Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 its lovely to hear from you i found the whole thing a bit disjointed i didnt really know who i should be addressing dr bently or dr blecher and the facilities were quite poor i thought it was all very stressful. Do you know when dr blecher is coming again and did he discuss the cost of the helmet with you i a bit confused to be truthful did he tell you what sort of result you would get zacs plagio is severe his ears are very misaligned with frontal bulge etc i came away relieved that it waSNT CRANIOCYNOSTOSIS but dont relish the thought of more trips down there laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 Hi , I know what you mean about the facilities - i wish i had known that i would be bathing on in the sink - i would have taken a baby bath down!!!! ( for the cost of £7 - you think an investment in that and a couple of towels wouldn't break the bank! Anyway i know what you mean about the two Dr's. As i get it Dr Blecher is the real specialist - they are both plastic surgeons - but Dr Blecher comes over to train up Dr Bentley in the treatment - he will eventually take over. They didn't mention the cost of the helmet there but i believe it is £1000 ( not cheap hey) but it is not yet covered on the NHS - i think we are going to ask if we can pay in installments, as we are just about to move up to Leeds - currently living in Wigan. ons head is flat at the back - a pure positional plagio case - his face is quite symmetric - with one ear only very slightly forward - you wouldn't really notice - his case is moderate. They did say we should see improvement in about 5 - 8 weeks - but the treatment would last about 5 months. I believe Dr Blecher is next over on the 25th - he has yet to confirm it. We should be going down the night before and staying in a hotel in Lambeth. I'll let you know which one - maybe we could meet up? And perhaps eventually for future adjustments etc - we could go down together taking it it turns or something - it might ease the travelling a little ? Just a thought. Did they tell you what result they could get with Zac? It all seems so daunting at the moment doesn't it? - we will get through it though - so glad you wrote back - its reassuring to know there is someone else going through the same at the same time with the same feelings! Eleanor X --- perrizac <perrizac@...> wrote: <HR> <html><body> <tt> its lovely to hear from you i found the whole thing a bit disjointed <BR> i didnt really know who i should be addressing dr bently or dr <BR> blecher and the facilities were quite poor i thought it was all very <BR> stressful. Do you know when dr blecher is coming again and did he <BR> discuss the cost of the helmet with you i a bit confused to be <BR> truthful did he tell you what sort of result you would get zacs <BR> plagio is severe his ears are very misaligned with frontal bulge etc <BR> i came away relieved that it waSNT CRANIOCYNOSTOSIS but dont relish <BR> the thought of more trips down there<BR> laura<BR> <BR> </tt> <br> <!-- |**|begin egp html banner|**| --> <table border=0 cellspacing=0 cellpadding=2> <tr bgcolor=#FFFFCC> <td align=center><font size= " -1 " color=#003399><b> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 I'm sending this again for --- eleanor sheppard <eleanorsheppard@...> wrote: <HR> <html><body> <tt> Hi ,<BR> <BR> I know what you mean about the facilities - i wish i<BR> had known that i would be bathing on in the sink<BR> - i would have taken a baby bath down!!!! ( for the<BR> cost of £7 - you think an investment in that and a<BR> couple of towels wouldn't break the bank!<BR> Anyway i know what you mean about the two Dr's. As i<BR> get it Dr Blecher is the real specialist - they are<BR> both plastic surgeons - but Dr Blecher comes over to<BR> train up Dr Bentley in the treatment - he will<BR> eventually take over. They didn't mention the cost of<BR> the helmet there but i believe it is £1000 ( not cheap<BR> hey) but it is not yet covered on the NHS - i think we<BR> are going to ask if we can pay in installments, as we<BR> are just about to move up to Leeds - currently living<BR> in Wigan. ons head is flat at the back - a pure<BR> positional plagio case - his face is quite symmetric -<BR> with one ear only very slightly forward - you wouldn't<BR> really notice - his case is moderate. They did say we<BR> should see improvement in about 5 - 8 weeks - but the<BR> treatment would last about 5 months. I believe Dr<BR> Blecher is next over on the 25th - he has yet to<BR> confirm it.<BR> We & nbsp; should be going down the night before and staying<BR> in a hotel in Lambeth. I'll let you know which one -<BR> maybe we could meet up? And perhaps eventually for<BR> future adjustments etc - we could go down together<BR> taking it it turns or something - it might ease the<BR> travelling a little ? Just a thought. <BR> Did they tell you what result they could get with Zac?<BR> <BR> It all seems so daunting at the moment doesn't it? -<BR> we will get through it though - so glad you wrote back<BR> - its reassuring to know there is someone else going<BR> through the same at the same time with the same<BR> feelings!<BR> <BR> Eleanor X<BR> --- perrizac & lt;perrizac@... & gt; wrote: <BR> & lt;HR & gt;<BR> & lt;html & gt; & lt;body & gt;<BR> <BR> <BR> & lt;tt & gt;<BR> its lovely to hear from you i found the whole thing a<BR> bit disjointed & lt;BR & gt;<BR> i didnt really know who i should be addressing dr<BR> bently or dr & lt;BR & gt;<BR> blecher and the facilities were quite poor i thought<BR> it was all very & lt;BR & gt;<BR> stressful. Do you know when dr blecher is coming again<BR> and did he & lt;BR & gt;<BR> discuss the cost of the helmet with you i a bit<BR> confused to be & lt;BR & gt;<BR> truthful did he tell you what sort of result you would<BR> get zacs & lt;BR & gt;<BR> plagio is severe his ears are very misaligned with<BR> frontal bulge etc & lt;BR & gt;<BR> i came away relieved that it waSNT CRANIOCYNOSTOSIS<BR> but dont relish & lt;BR & gt;<BR> the thought of more trips down there & lt;BR & gt;<BR> laura & lt;BR & gt;<BR> & lt;BR & gt;<BR> & lt;/tt & gt;<BR> <BR> & lt;br & gt;<BR> <BR> & lt;!-- |**|begin egp html banner|**| -- & gt;<BR> <BR> & lt;table border=0 cellspacing=0 cellpadding=2 & gt;<BR> & lt;tr bgcolor=#FFFFCC & gt;<BR> & lt;td align=center & gt; & lt;font size= & quot;-1 & quot;<BR> color=#003399 & gt; & lt;b & gt; Sponsor & lt;/b & gt; & lt;/font & gt; & lt;/td & gt;<BR> & lt;/tr & gt;<BR> & lt;tr bgcolor=#FFFFFF & gt;<BR> & lt;td align=center width=470 & gt; & lt;table border=0<BR> cellpadding=0 cellspacing=0 & gt; & lt;tr & gt; & lt;td align=center & gt; & lt;font<BR> face=arial size=-2 & gt;ADVERTISEMENT & lt;/font & gt; & lt;br & gt; & lt;a<BR> href= & quot;<a href= " http://rd./M=215002.1818248.3328688.1261774/D=egroupweb/S=1705126\ 171:HM/A=847665/R=0/*http://ads.x10.com/?bHlhaG9vbW9uc3RlcjcuZGF0=1016128909%3eM\ =215002.1818248.3328688.1261774/D=egroupweb/S=1705126171:HM/A=847665/R=1 " >http:/\ /rd./M=215002.1818248.3328688.1261774/D=egroupweb/S=1705126171:HM/A=847\ 665/R=0/*http://ads.x10.com/?bHlhaG9vbW9uc3RlcjcuZGF0=1016128909%3eM=215002.1818\ 248.3328688.1261774/D=egroupweb/S=1705126171:HM/A=847665/R=1</a> & quot;<BR> target=_top & gt; & lt;img<BR> src= & quot;<a href= " http://ads.x10.com/?Z3lhaG9vbW9uc3RlcjcuZGF0=1016128909%3eM=215002.1818248\ ..3328688.1261774/D=egroupweb/S=1705126171:HM/A=847665/R=2 " >http://ads.x10.com/?Z\ 3lhaG9vbW9uc3RlcjcuZGF0=1016128909%3eM=215002.1818248.3328688.1261774/D=egroupwe\ b/S=1705126171:HM/A=847665/R=2</a> & quot;<BR> alt= & quot; & quot; width= & quot;300 & quot; height= & quot;250 & quot;<BR> border= & quot;0 & quot; & gt; & lt;/a & gt; & lt;/td & gt; & lt;/tr & gt; & lt;/table & gt; & lt;/td & gt\ ;<BR> & lt;/tr & gt;<BR> & lt;tr & gt; & lt;td & gt; & lt;img alt= & quot; & quot; width=1 height=1<BR> src= & quot;<a href= " http://us.adserver./l?M=215002.1818248.3328688.1261774/D=egroupma\ il/S=1705126171:HM/A=847665/rand=535631339 " >http://us.adserver./l?M=215\ 002.1818248.3328688.1261774/D=egroupmail/S=1705126171:HM/A=847665/rand=535631339\ </a> & quot; & gt; & lt;/td & gt; & lt;/tr & gt;<BR> & lt;/table & gt;<BR> <BR> & lt;!-- |**|end egp html banner|**| -- & gt;<BR> <BR> <BR> & lt;br & gt;<BR> & lt;tt & gt;<BR> For more plagio info, go to<BR> www.plagiocephaly.org/support & lt;BR & gt;<BR> Quote Link to comment Share on other sites More sharing options...
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