Re: Re: You might find this article of interest

[Guest guest]

I forgot to say; that I do not mean by anything that I have explained here that

I or anyone else would succeed at getting well by means of psychological

treatment alone- although it might make getting well easier. As you know I am

full steam ahead for medical/nutritional/herbal treatments for physical

symptoms.

There is no necessary, inevitable correlation between trauma as origin and the

need for only behavioral therapies.

Adrienne

Re: You might find this article of interest

Hi Tom,

I would like to ask if you are sick, how severely, for how long, and do you

have ME/CFIDS/CFS or FM?

Comments on your post:

I majored in Child Psychology in College decades ago, and have work and Life

Experience in early childhood education, directly worked with young children and

adolescents, Have done Rape Survivor Counseling and Advocacy, Group Facilitator

at Rehab Center for Addicts and Alcoholics, and other experience in populations

of persons with Mental Illness, Ex-Convicts, Combat Veterans, Addicts and

Alcoholics, long term Homeless, and other trauma survivors.

Plus have survived several traumas myself.

Just to say that trauma and traumatised persons, the field of Psychology,

and the well being of children are not unfamiliar topics to me, and even are

near and dear to my heart.

There may very well be risks to health to survivors of trauma to the body

and mind.

There are some problems I have with your topic:

A) Theories of Psychological origins of CFS {Chidhood abuse and other}, is

not in any way whatsoever a new vista of study. The Psychological field has been

the recipient of the majority of funds and publishings on our disease for the

last 2 decades...to the detriment, obscuring, and dismissing of hard,

Biomedical, Pathogen, and Chemical/Toxin findings by Prestigious Scientists of

the US and World.

The ACE studies which are a collaboration of Kaiser Permanente, the CDC,

and Emory University, have been going on for 7 years, and continuing, with such

follow-up planned as patients' " utilization of Pharamacies/Pharmaceuticals,

cause of death, and other surveliance.

C) The theories behind these studies include

1) " In other words, the ACE Study documents the conversion of traumatic

emotional experiences in childhood into organic diseases later in life. "

2) The adoption of HIGH RISK HEALTH *BEHAVIORS* by childhood and other

truama survivors as being the cause of disease later in life.

D) Psychologically based behaviors as cause and/or perpetution of

ME/CFIDS/CFS are the basis of Psychological Intervention...specifically

Cognitive Behaviorial Therapy (CBT) ...changing one's dysfunctional

thinking....as treatment. AS a matter of fact, studies that sing the praises of

CBT, claim it to be the ONLY effective and recommended treatment for ME/CFS.

E) With emphasis, and even total domination of funds, studies, and

publishings on behaviorial choices and interventions on the ME/CFS population,

where does this leave Virally and Chemical/Toxin induced ME/CFS?

The CDC recommends against most testing for CFS.

What kind of responsible Government and Medical Profession ignore Viral

Epidemics and Chemical Poisoning of it's population?

WHEN will the investigation and Accountability of these be fully funded,

enacted, and publicised?

F) I don't know what the ACE studies say about ME/CFS itself, but it all

sounds strangely familiar to the last 2 decades of Behavior-as-cause,

Psychological Intervention/CBT as-only-effective-treatment that we have been

subjected to ad nauseum. Exploding into larger than ever multi million dollar

industry.

G) The CDC knowingly and willingly systematically ignored the Epidemic of

ME/CFS which peaked in the mid 80s, leaving 800,000 to 1 Million patients

disabled, severely suffering, and in some cases...dying...with NO MEDICAL

INTERVENTION OR TREATMENT, OR Public/Physician Education.

The CDC/Department in charge of CFS has been known to mock CFS patients, the

dedicated Physicians who have treated us, and (CDC) were found guilty in

Congressional Hearings of Misappropriation of Millions of dollars of CFS

Research funds, assuring that promising studies begun and not even begun were

and are dead in the water.

Some of the very same Employees remain in charge, and have also in recent

times, indicated that CBT is the promising treatment of choice planned for us.

H) The CDC has also ignored patient and Physician calls to change the name

and definition of CFS to the more accurate Myalgic Encephalomyelitis (ME). Or to

recognise the Canadian Case Definition of ME/CFS crafted by a team of

Internationally recognised experts.

Instead, have continued to systematically weaken and water down the CDC/CFS

Definition to a wide

umbrella of unrelated physical and psychological conditions.

That this research and recommendations come not only from them, but the HMO

of Kaiser Permanente, does not inspire confidence for my future health.

{Tho the true prevention of childhood abuse and other trauma, and medical

disease, is certainly a worthy endeavor}

I) In the above populations of traumatised persons, I have seen no higher

incidence of severe ME/CFIDS/CFS than the rest of the population. AS a matter of

fact, for whatever reason, the numbers afflicted appear to be lower.

Not that we have any way of officially knowing, as long as Psychological and

non- pathogen/chemical studies dominate the Research.

So, in all due respect, Tom, this is what I have to say about that.

Sincerely,

Katrina

Sudden Viral Onset ME/CFIDS/CFS/FM 1985 at age 36, w/multiple complications

following, none of which were present previously.

>

> There is a very large study going on that sheds some light on

> conditions like CFS and FM. It is called the ACE Study which stands

> for Adverse Childhood Diseases. The study looks at the correlation

> between unresolved traumas in childhood and adult health problems.

> What they discovered in this study of over 17,000 participants is that

> there is a graded correlation between the number of categories of

> Adverse Childhood Expereinces someone has experienced with a whole

> host of health problems in adult life. There is a facinating article

> of the study at -

> http://xnet.kp.org/permanentejournal/winter02/goldtolead.html.

>

> After reading this article I contacted Dr. Felitti and have a lengthy

> meeting with him. During this meeting he mentioned that he felt that

> the ACE play a very significant role in FM. This study opens up a

> whole new vista of possibilites to be explored in finding ways to help

> people resolve the ACE.

>

> I hope you enjoy the article,

>

> Tom Stone

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.