Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Al can u tell us some more about Dr Enlander's CFS protocol? And what's working for you? Louella --------------------------------- Check out the New - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 > > Al > can u tell us some more about Dr Enlander's CFS protocol? And what's working for you? > > Louella Hi Louella, I'm not a patient of Dr. Enlander, but you can read some things about his protocol at www.enlander.com . I'm using Cold-FX, a immune system supplement currently. Vit. B12 sublingual, DMG, L-Carnitine, Olive Leaf extractas needed. Al Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Louelle: Dr. Enlander recommended I take 3 different medication / supplements: 1) Immunoprop: I'm taking ImmunePro instead. While Dr. Enlander didn't mind, he believes Immunoprop is better (I have several cannisters left and it is much cheaper). This really helped in the beginning (~6 years ago). Not sure now, but afraid to stop. 2) Lectrolyte: Similar to Recup except it doesn't have the sweet stuff. I believe it has helped (felt better after starting it and relapsed slightly after running out for 10 days). I have low blood volume and tachycardia. (Tried other electrolytes, sea salt and florinef to no avail) 3) IM cocktail of Nexavir, GSH, trace minerals, mag., folic acid, B12. I think this has also helped tremendously. IN the past 6 months I've been on this I've made great progress, although I was getting better before that. Dr. Enlander was very pleased my blood tests showed a drop in HHV after 3 months. Additionally, FIR and glutathione (supplements and lipo) have done wonders for me. I also just started on heart supplements listed on Dr. Myhill's website and I think it has helped. Al PS: For sleep, Dr. Enlander recommended Xyrem. While it is stronger than anything I've taken in the past (too long to list), it did not stop me from waking up at night. Interesting enough I can now sleep around 6-7 hours a night after starting the Ribose, CoQ10, etc. (from Myhill). But its hard to attribute my improvement to any specific treatment, aside ffrom timing. --- louella monrovia <lmonrovia@...> wrote: > Al > can u tell us some more about Dr Enlander's CFS > protocol? And what's working for you? > > Louella > > > > > --------------------------------- > Check out the New - Fire up a more > powerful email and get things done faster. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ __________ Check out the New - Fire up a more powerful email and get things done faster. (http://advision.webevents./mailbeta) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Hi Al thanks for replying. hadn't heard of immunoprop...is he the sole vendor? Also, what does he recommend in terms of oral gsh? I've used Essential GSH from the WEllness pharamcy in Birmingham, AL, and the liquid stuff for nebulising from the Key Pharmacy in WA, but am unclear how helpful they are. I get glut IVs now too, and I would say thtey are helping. Interesting that he recommends the Xyrem. I tried this and freaked out on it. Terrible rebound anxiety and paranoia. Only gave it an 11- day trial tho.... More than my bad experience, I'm just scared of using such a powerful drug where the operating mechanism is not understood.... Gave me good sleep though. Wish there was an alternative. One last thing.. how do u measure your titers of HHV6, is it, or 7? PCR, regular blood test? cheers Louella - In , visnew20 <visnew20@...> wrote: > > Louelle: > > Dr. Enlander recommended I take 3 different medication > / supplements: > > 1) Immunoprop: I'm taking ImmunePro instead. While > Dr. Enlander didn't mind, he believes Immunoprop is > better (I have several cannisters left and it is much > cheaper). This really helped in the beginning (~6 > years ago). Not sure now, but afraid to stop. > > 2) Lectrolyte: Similar to Recup except it doesn't > have the sweet stuff. I believe it has helped (felt > better after starting it and relapsed slightly after > running out for 10 days). I have low blood volume and > tachycardia. (Tried other electrolytes, sea salt and > florinef to no avail) > > 3) IM cocktail of Nexavir, GSH, trace minerals, mag., > folic acid, B12. I think this has also helped > tremendously. IN the past 6 months I've been on this > I've made great progress, although I was getting > better before that. Dr. Enlander was very pleased my > blood tests showed a drop in HHV after 3 months. > > Additionally, FIR and glutathione (supplements and > lipo) have done wonders for me. I also just started > on heart supplements listed on Dr. Myhill's website > and I think it has helped. > > Al > > PS: For sleep, Dr. Enlander recommended Xyrem. While > it is stronger than anything I've taken in the past > (too long to list), it did not stop me from waking up > at night. Interesting enough I can now sleep around > 6-7 hours a night after starting the Ribose, CoQ10, > etc. (from Myhill). But its hard to attribute my > improvement to any specific treatment, aside ffrom > timing. > > --- louella monrovia <lmonrovia@...> wrote: > > > Al > > can u tell us some more about Dr Enlander's CFS > > protocol? And what's working for you? > > > > Louella > > > > > > > > > > --------------------------------- > > Check out the New - Fire up a more > > powerful email and get things done faster. > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > ______________________________________________________________________ ____________________ > Check out the New - Fire up a more powerful email and get things done faster. > (http://advision.webevents./mailbeta) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Hi Al thanks for replying. hadn't heard of immunoprop...is he the sole vendor? Also, what does he recommend in terms of oral gsh? I've used Essential GSH from the WEllness pharamcy in Birmingham, AL, and the liquid stuff for nebulising from the Key Pharmacy in WA, but am unclear how helpful they are. I get glut IVs now too, and I would say thtey are helping. Interesting that he recommends the Xyrem. I tried this and freaked out on it. Terrible rebound anxiety and paranoia. Only gave it an 11- day trial tho.... More than my bad experience, I'm just scared of using such a powerful drug where the operating mechanism is not understood.... Gave me good sleep though. Wish there was an alternative. One last thing.. how do u measure your titers of HHV6, is it, or 7? PCR, regular blood test? cheers Louella - In , visnew20 <visnew20@...> wrote: > > Louelle: > > Dr. Enlander recommended I take 3 different medication > / supplements: > > 1) Immunoprop: I'm taking ImmunePro instead. While > Dr. Enlander didn't mind, he believes Immunoprop is > better (I have several cannisters left and it is much > cheaper). This really helped in the beginning (~6 > years ago). Not sure now, but afraid to stop. > > 2) Lectrolyte: Similar to Recup except it doesn't > have the sweet stuff. I believe it has helped (felt > better after starting it and relapsed slightly after > running out for 10 days). I have low blood volume and > tachycardia. (Tried other electrolytes, sea salt and > florinef to no avail) > > 3) IM cocktail of Nexavir, GSH, trace minerals, mag., > folic acid, B12. I think this has also helped > tremendously. IN the past 6 months I've been on this > I've made great progress, although I was getting > better before that. Dr. Enlander was very pleased my > blood tests showed a drop in HHV after 3 months. > > Additionally, FIR and glutathione (supplements and > lipo) have done wonders for me. I also just started > on heart supplements listed on Dr. Myhill's website > and I think it has helped. > > Al > > PS: For sleep, Dr. Enlander recommended Xyrem. While > it is stronger than anything I've taken in the past > (too long to list), it did not stop me from waking up > at night. Interesting enough I can now sleep around > 6-7 hours a night after starting the Ribose, CoQ10, > etc. (from Myhill). But its hard to attribute my > improvement to any specific treatment, aside ffrom > timing. > > --- louella monrovia <lmonrovia@...> wrote: > > > Al > > can u tell us some more about Dr Enlander's CFS > > protocol? And what's working for you? > > > > Louella > > > > > > > > > > --------------------------------- > > Check out the New - Fire up a more > > powerful email and get things done faster. > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > ______________________________________________________________________ ____________________ > Check out the New - Fire up a more powerful email and get things done faster. > (http://advision.webevents./mailbeta) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Louella I'm not sure if Dr. Enlander is the sole vendor of Immunoprop. Maybe other members know. Dr. Enlander did not recommend any of the oral GSH. I was already on them before I saw him. Like you, gluth IVs were great (but too expensive and time consuming to continue), so I switched to suppositories for the past 4-5 years. About 2 yrs ago I started the LipoCeutical Glutathione. I've also tried the other lipo GSH that Rich mentioned (can't remember the name - thick yellow paste). Didn't work as well for me, so I've gone back to the Lipo. In my case, I think Dr. Enlander recommended Xyrem because I had tried just about everything else and nothing could prevent me from waking up at night. Also he tested my HHV6 with regular blood work. Al > Hi Al > > thanks for replying. hadn't heard of immunoprop...is > he the sole vendor? > > Also, what does he recommend in terms of oral gsh? > I've used Essential GSH from the WEllness pharamcy in > Birmingham, AL, and the liquid stuff for nebulising from the Key Pharmacy in WA, but am unclear how helpful they are. > > I get glut IVs now too, and I would say thtey are helping. > > Interesting that he recommends the Xyrem. I tried > this and freaked out on it. Terrible rebound anxiety and paranoia. Only gave it an 11-day trial tho.... > > More than my bad experience, I'm just scared of > using such a powerful drug where the operating mechanism is not understood.... > Gave me good sleep though. > > Wish there was an alternative. > > One last thing.. how do u measure your titers of > HHV6, is it, or 7? PCR, regular blood test? > > cheers > Louella ________________________________________________________________________________\ ____ Access over 1 million songs - Music Unlimited (http://music./unlimited) Quote Link to comment Share on other sites More sharing options...
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