Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Bill, Do you know if Chia tests cfs patients for borrelia and if so what lab? I wonder if he has seen cfs in it's Lyme disease form? Thanks, a Carnes > > i finally saw Dr Chia a couple of weeks ago and i have to say that i > am so happy i travelled to see him. > > he is very determined to not only get info out about how serious CFS > is, but to do the necessary research to either figure this thing out > himself or at least get more DRs and researchers to devote themselves > to our condition. > > he has some new papers that show more evidence of these enteroviruses > in PWCs and really believes that he is hot on the trail. > > he was very compassionate and has seen CFS in all its forms. he knew > all my experiences before i mentioned them to him. > > as for treatments he mentioned a few thing he uses like IVIG > (expensive and hard to get ins. to pay for), interferons (same > scenario). he has had some good repsonses to the interferon > treatments, but it also can be hard to handle. > > he is trying an herb that he is very excited about called matrine, > but it needs to be from a reliable source from China and needs some > special paperwork to get it imported to the country. > > i am going to give this a shot, and i will certainly report back my > results. > > i woudld suggest going to see him if you are interested in trying > this herb. i guess it can alter certain organ functions (not sure if > it is kidney or liver) but i have to get bloodwork done after taking > it for a month to see if there are any changes. > > i am very hopeful, and was so glad that i made the decision to see > him > > thanks > bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Where is he? Adrienne Dr Chia update i finally saw Dr Chia a couple of weeks ago and i have to say that i am so happy i travelled to see him. he is very determined to not only get info out about how serious CFS is, but to do the necessary research to either figure this thing out himself or at least get more DRs and researchers to devote themselves to our condition. he has some new papers that show more evidence of these enteroviruses in PWCs and really believes that he is hot on the trail. he was very compassionate and has seen CFS in all its forms. he knew all my experiences before i mentioned them to him. as for treatments he mentioned a few thing he uses like IVIG (expensive and hard to get ins. to pay for), interferons (same scenario). he has had some good repsonses to the interferon treatments, but it also can be hard to handle. he is trying an herb that he is very excited about called matrine, but it needs to be from a reliable source from China and needs some special paperwork to get it imported to the country. i am going to give this a shot, and i will certainly report back my results. i woudld suggest going to see him if you are interested in trying this herb. i guess it can alter certain organ functions (not sure if it is kidney or liver) but i have to get bloodwork done after taking it for a month to see if there are any changes. i am very hopeful, and was so glad that i made the decision to see him thanks bill This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 a i don't know for sure. we didn't talk too much about Lyme. i have gone down that road and didn't get too much better. so, i went to him knowing that his focus is enteroviruses in CFS. he is a general practicing Infectious Disease DR, so i'm sure he knows alot about it. still, as far as i know, he is not an LLMD and being in LA probably doesn't focus too much on Lyme. thanks bill > > Bill, > Do you know if Chia tests cfs patients for borrelia and if so what > lab? I wonder if he has seen cfs in it's Lyme disease form? > > Thanks, > a Carnes > > > > > > i finally saw Dr Chia a couple of weeks ago and i have to say that > i > > am so happy i travelled to see him. > > > > he is very determined to not only get info out about how serious > CFS > > is, but to do the necessary research to either figure this thing > out > > himself or at least get more DRs and researchers to devote > themselves > > to our condition. > > > > he has some new papers that show more evidence of these > enteroviruses > > in PWCs and really believes that he is hot on the trail. > > > > he was very compassionate and has seen CFS in all its forms. he > knew > > all my experiences before i mentioned them to him. > > > > as for treatments he mentioned a few thing he uses like IVIG > > (expensive and hard to get ins. to pay for), interferons (same > > scenario). he has had some good repsonses to the interferon > > treatments, but it also can be hard to handle. > > > > he is trying an herb that he is very excited about called matrine, > > but it needs to be from a reliable source from China and needs some > > special paperwork to get it imported to the country. > > > > i am going to give this a shot, and i will certainly report back my > > results. > > > > i woudld suggest going to see him if you are interested in trying > > this herb. i guess it can alter certain organ functions (not sure > if > > it is kidney or liver) but i have to get bloodwork done after > taking > > it for a month to see if there are any changes. > > > > i am very hopeful, and was so glad that i made the decision to see > > him > > > > thanks > > bill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2006 Report Share Posted December 15, 2006 Bill, if at all possible, would you contact him and ask 1. Is he testing all cfs patients for borrelia and possibly ehrlichia , babesia and bartonella? 2. What lab and what tests is he using? If you get to chat with him please tell him that I am the patient who tried Zadaxin for borrelia for six months. I did not help me at all. He probably found the same with the patients he treated. Thanks, a > > a > > i don't know for sure. we didn't talk too much about Lyme. i have > gone down that road and didn't get too much better. so, i went to him > knowing that his focus is enteroviruses in CFS. > > he is a general practicing Infectious Disease DR, so i'm sure he > knows alot about it. > > still, as far as i know, he is not an LLMD and being in LA probably > doesn't focus too much on Lyme. > > thanks > bill > > > > > > Bill, > > Do you know if Chia tests cfs patients for borrelia and if so what > > lab? I wonder if he has seen cfs in it's Lyme disease form? > > > > Thanks, > > a Carnes > > > > > > > > > > i finally saw Dr Chia a couple of weeks ago and i have to say > that > > i > > > am so happy i travelled to see him. > > > > > > he is very determined to not only get info out about how serious > > CFS > > > is, but to do the necessary research to either figure this thing > > out > > > himself or at least get more DRs and researchers to devote > > themselves > > > to our condition. > > > > > > he has some new papers that show more evidence of these > > enteroviruses > > > in PWCs and really believes that he is hot on the trail. > > > > > > he was very compassionate and has seen CFS in all its forms. he > > knew > > > all my experiences before i mentioned them to him. > > > > > > as for treatments he mentioned a few thing he uses like IVIG > > > (expensive and hard to get ins. to pay for), interferons (same > > > scenario). he has had some good repsonses to the interferon > > > treatments, but it also can be hard to handle. > > > > > > he is trying an herb that he is very excited about called > matrine, > > > but it needs to be from a reliable source from China and needs > some > > > special paperwork to get it imported to the country. > > > > > > i am going to give this a shot, and i will certainly report back > my > > > results. > > > > > > i woudld suggest going to see him if you are interested in trying > > > this herb. i guess it can alter certain organ functions (not sure > > if > > > it is kidney or liver) but i have to get bloodwork done after > > taking > > > it for a month to see if there are any changes. > > > > > > i am very hopeful, and was so glad that i made the decision to > see > > > him > > > > > > thanks > > > bill > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 thanks for the input, Bill. Dr Chia will be giving a presentation at the IACFS conference in January. winsomme <winsomme@...> wrote: i finally saw Dr Chia a couple of weeks ago and i have to say that i am so happy i travelled to see him. he is very determined to not only get info out about how serious CFS is, but to do the necessary research to either figure this thing out himself or at least get more DRs and researchers to devote themselves to our condition. he has some new papers that show more evidence of these enteroviruses in PWCs and really believes that he is hot on the trail. he was very compassionate and has seen CFS in all its forms. he knew all my experiences before i mentioned them to him. as for treatments he mentioned a few thing he uses like IVIG (expensive and hard to get ins. to pay for), interferons (same scenario). he has had some good repsonses to the interferon treatments, but it also can be hard to handle. he is trying an herb that he is very excited about called matrine, but it needs to be from a reliable source from China and needs some special paperwork to get it imported to the country. i am going to give this a shot, and i will certainly report back my results. i woudld suggest going to see him if you are interested in trying this herb. i guess it can alter certain organ functions (not sure if it is kidney or liver) but i have to get bloodwork done after taking it for a month to see if there are any changes. i am very hopeful, and was so glad that i made the decision to see him thanks bill __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 I just gotta know: does he have grren sprouts growing all over his body? On 12/16/06, cort johnson <cortttt@...> wrote: > > thanks for the input, Bill. Dr Chia will be giving a presentation at the > IACFS conference in January. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Hi Bill, I read a post by PVLady at immunesupport.com http://www.immunesupport.com/chat/forums/message.cfm?id=1017609 & B=FM She also sees Dr. Chia and she said he recommends a Chinese herb extract called Matrine ( in addition to other treatments you mentioned). She thinks the Matrine can be ordered from BeVigour and its called Agascoli. Is this the same product that you take? Does Dr. Chia still require blood work after a month of taking it, and is that becuase you are in a study with him or because it might cause harm? Thanks, Cobi > > i finally saw Dr Chia a couple of weeks ago and i have to say that i > am so happy i travelled to see him. > > he is very determined to not only get info out about how serious CFS > is, but to do the necessary research to either figure this thing out > himself or at least get more DRs and researchers to devote themselves > to our condition. > > he has some new papers that show more evidence of these enteroviruses > in PWCs and really believes that he is hot on the trail. > > he was very compassionate and has seen CFS in all its forms. he knew > all my experiences before i mentioned them to him. > > as for treatments he mentioned a few thing he uses like IVIG > (expensive and hard to get ins. to pay for), interferons (same > scenario). he has had some good repsonses to the interferon > treatments, but it also can be hard to handle. > > he is trying an herb that he is very excited about called matrine, > but it needs to be from a reliable source from China and needs some > special paperwork to get it imported to the country. > > i am going to give this a shot, and i will certainly report back my > results. > > i woudld suggest going to see him if you are interested in trying > this herb. i guess it can alter certain organ functions (not sure if > it is kidney or liver) but i have to get bloodwork done after taking > it for a month to see if there are any changes. > > i am very hopeful, and was so glad that i made the decision to see > him > > thanks > bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 the matrine i ordered was from China. it certainly is possible that Dr Chia has found a US distributor so we don't have to order from so far away. i am not in the study, but i decided to order it to give it a shot. i can't really say one way or another yet whether it is helping. i will certainly reply back when i have some more definitive feelings. it certainly is good news that there is a US place to get Matrine, and i would expect if PVLady mentioned it, she probably was directed there by Dr Chia. i am also anxious to hear back reports from the IACFS because i know Dr Chia was presenting there. thanks bill > > > > i finally saw Dr Chia a couple of weeks ago and i have to say that i > > am so happy i travelled to see him. > > > > he is very determined to not only get info out about how serious CFS > > is, but to do the necessary research to either figure this thing out > > himself or at least get more DRs and researchers to devote themselves > > to our condition. > > > > he has some new papers that show more evidence of these enteroviruses > > in PWCs and really believes that he is hot on the trail. > > > > he was very compassionate and has seen CFS in all its forms. he knew > > all my experiences before i mentioned them to him. > > > > as for treatments he mentioned a few thing he uses like IVIG > > (expensive and hard to get ins. to pay for), interferons (same > > scenario). he has had some good repsonses to the interferon > > treatments, but it also can be hard to handle. > > > > he is trying an herb that he is very excited about called matrine, > > but it needs to be from a reliable source from China and needs some > > special paperwork to get it imported to the country. > > > > i am going to give this a shot, and i will certainly report back my > > results. > > > > i woudld suggest going to see him if you are interested in trying > > this herb. i guess it can alter certain organ functions (not sure if > > it is kidney or liver) but i have to get bloodwork done after taking > > it for a month to see if there are any changes. > > > > i am very hopeful, and was so glad that i made the decision to see > > him > > > > thanks > > bill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 I'll put a full report on him when I do the whole conference but I must say he was a very effective presenter - an impressive physician/researcher. winsomme <winsomme@...> wrote: the matrine i ordered was from China. it certainly is possible that Dr Chia has found a US distributor so we don't have to order from so far away. i am not in the study, but i decided to order it to give it a shot. i can't really say one way or another yet whether it is helping. i will certainly reply back when i have some more definitive feelings. it certainly is good news that there is a US place to get Matrine, and i would expect if PVLady mentioned it, she probably was directed there by Dr Chia. i am also anxious to hear back reports from the IACFS because i know Dr Chia was presenting there. thanks bill > > > > i finally saw Dr Chia a couple of weeks ago and i have to say that i > > am so happy i travelled to see him. > > > > he is very determined to not only get info out about how serious CFS > > is, but to do the necessary research to either figure this thing out > > himself or at least get more DRs and researchers to devote themselves > > to our condition. > > > > he has some new papers that show more evidence of these enteroviruses > > in PWCs and really believes that he is hot on the trail. > > > > he was very compassionate and has seen CFS in all its forms. he knew > > all my experiences before i mentioned them to him. > > > > as for treatments he mentioned a few thing he uses like IVIG > > (expensive and hard to get ins. to pay for), interferons (same > > scenario). he has had some good repsonses to the interferon > > treatments, but it also can be hard to handle. > > > > he is trying an herb that he is very excited about called matrine, > > but it needs to be from a reliable source from China and needs some > > special paperwork to get it imported to the country. > > > > i am going to give this a shot, and i will certainly report back my > > results. > > > > i woudld suggest going to see him if you are interested in trying > > this herb. i guess it can alter certain organ functions (not sure if > > it is kidney or liver) but i have to get bloodwork done after taking > > it for a month to see if there are any changes. > > > > i am very hopeful, and was so glad that i made the decision to see > > him > > > > thanks > > bill > > > --------------------------------- Everyone is raving about the all-new beta. Quote Link to comment Share on other sites More sharing options...
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