Re: How do you help your adrenal glands?--Rich and all

[Guest guest]

Hi, Rich and all.

richvank@...> wrote:

> I just want to mention that in CFS it appears that in many cases the

> issue is not with the adrenals themselves, but rather higher up in the

> HPA axis, at the level of the pituitary or the hypothalamus or even

> higher in the brain...

***My case strongly indicates the higher up in the brain issue is closer to the

source of the

problem and the cause of my most troublesome symptoms. Nondenatured whey use

seems to have definitely eliminated several symptoms and lab values associated

with

thyroid, hypothalamus and pituitary issues.

***I've even derived benefit from supplements like lipoceutical glutathione and

others

recently that improved glutamate/GABA balance, eliminating a thin but clear

layer of pain

on my right side brain as I've mentioned here I have in the past. However, and

I think it's

getting down to the last tough juggernaut and probably most important aspect of

my CFS

pathology that must be dealt with effectively in order to get well, my right

side neocortical

dead spots or clogged/neurotranmission blocked areas as I sense them remain.

***I believe this neocortical problem has been in effect since childhood, before

my classic

ebstein-barr virus activated onset to full on CFS in 1986 . So far none of

several

pharmaceutical treatments I've done in my past nor the last two years of

RenewPro nor

DMPS treatment nor the recent BH4 I tried, which definitely helps

neurotransmission in

areas surrounding, has penetrated or made a difference to this right side

cortical

dysfunction. I'm not sure if this problem is about persisting heavy metal

toxicity, viruses,

amyloid/misfolded proteins, a strong focal methylation problem or what, but it

is clear

this problem must go in order for me to be well, function properly and have a

life.

***Any feedback that might assist at this point in making this happen I

certainly welcome.

***

[Guest guest]

Hi, ,

Some thoughts occurred to me as I read your post.

Have you ever had an MRI of the brain? I wonder if the problem

could be at a physical, rather than a chemical, level.

I was wondering if you ever had cranial sacral therapy. A good

therapist can open energy pathways that are blocked - no matter what

the cause (this is not to say it is " The " answer).

> > I just want to mention that in CFS it appears that in many cases

the

> > issue is not with the adrenals themselves, but rather higher up

in the

> > HPA axis, at the level of the pituitary or the hypothalamus or

even

> > higher in the brain...

>

>

>

> ***My case strongly indicates the higher up in the brain issue is

closer to the source of the

> problem and the cause of my most troublesome symptoms.

Nondenatured whey use

> seems to have definitely eliminated several symptoms and lab

values associated with

> thyroid, hypothalamus and pituitary issues.

>

>

>

> ***I've even derived benefit from supplements like lipoceutical

glutathione and others

> recently that improved glutamate/GABA balance, eliminating a thin

but clear layer of pain

> on my right side brain as I've mentioned here I have in the past.

However, and I think it's

> getting down to the last tough juggernaut and probably most

important aspect of my CFS

> pathology that must be dealt with effectively in order to get

well, my right side neocortical

> dead spots or clogged/neurotranmission blocked areas as I sense

them remain.

>

>

>

> ***I believe this neocortical problem has been in effect since

childhood, before my classic

> ebstein-barr virus activated onset to full on CFS in 1986 . So

far none of several

> pharmaceutical treatments I've done in my past nor the last two

years of RenewPro nor

> DMPS treatment nor the recent BH4 I tried, which definitely helps

neurotransmission in

> areas surrounding, has penetrated or made a difference to this

right side cortical

> dysfunction. I'm not sure if this problem is about persisting

heavy metal toxicity, viruses,

> amyloid/misfolded proteins, a strong focal methylation problem or

what, but it is clear

> this problem must go in order for me to be well, function properly

and have a life.

>

>

>

> ***Any feedback that might assist at this point in making this

happen I certainly welcome.

>

>

>

> ***

>

[Guest guest]

Hi, Janet.

jgstev716@...> wrote:

>

> HI ,

>

> Have you thought of asking this quesiton on Autism Answer?? They may be able

to

help,

***I've read a lot of posts at the AA board and have implemented a few things

based on

what I read. I highly doubt my asking this question there would provide more

insight as

the typical response to such a post is one, read previous posts on the topic

which I've

done, and/or two, do the genetic panel which I haven't done to get feedback on

this.

***Recently it appears Dr Amy is refraining from doing much if any speculation

or

commentary for folks who have not done her genetic panel, which I'm not sure at

this

point is worth the cost for my case given I'm a little bit further down the

field with

improved methylation than all those kids and some PWCs with CBS upregulation

issues.

I think I'm on the right track as far as treatments go and perhaps need to be

more patient

for improved brain function results despite already having been very patient in

this

marathon, so we'll see how it goes.

***

[Guest guest]

Hi, .

<marypmichel@...> wrote:

>

>

>

> Hi, ,

> Some thoughts occurred to me as I read your post.

> Have you ever had an MRI of the brain?

***Yes.

I wonder if the problem

> could be at a physical, rather than a chemical, level.

***I'm sure it is both. Nothing relevant to my CFS symptoms was spotted on MRI

though.

Standard MRIs are likely insufficient to the task and specialized testing with

this

technology would get extremely expensive as well as not very likely insightful

to the

degree that something out of the ordinary might be found that is treatable or

not already

known as a possibility from previous CFS brain studies.

***A PET scan I had done showed hypoperfusion in certain areas, but this is not

surprising

as low blood flow in the brain of PWCs is now a fair thing to assume is

happening in any

case(the suggested leading treatment models for CFS remain unaltered by this

information).

> I was wondering if you ever had cranial sacral therapy. A good

> therapist can open energy pathways that are blocked - no matter what

> the cause (this is not to say it is " The " answer).

***This is a good thought. I'm skeptical that cranial sacral therapy would make

much

difference to cortical pathways at all, but I won't rule it out on skepticism

alone(do you

have a lead to a good practitioner of this in Northern California?).

***