Re: requesting advice

[Guest guest]

Marta: Do you have insurance to cover an ambulance? If you go in an ambulance

you will get priority over those who walk in to the ambulance. I think you

should be concerned~we are all taught that anything to do with the left side can

be heart related and urgent. Women ignore heart attacks thinking it's just gas,

as do men. I have never had the experience myself of emergency room care but my

father-in-law has been in several all his life. My husband gets to take him

often when his panic-anxiety attacks make him feel like he is dying, but he

always checks out okay. Yes, it is exhausting but you'd rather be alive and

exhausted than dead.

Have you called your doctor (do you have one) and discussed any of this? This

sounds very important to be handled right away!!! If you don't want to go to

the emergency room, do you know a good urgent care place with good doctors (ask

your friends right away and get there tomorrow)? You could have an infection

that is brewing. Do you have a temperature (not always shows up), do you hurt

near your kidney areas (back above the hips)? Some people get bladder or kidney

infections that they don't realize they have and it is quite serious if

untreated. Wherever you go, tell them you cannot sit and must lie down.

Take care of yourself and get well soon.

in La Selva Beach CA

requesting advice

Hello everyone:

I have been having some severe symptoms lately (about a week and a half) and

considering going to the emergency room but I thought I would run it past you

guys first.

Symptoms: nausea (not attributable to chronic pancreatitis or toxicity), chest

pains, shortness of breath, pain along left arm. Feels like heartburn but pain

comes and goes but the shortness of breath does not.

I am 45, CFIDS since 1999. I have orthostatic intolerance and while I

initially dismissed Cheney's cardiac theory before as applying to me, I

certainly do not after reading his thoughts on the matter on a website suggested

here. I have thick blood (as noticed through slow blood draws). Dark field

microscopy (sp?) showed deformed red blood cells.

If you were me and you went to the emergency room - what tests would you ask

them to run? I rarely go to the emergency room and I am not well enough to sit

there for hours then be told nothing is wrong. That would set me back several

days from the exertion of it but I have to

admit that I am a little worried.

Thanks all,

Blessings,

Marti Zavala_

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[Guest guest]

Hi Marti,

I believe you should definitely have your heart checked either by

your doctor or at the emergency room. If you go to the ER, they will

decide what tests they want to give you. I doubt very much if you

will be able to have the kind of testing that Dr. Cheney is doing

such as the impedance cardiograph to check how much blood your heart

is pumping. Very few cardiologists are doing those tests. But you

need to have a regular heart exam in case the commmon heart problems

are occurring. Are you taking some aspirin for the pain when it

starts? If you chew a couple aspirin and hold them under your tongue

at the start of your symptoms, that can sometimes help very quickly

to relax any constriction and reduce the pain. Also, you can take

aspirin, as well as natto, on a regular basis to thin your blood.

Being set back a few days by going to the ER is better than not

having your heart checked and having a heart attack. Even though

traditional tests may not show any problem, it's best to find out

and not take chances when it comes to your heart.

marti_zavala wrote:

>Hello everyone:

>I have been having some severe symptoms lately (about a week and a

> half) and considering going to the emergency room but I thought I

would run it past you guys first.

> Symptoms: nausea (not attributable to chronic pancreatitis or

> toxicity), chest pains, shortness of breath, pain along left arm.

> Feels like heartburn but pain comes and goes but the shortness of

> breath does not.

> I am 45, CFIDS since 1999. I have orthostatic intolerance and

while I initially dismissed Cheney's cardiac theory before as

applying to me, I certainly do not after reading his thoughts on

the matter on a website suggested here. I have thick blood (as

noticed through slow blood draws). Dark field microscopy (sp?)

showed deformed red blood cells.

>

> If you were me and you went to the emergency room - what tests

would you ask them to run? I rarely go to the emergency room and I

am not well enough to sit there for hours then be told nothing is

wrong. That would set me back several days from the exertion of it

but I have to admit that I am a little worried.

> Thanks all,

> Blessings,

> Marti Zavala

>

[Guest guest]

I definitely would go to a doc-or the emergency room. Your symptoms are beyond

the question of diastolic weakness- if it is heart symptoms. It may not be, but

I doubt any of us are the right people to diagnose that. (I suppose it could be

lungs instead, but I am just guessing.) I hope you will go soon.

Adrienne

requesting advice

Hello everyone:

I have been having some severe symptoms lately (about a week and a

half) and considering going to the emergency room but I thought I would

run it past you guys first.

Symptoms: nausea (not attributable to chronic pancreatitis or

toxicity), chest pains, shortness of breath, pain along left arm.

Feels like heartburn but pain comes and goes but the shortness of

breath does not.

I am 45, CFIDS since 1999. I have orthostatic intolerance and while I

initially dismissed Cheney's cardiac theory before as applying to me,

I certainly do not after reading his thoughts on the matter on a

website suggested here. I have thick blood (as noticed through slow

blood draws). Dark field microscopy (sp?) showed deformed red blood

cells.

If you were me and you went to the emergency room - what tests would

you ask them to run? I rarely go to the emergency room and I am not

well enough to sit there for hours then be told nothing is wrong. That

would set me back several days from the exertion of it but I have to

admit that I am a little worried.

Thanks all,

Blessings,

Marti Zavala

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Marti,

I know the position you are in..I have been there. Serious sx, yet knowing I'll

pay for ER trip, and concerned they will not know ME/CFS/MCS.

{1st I wanted to ask you if you are taking anything for the sticky blood.... or

for the heart?

Like, for heart, Hawthorne or magnesium? Did you try raising magnesium during

this time?}

You said severe, and You should not mess around with those symptoms. I don't

know where you are, but I found about 5 A.M. to be the quietest at ER. For acute

cardiac type pains, you would have some priority, too...and at least maybe you

could be lying, not sitting. If you just report those symptoms clearly, they

might themselves decide to do EKG and enzymes to rule out heart attack.

Maybe chest X-Ray, and rule out Pneumonia.... Bronchial Asthma.

I once was admitted for suspected heart attack. The bedding was horrible. They

had a handful of pills in the middle of night, but I questioned and refused a

couple. They will give you what you are already taking.

In AM, they fast-walked me to place for a treadmill/echo.

So, suggestions, especially if you have body pain or MCS....get your cotton

sheets, pillow, PJs together...get your meds/a list of meds

together......including allergies...specific relevant tests...get your phone

book/numbers...a healthy snack. Even if you just leave bigger stuff in car.

Tell them clearly right away about chest/arm pains.

That you need to lie down, without much light. In the cubicle, I ask them to

turn it off. Get bed adjusted to most comfortable position...maybe you can dose.

I usually ask for oxygen, because it helps my MCS...they say OK.

Focus on immediate symptoms. When it comes up, decide on CFS or Myalgic

Encephalomyelitis...I tell them it's a " Neuro-Immune disease " , multi

system,whatever.

Or say both ME + CFS. Hyper sensitive to drugs. Just speak of it only as it may

apply to your visit/treatment.

In my location, I find the non-doctors/technicians to be idiots and/or

insensitive. They barely register what I say. But the doctors are fine, if I am

clear and to the point.

I was given nitro glycerin to check my reaction.

I had to think fast at night on whether to take what they wanted..but no problem

refusing a couple.

I should not have walked to treadmill test...use a wheelchair.

I was pronounced fine and sent home. I could not move for days and had same

symptoms, whch were different from yours. But I knew I was not having a heart

attack!

Another time, heart failure was suspected, but Bronchial Asthma diagnosed

w/breathing treatment.

That trip was right decision also.

Plan your rest/healing tools for when you return home. I agree with

others...don't take a chance.

BW

Katrina

>

> Hello everyone:

>

> I have been having some severe symptoms lately (about a week and a

> half) and considering going to the emergency room but I thought I would

> run it past you guys first.

>

> Symptoms: nausea (not attributable to chronic pancreatitis or

> toxicity), chest pains, shortness of breath, pain along left arm.

> Feels like heartburn but pain comes and goes but the shortness of

> breath does not.

>

> I am 45, CFIDS since 1999. I have orthostatic intolerance and while I

> initially dismissed Cheney's cardiac theory before as applying to me,

> I certainly do not after reading his thoughts on the matter on a

> website suggested here. I have thick blood (as noticed through slow

> blood draws). Dark field microscopy (sp?) showed deformed red blood

> cells.

>

> If you were me and you went to the emergency room - what tests would

> you ask them to run? I rarely go to the emergency room and I am not

> well enough to sit there for hours then be told nothing is wrong. That

> would set me back several days from the exertion of it but I have to

> admit that I am a little worried.

>

> Thanks all,

> Blessings,

> Marti Zavala

>

[Guest guest]

Marti,

I agree with Adrienne; that is, go to the ER. You do not have to worry

about telling them what tests to run as they know what to do in these

instances. If nothing else, it will ease your mind to know there may

be nothing seriously wrong with your heart. Fear has a way of

compounding any issue and clouding our clarity. If there is something

wrong you, will have addressed it.

I have had similar symptoms and also orthostatic intolerance. In the

past, I visited the ER twice with classic agina type symptoms, even

the docs agreed. Thankfully, both occassions turned out to be

manifestations of the illness and not a serious heart problem, but you

never know and that is why it is wise to check it out.

Wishing you all the best!

Ballady

>

> I definitely would go to a doc-or the emergency room. Your symptoms

are beyond the question of diastolic weakness- if it is heart

symptoms. It may not be, but I doubt any of us are the right people to

diagnose that. (I suppose it could be lungs instead, but I am just

guessing.) I hope you will go soon.

> Adrienne

> requesting advice

>

>

> Hello everyone:

>

> I have been having some severe symptoms lately (about a week and a

> half) and considering going to the emergency room but I thought I

would

> run it past you guys first.

>

> Symptoms: nausea (not attributable to chronic pancreatitis or

> toxicity), chest pains, shortness of breath, pain along left arm.

> Feels like heartburn but pain comes and goes but the shortness of

> breath does not.

>

> I am 45, CFIDS since 1999. I have orthostatic intolerance and

while I

> initially dismissed Cheney's cardiac theory before as applying to

me,

> I certainly do not after reading his thoughts on the matter on a

> website suggested here. I have thick blood (as noticed through slow

> blood draws). Dark field microscopy (sp?) showed deformed red blood

> cells.

>

> If you were me and you went to the emergency room - what tests would

> you ask them to run? I rarely go to the emergency room and I am not

> well enough to sit there for hours then be told nothing is wrong.

That

> would set me back several days from the exertion of it but I have to

> admit that I am a little worried.

>

> Thanks all,

> Blessings,

> Marti Zavala

>

>

>

>

>

>

>

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested in

any treatment discussed here, please consult your doctor.

>

[Guest guest]

>

>

> Symptoms: nausea (not attributable to chronic pancreatitis or

> toxicity), chest pains, shortness of breath, pain along left arm.

> Feels like heartburn but pain comes and goes but the shortness of

> breath does not.

>

>

***Hi Marti - Those sound like the symptoms of a heart attack. Get

yourself to the ER immediately!!

Take care.

Bernie

[Guest guest]

>

>

>

> Focus on immediate symptoms. When it comes up, decide on CFS or

Myalgic Encephalomyelitis...I tell them it's a " Neuro-Immune

disease " , multi system,whatever.

> Or say both ME + CFS. Hyper sensitive to drugs. Just speak of it

only as it may apply to your visit/treatment.

>

>

***Hi Katrina - If a person wants to be taken seriously in the ER I

don't recommend mentioning CFS/ME at all. Just stick to the facts

pertaining to whatever is bringing you to the ER. When you start

throwing in other factors, for one, it confuses the situation, and

secondly, too much information can make a person sound like a

hypocondriac.

Take care.

Bernie

[Guest guest]

> <marti_zavala@> wrote:

Symptoms: nausea(not attributable to chronic pancreatitis or

toxicity), chest pains, shortness of breath, pain along left arm.

Feels like heartburn but pain comes and goes but the shortness of

> > breath does not.

>

Do you sometimes wake up with your extremities having " fallen asleep " ?

And have great difficulty bringing them back to life?

-

[Guest guest]

While you ware waiting for ER transportation, take some Magnesium and B

vitamins every hour.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

>

>

> Symptoms: nausea (not attributable to chronic pancreatitis or

> toxicity), chest pains, shortness of breath, pain along left arm.

> Feels like heartburn but pain comes and goes but the shortness of

> breath does not.

>

>

***Hi Marti - Those sound like the symptoms of a heart attack. Get

yourself to the ER immediately!y

Take care.

Bernie