Re: Diabetes Insipidis and CFS...

[Guest guest]

Isn't that something a doc could handle?

Adrienne

Diabetes Insipidis and CFS...

I'm starting to wonder if I have diabetes insipidis. Not much info on the web

except that it

may be related to pituitary and/or hypothalmus issues -- but no specifics for

treatment.

I've been plagued with CFS and anxiety for years -- anxiety first, then CFIDS

for the last 8

years or so -- and all the while having a hard time gaining weight or holding

on to it.

And recently have had muscle wasting and frozen shoulder problems. Shoulder

is still bad,

but not too much worse, but have definitely lost muscle. And for about 20

years I've haven't

been able to hold my water very well. Not URGENT urination, but certainly

frequent --

probably six-seven-eight times a day. Also dry mouth, gum and teeth issues --

the only

symptom I don't really have is excessive thirst.

HELP, ADVICE???

thanks,

Dan

I've tried the EMF protection hat (which helped Kurt gain muscle mass), but

not worn it as

long as I should during the day, and even skipped days.

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

> Isn't that something a doc could handle?

> Adrienne

Hi Adrienne,

One would think so but you know how that goes. Seems like we have to educate

our

doctors on everything, esp if it's connected to CFS.

I was just putting it out there to see if others have experienced DI and to hear

how they

treated it?

A conventional doctor (especially a Medicaid doctor) would maybe do a glucose

tolerance

test then prescribe some drug to suppress the symptoms temporarily, rather than

use

natural methods to treat the cause...and resolve the issue.

d.

> Diabetes Insipidis and CFS...

>

>

> I'm starting to wonder if I have diabetes insipidis. Not much info on the

web except

that it

> may be related to pituitary and/or hypothalmus issues -- but no specifics

for

treatment.

>

> I've been plagued with CFS and anxiety for years -- anxiety first, then

CFIDS for the

last 8

> years or so -- and all the while having a hard time gaining weight or

holding on to it.

>

> And recently have had muscle wasting and frozen shoulder problems. Shoulder

is still

bad,

> but not too much worse, but have definitely lost muscle. And for about 20

years I've

haven't

> been able to hold my water very well. Not URGENT urination, but certainly

frequent --

> probably six-seven-eight times a day. Also dry mouth, gum and teeth issues

-- the

only

> symptom I don't really have is excessive thirst.

>

> HELP, ADVICE???

>

> thanks,

>

> Dan

>

>

> I've tried the EMF protection hat (which helped Kurt gain muscle mass), but

not worn it

as

> long as I should during the day, and even skipped days.

>

>

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to

give medical advice. If you are interested in any treatment discussed here,

please consult

your doctor.

>

[Guest guest]

Hi, Dan.

Diabetes Insipidus(DI) is common in PWCs, given the effect oxidative injury has

in reducing

output of the key hormone for water retention in the body. Doing a 24 hr urine

collection

test and/or a arginine-vasopressin hormone(AVH) blood test can help rule this in

or out

(low glutathione test results also of course are an indirect indication that DI

may be an

issue as well as low blood volume as can be tested through nuclear tracer

testing that also

measures your RBC mass).

Results that are above normal for the amount of urine collected from you in a

day or

results that are too low for the AVH help verify DI. Likely that your

anxiety(and whatever

has produced this) has included stress and higher adrenalization, thus lowering

glutathione levels or metabolism and lead to the oxidative suppression of your

hypothalamus, which produces this hormone. Sometimes cancer radiation therapy

to the

brain has DI as a side effect.

Have your doc send you to a specialist if none of the above seems to fit, but it

does sound

like DI to me. Fortunately, I was able to get rid of this problem and

hypothyroidism for

my case of ME/CFS by repleting glutathione which took many several months.

" kdrbrill " <kdrbrill@...> wrote:

>

> I'm starting to wonder if I have diabetes insipidis. Not much info on the web

except that

it

> may be related to pituitary and/or hypothalmus issues -- but no specifics for

treatment.

>

> I've been plagued with CFS and anxiety for years -- anxiety first, then CFIDS

for the last

8

> years or so -- and all the while having a hard time gaining weight or holding

on to it.

>

> And recently have had muscle wasting and frozen shoulder problems. Shoulder

is still

bad,

> but not too much worse, but have definitely lost muscle. And for about 20

years I've

haven't

> been able to hold my water very well. Not URGENT urination, but certainly

frequent --

> probably six-seven-eight times a day. Also dry mouth, gum and teeth issues --

the

only

> symptom I don't really have is excessive thirst.

>

> HELP, ADVICE???

>

> thanks,

>

> Dan

>

>

> I've tried the EMF protection hat (which helped Kurt gain muscle mass), but

not worn it

as

> long as I should during the day, and even skipped days.

>

[Guest guest]

I was presuming that there would be no natural method.

Adrienne

Diabetes Insipidis and CFS...

>

>

> I'm starting to wonder if I have diabetes insipidis. Not much info on the

web except

that it

> may be related to pituitary and/or hypothalmus issues -- but no specifics

for

treatment.

>

> I've been plagued with CFS and anxiety for years -- anxiety first, then

CFIDS for the

last 8

> years or so -- and all the while having a hard time gaining weight or

holding on to it.

>

> And recently have had muscle wasting and frozen shoulder problems.

Shoulder is still

bad,

> but not too much worse, but have definitely lost muscle. And for about 20

years I've

haven't

> been able to hold my water very well. Not URGENT urination, but certainly

frequent --

> probably six-seven-eight times a day. Also dry mouth, gum and teeth

issues -- the

only

> symptom I don't really have is excessive thirst.

>

> HELP, ADVICE???

>

> thanks,

>

> Dan

>

>

> I've tried the EMF protection hat (which helped Kurt gain muscle mass),

but not worn it

as

> long as I should during the day, and even skipped days.

>

>

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to

give medical advice. If you are interested in any treatment discussed here,

please consult

your doctor.

>

[Guest guest]

Here is a link for managing one form of DI naturally; low sodium, low protein,

drink lots of water.

Do you really think you have it?

I pee very frequently too-sometimes. It is an on and off symptom.

Adrienne

http://depts.washington.edu/transmet/The%20process/ndi.htm#Management

Diabetes Insipidis and CFS...

>

>

> I'm starting to wonder if I have diabetes insipidis. Not much info on the

web except

that it

> may be related to pituitary and/or hypothalmus issues -- but no specifics

for

treatment.

>

> I've been plagued with CFS and anxiety for years -- anxiety first, then

CFIDS for the

last 8

> years or so -- and all the while having a hard time gaining weight or

holding on to it.

>

> And recently have had muscle wasting and frozen shoulder problems.

Shoulder is still

bad,

> but not too much worse, but have definitely lost muscle. And for about 20

years I've

haven't

> been able to hold my water very well. Not URGENT urination, but certainly

frequent --

> probably six-seven-eight times a day. Also dry mouth, gum and teeth

issues -- the

only

> symptom I don't really have is excessive thirst.

>

> HELP, ADVICE???

>

> thanks,

>

> Dan

>

>

> I've tried the EMF protection hat (which helped Kurt gain muscle mass),

but not worn it

as

> long as I should during the day, and even skipped days.

>

>

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to

give medical advice. If you are interested in any treatment discussed here,

please consult

your doctor.

>

[Guest guest]

I'm not sure if I do, as I've had the frequent urination thing for probably 25

years, but CFS

for about 8-9 years. I had a glucose tolerance test about 14 years ago that

came back

within the normal range.

Also, I had a hair analysis done about 4 years ago which showed very low sodium,

and

high potassium, so I think I need more sodium -- not sure. I'll check out your

link though,

and also 's info.

Thanks Adrienne,

d.

>

> Here is a link for managing one form of DI naturally; low sodium, low protein,

drink lots

of water.

> Do you really think you have it?

> I pee very frequently too-sometimes. It is an on and off symptom.

> Adrienne

>

>

> http://depts.washington.edu/transmet/The%20process/ndi.htm#Management

> Diabetes Insipidis and CFS...

> >

> >

> > I'm starting to wonder if I have diabetes insipidis. Not much info on

the web

except

> that it

> > may be related to pituitary and/or hypothalmus issues -- but no

specifics for

> treatment.

> >

> > I've been plagued with CFS and anxiety for years -- anxiety first, then

CFIDS for the

> last 8

> > years or so -- and all the while having a hard time gaining weight or

holding on to

it.

> >

> > And recently have had muscle wasting and frozen shoulder problems.

Shoulder is

still

> bad,

> > but not too much worse, but have definitely lost muscle. And for about

20 years

I've

> haven't

> > been able to hold my water very well. Not URGENT urination, but

certainly frequent

--

> > probably six-seven-eight times a day. Also dry mouth, gum and teeth

issues --

the

> only

> > symptom I don't really have is excessive thirst.

> >

> > HELP, ADVICE???

> >

> > thanks,

> >

> > Dan

> >

> >

> > I've tried the EMF protection hat (which helped Kurt gain muscle mass),

but not

worn it

> as

> > long as I should during the day, and even skipped days.

> >

> >

> >

> >

> >

> >

> > This list is intended for patients to share personal experiences with

each other, not

to

> give medical advice. If you are interested in any treatment discussed here,

please

consult

> your doctor.

> >

[Guest guest]

Hi, Adrienne.

Your presence or absence of diabetes insipidus may be an ongoing

indicator of your glutathione status. When the glutathione level is

low, the DI will be worse, if my hypothesis is correct. The reason

is that arginine vasopressin, the hypothalamus/pituitary hormone

that counters DI, is a secretory protein that has cysteine

residues. As such, its synthesis depends on having enough

glutathione in the neurons in the hypothalamus where it it made to

keep the sulfur in the cysteine residues in their sulfhydryl form

until the appropriate stage in the synthesis of the protein. If

glutathione is too low in these cells, they will not be able to turn

out enough arginine vasopressin (antidiuretic hormone), and then I

think you will pee more.

Rich

>

> Here is a link for managing one form of DI naturally; low sodium,

low protein, drink lots of water.

> Do you really think you have it?

> I pee very frequently too-sometimes. It is an on and off symptom.

> Adrienne

>

>

> http://depts.washington.edu/transmet/The%

20process/ndi.htm#Management

> Diabetes Insipidis and CFS...

> >

> >

> > I'm starting to wonder if I have diabetes insipidis. Not

much info on the web except

> that it

> > may be related to pituitary and/or hypothalmus issues -- but

no specifics for

> treatment.

> >

> > I've been plagued with CFS and anxiety for years -- anxiety

first, then CFIDS for the

> last 8

> > years or so -- and all the while having a hard time gaining

weight or holding on to it.

> >

> > And recently have had muscle wasting and frozen shoulder

problems. Shoulder is still

> bad,

> > but not too much worse, but have definitely lost muscle.

And for about 20 years I've

> haven't

> > been able to hold my water very well. Not URGENT urination,

but certainly frequent --

> > probably six-seven-eight times a day. Also dry mouth, gum

and teeth issues -- the

> only

> > symptom I don't really have is excessive thirst.

> >

> > HELP, ADVICE???

> >

> > thanks,

> >

> > Dan

> >

> >

> > I've tried the EMF protection hat (which helped Kurt gain

muscle mass), but not worn it

> as

> > long as I should during the day, and even skipped days.

> >

> >

> >

> >

> >

> >

> > This list is intended for patients to share personal

experiences with each other, not to

> give medical advice. If you are interested in any treatment

discussed here, please consult

> your doctor.

> >

[Guest guest]

Aha! Fluctuations in GSH? Does that mean I haven't reached an absolute bottom?

And what does that say about the validity of the RBC glut test I took? If it is

low, I know something. If it is high, (haven't seen the results yet), I maybe

know a little? And what would I know if I retest after supplementation.

Seems like trial and error and how do I feel is as good a guide as testing, some

of the time at least!

I must try to track the intermittent peeing and see when I feel better.

Actually, I am pretty sure I am feeling better when I have less water on board..

Face, hands, ankles puffier when it slows down. Maybe it is not DI, maybe

fluctuations in my heart.

Thanks for the info.

Adrienne

Diabetes Insipidis and CFS...

> >

> >

> > I'm starting to wonder if I have diabetes insipidis. Not

much info on the web except

> that it

> > may be related to pituitary and/or hypothalmus issues -- but

no specifics for

> treatment.

> >

> > I've been plagued with CFS and anxiety for years -- anxiety

first, then CFIDS for the

> last 8

> > years or so -- and all the while having a hard time gaining

weight or holding on to it.

> >

> > And recently have had muscle wasting and frozen shoulder

problems. Shoulder is still

> bad,

> > but not too much worse, but have definitely lost muscle.

And for about 20 years I've

> haven't

> > been able to hold my water very well. Not URGENT urination,

but certainly frequent --

> > probably six-seven-eight times a day. Also dry mouth, gum

and teeth issues -- the

> only

> > symptom I don't really have is excessive thirst.

> >

> > HELP, ADVICE???

> >

> > thanks,

> >

> > Dan

> >

> >

> > I've tried the EMF protection hat (which helped Kurt gain

muscle mass), but not worn it

> as

> > long as I should during the day, and even skipped days.

> >

> >

> >

> >

> >

> >

> > This list is intended for patients to share personal

experiences with each other, not to

> give medical advice. If you are interested in any treatment

discussed here, please consult

> your doctor.

> >