Re: Open discussion Yasko, other

[Guest guest]

>

> It is with great hesitation I post anything on this list, but I

feel

> it is imperative that I try to make a point. I am on two other

lists

> which are primarily MDs and scientists. To some extent both these

> lists are currenly having open discussion of the cause of cfs ie

is

> it genes or pathogens.

>

> Rich V. and I currently disagree at some level. Other scientists

and

> MDs would also disagree with Rich's approach. It is not that

> eventually gene studies will become useful and treatments designed

> specifically to the disease. The big question is will that work

RIGHT

> NOW? Is it the realistic approach at this time. For some of you it

> may well be, and I say, more power to you.

>

> Those of us who still hold that our best hope for now is improved

> testing and treatment for known bacterial infections want to be

> heard. This is not because we are on some ego trip. There are over

> 2,000 sick people on this list. People like myself are among the

> healthier ones. We got that way because of years of treatment -

both

> antibiotics and nutritional treatments. Hey, I've taken ImmunoPro

and

> growth hormone and magnesium for years. Our perspective is being

> overlooked and even insulted.

>

> I see no reason why the folks who want to try Yasko should not

form

> their own list or message board where they can compare extensive

> details of their test results and treatments. Meanwhile I would

LOVE

> for them to keep posting short updates here.

>

> I would also love to see the rest of us respected and encouraged

to

> post here what is going on in our treatment approach. Hey, I quit

the

> Marshall Protocol but that doesn't mean it's not helping a lot of

> people. Let's give everyone a chance to share.

>

> We may find that there are solutions hidden amonst the 2,000 of us.

>

> a Carnes

>

http://www.haverfordwellness.com/

(if this doesn't take you there search for patricia kane haverford

wellness for the link)

PK PROTOCOL

Check out the conference page.

If you read some of the testimonials, one woman got limited result

with Yasko (child with autism) but was astounded with the PK

protocol, using Lipostabil, folinic acid, and glutathione IV.

I think there is more to the PK protocol than just that, and I think

this will be a big help for some. Apparently this is being helpful

and she is getting great results with MS, ALS etc. Also mentions

CFIDS on the list. I'm in. I am looking forward trying this

treatment. we'll see. i remember all the research i did with fatty

acids, brain remodeling, lipid rafts, etc. IV much quicker results.

I hear ya a.

Off to to see a neuroimmunologist. Back in a week. Later all,

mikie

[Guest guest]

>

> It is with great hesitation I post anything on this list, but I

feel

> it is imperative that I try to make a point. I am on two other

lists

> which are primarily MDs and scientists. To some extent both these

> lists are currenly having open discussion of the cause of cfs ie

is

> it genes or pathogens.

>

> Rich V. and I currently disagree at some level. Other scientists

and

> MDs would also disagree with Rich's approach. It is not that

> eventually gene studies will become useful and treatments designed

> specifically to the disease. The big question is will that work

RIGHT

> NOW? Is it the realistic approach at this time. For some of you it

> may well be, and I say, more power to you.

>

> Those of us who still hold that our best hope for now is improved

> testing and treatment for known bacterial infections want to be

> heard. This is not because we are on some ego trip. There are over

> 2,000 sick people on this list. People like myself are among the

> healthier ones. We got that way because of years of treatment -

both

> antibiotics and nutritional treatments. Hey, I've taken ImmunoPro

and

> growth hormone and magnesium for years. Our perspective is being

> overlooked and even insulted.

>

> I see no reason why the folks who want to try Yasko should not

form

> their own list or message board where they can compare extensive

> details of their test results and treatments. Meanwhile I would

LOVE

> for them to keep posting short updates here.

>

> I would also love to see the rest of us respected and encouraged

to

> post here what is going on in our treatment approach. Hey, I quit

the

> Marshall Protocol but that doesn't mean it's not helping a lot of

> people. Let's give everyone a chance to share.

>

> We may find that there are solutions hidden amonst the 2,000 of us.

>

> a Carnes

>

a, btw, would you mind posting the other " scientific " lists you

hit? interested. lightning hit my satellite, so i'm down, haven't

been able to check in, quick post on PK protocol, i think looks good.

thanks (please post the lists, always interested in good info).

[Guest guest]

Mikie,

I never heard of the PK protocol before, but I live within a couple

miles of where the office is of the website you gave me. I'm going to

assume they don't take insurance and that it's expensive, but it is

nice that it is right close to me.

-chris

> >

> > It is with great hesitation I post anything on this list, but I

> feel

> > it is imperative that I try to make a point. I am on two other

> lists

> > which are primarily MDs and scientists. To some extent both these

> > lists are currenly having open discussion of the cause of cfs ie

> is

> > it genes or pathogens.

> >

> > Rich V. and I currently disagree at some level. Other scientists

> and

> > MDs would also disagree with Rich's approach. It is not that

> > eventually gene studies will become useful and treatments designed

> > specifically to the disease. The big question is will that work

> RIGHT

> > NOW? Is it the realistic approach at this time. For some of you it

> > may well be, and I say, more power to you.

> >

> > Those of us who still hold that our best hope for now is improved

> > testing and treatment for known bacterial infections want to be

> > heard. This is not because we are on some ego trip. There are over

> > 2,000 sick people on this list. People like myself are among the

> > healthier ones. We got that way because of years of treatment -

> both

> > antibiotics and nutritional treatments. Hey, I've taken ImmunoPro

> and

> > growth hormone and magnesium for years. Our perspective is being

> > overlooked and even insulted.

> >

> > I see no reason why the folks who want to try Yasko should not

> form

> > their own list or message board where they can compare extensive

> > details of their test results and treatments. Meanwhile I would

> LOVE

> > for them to keep posting short updates here.

> >

> > I would also love to see the rest of us respected and encouraged

> to

> > post here what is going on in our treatment approach. Hey, I quit

> the

> > Marshall Protocol but that doesn't mean it's not helping a lot of

> > people. Let's give everyone a chance to share.

> >

> > We may find that there are solutions hidden amonst the 2,000 of us.

> >

> > a Carnes

> >

>

>

> http://www.haverfordwellness.com/

> (if this doesn't take you there search for patricia kane haverford

> wellness for the link)

>

> PK PROTOCOL

>

> Check out the conference page.

> If you read some of the testimonials, one woman got limited result

> with Yasko (child with autism) but was astounded with the PK

> protocol, using Lipostabil, folinic acid, and glutathione IV.

>

> I think there is more to the PK protocol than just that, and I think

> this will be a big help for some. Apparently this is being helpful

> and she is getting great results with MS, ALS etc. Also mentions

> CFIDS on the list. I'm in. I am looking forward trying this

> treatment. we'll see. i remember all the research i did with fatty

> acids, brain remodeling, lipid rafts, etc. IV much quicker results.

> I hear ya a.

> Off to to see a neuroimmunologist. Back in a week. Later all,

> mikie

>

[Guest guest]

Ok, I checked out the conference page and I didn't find the

testimonials.

Am I looking in the wrong spot ?

http://www.haverfor <http://www.haverfordwellness.com/> dwellness.com/

(if this doesn't take you there search for patricia kane haverford

wellness for the link)

PK PROTOCOL

Check out the conference page.

If you read some of the testimonials, one woman got limited result

with Yasko (child with autism) but was astounded with the PK

protocol, using Lipostabil, folinic acid, and glutathione IV.

I think there is more to the PK protocol than just that, and I think

this will be a big help for some. Apparently this is being helpful

and she is getting great results with MS, ALS etc. Also mentions

CFIDS on the list. I'm in. I am looking forward trying this

treatment. we'll see. i remember all the research i did with fatty

acids, brain remodeling, lipid rafts, etc. IV much quicker results.

I hear ya a.

Off to to see a neuroimmunologist. Back in a week. Later all,

mikie

[Guest guest]

I tried the PK protocol and it was a COMPLETE disaster . . . TOO many lipids. It

made me sicker than I ever was.

Yasko is saving my life!! Better check you genetics to be sure you can handle

those lipids CBS + won't work . . just my opinion

Sue T

cmdrexel2008 <cmessina@...> wrote:

Mikie,

I never heard of the PK protocol before, but I live within a couple

miles of where the office is of the website you gave me. I'm going to

assume they don't take insurance and that it's expensive, but it is

nice that it is right close to me.

-chris

> >

> > It is with great hesitation I post anything on this list, but I

> feel

> > it is imperative that I try to make a point. I am on two other

> lists

> > which are primarily MDs and scientists. To some extent both these

> > lists are currenly having open discussion of the cause of cfs ie

> is

> > it genes or pathogens.

> >

> > Rich V. and I currently disagree at some level. Other scientists

> and

> > MDs would also disagree with Rich's approach. It is not that

> > eventually gene studies will become useful and treatments designed

> > specifically to the disease. The big question is will that work

> RIGHT

> > NOW? Is it the realistic approach at this time. For some of you it

> > may well be, and I say, more power to you.

> >

> > Those of us who still hold that our best hope for now is improved

> > testing and treatment for known bacterial infections want to be

> > heard. This is not because we are on some ego trip. There are over

> > 2,000 sick people on this list. People like myself are among the

> > healthier ones. We got that way because of years of treatment -

> both

> > antibiotics and nutritional treatments. Hey, I've taken ImmunoPro

> and

> > growth hormone and magnesium for years. Our perspective is being

> > overlooked and even insulted.

> >

> > I see no reason why the folks who want to try Yasko should not

> form

> > their own list or message board where they can compare extensive

> > details of their test results and treatments. Meanwhile I would

> LOVE

> > for them to keep posting short updates here.

> >

> > I would also love to see the rest of us respected and encouraged

> to

> > post here what is going on in our treatment approach. Hey, I quit

> the

> > Marshall Protocol but that doesn't mean it's not helping a lot of

> > people. Let's give everyone a chance to share.

> >

> > We may find that there are solutions hidden amonst the 2,000 of us.

> >

> > a Carnes

> >

>

>

> http://www.haverfordwellness.com/

> (if this doesn't take you there search for patricia kane haverford

> wellness for the link)

>

> PK PROTOCOL

>

> Check out the conference page.

> If you read some of the testimonials, one woman got limited result

> with Yasko (child with autism) but was astounded with the PK

> protocol, using Lipostabil, folinic acid, and glutathione IV.

>

> I think there is more to the PK protocol than just that, and I think

> this will be a big help for some. Apparently this is being helpful

> and she is getting great results with MS, ALS etc. Also mentions

> CFIDS on the list. I'm in. I am looking forward trying this

> treatment. we'll see. i remember all the research i did with fatty

> acids, brain remodeling, lipid rafts, etc. IV much quicker results.

> I hear ya a.

> Off to to see a neuroimmunologist. Back in a week. Later all,

> mikie

>

[Guest guest]

Sue,

Thanks for writing. I am not going to try it anytime soon - just found

it interesting that I live close to where she is located. I currently

don't have the money to get the testing done, but I'm happy that it

worked for you and will follow everyone who is doing it with great

interest!

-Chris

> > >

> > > It is with great hesitation I post anything on this list, but I

> > feel

> > > it is imperative that I try to make a point. I am on two other

> > lists

> > > which are primarily MDs and scientists. To some extent both these

> > > lists are currenly having open discussion of the cause of cfs ie

> > is

> > > it genes or pathogens.

> > >

> > > Rich V. and I currently disagree at some level. Other scientists

> > and

> > > MDs would also disagree with Rich's approach. It is not that

> > > eventually gene studies will become useful and treatments designed

> > > specifically to the disease. The big question is will that work

> > RIGHT

> > > NOW? Is it the realistic approach at this time. For some of you it

> > > may well be, and I say, more power to you.

> > >

> > > Those of us who still hold that our best hope for now is improved

> > > testing and treatment for known bacterial infections want to be

> > > heard. This is not because we are on some ego trip. There are over

> > > 2,000 sick people on this list. People like myself are among the

> > > healthier ones. We got that way because of years of treatment -

> > both

> > > antibiotics and nutritional treatments. Hey, I've taken ImmunoPro

> > and

> > > growth hormone and magnesium for years. Our perspective is being

> > > overlooked and even insulted.

> > >

> > > I see no reason why the folks who want to try Yasko should not

> > form

> > > their own list or message board where they can compare extensive

> > > details of their test results and treatments. Meanwhile I would

> > LOVE

> > > for them to keep posting short updates here.

> > >

> > > I would also love to see the rest of us respected and encouraged

> > to

> > > post here what is going on in our treatment approach. Hey, I quit

> > the

> > > Marshall Protocol but that doesn't mean it's not helping a lot of

> > > people. Let's give everyone a chance to share.

> > >

> > > We may find that there are solutions hidden amonst the 2,000 of us.

> > >

> > > a Carnes

> > >

> >

> >

> > http://www.haverfordwellness.com/

> > (if this doesn't take you there search for patricia kane haverford

> > wellness for the link)

> >

> > PK PROTOCOL

> >

> > Check out the conference page.

> > If you read some of the testimonials, one woman got limited result

> > with Yasko (child with autism) but was astounded with the PK

> > protocol, using Lipostabil, folinic acid, and glutathione IV.

> >

> > I think there is more to the PK protocol than just that, and I think

> > this will be a big help for some. Apparently this is being helpful

> > and she is getting great results with MS, ALS etc. Also mentions

> > CFIDS on the list. I'm in. I am looking forward trying this

> > treatment. we'll see. i remember all the research i did with fatty

> > acids, brain remodeling, lipid rafts, etc. IV much quicker results.

> > I hear ya a.

> > Off to to see a neuroimmunologist. Back in a week. Later all,

> > mikie

> >

>

>

>

>

>

>

>

[Guest guest]

Hi

I am hoping (if you chose)you can move along (slowly) with the others that

chose the Yasko protocol. My best advice is don't expect much improvement for a

few months. From what I read everyone that has started her program is in sucha a

HURRY. Please there is no rush . . . it can make you very anxious(believe I have

been there). Please go slow and educate yourself from her materials.

Best wishes,

Sue T

cmdrexel2008 <cmessina@...> wrote:

Sue,

Thanks for writing. I am not going to try it anytime soon - just found

it interesting that I live close to where she is located. I currently

don't have the money to get the testing done, but I'm happy that it

worked for you and will follow everyone who is doing it with great

interest!

-Chris

> > >

> > > It is with great hesitation I post anything on this list, but I

> > feel

> > > it is imperative that I try to make a point. I am on two other

> > lists

> > > which are primarily MDs and scientists. To some extent both these

> > > lists are currenly having open discussion of the cause of cfs ie

> > is

> > > it genes or pathogens.

> > >

> > > Rich V. and I currently disagree at some level. Other scientists

> > and

> > > MDs would also disagree with Rich's approach. It is not that

> > > eventually gene studies will become useful and treatments designed

> > > specifically to the disease. The big question is will that work

> > RIGHT

> > > NOW? Is it the realistic approach at this time. For some of you it

> > > may well be, and I say, more power to you.

> > >

> > > Those of us who still hold that our best hope for now is improved

> > > testing and treatment for known bacterial infections want to be

> > > heard. This is not because we are on some ego trip. There are over

> > > 2,000 sick people on this list. People like myself are among the

> > > healthier ones. We got that way because of years of treatment -

> > both

> > > antibiotics and nutritional treatments. Hey, I've taken ImmunoPro

> > and

> > > growth hormone and magnesium for years. Our perspective is being

> > > overlooked and even insulted.

> > >

> > > I see no reason why the folks who want to try Yasko should not

> > form

> > > their own list or message board where they can compare extensive

> > > details of their test results and treatments. Meanwhile I would

> > LOVE

> > > for them to keep posting short updates here.

> > >

> > > I would also love to see the rest of us respected and encouraged

> > to

> > > post here what is going on in our treatment approach. Hey, I quit

> > the

> > > Marshall Protocol but that doesn't mean it's not helping a lot of

> > > people. Let's give everyone a chance to share.

> > >

> > > We may find that there are solutions hidden amonst the 2,000 of us.

> > >

> > > a Carnes

> > >

> >

> >

> > http://www.haverfordwellness.com/

> > (if this doesn't take you there search for patricia kane haverford

> > wellness for the link)

> >

> > PK PROTOCOL

> >

> > Check out the conference page.

> > If you read some of the testimonials, one woman got limited result

> > with Yasko (child with autism) but was astounded with the PK

> > protocol, using Lipostabil, folinic acid, and glutathione IV.

> >

> > I think there is more to the PK protocol than just that, and I think

> > this will be a big help for some. Apparently this is being helpful

> > and she is getting great results with MS, ALS etc. Also mentions

> > CFIDS on the list. I'm in. I am looking forward trying this

> > treatment. we'll see. i remember all the research i did with fatty

> > acids, brain remodeling, lipid rafts, etc. IV much quicker results.

> > I hear ya a.

> > Off to to see a neuroimmunologist. Back in a week. Later all,

> > mikie

> >

>

>

>

>

>

>

>

[Guest guest]

I agree with a's statement: " I see no reason why the folks who want to try

Yasko

should not form their own list or message board where they can compare extensive

details of their test results and treatments. Meanwhile I would LOVE

for them to keep posting short updates here. "

I think that's a great way to do it -- a reasonable compromise. The Yasko

protocol may

hold out a lot of hope for all of us, but it does seemed to have taken over the

board.

I'm not so sure I agree about her statement regarding the MP. I don't know of

anyone with

classic CFIDS who has gotten better using his strict protocol alone.

d.

>

> It is with great hesitation I post anything on this list, but I feel

> it is imperative that I try to make a point. I am on two other lists

> which are primarily MDs and scientists. To some extent both these

> lists are currenly having open discussion of the cause of cfs ie is

> it genes or pathogens.

>

> Rich V. and I currently disagree at some level. Other scientists and

> MDs would also disagree with Rich's approach. It is not that

> eventually gene studies will become useful and treatments designed

> specifically to the disease. The big question is will that work RIGHT

> NOW? Is it the realistic approach at this time. For some of you it

> may well be, and I say, more power to you.

>

> Those of us who still hold that our best hope for now is improved

> testing and treatment for known bacterial infections want to be

> heard. This is not because we are on some ego trip. There are over

> 2,000 sick people on this list. People like myself are among the

> healthier ones. We got that way because of years of treatment - both

> antibiotics and nutritional treatments. Hey, I've taken ImmunoPro and

> growth hormone and magnesium for years. Our perspective is being

> overlooked and even insulted.

>

> I see no reason why the folks who want to try Yasko should not form

> their own list or message board where they can compare extensive

> details of their test results and treatments. Meanwhile I would LOVE

> for them to keep posting short updates here.

>

> I would also love to see the rest of us respected and encouraged to

> post here what is going on in our treatment approach. Hey, I quit the

> Marshall Protocol but that doesn't mean it's not helping a lot of

> people. Let's give everyone a chance to share.

>

> We may find that there are solutions hidden amonst the 2,000 of us.

>

> a Carnes

>

[Guest guest]

I agree that going after " bugs " - be they Lyme, mycoplasma, candida or

whatever is very valid treatment. Unfortunately my body is so trashed

by so many infections, toxic exposures and messed up detox/metabolism

that I just have to live with them or run the risk of further damaging

organs, etc. My only choice is to at least try the genetic approach.

It may not work, but any other treatments I know of are either just

paliative or worse. So while I don't want to throw the baby out with

the bathwater - i.e. antibiotics, etc. - the detox pathway approach is

my only option. I'm very glad to have it discussed here.

It doesn't matter how I got here, be it genes or pathogens. What does

matter is what I can do about my situation - if amything - right now.

Many other theories and approaches have been discussed on this list

over the years. The Yasko/genetic approach is but one of many.

This should be an inclusive list where most treatments can be

discussed - with respect and tolerance for other group members -

including germ theory/specific pathogens. The Yasko approach holds

promise for those of us who are not fortunate enough to

tolerate antibiotics, etc. Over the years there have been many

postings I have passed over, knowing that they were not relevant to me

because I could not tolerate them.

I guess what I am trying to say, is there is room for all approaches

on this list IMHO.

Michele G

>

> It is with great hesitation I post anything on this list, but I feel

> it is imperative that I try to make a point. I am on two other lists

> which are primarily MDs and scientists. To some extent both these

> lists are currenly having open discussion of the cause of cfs ie is

> it genes or pathogens.

>

> Rich V. and I currently disagree at some level. Other scientists and

> MDs would also disagree with Rich's approach. It is not that

> eventually gene studies will become useful and treatments designed

> specifically to the disease. The big question is will that work RIGHT

> NOW? Is it the realistic approach at this time. For some of you it

> may well be, and I say, more power to you.

>

> Those of us who still hold that our best hope for now is improved

> testing and treatment for known bacterial infections want to be

> heard. This is not because we are on some ego trip. There are over

> 2,000 sick people on this list. People like myself are among the

> healthier ones. We got that way because of years of treatment - both

> antibiotics and nutritional treatments. Hey, I've taken ImmunoPro and

> growth hormone and magnesium for years. Our perspective is being

> overlooked and even insulted.

>

> I see no reason why the folks who want to try Yasko should not form

> their own list or message board where they can compare extensive

> details of their test results and treatments. Meanwhile I would LOVE

> for them to keep posting short updates here.

>

> I would also love to see the rest of us respected and encouraged to

> post here what is going on in our treatment approach. Hey, I quit the

> Marshall Protocol but that doesn't mean it's not helping a lot of

> people. Let's give everyone a chance to share.

>

> We may find that there are solutions hidden amonst the 2,000 of us.

>

> a Carnes

>

[Guest guest]

Please trim your posts.....

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

I feel that different lists have different 'themes'. Infection and

Inflammation, for instance, is very themed toward the virulence and

persistence of infections and the need for aggressive antibiotic and

antifungal therapy. On that list are some who have gotten symptom free

or symptom improvement that way, and some who are still trying.

Oxyplus is about oxygen therapies in general. Lymenet encompasses a

variety of methods with an emphasis on antibiotics. CFS-Experimental

is about experimental treatments for CFS which includes lyme for some

of us. When antibiotics become an experimental treatment for CFS, in

some new way, it would be interesting to hear about them, for those

who can tolerate them (I'm like Adrienne, and will only take them when

desperate for an acute infection short term; they are not a good

answer for me because of such massive fungal issues that I end up much

sicker rather than improving). For instance, minocycyline is going to

be tried in some brain disorders soon and is an experimental treatment

for M.S. because of its anti inflammatory properties in the nervous

system.

>

> Good Lord. There are always idiots here who will insult whatever

they don't understand. Idiots get sick too.

>

> But nobody is being overlooked or insulted in general. If one

particular idea is dominant at present- and that is nothing new- it is

not by chicanery, force, deception or any other negative process. It

is because it is an attractive, or at worst beguiling idea.

>

> I am NEVER gonna be discussing antibiotics no matter what else is

spoken of here; simply because I am convinced the risk of trying them

is greater than I want to take. I use them only if I have an acute

infection. At least not until I had exhausted every other possible

approach. I am not being influenced by the strength of the genetic

arguement.

> I am just thinking of how 90% of what I used to read here when I was

sicker was totally worthless for me- because I couldn't understand it,

or I could and it sounded like junk, or just unimpressive. Thank God

for the rest, the other 10%. It has pretty much gotten me to a much

better (but not well) place and I am very thankful for it.

>

> Perhaps we do things in a very ragged way, perhaps we could do

better, I dunno. But maybe nothing is broken. MAybe it works as best

as can be and there is nothing to fix.

> Meanwhile we are all grown ups and get to find our way-or not- and

don't need anyone protecting us from ideas.

>

> Adrienne

> Open discussion Yasko, other

>

>

> It is with great hesitation I post anything on this list, but I feel

> it is imperative that I try to make a point. I am on two other lists

> which are primarily MDs and scientists. To some extent both these

> lists are currenly having open discussion of the cause of cfs ie is

> it genes or pathogens.

>

> Rich V. and I currently disagree at some level. Other scientists and

> MDs would also disagree with Rich's approach. It is not that

> eventually gene studies will become useful and treatments designed

> specifically to the disease. The big question is will that work RIGHT

> NOW? Is it the realistic approach at this time. For some of you it

> may well be, and I say, more power to you.

>

> Those of us who still hold that our best hope for now is improved

> testing and treatment for known bacterial infections want to be

> heard. This is not because we are on some ego trip. There are over

> 2,000 sick people on this list. People like myself are among the

> healthier ones. We got that way because of years of treatment - both

> antibiotics and nutritional treatments. Hey, I've taken ImmunoPro and

> growth hormone and magnesium for years. Our perspective is being

> overlooked and even insulted.

>

> I see no reason why the folks who want to try Yasko should not form

> their own list or message board where they can compare extensive

> details of their test results and treatments. Meanwhile I would LOVE

> for them to keep posting short updates here.

>

> I would also love to see the rest of us respected and encouraged to

> post here what is going on in our treatment approach. Hey, I quit the

> Marshall Protocol but that doesn't mean it's not helping a lot of

> people. Let's give everyone a chance to share.

>

> We may find that there are solutions hidden amonst the 2,000 of us.

>

> a Carnes

>

>

>

>

>

>

[Guest guest]

And, again, some of us with a whole lot of cognitive issues find it

difficult to scroll through endless posts of little interest.

That is why I think the Yasko stuff either belongs on its own list or an

AutismAnswers with just an occasional posting here to keep us updated.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

I for one would prefer that it not go to another list. I am already

on so many, I don't keep up with all of the reading on some of them.

So please everyone. Could we not just keep the discussion here and

just label it for those not interested? I would be thankful.

[Guest guest]

" Our perspective is being overlooked and even insulted. "

I guess I am not seeing it a. I have tried to keep up with this

list on a daily basis and I just have not seen insults.

I don't understand the inability to scroll by a topic that does not

interest some one. I do it all of the time.

I for one am very interested in the Yasko information. Even though I

have benefitted from antibiotics and antifungals for Lyme, my son has

not. We basically have had the same treatment. Why am I better and

not him? My thoughts are the genes, specifically the ones from his

father's side which includes asthma. He does not tolerate sulfur foods

nor sulfur based supplements,ie: NAC,Glutathione, etc. Since it is

not really an allergy, then it must be a cycle problem. Which one?

What to do about it? I want to pursue this testing at some point. In

the meantime, I really appreciate the posts on this line of treatment.

My husband works so he doesn't have time to learn about all of this

nor my son the interest. That leaves me to research and learn. I

don't want to have to join yet another list to do so.

As far as the physician's list not pursuing this. I don't think many

of them have time to do the reading that is required. They are too

busy with patients on a daily basis, corresponding paper work and then

trying to have a life. That is one of the reasons so many lyme

patients have to educate their physicians about lyme. They just don't

have enough hours in a day. So just because they are not jumping on

the Yasko band wagon doesn't mean to me that it is not worthy.

I for one would prefer that it not go to another list. I am already

on so many, I don't keep up with all of the reading on some of them.

So please everyone. Could we not just keep the discussion here and

just label it for those not interested? I would be thankful.

Best,

in AZ

[Guest guest]

Have you tried vinpocetine for the cognitive problem?? It worked wonders for me.

NO topic interests all of us. I never even bother to open the ones I am not

interested in and my delete key works fine.

Janet

foxhillers@... wrote:

And, again, some of us with a whole lot of cognitive issues find it

difficult to scroll through endless posts of little interest.

That is why I think the Yasko stuff either belongs on its own list or an

AutismAnswers with just an occasional posting here to keep us updated.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

I for one would prefer that it not go to another list. I am already

on so many, I don't keep up with all of the reading on some of them.

So please everyone. Could we not just keep the discussion here and

just label it for those not interested? I would be thankful.

[Guest guest]

Janet,

What is your diagnosis and condition...symptoms, level of disability? It won't

be possible to understand anyone " improving " , or " worsening " on the Yasko

program without that info.

The " cognitive problem " in classic CFS is from erratic blood flow, infections,

toxins, metabolic, discrete subcortical injury, lesions, mitochondria damage,

etc.

There are multiple cognitive deficits common....some ongoing, some wax and wane.

For some patients, the disease measurably lowers IQ by 30 points, especially

after *mental* or physical exertion.

Katrina

> And, again, some of us with a whole lot of cognitive issues find it

> difficult to scroll through endless posts of little interest.

>

> That is why I think the Yasko stuff either belongs on its own list or an

> AutismAnswers with just an occasional posting here to keep us updated.

>

> mjh

> " The Basil Book "

> _http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

>

> I for one would prefer that it not go to another list. I am already

> on so many, I don't keep up with all of the reading on some of them.

>

> So please everyone. Could we not just keep the discussion here and

> just label it for those not interested? I would be thankful.

>

>

[Guest guest]

Katrina,

Diagnosed with CFS and FM. I have great fatigue and I am unable to walk 3

blocks without feeling it for 2 days afterward. Sick for 25 years, started after

HEAVY exercise. Had high titers for EBV. High mercury level.

When I overdo it, I cannot think or function. Staring on the couch would

describe it. The reason I did recommend the vinpocetine is because it really

helped my energy and thinking ablility.

I have lost a home because of my CFS! Spent thousands on treatment that did

not work.

For me, Yakso is worth putting my money behind.

Janet

kattemayo <kattemayo@...> wrote:

Janet,

What is your diagnosis and condition...symptoms, level of disability? It won't

be possible to understand anyone " improving " , or " worsening " on the Yasko

program without that info.

The " cognitive problem " in classic CFS is from erratic blood flow, infections,

toxins, metabolic, discrete subcortical injury, lesions, mitochondria damage,

etc.

There are multiple cognitive deficits common....some ongoing, some wax and wane.

For some patients, the disease measurably lowers IQ by 30 points, especially

after *mental* or physical exertion.

Katrina

> And, again, some of us with a whole lot of cognitive issues find it

> difficult to scroll through endless posts of little interest.

>

> That is why I think the Yasko stuff either belongs on its own list or an

> AutismAnswers with just an occasional posting here to keep us updated.

>

> mjh

> " The Basil Book "

> _http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

>

> I for one would prefer that it not go to another list. I am already

> on so many, I don't keep up with all of the reading on some of them.

>

> So please everyone. Could we not just keep the discussion here and

> just label it for those not interested? I would be thankful.

>

>

[Guest guest]

Janet:

My history and condition very similar to yours, except my stamina is

worse than my thinking ability.

Does Yasko recommend vinpocetine?

I am waiting impatiently for the holiday to pass so I can do my blood

test and get it back to the lab overnight to run the Yasko test, then

the long wait for results.

thanks,

Helen

> > And, again, some of us with a whole lot of cognitive issues find

it

> > difficult to scroll through endless posts of little interest.

> >

> > That is why I think the Yasko stuff either belongs on its own

list or an

> > AutismAnswers with just an occasional posting here to keep us

updated.

> >

> > mjh

> > " The Basil Book "

> > _http://foxhillfarm.us/FireBasil/_

(http://foxhillfarm.us/FireBasil/)

> >

> > I for one would prefer that it not go to another list. I am

already

> > on so many, I don't keep up with all of the reading on some of

them.

> >

> > So please everyone. Could we not just keep the discussion here and

> > just label it for those not interested? I would be thankful.

> >

> >

[Guest guest]

Yes, Helen. Vinpocetine is in her step one for calcim control. But I was taking

it before Yasko and noticed a difference. Its cheap. I am like you. Stamina

worse then thinking ability, but it helped me with both.

Janet

helen9jora <helenjora@...> wrote:

Janet:

My history and condition very similar to yours, except my stamina is

worse than my thinking ability.

Does Yasko recommend vinpocetine?

I am waiting impatiently for the holiday to pass so I can do my blood

test and get it back to the lab overnight to run the Yasko test, then

the long wait for results.

thanks,

Helen

> > And, again, some of us with a whole lot of cognitive issues find

it

> > difficult to scroll through endless posts of little interest.

> >

> > That is why I think the Yasko stuff either belongs on its own

list or an

> > AutismAnswers with just an occasional posting here to keep us

updated.

> >

> > mjh

> > " The Basil Book "

> > _http://foxhillfarm.us/FireBasil/_

(http://foxhillfarm.us/FireBasil/)

> >

> > I for one would prefer that it not go to another list. I am

already

> > on so many, I don't keep up with all of the reading on some of

them.

> >

> > So please everyone. Could we not just keep the discussion here and

> > just label it for those not interested? I would be thankful.

> >

> >