Re: Re: Kutapressin/Nexavir first dose - please help!

[Guest guest]

Thanks a lot Katrina.

Yes that's what I'll do. I'll call the Doc tomorrow and ask him about it, but

till then I won't start again taking it.

After almost 12 hours many of the symptoms have gone leaving just a bad feeling,

no reactions.

I will follow your other suggestions.

Take care.

Massimo

Re: Kutapressin/Nexavir first dose - please help!

Dear Massimo,

The injectable form contains Phenol. Some people cannot tolerate phenol.

I have never been clear how a phenol reaction manifests, nor if I have the

problem. But it did make me hesitant to use the injectable form.

One Pharmacy makes a paste/gel/cream form...Village Pharmacy in Houston Texas.

It is considerabley more expensive...400 a month at full dose. (1 ml a day).

Plus they cannot guarantee that it is fully phenol-free.

In discussing the gel/expense with Dr. Cheney, he told me I could take half

doses of it, so that was my plan..

As it turned out, I have been able to use the gel at full dose for a few

months. Have had no adverse reaction that I know of. I usually use it just

before sleeping, but have used it earlier too. {I *think* it actually eases

cardiac symptoms, but can't recall what Dr. Cheney says about that}.

Anyway, you of course could be reacting to the phenol or the Nexavir itself.

This is what I would do, if in your shoes:

A) research phenol and adverse reaction...see if that fits you.

THis could include, but not limited to, asking the Phramacy/manufacturer about

it.

Do not take it at all the next day, or two...definitely not until all

reaction is totally gone.. Depending on what you find in phenol research,

perhaps try again at lower dose. Because of the unacceptable reaction you had, I

would go much lower...1/4 or 1/8. If you want to continue the experiment, remain

at lower dose, or *very gradually*, ramp up, if you can do so without the

reaction.

Otherwise, consider the gel, but begin that too at low dose, until you see

your response.

The drawback there, is that you have to order the gel in 30Ml. vials at 400

dollars plus shipping. So, even at low dose to experiment, you have a large

investment to make.

If it were me, I would absolutely not subject myself to the reaction you had.

I would have to understand much better what caused it, and know for sure if

this, at lower dose was a safe trade-off for the benefit.

I would also do all possible to get system and brain as calmed and quiet as

possible...gently applying any tools that work for you and that seem

appropropiate. Maybe just a warm bath, some lavender, and some magnesium and

deep breathing. ( I might think of silimarin, or low dose Klonopin, and others,

but that's only a guess).

Dr. Cheney also suggested extra MG when a trip exposed me me to extra stress,

chemical and mold exposure.

Another possibility is that something else entirely caused your reaction. So

look carefully at that.

Hope this helps,

Keep us posted...

Katrina

>

> Dear friends,

>

> I hope you to read this message soon.

>

> Today I made my first injection of Nexavir as indicated by Prof. De

> Meirleir. The dose was 2ml. It was around 9pm approximately.

>

> In the very next hours (approximately about 5 hours later) I started

> feeling hyperactivity, light trembling inside my body (not outside),

> anxiety to a strong degree. I could not sleep at all and I am awake

> in a 100% attemptive mode. I can't tell even exactly how I feel but

> it is a very strange hyper situation, and I am a little moderate

> panic.

>

> Could I ask you if this is a normal side effect of the medicine or

> if it is not? Should I lower the dose to 1 ml.?

>

> I am getting a little scared to take the second dose tomorrow.

>

> I'll wait for your kind reply, with most gratitude.

>

> Massimo

>

[Guest guest]

Hi KAtrina,

I am assuming you meant to write Mg, for magnesium?

Thanks,

Adrienne

Dr. Cheney also suggested extra MG when a trip exposed me me to extra stress,

chemical and mold exposure.

[Guest guest]

,

I have never heard him saying that one doesn't have CFS unless he/she has a very

high ratio of LMW Rnase L. If it was like that, I could consider myself very

lucky that I had that test in the normal range with a ratio of 0.4 .

I haven't seen many people treated with Kutapressin/Nexavir among his patients,

that's why I was a little surprised. Usually he used antibiotics plus many other

supplements.

His hypothesis is simply that it is caused by an Herpes Virus, don't know which

one though.

Take care.

Massimo

Re: Kutapressin/Nexavir first dose - please help!

hello

sorry but I cant comment on the Nexavir. I was just interested in what

Dr De Meirleir says about CFS nowadays and how he is treating people

with it. I saw him a few years ago and he basically did not put me in

the ME/CFS category, I think because my blood tests did not come up

with a high R-NaseL ratio (mine was a low abnormal 2.3 I think).

He said something about C Pneumoniae and that this can cause a chronic

fatigue kind of syndrome. But another doctor did think i had the ME/CFS.

ANyway, maybe you can tell us how Dr Meirleir is treating you and why

he is treating you with these drugs and his hypothesis. Does he still

think CFS/ME is to do with an abnormal R-NaseL then?

In , " Massimo " <maxupolo@...> wrote:

>

> Dear friends,

>

> I hope you to read this message soon.

>

> Today I made my first injection of Nexavir as indicated by Prof. De

> Meirleir. The dose was 2ml. It was around 9pm approximately.

>

> In the very next hours (approximately about 5 hours later) I started

> feeling hyperactivity, light trembling inside my body (not outside),

> anxiety to a strong degree. I could not sleep at all and I am awake

> in a 100% attemptive mode. I can't tell even exactly how I feel but

> it is a very strange hyper situation, and I am a little moderate

> panic.

>

> Could I ask you if this is a normal side effect of the medicine or

> if it is not? Should I lower the dose to 1 ml.?

>

> I am getting a little scared to take the second dose tomorrow.

>

> I'll wait for your kind reply, with most gratitude.

>

> Massimo

>

[Guest guest]

Bill, I injected IM, but I think the problem is the quantity. I feel much better

now after almost a day, therefore I believe that starting from a 2ml. dose is

too high in my case.

No pain, and no rushes, but the side effects after few hours have been scary.

I will reduce the dose tomorrow.

Thanks,

Massimo

Re: Kutapressin/Nexavir first dose - please help!

massiomo

in the time when i tried Nexavir, i really had no side effects. this

sounds like a pretty extreme side effect for this medication.

are you injecting into the muscle or subcutaneous? i was injecting

the muscle and really had no problem. i was using 1mL. i think both

SubQ and IM are supposed to be fine.

in fact the reason i stopped was beacause i didn't feel much at all.

i only tried for a few weeks and i will probably try it again in the

future.

maybe try your own advice and try the 1ml dose.

thanks

bill

>

> Dear friends,

>

> I hope you to read this message soon.

>

> Today I made my first injection of Nexavir as indicated by Prof. De

> Meirleir. The dose was 2ml. It was around 9pm approximately.

>

> In the very next hours (approximately about 5 hours later) I

started

> feeling hyperactivity, light trembling inside my body (not

outside),

> anxiety to a strong degree. I could not sleep at all and I am awake

> in a 100% attemptive mode. I can't tell even exactly how I feel but

> it is a very strange hyper situation, and I am a little moderate

> panic.

>

> Could I ask you if this is a normal side effect of the medicine or

> if it is not? Should I lower the dose to 1 ml.?

>

> I am getting a little scared to take the second dose tomorrow.

>

> I'll wait for your kind reply, with most gratitude.

>

> Massimo

>

[Guest guest]

Best oral chelation product?

Any suggestions?

Mercury poisoning is suspected in a friend. How does she go about testing for

this?

[Guest guest]

Massimo:

I also inject Nexavir, although it is part of a

cocktail that Dr. Enlander uses. I don't remember the

exact dosage of Nexavir, but I did not have any major

side effect. (worst was increased fatigued with minor

muscle pain).

However, Dr. Enlander said that when he first started

using Nexavir he did a small trial where some patients

were injected once a week and others were injected

daily. He found there were no benefits to the more

frequent injections so he now recommends one weekly

injection (which I'm on now).

Al

> > Could I ask you if this is a normal side effect

> of the medicine or

> > if it is not? Should I lower the dose to 1 ml.?

> >

> > I am getting a little scared to take the second

> dose tomorrow.

> >

> > I'll wait for your kind reply, with most

> gratitude.

> >

> > Massimo

> >

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

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[Guest guest]

Glandular fever is among the herpes virus family of viruses.

No he does not think CFS is caused by virus necessarly. Many could be the

possible causes, this is what he thinks. The RnaseL dies not dysfunction, it

simply is activated or not activated, and when it is activated is because you

have a virus of some sort.

When was it that you saw Dr. DM? Have you followed him and his treatment

suggestions or not?

Sincerely,

Massimo

Re: Kutapressin/Nexavir first dose -

please help!

>

>

> hello

>

> sorry but I cant comment on the Nexavir. I was just interested in what

> Dr De Meirleir says about CFS nowadays and how he is treating people

> with it. I saw him a few years ago and he basically did not put me in

> the ME/CFS category, I think because my blood tests did not come up

> with a high R-NaseL ratio (mine was a low abnormal 2.3 I think).

>

> He said something about C Pneumoniae and that this can cause a chronic

> fatigue kind of syndrome. But another doctor did think i had the

ME/CFS.

>

> ANyway, maybe you can tell us how Dr Meirleir is treating you and why

> he is treating you with these drugs and his hypothesis. Does he still

> think CFS/ME is to do with an abnormal R-NaseL then?

>

> In , " Massimo " <maxupolo@> wrote:

> >

> > Dear friends,

> >

> > I hope you to read this message soon.

> >

> > Today I made my first injection of Nexavir as indicated by Prof. De

> > Meirleir. The dose was 2ml. It was around 9pm approximately.

> >

> > In the very next hours (approximately about 5 hours later) I

started

> > feeling hyperactivity, light trembling inside my body (not

outside),

> > anxiety to a strong degree. I could not sleep at all and I am awake

> > in a 100% attemptive mode. I can't tell even exactly how I feel but

> > it is a very strange hyper situation, and I am a little moderate

> > panic.

> >

> > Could I ask you if this is a normal side effect of the medicine or

> > if it is not? Should I lower the dose to 1 ml.?

> >

> > I am getting a little scared to take the second dose tomorrow.

> >

> > I'll wait for your kind reply, with most gratitude.

> >

> > Massimo

> >

>

>

>

>

>

>