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Hi Celeste,

Well the first time I went they gave me neck exercises to do with

Madison. They don't seem to be helping and around her mouth turns a

light shade of blue like she is not getting enough oxygen. Is this

common? she is not seeing a pt I am going to ask about that when I

go to her appt today. It it real common to have a pt? To tell you

the truth I am just very nervous.

Welcome to the group and post congratulations on your twin

daughters!! My son was dx with torticollis and also developed

plagio. Can you tell me a little bit more about your situation: how

often do you stretch her? What types of stretches are you doing? Is

she seeing a professional pt? Have you checked into the support

group, torticolliskids or www.torticolliskids.org?

They are a great source of tips and info! Keep in mind that tort is

not a quick fix, it takes a lot of time and hard work. Some

children, very rarely, do not respond to physical therapy and surgery

is considered as a last result around age 2. This is extremely rare

though, so if you have not talked with a professional pt, please do

so asap. It took a good 3 months for us to see results, so hang in

there if its been less time. Let me know if I can help you with any

questions, I would be happy to. I will attach a link to show you

some of the exercises and holds that are very helpful. You can also

email me at rella1234@.... Don't worry- between this group and

the tort group, all your questions will be answered!

' Mom

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