Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 I'm VERY interested in the Yasko protocol and want to know everything that comes up on tests and what ya'all are doing about it. I think this is all quite fascinating and would gladly join another list to be in on it. But what about the delete button? I'm not ready to jump into it, but want to keep careful tabs on those of you that are. One thing I would like is to have some of the jargon explained to the novices in the group...maybe that's a reason for a separate Yasko group. jill1313 <jenbooks13@...> wrote: I've been backchanelled about this so will bring it up. This list is my favorite on . I don't want to see its fertility undermined and I don't want us to just stop discussing Yasko/glutathione etc her cold turkey. OTOH there are a # of us who probably want to discuss our test results and our protocols and what's working, in detail that the others may not want. If so, should we start a co-moderated Yasko group (with at least 3 of us as moderators since we all have health issues and NONE of us are going to want to play the role Ken sometimes has had to on this list). We could have a files section where our test results are permanently available to view (I don't think I can have a signature because I use ). General insights, news, Rich's thinking, and substantial improvements like Sue's could be posted in both. Or perhaps, to help ease the reading of those here, Rich could post a long post analyzing someone's health history and test results, or whatever he likes to post, on there, and a message here that he has just posted on there, for those who like to read it. Or cross post if its encompassing enough. What I'm trying to suggest is that we create a both/and situation, that still allows big, important, stuff about the whole Yasko/glutathione issue to remain a lively topic on here without exclusively dominating the list for those who have trouble concentrating or reading, and to allow those of us interested in orembarking on this as one of our approaches to discuss it in as much detail as we want on a Yasko list. Again, I think that at least 3 of us should be comoderators. Maybe Rich wouldn't mind being the first one (i.e the first and final arbiter, because he gets along with everybody) who starts the list, and a few others of us can volunteer because Rich isn't always available to post. So asking him to do more is not the idea at all, simply having him as a final arbiter should a few times a year, there arise some thorny internet situation. I hope there's not but I've seen even the best lists have such situations from time to time. I would think that to register for this list, which would be moderated, we should use the format where you have to mention a bit about who you are and why you want to join (i.e. this list should just be for people who genuinely want to pursue this approach; not for those who are skeptical or want to cut it down). This is my suggestion. Please chime in, I hope that is okay with Ken, rather than backchanelling, if we take a few days to discuss this and arrive at a solution that overall will benefit everybody. The reason I'm bringing this up is because a few folks backchanneled me on it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Why need a new list? Why not just put some sort of agreed-upon marker in the subject line on all those posts that would be going to the new list? People who don't want to read those posts can just not open them. So then you have a list within a list. Much easier and more flexible, too, I think. Somedays I like to dabble in the stuff I am not yet trying. somedays not. Adrienne Yasko List I've been backchanelled about this so will bring it up. This list is my favorite on . I don't want to see its fertility undermined and I don't want us to just stop discussing Yasko/glutathione etc her cold turkey. OTOH there are a # of us who probably want to discuss our test results and our protocols and what's working, in detail that the others may not want. If so, should we start a co-moderated Yasko group (with at least 3 of us as moderators since we all have health issues and NONE of us are going to want to play the role Ken sometimes has had to on this list). We could have a files section where our test results are permanently available to view (I don't think I can have a signature because I use ). General insights, news, Rich's thinking, and substantial improvements like Sue's could be posted in both. Or perhaps, to help ease the reading of those here, Rich could post a long post analyzing someone's health history and test results, or whatever he likes to post, on there, and a message here that he has just posted on there, for those who like to read it. Or cross post if its encompassing enough. What I'm trying to suggest is that we create a both/and situation, that still allows big, important, stuff about the whole Yasko/glutathione issue to remain a lively topic on here without exclusively dominating the list for those who have trouble concentrating or reading, and to allow those of us interested in orembarking on this as one of our approaches to discuss it in as much detail as we want on a Yasko list. Again, I think that at least 3 of us should be comoderators. Maybe Rich wouldn't mind being the first one (i.e the first and final arbiter, because he gets along with everybody) who starts the list, and a few others of us can volunteer because Rich isn't always available to post. So asking him to do more is not the idea at all, simply having him as a final arbiter should a few times a year, there arise some thorny internet situation. I hope there's not but I've seen even the best lists have such situations from time to time. I would think that to register for this list, which would be moderated, we should use the format where you have to mention a bit about who you are and why you want to join (i.e. this list should just be for people who genuinely want to pursue this approach; not for those who are skeptical or want to cut it down). This is my suggestion. Please chime in, I hope that is okay with Ken, rather than backchanelling, if we take a few days to discuss this and arrive at a solution that overall will benefit everybody. The reason I'm bringing this up is because a few folks backchanneled me on it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Re: Yasko List " I'm not ready to jump into it, but want to keep careful tabs on those of you that are. " a.. Chronic fatigue syndrome b.. Chronic fatigue syndrome treatment c.. Chronic fatigue syndrome and treatment d.. Chronic fatigue syndrome diet e.. Chronic fatigue syndrome symptom list Get Discounts Compare prices and find great deals. TV Staying in tonight? Check listings to see what is on. Need traffic? Drive customers With search ads on . That was what I was trying to say for myself. Adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 HI All, I think it is great that people are very interested in sharing and learning more about the Yasko program . . . personally I think what we are doing on this group is great! More importantly I think the www.autsimanswer.com/forum is a more effective way of reaching out and getting support through this process. Not sure why there is not more focus on the Parent and Adult area of the forum? I personally have to use my energy carefully and most effectively. I can't risk having to deal with 3 or four forums and support groups to share my progress. I believe we all know our limitations and know how much we can deal with at different times with our journey to wellness. I am really not a great writer and find it difficult to share . . . but I know it is necessary to help others. I am limited in that area. I think if others really feel comfortable writing a lot . . this is great, but others(like myself) find it challenging and stressful. It does not mean I am not improving . . I am a lot, but I have to nurture my healing and not overdo it mentally . . .its to draining . . I need to get away from the computer more not spend more time on it . . . too stressful if I am on it too much. I need to be more meditative and calm. You can really follow my progress by looking up my posts on the Yasko forum. Dr. Yasko is thrilled, too!! Hope you understand :^)) Best wishes, Sue T jill1313 <jenbooks13@...> wrote: I've been backchanelled about this so will bring it up. This list is my favorite on . I don't want to see its fertility undermined and I don't want us to just stop discussing Yasko/glutathione etc her cold turkey. OTOH there are a # of us who probably want to discuss our test results and our protocols and what's working, in detail that the others may not want. If so, should we start a co-moderated Yasko group (with at least 3 of us as moderators since we all have health issues and NONE of us are going to want to play the role Ken sometimes has had to on this list). We could have a files section where our test results are permanently available to view (I don't think I can have a signature because I use ). General insights, news, Rich's thinking, and substantial improvements like Sue's could be posted in both. Or perhaps, to help ease the reading of those here, Rich could post a long post analyzing someone's health history and test results, or whatever he likes to post, on there, and a message here that he has just posted on there, for those who like to read it. Or cross post if its encompassing enough. What I'm trying to suggest is that we create a both/and situation, that still allows big, important, stuff about the whole Yasko/glutathione issue to remain a lively topic on here without exclusively dominating the list for those who have trouble concentrating or reading, and to allow those of us interested in orembarking on this as one of our approaches to discuss it in as much detail as we want on a Yasko list. Again, I think that at least 3 of us should be comoderators. Maybe Rich wouldn't mind being the first one (i.e the first and final arbiter, because he gets along with everybody) who starts the list, and a few others of us can volunteer because Rich isn't always available to post. So asking him to do more is not the idea at all, simply having him as a final arbiter should a few times a year, there arise some thorny internet situation. I hope there's not but I've seen even the best lists have such situations from time to time. I would think that to register for this list, which would be moderated, we should use the format where you have to mention a bit about who you are and why you want to join (i.e. this list should just be for people who genuinely want to pursue this approach; not for those who are skeptical or want to cut it down). This is my suggestion. Please chime in, I hope that is okay with Ken, rather than backchanelling, if we take a few days to discuss this and arrive at a solution that overall will benefit everybody. The reason I'm bringing this up is because a few folks backchanneled me on it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Jill, This seems like a very reasonable suggestion, to form a more focused group. In July, when the Yasko discussions took off, the messages on this list doubled, to 3,058....over one hundred a day. Mostly very long and complicated....detailed individuals' test results and explanations of the pathways. There will be many more coming and that's before even getting to the treatment discussions...also very complicated. THis obviously is a need for those doing the program, and will continue to be, even more so. And for the rest of us, who are interested in different degrees. It seems that it will need and deserve much more space. Meanwhile, what has happened on this list, is that other CFS/CFIDS topics are getting buried, shortened or or ignored. It's hard to even find them, among hundreds of posts within a few days. We have a lot of old patients returning and new ones arriving. And alot of territory to cover There will be much more coming up on all of these topics, theories, treatments, and CFS researchers, too. I also want those to have fully open time and space. I have had the most backchannel posts ever from this list the last couple of months, most about subjects usually covered on the list, but now not getting any response. Some of the emails are from more ill and brain-fogged patients who cannot keep up with this list, or be heard, in it's present form. They deserve the space, in as much detail, they have always had here, and I'd like to see them back on the list. (For one thing, the volume of individual treatment emails is draining me...meaning the ones that are usually covered on the list, not that it's not ok to email me). My brain hurts more than ever from the complicated posts, and trying to " catch " other topics as they whiz by. It would be easier to catch the many many *other* CFS subjects/angles on this list, and know that Yasko style is concentrated in one space to go to. That way, none/neither arena would be cheated...but have full open discussion. There would be overlaps, of course, as among all the lists, but it seems this idea would be healthier for all, rather than one subject/theory dominating long term, but all limited. We have successfully done this on numerous special protocols. It helps the brain organization problem too. TC, Katrina > > I've been backchanelled about this so will bring it up. > > This list is my favorite on . I don't want to see its > fertility undermined and I don't want us to just stop discussing > Yasko/glutathione etc her cold turkey. > > OTOH there are a # of us who probably want to discuss our test results > and our protocols and what's working, in detail that the others may > not want. If so, should we start a co-moderated Yasko group (with at > least 3 of us as moderators since we all have health issues and NONE > of us are going to want to play the role Ken sometimes has had to on > this list). We could have a files section where our test results are > permanently available to view (I don't think I can have a signature > because I use ). > > General insights, news, Rich's thinking, and substantial improvements > like Sue's could be posted in both. Or perhaps, to help ease the > reading of those here, Rich could post a long post analyzing someone's > health history and test results, or whatever he likes to post, on > there, and a message here that he has just posted on there, for those > who like to read it. Or cross post if its encompassing enough. > > What I'm trying to suggest is that we create a both/and situation, > that still allows big, important, stuff about the whole > Yasko/glutathione issue to remain a lively topic on here without > exclusively dominating the list for those who have trouble > concentrating or reading, and to allow those of us interested in > orembarking on this as one of our approaches to discuss it in as much > detail as we want on a Yasko list. > > Again, I think that at least 3 of us should be comoderators. Maybe > Rich wouldn't mind being the first one (i.e the first and final > arbiter, because he gets along with everybody) who starts the list, > and a few others of us can volunteer because Rich isn't always > available to post. So asking him to do more is not the idea at all, > simply having him as a final arbiter should a few times a year, there > arise some thorny internet situation. I hope there's not but I've seen > even the best lists have such situations from time to time. > > I would think that to register for this list, which would be > moderated, we should use the format where you have to mention a > bit about who you are and why you want to join (i.e. this list should > just be for people who genuinely want to pursue this approach; not for > those who are skeptical or want to cut it down). > > This is my suggestion. Please chime in, I hope that is okay with Ken, > rather than backchanelling, if we take a few days to discuss this and > arrive at a solution that overall will benefit everybody. > > The reason I'm bringing this up is because a few folks backchanneled > me on it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 I would prefer to keep it to this list. A person can usually tell from the subject line if its about Yasko, or any other topic. One can pick and choose which ones to open. Janet jill1313 <jenbooks13@...> wrote: I've been backchanelled about this so will bring it up. This list is my favorite on . I don't want to see its fertility undermined and I don't want us to just stop discussing Yasko/glutathione etc her cold turkey. OTOH there are a # of us who probably want to discuss our test results and our protocols and what's working, in detail that the others may not want. If so, should we start a co-moderated Yasko group (with at least 3 of us as moderators since we all have health issues and NONE of us are going to want to play the role Ken sometimes has had to on this list). We could have a files section where our test results are permanently available to view (I don't think I can have a signature because I use ). General insights, news, Rich's thinking, and substantial improvements like Sue's could be posted in both. Or perhaps, to help ease the reading of those here, Rich could post a long post analyzing someone's health history and test results, or whatever he likes to post, on there, and a message here that he has just posted on there, for those who like to read it. Or cross post if its encompassing enough. What I'm trying to suggest is that we create a both/and situation, that still allows big, important, stuff about the whole Yasko/glutathione issue to remain a lively topic on here without exclusively dominating the list for those who have trouble concentrating or reading, and to allow those of us interested in orembarking on this as one of our approaches to discuss it in as much detail as we want on a Yasko list. Again, I think that at least 3 of us should be comoderators. Maybe Rich wouldn't mind being the first one (i.e the first and final arbiter, because he gets along with everybody) who starts the list, and a few others of us can volunteer because Rich isn't always available to post. So asking him to do more is not the idea at all, simply having him as a final arbiter should a few times a year, there arise some thorny internet situation. I hope there's not but I've seen even the best lists have such situations from time to time. I would think that to register for this list, which would be moderated, we should use the format where you have to mention a bit about who you are and why you want to join (i.e. this list should just be for people who genuinely want to pursue this approach; not for those who are skeptical or want to cut it down). This is my suggestion. Please chime in, I hope that is okay with Ken, rather than backchanelling, if we take a few days to discuss this and arrive at a solution that overall will benefit everybody. The reason I'm bringing this up is because a few folks backchanneled me on it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Adrienne, I see your point, yet that would not work for me. This " list within a list " kind of becomes the list. And it needs to grow considerably. Over a hundred posts a day, only 7 or 9 test results , barely any treatments yet. That will be hundreds of posts and thousands and thousands of words to go through to find any other message, even from the same day or 2. It's too hard. I just realized how many topics I have missed, because they're pretty quickly very hard to locate, even recent ones. Also, the detailed Rich/Yasko test, pathway posts, as they are developing, take a different part of the brain to read...to study. It would really help me to concentrate if I had one place to go where all the details are, as my brain can handle it. And MUCH easier to follow the other subjects that are here. They take enough brain power as it is. We do have a *brain* disease (Some of the same subjects, of course, but trimmed down a bit). I think you said your brain has been worse lately too. >>>>Somedays I like to dabble in the stuff I am not yet trying. somedays not.<<<<< Me, too...that's why I like the new suggestion Katrina > > Why need a new list? Why not just put some sort of agreed-upon marker in the subject line on all those posts that would be going to the new list? People who don't want to read those posts can just not open them. So then you have a list within a list. Much easier and more flexible, too, I think. Somedays I like to dabble in the stuff I am not yet trying. somedays not. > Adrienne > > Yasko List > > > I've been backchanelled about this so will bring it up. > > This list is my favorite on . I don't want to see its > fertility undermined and I don't want us to just stop discussing > Yasko/glutathione etc her cold turkey. > > OTOH there are a # of us who probably want to discuss our test results > and our protocols and what's working, in detail that the others may > not want. If so, should we start a co-moderated Yasko group (with at > least 3 of us as moderators since we all have health issues and NONE > of us are going to want to play the role Ken sometimes has had to on > this list). We could have a files section where our test results are > permanently available to view (I don't think I can have a signature > because I use ). > > General insights, news, Rich's thinking, and substantial improvements > like Sue's could be posted in both. Or perhaps, to help ease the > reading of those here, Rich could post a long post analyzing someone's > health history and test results, or whatever he likes to post, on > there, and a message here that he has just posted on there, for those > who like to read it. Or cross post if its encompassing enough. > > What I'm trying to suggest is that we create a both/and situation, > that still allows big, important, stuff about the whole > Yasko/glutathione issue to remain a lively topic on here without > exclusively dominating the list for those who have trouble > concentrating or reading, and to allow those of us interested in > orembarking on this as one of our approaches to discuss it in as much > detail as we want on a Yasko list. > > Again, I think that at least 3 of us should be comoderators. Maybe > Rich wouldn't mind being the first one (i.e the first and final > arbiter, because he gets along with everybody) who starts the list, > and a few others of us can volunteer because Rich isn't always > available to post. So asking him to do more is not the idea at all, > simply having him as a final arbiter should a few times a year, there > arise some thorny internet situation. I hope there's not but I've seen > even the best lists have such situations from time to time. > > I would think that to register for this list, which would be > moderated, we should use the format where you have to mention a > bit about who you are and why you want to join (i.e. this list should > just be for people who genuinely want to pursue this approach; not for > those who are skeptical or want to cut it down). > > This is my suggestion. Please chime in, I hope that is okay with Ken, > rather than backchanelling, if we take a few days to discuss this and > arrive at a solution that overall will benefit everybody. > > The reason I'm bringing this up is because a few folks backchanneled > me on it. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 This is my preferred solution. Having to join yet another list is more complicated for me than using the delete button. I enjoy the Yasko discussion here, and feel I've learned a lot from it. On my bad days, the delete button works well. Perhaps it is harder for those who receive the list in digest form? Jill Yasko List I've been backchanelled about this so will bring it up. This list is my favorite on . I don't want to see its fertility undermined and I don't want us to just stop discussing Yasko/glutathione etc her cold turkey. OTOH there are a # of us who probably want to discuss our test results and our protocols and what's working, in detail that the others may not want. If so, should we start a co-moderated Yasko group (with at least 3 of us as moderators since we all have health issues and NONE of us are going to want to play the role Ken sometimes has had to on this list). We could have a files section where our test results are permanently available to view (I don't think I can have a signature because I use ). General insights, news, Rich's thinking, and substantial improvements like Sue's could be posted in both. Or perhaps, to help ease the reading of those here, Rich could post a long post analyzing someone's health history and test results, or whatever he likes to post, on there, and a message here that he has just posted on there, for those who like to read it. Or cross post if its encompassing enough. What I'm trying to suggest is that we create a both/and situation, that still allows big, important, stuff about the whole Yasko/glutathione issue to remain a lively topic on here without exclusively dominating the list for those who have trouble concentrating or reading, and to allow those of us interested in orembarking on this as one of our approaches to discuss it in as much detail as we want on a Yasko list. Again, I think that at least 3 of us should be comoderators. Maybe Rich wouldn't mind being the first one (i.e the first and final arbiter, because he gets along with everybody) who starts the list, and a few others of us can volunteer because Rich isn't always available to post. So asking him to do more is not the idea at all, simply having him as a final arbiter should a few times a year, there arise some thorny internet situation. I hope there's not but I've seen even the best lists have such situations from time to time. I would think that to register for this list, which would be moderated, we should use the format where you have to mention a bit about who you are and why you want to join (i.e. this list should just be for people who genuinely want to pursue this approach; not for those who are skeptical or want to cut it down). This is my suggestion. Please chime in, I hope that is okay with Ken, rather than backchanelling, if we take a few days to discuss this and arrive at a solution that overall will benefit everybody. The reason I'm bringing this up is because a few folks backchanneled me on it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 My preference is to keep the discussion of the Yasko protocol on this list. I think most of the " detail " posting about the protocol will eventually move to the Yasko Autism Answer forum and make a new list unnecessary. I consider this list my " home base " and I don't want to lose my sense of connection to it. I would find it hard to keep up with 3 lists. Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Hi, Adrienne, I think this is a good idea. But it doesn't matter to me. I just still have a really hard time finding things on the Yasko list. Either my brain is so CFIDS ridden and feeble, or I have a mental block. Also, the subject matter is more geared towards autistic kids - don't know if that matters much. Michele G > > Why need a new list? Why not just put some sort of agreed-upon marker in the subject line on all those posts that would be going to the new list? People who don't want to read those posts can just not open them. So then you have a list within a list. Much easier and more flexible, too, I think. Somedays I like to dabble in the stuff I am not yet trying. somedays not. > Adrienne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 > > > > > Why need a new list? Why not just put some sort of agreed-upon > marker in the subject line on all those posts that would be going to > the new list? People who don't want to read those posts can just not > open them. So then you have a list within a list. Much easier and more > flexible, too, I think. Somedays I like to dabble in the stuff I am > not yet trying. somedays not. > > Adrienne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 I agree with Janet, Vicki, Sue and CL about keeping the Yasko information on this list rather than forming a new one. I've been a member of this group for many years and have always selected which messages I want to read. No one has to read every message. This breakthrough in treating CFS/ME through genetic understanding and being able to build glutathione, eliminate pathogens and heavy metals through a program of supplements that are suited to the individual is the biggest news that has happened in this field in a long time. To deprive new members of the details by taking most of the discussion to another group seems to defy the purpose here, which is to learn about the experimental treatments that exist. Also, autismanswers.com is planning to create a section for adults on the program, and Sue mentioned that Dr. Yasko is coming out with a book about how CFS fits into her plan. So, we already have two groups to read on this subject. Every member can choose which messages to read and which threads to follow as well as which posts to answer. Janet s wrote: >I would prefer to keep it to this list. A person can usually tell from the subject line if its about Yasko, or any other topic. One can pick and choose which ones to open. > > > jill wrote: .... should we start a co-moderated Yasko group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Hi , You make some very good points. Michele > ... should we start a co-moderated Yasko group > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Cool...thanks for all the answers...seems like the majority want it to stay on here. I appreciate that and feel more comfortable about our posting here now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 > > Cool...thanks for all the answers...seems like the majority want it to > stay on here. I appreciate that and feel more comfortable about our > posting here now. > *** Hmm, the majority...of a list of 2,189 patients on a half day Saturday, with mostly the few Yasko patients weighing in, and only others who are interested in it? What happened to this: >>>>if we take a few days to discuss this and arrive at a solution that overall will benefit everybody.<<<<< *** Is it assumed that " everybody " else has already left? Anyway, I've been a member since 1999, plus other research lists around the world. I hope that the number of other areas considered " the biggest breakthroughs " , in CFS, and more coming, will receive the same amount of time discussing them. I am already addressing some of these pathways, and taking many of the supplements. I was excited because, I saw various breakthroughs as Synergistic, as opposed to Autism/Y being " the one, the cure " . I could not see that, of course, since we have been told it is not targeted to sudden onset, pathogen/toxin induced epidemic ME/CFS/CFIDS, which people are still being struck down with. Also, organ failure is pretty real and rather critical, which is what many patients have, and other protocols are addressing. This is the largest, I think only CFS treatment specific list, so I hope the desire for " everyone's benefit " will remain. ***Genetic testing and labs are popping up all over the place now, so maybe, possibly, that will help the costs come down...we can watch for that. Since this is a treatment-only list, could the Yasko posts at least remain treatment specific? Katrina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Hi, Jill. I agree with Adrienne. An informal agreement to use " Yasko " as part of ones heading could also be the sign for those who may choose to skip reading the posts on this topic to do so. If this is not sufficient, I think then complaints of domination are invalid. The Yasko testing and treatments discussion is new and complex, but nevertheless fits the guidlines of what can be discussed on this list. No one is forcing anyone to read or do anything here. It's easier to keep conversations to as few lists as possible at this point, IMO. complex " Adrienne G. " <duckblossm@...> wrote: > > Why need a new list? Why not just put some sort of agreed-upon marker in the subject line on all those posts that would be going to the new list? People who don't want to read those posts can just not open them. So then you have a list within a list. Much easier and more flexible, too, I think. Somedays I like to dabble in the stuff I am not yet trying. somedays not. > Adrienne > > ----- Original Message ----- > From: jill1313 The reason I'm bringing this up is because a few folks backchanneled > me on it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 I agree with and Adrienne, if it's clear from the subject heading that it's about Yasko people can skip it. Personally, I have difficulty reading, processing information etc and am averse to deterministic genetic theories. Yet the Yasko discusssions here have allowed me to understand (I think!) that Dr Yasko is only using the gentic information as a tool to help underdstand possible causes of Autism, CFS etc and to target interventions with greater accuracy. There are no guarantees or silver bullets with any treatment but I'm grateful to all those who have raised my awareness. >An informal agreement to use " Yasko " as part of ones heading could also be the sign for those who may choose to skip reading the posts on this topic to do so. It's easier to keep conversations to as few lists as possible at this point, IMO. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Well, I am not really into any particular treatment agenda... I am into objective examination of what may work... I am exhausted with people pushing a particular treatment avenue, as it can be downright dangerous for some, ineffective for many... I do think that Rich has made such significant contribution, that he would be sorely missed, and he contributes much beyond the Yasko subject matter... So, I can skip the Yasko messages, is not applicable. But, I would like to see other treatment protocols, discussed, in much more depth.. Amelia > I agree with and Adrienne, if it's clear from the subject heading > that it's about Yasko people can skip it. > > Personally, I have difficulty reading, processing information etc and > am averse to deterministic genetic theories. Yet the Yasko discusssions > here have allowed me to understand (I think!) that Dr Yasko is only > using the gentic information as a tool to help underdstand possible > causes of Autism, CFS etc and to target interventions with greater > accuracy. > > There are no guarantees or silver bullets with any treatment but I'm > grateful to all those who have raised my awareness. > > > > > > >An informal agreement to use " Yasko " as part of ones heading could > also be the sign for those who may choose to skip reading the posts on > this topic to do so. > > It's easier to keep conversations to as few lists as possible at this > point, IMO. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 Hi, I very well could have missed something, but I am not aware of people pushing a particular treatment avenue. I would just delete those messages, or skip them. Personally, I dan't submerge myself into this DD too much or life becomes too much of a bummer. I like to pretend I'm " well " as much as possible - even if it means watching something dumb on TV. Like Cleopatra, the Queen of denial. Michele G > > Well, I am not really into any particular treatment agenda... > > I am into objective examination of what may work... > > I am exhausted with people pushing a particular treatment avenue, as > it can be downright dangerous for some, ineffective for many... > > I do think that Rich has made such significant contribution, that he > would be sorely missed, and he contributes much beyond the Yasko > subject matter... > > So, I can skip the Yasko messages, is not applicable. > > But, I would like to see other treatment protocols, discussed, in > much more depth.. > > Amelia > > > I agree with and Adrienne, if it's clear from the subject > heading > > that it's about Yasko people can skip it. > > > > Personally, I have difficulty reading, processing information etc > and > > am averse to deterministic genetic theories. Yet the Yasko > discusssions > > here have allowed me to understand (I think!) that Dr Yasko is only > > using the gentic information as a tool to help underdstand possible > > causes of Autism, CFS etc and to target interventions with greater > > accuracy. > > > > There are no guarantees or silver bullets with any treatment but > I'm > > grateful to all those who have raised my awareness. > > > > > > > > > > > > >An informal agreement to use " Yasko " as part of ones heading could > > also be the sign for those who may choose to skip reading the posts > on > > this topic to do so. > > > > It's easier to keep conversations to as few lists as possible at > this > > point, IMO. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 I think the Yasko stuff belongs on its own list, with perhaps an occasional update here as to what is going on. People interested in Yasko can subscribe to both. I would do the testing if I could afford it. THose like me with cognitive impairment and very low energy even find it difficult to find non Yasko stuff in DIgest mode..... this in addition to my frequent plea for folks to trim their posts. I've deleted about the last 15 digests without even opening them. I've been a member since about 2000 mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 That sounds like a good idea, . Even in Digest Form, if one sees Yasko in the headline, one can scroll down with one's mouse. Maybe trying that will be a good win-win. > > > > Why need a new list? Why not just put some sort of agreed-upon marker in the subject line on all those posts that would be going to the new list? People who don't want to read those posts can just not open them. So then you have a list within a list. Much easier and more flexible, too, I think. Somedays I like to dabble in the stuff I am not yet trying. somedays not. > > Adrienne > > > > ----- Original Message ----- > > From: jill1313 > The reason I'm bringing this up is because a few folks backchanneled > > me on it. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 I've been on this list for about the same length of time as you. I stopped reading the list for over 6 months because it became too depressing to read about treatments I could not tolerate. I finally came back to one that seems promising to me. It seems like there is way more discussion about whether to " allow " discussion of this subject than of the subject itself. Due to this illness I'm as thick as a plank, but I don't get it! This is after years of endless discussions about whey, antibiotics, Cheney, heperin etc.If it is coded in the subject line it should be pretty easy to skip. Michele > > I think the Yasko stuff belongs on its own list, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 a point of clarification: Cheney says over 80% of his patients have the PFO hole in the heart, which he has recently begun looking for. I was there in April but he wasn't looking for it back then. I have the diastolic heart failure he's been looking for, but I'm not aware of any given percentage of his patients who are positive for that. It's not the same thing as the PFO, although there is probably some relation between the two. Helen > > Hi, Marilyn, > I would like to encourage you to think that where there's a will, there's a way. > I was all het up about getting the cardiovascular testing done, but it has taken me so long to get that together and now, voila, news comes that 90% of the people Cheney tests have the defect, so it begins to make sense to begin treating without testing. Most of that treatment is easy. > > Perhaps you have not grasped it, but I was pushing Rich, and so he came up with that list of questions he ask some folks which allow one to make inferences about the mutations and figure at least some of it out without testing. > And now there is that very helpful clue, (it needs sorting out to be sure), that we adults don't even need her whole program. And the DAN! people are being less precise and getting results anyhow! HAve hope! > > I am trying to remeber to clean up my posts. > Peace, > Adrienne > Re: Yasko List > > > I think the Yasko stuff belongs on its own list, with perhaps an occasional > update here as to what is going on. People interested in Yasko can subscribe > to both. I would do the testing if I could afford it. > > THose like me with cognitive impairment and very low energy even find it > difficult to find non Yasko stuff in DIgest mode..... this in addition to my > frequent plea for folks to trim their posts. > > I've deleted about the last 15 digests without even opening them. > > I've been a member since about 2000 > > mjh > " The Basil Book " > http://foxhillfarm.us/FireBasil/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 Yes, the over 90%, positive for the Cardiac Diastolic Dysfunction is from him, probably in the PFO paper that Carol S posted, and maybe in the announcement for his Sept 9th lecture. I think it is 99 out of 100 patients tested. He has a PFO percent also, pretty high...but that is from a hanful tested, since it was found in one patient and he knew to look for it. The basic immediate treatment for DD might be called " simple " ...if you don't mind having your feet up 24/7 plus more. But erratic blood flow of inadequate blood volume, and all the compensatory results are very serious, multi-systemic, damaging and complex to address. He will be addressing this Cardiac phenomenon in his 3 HR lecture. Katrina P.S. Dr. Cheney continues to address microbes,Brain abnormalities/injury, Immune System, DNA gene expression, viral induced RNase-L activity. Glutathione deficit, Peroxynitrite, oxidative stress, etc.etc.etc. > > > > Hi, Marilyn, > > I would like to encourage you to think that where there's a will, > there's a way. > > I was all het up about getting the cardiovascular testing done, but > it has taken me so long to get that together and now, voila, news > comes that 90% of the people Cheney tests have the defect, so it > begins to make sense to begin treating without testing. Most of that > treatment is easy. > > > > Perhaps you have not grasped it, but I was pushing Rich, and so he > came up with that list of questions he ask some folks which allow one > to make inferences about the mutations and figure at least some of it > out without testing. > > And now there is that very helpful clue, (it needs sorting out to > be sure), that we adults don't even need her whole program. And the > DAN! people are being less precise and getting results anyhow! HAve > hope! > > > > I am trying to remeber to clean up my posts. > > Peace, > > Adrienne > > Re: Yasko List > > > > > > I think the Yasko stuff belongs on its own list, with perhaps an > occasional > > update here as to what is going on. People interested in Yasko > can subscribe > > to both. I would do the testing if I could afford it. > > > > THose like me with cognitive impairment and very low energy even > find it > > difficult to find non Yasko stuff in DIgest mode..... this in > addition to my > > frequent plea for folks to trim their posts. > > > > I've deleted about the last 15 digests without even opening them. > > > > I've been a member since about 2000 > > > > mjh > > " The Basil Book " > > http://foxhillfarm.us/FireBasil/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 Adrienne: Popping in here, but I'm sure Katrina will reply too. My understanding of the heart problem is that something has weakened the mitochondria so the heart muscles are operating under an energy deficit, which worsens when the gravitational stress of being upright has to be dealt with. So Cheney told me to either recline or sit with my feet up 22 hours a day. My heart gets a whole lot worse on his machines when I'm tilted upright. Right now I am sitting at the computer with my feet on the edge of the seat and my knees bent up, reaching around then to type, and have done that for years. Looks weird as hell, but I was instinctively protecting my circulatory flow. Now I do it on purpose. Standing is to be avoided and one should move the legs, step forwards and back or to the side if caught standing in line or talking to someone, my personal nemesis when out in the world. Might look like you need to urinate, but if you have CFIDS, you probably do! Besides the pig cells, Cheney's top recommended treatments as of last April were B12, magnesium,(both injected) nexavir, and hawthorn. Number 5 was Enada NADH. Helen > > Katrina, > Thanks. I really have, apparently, only a superficial understanding of the treatment. Aside from the porcine cells, I thought it was a matter of taking supplements. What are you talking about 24/7 feet elevated? If I am not moving around, mine already pretty much are, anyway. Not absolutely, but almost. Please, could you give a summary of whatever else I may be missing. > I am quite clear that I have some level of heart involvement. Everytime I have been on an upswing, as now, increasing my activity led to chest pain or pressure or palpitations. In oct. when I returned from near sea-level to my regular altitude, I wound up a few days later in the emergency w. a diagnosis of angina. I know that is not the same as DD., but I do need to take care of my heart. > Adrienne > > Quote Link to comment Share on other sites More sharing options...
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