Re: Cheney & Hyperbaric (HBOT)

[Guest guest]

I don't know about HBOT but my assuredly flawed understanding from

Cheney is that the systems of some people with CFS, and I am

definitely one, have mutated into a low-oxygen state as a protective

measure, and if I put more oxygen in, it would oxidise my cells, and

create free radicals and negatively affect this screwed up

mitochondrial cooling system that he told me about. I probably got at

least half of that wrong, I'm no Cheney.

Helen

>

> Could someone please explain to me why Dr. Cheney and Dr. Goldstein

> both believe HBOT is harmful? I'd really like to know more details

> before embarking on this treatment. Also, are there any HBOT people

> still on this list? (those who have had good experiences?).

>

> I'm doing nebulized glutathione and glutathione shots concurrently

> with the HBOT (which, for the record, I haven't really started yet

as

> the home HBOT chamber is far more complicated than I thought it

would

> be), so I'm hoping to prevent potential oxygen toxicity. I'm afraid

> of fire and other dangers (i.e. changes to eyesight that some

> experience with HBOT), but I don't know what specific physical

dangers

> would apply to CFIDS patients.

>

> The general opinion of HBOT for cardiac conditions is mixed. There

is

> research on both sides. I personally have had so many experiences

> where, post-exertion (and I'm talking minor exertion here) I've had

an

> extreme worsening of my cardiac symptoms and chest pains and neck

> venous distention and ensuing cognitive problems that feel like

> classic ischemia or cardiac decompensation. I want to experiment

with

> HBOT as a post-exertional tool for one thing, to see if it helps

> offset my crashes somewhat.

>

> Peggy

>

[Guest guest]

If it was me, I would first just try breathing some O2- the sort that people

with lung problems use. It might be enough.

Wasn't Cheny's objection to do with the PFO situation? That the pressure could

be bad for some w. that condition?

Adrienne

Re: Cheney & Hyperbaric (HBOT)

Could someone please explain to me why Dr. Cheney and Dr. Goldstein

both believe HBOT is harmful? I'd really like to know more details

before embarking on this treatment. Also, are there any HBOT people

still on this list? (those who have had good experiences?).

I'm doing nebulized glutathione and glutathione shots concurrently

with the HBOT (which, for the record, I haven't really started yet as

the home HBOT chamber is far more complicated than I thought it would

be), so I'm hoping to prevent potential oxygen toxicity. I'm afraid

of fire and other dangers (i.e. changes to eyesight that some

experience with HBOT), but I don't know what specific physical dangers

would apply to CFIDS patients.

The general opinion of HBOT for cardiac conditions is mixed. There is

research on both sides. I personally have had so many experiences

where, post-exertion (and I'm talking minor exertion here) I've had an

extreme worsening of my cardiac symptoms and chest pains and neck

venous distention and ensuing cognitive problems that feel like

classic ischemia or cardiac decompensation. I want to experiment with

HBOT as a post-exertional tool for one thing, to see if it helps

offset my crashes somewhat.

Peggy

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

> >

> > Could someone please explain to me why Dr. Cheney and Dr.

Goldstein

> > both believe HBOT is harmful? I'd really like to know more

details

> > before embarking on this treatment. Also, are there any HBOT

people

> > still on this list? (those who have had good experiences?).

> >

> > I'm doing nebulized glutathione and glutathione shots concurrently

> > with the HBOT (which, for the record, I haven't really started

yet

> as

> > the home HBOT chamber is far more complicated than I thought it

> would

> > be), so I'm hoping to prevent potential oxygen toxicity. I'm

afraid

> > of fire and other dangers (i.e. changes to eyesight that some

> > experience with HBOT), but I don't know what specific physical

> dangers

> > would apply to CFIDS patients.

> >

> > The general opinion of HBOT for cardiac conditions is mixed.

There

> is

> > research on both sides. I personally have had so many experiences

> > where, post-exertion (and I'm talking minor exertion here) I've

had

> an

> > extreme worsening of my cardiac symptoms and chest pains and neck

> > venous distention and ensuing cognitive problems that feel like

> > classic ischemia or cardiac decompensation. I want to experiment

> with

> > HBOT as a post-exertional tool for one thing, to see if it helps

> > offset my crashes somewhat.

> >

> > Peggy

> >

>

[Guest guest]

Argh! I think I answered my own question. It looks as if, in terms

of the scientific literature, having patent foramen ovale (the heart

defect Cheney talks about) would make a person a poor candidate for

HBOT. If anyone can give me evidence to the contrary, or argue

against this, please do!

After doing further searches on patent foramen ovale, I found many

articles linking it to increased risk of decompression illness in

divers, which means that it is a likely risk factor for people

attempting HBOT (since HBOT is basically " diving " ).

After reading about this, I'm curious how Cheney would view patent

foramen ovale in his theories on MCS. When I have a chemical

exposure, I feel it right in my heart, and it makes all of my cardiac

symptoms worse. I feel a sense of being poisoned throughout my whole

body, and being absolutely unable to filter out gaseous pollutants of

any kind. I wonder if this is at all similar to what happens in

people with decompression illness and PFO?

Peggy

[Guest guest]

Yes, that is what he found with the PFO hole. But if he's finding 80%

of his patients have a PFO hole, that isn't very good odds for

someone with CFS who is not his patient,is my point. Ideally one

should make sure that oxygen is helpful and not harmful to one's

particular health. Easier said than done, I know, since he apparently

is the only one looking at this angle.

>

> If it was me, I would first just try breathing some O2- the sort

that people with lung problems use. It might be enough.

> Wasn't Cheny's objection to do with the PFO situation? That the

pressure could be bad for some w. that condition?

> Adrienne

> Re: Cheney & Hyperbaric (HBOT)

>

>

> Could someone please explain to me why Dr. Cheney and Dr.

Goldstein

> both believe HBOT is harmful? I'd really like to know more

details

> before embarking on this treatment. Also, are there any HBOT

people

> still on this list? (those who have had good experiences?).

>

> I'm doing nebulized glutathione and glutathione shots concurrently

> with the HBOT (which, for the record, I haven't really started

yet as

> the home HBOT chamber is far more complicated than I thought it

would

> be), so I'm hoping to prevent potential oxygen toxicity. I'm

afraid

> of fire and other dangers (i.e. changes to eyesight that some

> experience with HBOT), but I don't know what specific physical

dangers

> would apply to CFIDS patients.

>

> The general opinion of HBOT for cardiac conditions is mixed.

There is

> research on both sides. I personally have had so many experiences

> where, post-exertion (and I'm talking minor exertion here) I've

had an

> extreme worsening of my cardiac symptoms and chest pains and neck

> venous distention and ensuing cognitive problems that feel like

> classic ischemia or cardiac decompensation. I want to experiment

with

> HBOT as a post-exertional tool for one thing, to see if it helps

> offset my crashes somewhat.

>

> Peggy

>

>

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested

in any treatment discussed here, please consult your doctor.

>

[Guest guest]

my understanding is that a helpful level of oxygen would vary from

person to person and it would be difficult and time-consuming to

determine. A helpful level of oxygen was not determined for me.

> > >

> > > Could someone please explain to me why Dr. Cheney and Dr.

> Goldstein

> > > both believe HBOT is harmful? I'd really like to know more

> details

> > > before embarking on this treatment. Also, are there any HBOT

> people

> > > still on this list? (those who have had good experiences?).

> > >

> > > I'm doing nebulized glutathione and glutathione shots

concurrently

> > > with the HBOT (which, for the record, I haven't really started

> yet

> > as

> > > the home HBOT chamber is far more complicated than I thought it

> > would

> > > be), so I'm hoping to prevent potential oxygen toxicity. I'm

> afraid

> > > of fire and other dangers (i.e. changes to eyesight that some

> > > experience with HBOT), but I don't know what specific physical

> > dangers

> > > would apply to CFIDS patients.

> > >

> > > The general opinion of HBOT for cardiac conditions is mixed.

> There

> > is

> > > research on both sides. I personally have had so many

experiences

> > > where, post-exertion (and I'm talking minor exertion here) I've

> had

> > an

> > > extreme worsening of my cardiac symptoms and chest pains and

neck

> > > venous distention and ensuing cognitive problems that feel like

> > > classic ischemia or cardiac decompensation. I want to

experiment

> > with

> > > HBOT as a post-exertional tool for one thing, to see if it helps

> > > offset my crashes somewhat.

> > >

> > > Peggy

> > >

> >

>

[Guest guest]

my understanding is that the PFO hole makes you lose your last

filter, it allows toxins to cross from side to side in your heart,

and go straight to your brain via your circulation

it's not a good thing to have or cause to grow larger

>

> Argh! I think I answered my own question. It looks as if, in terms

> of the scientific literature, having patent foramen ovale (the heart

> defect Cheney talks about) would make a person a poor candidate for

> HBOT. If anyone can give me evidence to the contrary, or argue

> against this, please do!

>

> After doing further searches on patent foramen ovale, I found many

> articles linking it to increased risk of decompression illness in

> divers, which means that it is a likely risk factor for people

> attempting HBOT (since HBOT is basically " diving " ).

>

> After reading about this, I'm curious how Cheney would view patent

> foramen ovale in his theories on MCS. When I have a chemical

> exposure, I feel it right in my heart, and it makes all of my

cardiac

> symptoms worse. I feel a sense of being poisoned throughout my

whole

> body, and being absolutely unable to filter out gaseous pollutants

of

> any kind. I wonder if this is at all similar to what happens in

> people with decompression illness and PFO?

>

> Peggy

>

[Guest guest]

If a toxin's effect was to make muscle tone less, you could imagine it relaxing

the heart in a way that would allow the size of the opening to increase.

Adrienne

Re: Cheney & Hyperbaric (HBOT)

Argh! I think I answered my own question. It looks as if, in terms

of the scientific literature, having patent foramen ovale (the heart

defect Cheney talks about) would make a person a poor candidate for

HBOT. If anyone can give me evidence to the contrary, or argue

against this, please do!

After doing further searches on patent foramen ovale, I found many

articles linking it to increased risk of decompression illness in

divers, which means that it is a likely risk factor for people

attempting HBOT (since HBOT is basically " diving " ).

After reading about this, I'm curious how Cheney would view patent

foramen ovale in his theories on MCS. When I have a chemical

exposure, I feel it right in my heart, and it makes all of my cardiac

symptoms worse. I feel a sense of being poisoned throughout my whole

body, and being absolutely unable to filter out gaseous pollutants of

any kind. I wonder if this is at all similar to what happens in

people with decompression illness and PFO?

Peggy

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

I've had good experience with HBOT. However, mine is a home chamber which is a

much lower ATA than the commercial or hospital ones. I recently read an

interesting article about how much oxygen is in our air now. I live on the

coast and it said that 30 years ago the percentage of oxygen was 30%. It's now

19%. That's a huge drop in not so long a time period. Maybe a little oxygen is

something we might benefit from. It's all still on the examining table isn't

it?

lifelonglearner79 <lifelonglearner79@...> wrote:

> >

> > Could someone please explain to me why Dr. Cheney and Dr.

Goldstein

> > both believe HBOT is harmful? I'd really like to know more

details

> > before embarking on this treatment. Also, are there any HBOT

people

> > still on this list? (those who have had good experiences?).

> >

> > I'm doing nebulized glutathione and glutathione shots concurrently

> > with the HBOT (which, for the record, I haven't really started

yet

> as

> > the home HBOT chamber is far more complicated than I thought it

> would

> > be), so I'm hoping to prevent potential oxygen toxicity. I'm

afraid

> > of fire and other dangers (i.e. changes to eyesight that some

> > experience with HBOT), but I don't know what specific physical

> dangers

> > would apply to CFIDS patients.

> >

> > The general opinion of HBOT for cardiac conditions is mixed.

There

> is

> > research on both sides. I personally have had so many experiences

> > where, post-exertion (and I'm talking minor exertion here) I've

had

> an

> > extreme worsening of my cardiac symptoms and chest pains and neck

> > venous distention and ensuing cognitive problems that feel like

> > classic ischemia or cardiac decompensation. I want to experiment

> with

> > HBOT as a post-exertional tool for one thing, to see if it helps

> > offset my crashes somewhat.

> >

> > Peggy

> >

>