Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 Hi Mike, Patient funding is crucial to most illnesses, but practically cannot provide nearly enough. What CFS groups provide is extremely small and many patients are not comfortable in donating under the existing circumstances so even research has suffered. Having a solid professional organization is very important, particularly given the credibility problems. This would be great for one major discovery to solve everything but probability of this happening is pretty slim. Jill _________________ IACFS conference Message List Reply | Forward Message #110333 of 110334 < Prev | Next > Re: IACFS conference a-I can't agree w/ your statement below any more strongly. After 20+ years of conferences, breakthroughs, etc. I have come to believe that the only way we are going to make any progress toward a treatment is to fund researchers on our own-I mean us patients. The CDC is still doing prevalence studies and there are various studies going on that only address one or two symptoms, like the Epotein study. These studies are better than nothing, but I think the real breakthrough will come from a researcher who is able to patent a treatment-i.e., someone who is willing to devote the time and money necessary w/ the hope of 'striking it rich' via their patent. I am all for this way of finding a treatment, that is the way things work in the U.S. and I would be willing to pay whatever it takes to get back to at least 80-90%. Mike C In , " pjeanneus " <pj7@...> wrote: > I for one am tired of the whole thing. I can think of a lot nicer way > to spend a few days mid January. Maybe I should go climb Mt. Hood > away from the toxic mold. > > a Carnes Quote Link to comment Share on other sites More sharing options...
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