cannot take what is

>> considered to be a " therapeutic dose " .

>>

>> When I started having cognitive difficulties due to CFS, I tried

>> Adderral, Provigil, etc., but nothing helped me as well as the anti-

>> psychotics, such as Zyprexa, which work on dopamine. For some

>> inexplicable reason, medications which work on this particular

>> neurotransmitter really help me to stay awake, focus....in short,

> give

>> me my brain back

>>

>> Unfortunately, Zyprexa is all over the news with the weight gain

>> issues, which is why I stopped taking it in spite of the results.

>>

>> I am now on Geodon, which is similar to Zyprexa without the weight

>> issue ( in fact, it helps you lose weight).

>>

>> My point is, I think I have been an experiment that may give

> evidence

>> that influencing dopamine may help CFS.

>>

>> Perhaps someone in this group can or has simulated the results with

>> supplements, which I would rather take than all these #@$%$$@ drugs.

>>

>> Let me know.

>>

>> Janice

>>

>

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

[Guest guest]

Crap, this was next on my list..

*Massimo <maxupolo@...> wrote: Correct. It happened to me the

same, I had 5 wonderful days, and then after that a terrible period started... I

am still trying to recover from that! It made me anxious as well, worse than

before trying it.

Massimo

Re: Cognitive problems update - dopamine and

CFS.

>i agree that there is a dopamine connection to CFS (at least in some

> people). what the cause of this is, i don't know.

>

> i still think there is an infectious under-pinning, but until we find

> the root causes, i have been interested in things that might provide

> some relief. and to that end i have been reading about the studies of

> dopamine agonists (mirapex and requip) in fibromyalgia.

>

> if you google (fibromyalgia, mirapex or fibromyalgia, requip) you

> will find many hits.

>

> it is an interesting theory that the dopamine parts of our brain have

> been effected (by infection, immune system, toxins, etc), but i am

> still a little afraid to try the meds that would boost dopamine

> levels.

>

> requip seems to be the most mild, but i'm not sure what i am basing

> that on. also, they only seem to help in fibro in higher doses.

>

> if i ever decide to give them a try i will let you know my

> experiences.

>

> there is a DR in Seattle i believe that is a big proponent of this

> treatment and is studying it in depth.

>

>

> i certainly don't think that dopamine is the whole answer, but maybe

> it could provide some relief.

>

> thanks

> bill

>

>

>

>

>

>>

>> Many group members are highly educated/informed about

>> neurotransmitters - I am not. Because of that, I will share some

>> personal information that someone could interpret that may help the

>> group as well as myself.

>>

>> Proposed hypothesis: Influencing the neurotransmitter dopamine may

>> help clear up the brain fog and cognitive problems associated with

>> CFS. If someone knows how to do this with supplements rather than

>> medications, kindly share/explain.

>>

>> Read my story only if you have the energy.

>>

>> In addition to CFS I have Generalized Anxiety Disorder/Depression.

> I

>> started having panic attacks at age 17. I won't share my current age

>> (funny about that since I'll share all this) but I am in my middle

>> years.

>>

>> I know that many doctors will exclude CFS as a diagnosis if

> depression

>> is present, however, I have been formally diagnosed with the

> illness

>> because onset came after an episode of the flu with very high fever

>> along with a period of extreme stress. Also, I my other conditions

>> never affected my ability to exercise or be a workaholic.

>>

>> I have taken Xanax along with an antidepressant of some type on and

>> off for years. With the SSRI's and SNRI's,(Prozac, Cymbalta,

> Effexror)

>> I run into problems with the norepinephrine, as it can make me very

>> irritable and even more anxious. Thus, I cannot take what is

>> considered to be a " therapeutic dose " .

>>

>> When I started having cognitive difficulties due to CFS, I tried

>> Adderral, Provigil, etc., but nothing helped me as well as the anti-

>> psychotics, such as Zyprexa, which work on dopamine. For some

>> inexplicable reason, medications which work on this particular

>> neurotransmitter really help me to stay awake, focus....in short,

> give

>> me my brain back

>>

>> Unfortunately, Zyprexa is all over the news with the weight gain

>> issues, which is why I stopped taking it in spite of the results.

>>

>> I am now on Geodon, which is similar to Zyprexa without the weight

>> issue ( in fact, it helps you lose weight).

>>

>> My point is, I think I have been an experiment that may give

> evidence

>> that influencing dopamine may help CFS.

>>

>> Perhaps someone in this group can or has simulated the results with

>> supplements, which I would rather take than all these #@$%$$@ drugs.

>>

>> Let me know.

>>

>> Janice

>>

>

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

[Guest guest]

thanks for sharing.. any idea why the adverse reaction?

*Massimo <maxupolo@...> wrote: Correct. It happened to me the

same, I had 5 wonderful days, and then after that a terrible period started... I

am still trying to recover from that! It made me anxious as well, worse than

before trying it.

Massimo

Re: Cognitive problems update - dopamine and

CFS.

>i agree that there is a dopamine connection to CFS (at least in some

> people). what the cause of this is, i don't know.

>

> i still think there is an infectious under-pinning, but until we find

> the root causes, i have been interested in things that might provide

> some relief. and to that end i have been reading about the studies of

> dopamine agonists (mirapex and requip) in fibromyalgia.

>

> if you google (fibromyalgia, mirapex or fibromyalgia, requip) you

> will find many hits.

>

> it is an interesting theory that the dopamine parts of our brain have

> been effected (by infection, immune system, toxins, etc), but i am

> still a little afraid to try the meds that would boost dopamine

> levels.

>

> requip seems to be the most mild, but i'm not sure what i am basing

> that on. also, they only seem to help in fibro in higher doses.

>

> if i ever decide to give them a try i will let you know my

> experiences.

>

> there is a DR in Seattle i believe that is a big proponent of this

> treatment and is studying it in depth.

>

>

> i certainly don't think that dopamine is the whole answer, but maybe

> it could provide some relief.

>

> thanks

> bill

>

>

>

>

>

>>

>> Many group members are highly educated/informed about

>> neurotransmitters - I am not. Because of that, I will share some

>> personal information that someone could interpret that may help the

>> group as well as myself.

>>

>> Proposed hypothesis: Influencing the neurotransmitter dopamine may

>> help clear up the brain fog and cognitive problems associated with

>> CFS. If someone knows how to do this with supplements rather than

>> medications, kindly share/explain.

>>

>> Read my story only if you have the energy.

>>

>> In addition to CFS I have Generalized Anxiety Disorder/Depression.

> I

>> started having panic attacks at age 17. I won't share my current age

>> (funny about that since I'll share all this) but I am in my middle

>> years.

>>

>> I know that many doctors will exclude CFS as a diagnosis if

> depression

>> is present, however, I have been formally diagnosed with the

> illness

>> because onset came after an episode of the flu with very high fever

>> along with a period of extreme stress. Also, I my other conditions

>> never affected my ability to exercise or be a workaholic.

>>

>> I have taken Xanax along with an antidepressant of some type on and

>> off for years. With the SSRI's and SNRI's,(Prozac, Cymbalta,

> Effexror)

>> I run into problems with the norepinephrine, as it can make me very

>> irritable and even more anxious. Thus, I cannot take what is

>> considered to be a " therapeutic dose " .

>>

>> When I started having cognitive difficulties due to CFS, I tried

>> Adderral, Provigil, etc., but nothing helped me as well as the anti-

>> psychotics, such as Zyprexa, which work on dopamine. For some

>> inexplicable reason, medications which work on this particular

>> neurotransmitter really help me to stay awake, focus....in short,

> give

>> me my brain back

>>

>> Unfortunately, Zyprexa is all over the news with the weight gain

>> issues, which is why I stopped taking it in spite of the results.

>>

>> I am now on Geodon, which is similar to Zyprexa without the weight

>> issue ( in fact, it helps you lose weight).

>>

>> My point is, I think I have been an experiment that may give

> evidence

>> that influencing dopamine may help CFS.

>>

>> Perhaps someone in this group can or has simulated the results with

>> supplements, which I would rather take than all these #@$%$$@ drugs.

>>

>> Let me know.

>>

>> Janice

>>

>

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

[Guest guest]

Yes Adrienne

I agree. That is the best approach but due to problems in my brain

functioning it takes me too long to realise that a supplement is not working

well for me any more.It is easy to detect if it helps me in the beginning

but than I keep taking it.I have the same problem with dosages. Sometimes I

decide that i need to increase dosage of a supplement but i see that a month

later i am still thinking about it. Very difficult to change the habits and

incorporate new things to my life.

wish you the best.

Nil

Re: Re: Cognitive problems update - dopamine

> and CFS.

>

>

[Guest guest]

I am thinking we have other neuro transmitter deficiencies,too.

bw

Nil

Re: Cognitive problems update - dopamine and

> CFS.

>

>>i agree that there is a dopamine connection to CFS (at least in some

>> people). what the cause of this is, i don't know.

>>

>> i still think there is an infectious under-pinning, but until we find

>> the root causes, i have been interested in things that might provide

>> some relief. and to that end i have been reading about the studies of

>> dopamine agonists (mirapex and requip) in fibromyalgia.

>>

>> if you google (fibromyalgia, mirapex or fibromyalgia, requip) you

>> will find many hits.

>>

>> it is an interesting theory that the dopamine parts of our brain have

>> been effected (by infection, immune system, toxins, etc), but i am

>> still a little afraid to try the meds that would boost dopamine

>> levels.

>>

>> requip seems to be the most mild, but i'm not sure what i am basing

>> that on. also, they only seem to help in fibro in higher doses.

>>

>> if i ever decide to give them a try i will let you know my

>> experiences.

>>

>> there is a DR in Seattle i believe that is a big proponent of this

>> treatment and is studying it in depth.

>>

>>

>> i certainly don't think that dopamine is the whole answer, but maybe

>> it could provide some relief.

>>

>> thanks

>> bill

>>

>>

>>

>>

>>

>>>

>>> Many group members are highly educated/informed about

>>> neurotransmitters - I am not. Because of that, I will share some

>>> personal information that someone could interpret that may help the

>>> group as well as myself.

>>>

>>> Proposed hypothesis: Influencing the neurotransmitter dopamine may

>>> help clear up the brain fog and cognitive problems associated with

>>> CFS. If someone knows how to do this with supplements rather than

>>> medications, kindly share/explain.

>>>

>>> Read my story only if you have the energy.

>>>

>>> In addition to CFS I have Generalized Anxiety Disorder/Depression.

>> I

>>> started having panic attacks at age 17. I won't share my current age

>>> (funny about that since I'll share all this) but I am in my middle

>>> years.

>>>

>>> I know that many doctors will exclude CFS as a diagnosis if

>> depression

>>> is present, however, I have been formally diagnosed with the

>> illness

>>> because onset came after an episode of the flu with very high fever

>>> along with a period of extreme stress. Also, I my other conditions

>>> never affected my ability to exercise or be a workaholic.

>>>

>>> I have taken Xanax along with an antidepressant of some type on and

>>> off for years. With the SSRI's and SNRI's,(Prozac, Cymbalta,

>> Effexror)

>>> I run into problems with the norepinephrine, as it can make me very

>>> irritable and even more anxious. Thus, I cannot take what is

>>> considered to be a " therapeutic dose " .

>>>

>>> When I started having cognitive difficulties due to CFS, I tried

>>> Adderral, Provigil, etc., but nothing helped me as well as the anti-

>>> psychotics, such as Zyprexa, which work on dopamine. For some

>>> inexplicable reason, medications which work on this particular

>>> neurotransmitter really help me to stay awake, focus....in short,

>> give

>>> me my brain back

>>>

>>> Unfortunately, Zyprexa is all over the news with the weight gain

>>> issues, which is why I stopped taking it in spite of the results.

>>>

>>> I am now on Geodon, which is similar to Zyprexa without the weight

>>> issue ( in fact, it helps you lose weight).

>>>

>>> My point is, I think I have been an experiment that may give

>> evidence

>>> that influencing dopamine may help CFS.

>>>

>>> Perhaps someone in this group can or has simulated the results with

>>> supplements, which I would rather take than all these #@$%$$@ drugs.

>>>

>>> Let me know.

>>>

>>> Janice

>>>

>>

>>

>>

>>

>> This list is intended for patients to share personal experiences with

>> each

>> other, not to give medical advice. If you are interested in any treatment

>> discussed here, please consult your doctor.

>>

[Guest guest]

I understand. It has only gotten a bit easier in the last year, as my brain is

working better.

Adrienne

Re: Re: Cognitive problems update - dopamine

> and CFS.

>

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.