Yasko-Re: sleep study - amytripiline - other suggestions for stage 3/4 slee

[Guest guest]

Hi, Katrina.

You forgot to use the word " Yasko " in your heading for considerations sake

(I added it). Anyway, it's time to stop this though as I see you also repeating

the same polarizing stuff already hashed over.

I know nothing of some backchannels having been nasty and can only address what

I've seen posted in which I've predominantly seen inconsiderate comments toward

to those interested in the Yasko program. Eitherway, it looks like Ken has

gotten to the crux of the matter, MONEY and not so much the posts, that is

really pushing some people's buttons.

There are ways around some of the expensive tests suggested with the Yasko

program, but those ways can be better addressed in new threads when a PWC needs

to ask. Here, it looks like Ken's now offering a potential Sub Experimental

List solution which I'll look into.

Maybe someone could invite Dr Yasko to answer questions and field posts for a

few weeks or so at this list to give the CFS community a better feel for what

she has to offer? The in house visit can go a long way.

" kattemayo " <kattemayo@...> wrote:

>

>

> ,

>

> There are several different issues here:

>

> A) Opinion of the importance of the Rich/Yasko program or if it is cause and

cure

>

> Opinion about it dominating this list.

>

> C) Reasonableness and respect used on these issues.

>

> These should have been seperate issues.

>

> People have been asking perfectly reasonable questions about this plan for

several weeks. Some Yasko people were put on warning/moderation weeks ago for

being abusive, unhelpful and not posting their *treatments*, on this *treatment*

list.

>

> Several people got very nasty backchannel mail....some who did not report it

and some did.

>

> There was valid questioning of several points on Yasko, including correction

of false statements, or that it is " proven " , and questioning it being touted as

cause and cure when no one has been cited who is in remission from it...and

barely anyone on it at all and only one feeling better from it.

> This has always been questioned vehemently on this list.

>

> People have been visciously attacked on and off list for questioning either

the plan itself or it's dominance here. They have attempted to explain the

context of their concerns....all of which have been mocked, they and their

illness psychologised...*knowingly*, the nastiest blow to a PWC, taunted for

their cognitive deficits and perceived lack of income. ANd now you pronounce to

someone she has no argument, but only lies and manipulation??!! Has anyone

looked in the mirror lately?

>

> Others too have said they don't even want to know or care what is making

people sick and overloaded by the complexity, length and volume of the posts.

> Yasko proponents have not only expressed no concern that people are skipping

whole digests of posts or leaving the list, but have actually ordered them to do

so.(to some of the longest term members).

>

> There are significant numbers of people who are not interested in this topic.

There are alot of others who are/WERE very interested, but in a full format of

it's own. And/or full discussion of other theories/treatments here, a number of

which have been mocked or dismissed much more swiftly than this one.

>

> There are others who are saying nothing, as it is clear what happens to people

who speak out...a very bullying, intimidating environment, especially to the

most vulnerable.

> It is not true that everyone is as fragile as others...this varies widely in

this group and a committment has been made to be considerate of the most

extreme. Instead people's limitations have been mocked and dismissed.

>

> THere are plenty of people, and volume of information for a Yasko group of

it's own. Especially since the volume and discussions will grow considerably.

And messages are at over 100 a day now.

>

> It is impossible to declare that most want this topic dominating.

>

> Are you prepared for every other treatment modality, for which no one here has

been treated, or helped, and no one by a CFS Specialist, to take up hundreds of

posts a week...in the spirit of fairness?

>

> WHat should have been 2 separate issues have merged into one horrid

controversy...that alone calls the topic into question.

>

> The exchanges here, in this crowded atmosphere have caused this issue to be

far more polarized than it needed to be.

> very very sad.

>

> Katrina