Re: Re: How do you help your adrenal glands?--Rich and all

[Guest guest]

HI ,

Have you thought of asking this quesiton on Autism Answer?? They may be able

to help,

All the best,

Janet

davidhall2020 <david-hall@...> wrote:

Hi, Rich and all.

richvank@...> wrote:

> I just want to mention that in CFS it appears that in many cases the

> issue is not with the adrenals themselves, but rather higher up in the

> HPA axis, at the level of the pituitary or the hypothalamus or even

> higher in the brain...

***My case strongly indicates the higher up in the brain issue is closer to the

source of the

problem and the cause of my most troublesome symptoms. Nondenatured whey use

seems to have definitely eliminated several symptoms and lab values associated

with

thyroid, hypothalamus and pituitary issues.

***I've even derived benefit from supplements like lipoceutical glutathione and

others

recently that improved glutamate/GABA balance, eliminating a thin but clear

layer of pain

on my right side brain as I've mentioned here I have in the past. However, and I

think it's

getting down to the last tough juggernaut and probably most important aspect of

my CFS

pathology that must be dealt with effectively in order to get well, my right

side neocortical

dead spots or clogged/neurotranmission blocked areas as I sense them remain.

***I believe this neocortical problem has been in effect since childhood, before

my classic

ebstein-barr virus activated onset to full on CFS in 1986 . So far none of

several

pharmaceutical treatments I've done in my past nor the last two years of

RenewPro nor

DMPS treatment nor the recent BH4 I tried, which definitely helps

neurotransmission in

areas surrounding, has penetrated or made a difference to this right side

cortical

dysfunction. I'm not sure if this problem is about persisting heavy metal

toxicity, viruses,

amyloid/misfolded proteins, a strong focal methylation problem or what, but it

is clear

this problem must go in order for me to be well, function properly and have a

life.

***Any feedback that might assist at this point in making this happen I

certainly welcome.

***

[Guest guest]

Hi all

I also have similar kind of pain on left side of my head. If I can not rest

my brain often during the day it gets much worse and i am unable to think.I

noticed it gets less when I am able to increase my blood circulation and

also when I think less. Could not yet try whey protein.

Nil

Re: How do you help your adrenal glands?--Rich

and all

>

>

> Hi, ,

> Some thoughts occurred to me as I read your post.

> Have you ever had an MRI of the brain? I wonder if the problem

> could be at a physical, rather than a chemical, level.

> I was wondering if you ever had cranial sacral therapy. A good

> therapist can open energy pathways that are blocked - no matter what

> the cause (this is not to say it is " The " answer).

>

>

>

>

>

>

>> > I just want to mention that in CFS it appears that in many cases

> the

>> > issue is not with the adrenals themselves, but rather higher up

> in the

>> > HPA axis, at the level of the pituitary or the hypothalamus or

> even

>> > higher in the brain...

>>

>>

>>

>> ***My case strongly indicates the higher up in the brain issue is

> closer to the source of the

>> problem and the cause of my most troublesome symptoms.

> Nondenatured whey use

>> seems to have definitely eliminated several symptoms and lab

> values associated with

>> thyroid, hypothalamus and pituitary issues.

>>

>>

>>

>> ***I've even derived benefit from supplements like lipoceutical

> glutathione and others

>> recently that improved glutamate/GABA balance, eliminating a thin

> but clear layer of pain

>> on my right side brain as I've mentioned here I have in the past.

> However, and I think it's

>> getting down to the last tough juggernaut and probably most

> important aspect of my CFS

>> pathology that must be dealt with effectively in order to get

> well, my right side neocortical

>> dead spots or clogged/neurotranmission blocked areas as I sense

> them remain.

>>

>>

>>

>> ***I believe this neocortical problem has been in effect since

> childhood, before my classic

>> ebstein-barr virus activated onset to full on CFS in 1986 . So

> far none of several

>> pharmaceutical treatments I've done in my past nor the last two

> years of RenewPro nor

>> DMPS treatment nor the recent BH4 I tried, which definitely helps

> neurotransmission in

>> areas surrounding, has penetrated or made a difference to this

> right side cortical

>> dysfunction. I'm not sure if this problem is about persisting

> heavy metal toxicity, viruses,

>> amyloid/misfolded proteins, a strong focal methylation problem or

> what, but it is clear

>> this problem must go in order for me to be well, function properly

> and have a life.

>>

>>

>>

>> ***Any feedback that might assist at this point in making this

> happen I certainly welcome.

>>

>>

>>

>> ***

>>

>

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

[Guest guest]

OK, I can see how that makes sense for now. I hope you start feeling better.

When I get my headaches, I think of you.

Another note to the group: It has occured to me that the more we CFSers get

involved in autism answer, the more attention that will bring to our case. ie,

mitochondial issues and the krebs cycle. In other words, more pressure on the

teacher. She is a researcher of bio chemistry. The closest one we have to our

group....

Just my 2 cents.

Janet

davidhall2020 <david-hall@...> wrote:

Hi, Janet.

jgstev716@...> wrote:

>

> HI ,

>

> Have you thought of asking this quesiton on Autism Answer?? They may be able

to

help,

***I've read a lot of posts at the AA board and have implemented a few things

based on

what I read. I highly doubt my asking this question there would provide more

insight as

the typical response to such a post is one, read previous posts on the topic

which I've

done, and/or two, do the genetic panel which I haven't done to get feedback on

this.

***Recently it appears Dr Amy is refraining from doing much if any speculation

or

commentary for folks who have not done her genetic panel, which I'm not sure at

this

point is worth the cost for my case given I'm a little bit further down the

field with

improved methylation than all those kids and some PWCs with CBS upregulation

issues.

I think I'm on the right track as far as treatments go and perhaps need to be

more patient

for improved brain function results despite already having been very patient in

this

marathon, so we'll see how it goes.

***