RE: sleep study - amytripiline - other suggestions for stage 3/4 sleep

[Guest guest]

Hi ,

I really can't help much there . . but I am going to have a sleep study done,

too.

It would be helpful for all of us who have had the Yasko genetic testing done

to put our testing results with our signature.

I will start doing that too, soon. Also . . . have you posted this question

on the Yasko forum, too?

Best wishes, Sue T

<maryellen1909@...> wrote:

I just had a sleep study done which showed no stage 3 or stage 4

sleep.

The doctor prescribed a low dose of amytipiline starting at 10 mg a day

working up to 30 mg a day.

I have the MAO++ SNP which means I break down serotonin slower than

normal.

Would amitrypiline make the situation worse ?

Also, what are some other suggestions I could try to increase my stage

3/4 sleep ?

[Guest guest]

Interesting. I also just had a sleep study that showed no stage 3 or

stage 4 sleep (and very little REM). My sleep doctor gave me Ambein

and a APAP ( Automatic CPAP - after looking over the sleep study, I'm

not sure why the CPAP, no apneas, only some hypnopneas). My alleged

CFS doc gave me Klonopin, though he hadn;t seen the sleep study at

that point (long story).

On 9/1/06, <maryellen1909@...> wrote:

> I just had a sleep study done which showed no stage 3 or stage 4 sleep.

> The doctor prescribed a low dose of amytipiline starting at 10 mg a day

> working up to 30 mg a day.

> I have the MAO++ SNP which means I break down serotonin slower than

> normal.

> Would amitrypiline make the situation worse ?

>

> Also, what are some other suggestions I could try to increase my stage

> 3/4 sleep ?

>

>

>

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

SAME-E before bedtime; and melatonin.

>

> I just had a sleep study done which showed no stage 3 or stage 4 sleep.

> The doctor prescribed a low dose of amytipiline starting at 10 mg a day

> working up to 30 mg a day.

> I have the MAO++ SNP which means I break down serotonin slower than

> normal.

> Would amitrypiline make the situation worse ?

>

> Also, what are some other suggestions I could try to increase my stage

> 3/4 sleep ?

>

>

>

[Guest guest]

If I use groups to read (the web) is it possible to make a

signature? I have a feeling it's not. How about we put our results in

a special file section? Maybe Ken would not making one for us. It

would be helpful. OTOH maybe he will want us to start a Yasko group

for this particular purpose (with a list of our results, our symptoms,

our protocols etc).

Anybody, any thoughts?

> I just had a sleep study done which showed no stage 3 or

stage 4 sleep.

> The doctor prescribed a low dose of amytipiline starting at 10 mg a day

> working up to 30 mg a day.

> I have the MAO++ SNP which means I break down serotonin slower than

> normal.

> Would amitrypiline make the situation worse ?

>

> Also, what are some other suggestions I could try to increase my stage

> 3/4 sleep ?

>

>

>

>

>

>

>

>

>

[Guest guest]

I like the idea of keeping it as simple as possible. It would be great if we

could figure out a way to just once list our genetics and that would show up on

every email we send.

Janet

jill1313 <jenbooks13@...> wrote:

If I use groups to read (the web) is it possible to make a

signature? I have a feeling it's not. How about we put our results in

a special file section? Maybe Ken would not making one for us. It

would be helpful. OTOH maybe he will want us to start a Yasko group

for this particular purpose (with a list of our results, our symptoms,

our protocols etc).

Anybody, any thoughts?

> I just had a sleep study done which showed no stage 3 or

stage 4 sleep.

> The doctor prescribed a low dose of amytipiline starting at 10 mg a day

> working up to 30 mg a day.

> I have the MAO++ SNP which means I break down serotonin slower than

> normal.

> Would amitrypiline make the situation worse ?

>

> Also, what are some other suggestions I could try to increase my stage

> 3/4 sleep ?

>

>

>

>

>

>

>

>

>

[Guest guest]

Wrong order.

SAM-e early in the day (before 3 pm). Melatonin before bedtime.

in Champaign IL

>

> SAME-E before bedtime; and melatonin.

>

>

[Guest guest]

Hi,

One thing we could do is put the genetic info in a word document and

cut and paste it when we post re a Yasko remark to the list, although

it would be cumbersome and time consuming. Going to the files section

would create the same problem.

Michele

> > I just had a sleep study done which showed no stage 3 or

> stage 4 sleep.

> > The doctor prescribed a low dose of amytipiline starting at 10 mg

a day

> > working up to 30 mg a day.

> > I have the MAO++ SNP which means I break down serotonin slower than

> > normal.

> > Would amitrypiline make the situation worse ?

> >

> > Also, what are some other suggestions I could try to increase my stage

> > 3/4 sleep ?

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi,

I also have the MAO++ SNP. I take enough stuff to put a horse to

sleep. Sleep meds and herbs, and of course need to add more and more

stuff as time goes on. Then I can't wake up. It's been a problem since

day one of this disease and other than the fatigue and brain fog, one

of the most debilitating symptoms.

Michele G

>

> I just had a sleep study done which showed no stage 3 or stage 4 sleep.

> The doctor prescribed a low dose of amytipiline starting at 10 mg a day

> working up to 30 mg a day.

> I have the MAO++ SNP which means I break down serotonin slower than

> normal.

> Would amitrypiline make the situation worse ?

>

> Also, what are some other suggestions I could try to increase my stage

> 3/4 sleep ?

>

>

>

[Guest guest]

I was told to take SAM-E before bedtime because of sleep problems.

I haven't begun to look at prices of supplements for Yasko. I'll need

SAM-E, intrinsic B, hydroxycolbalamin, bh4, folapro etc. I need methyl

donors but no methylB as I don't have the mutation that would screw up

my b12. I need yucca on my food and probably charcoal slurries

(ammonia). I can't deviate from a high protein diet but I'm going to

eat less meat as I notice that makes me 'acidic'. I feel less of ap

roblem with eggs etc. Funny that I am probably making toxic sulfur

products but I like sulfur foods.

> >

> > SAME-E before bedtime; and melatonin.

> >

> >

>

[Guest guest]

Maybe SAM-e is like B-12. Better for some in day for energy. Better for others

at night for sleep.

I seem to do fine with either at any time.

Also, about sulphur...I cannot take MSM or much tumeric, or as much garlic as in

the past. Eggs have been OK, but kind of wondering now. Some resistence to other

sulphur foods.

But fine with ImmunoPro, and SAM-e.

And I really need protein, and some meat. Don't know if they're hurting me, too.

Jill, prices vary quite widely on-line, as I have found from many tedious

searches.

Ken's pages showed some resources and we had another list for supplements

somewhere but I don't know where. That would be a great file for a Yasko list,

or this list. Do the Autism lists have anything like that?

Katrina

> > >

> > > SAME-E before bedtime; and melatonin.

> > >

> > >

> >

>

[Guest guest]

> Would amitrypiline make the situation worse ?

>

> Also, what are some other suggestions I could try to increase my stage

> 3/4 sleep ?

>

>

>

Are you familiar with the side effect of weight gain with

Amitriptyline? Even at 10mg you can expect big carbohydrate cravings.

And lots of people experience a sleep hangover that lasts well into

the day.

The antiseizure med Neurontin is supposed to help increase stage 4

sleep. I take 300mg at night. Some people don't react well to

neurontin but others find it very helpful.

Best,

[Guest guest]

Hi Sue T,

I have not posted it there yet but I'm getting some clues from the

archives eg. Sufficient GABA is needed.

BTW, did you read all of the old messages ? I'm working on that now

and learning tons but I wonder if I would be better off watching the

DVDs.

Re: sleep study - amytripiline - other

suggestions for stage 3/4 sleep

Hi ,

I really can't help much there . . but I am going to have a sleep study

done, too.

It would be helpful for all of us who have had the Yasko genetic testing

done to put our testing results with our signature.

I will start doing that too, soon. Also . . . have you posted this

question on the Yasko forum, too?

Best wishes, Sue T

removed]

[Guest guest]

I can get to sleep and sleep through the night but just don't get the

stage 3 or 4 sleep.

Now I'm wondering if the MAO++ is the root cause of this. Also

wondering why a drug that increases serotonin (elavil) was prescribed to

me for sleep ???

Re: sleep study - amytripiline - other

suggestions for stage 3/4 sleep

Hi,

I also have the MAO++ SNP. I take enough stuff to put a horse to

sleep. Sleep meds and herbs, and of course need to add more and more

stuff as time goes on. Then I can't wake up. It's been a problem since

day one of this disease and other than the fatigue and brain fog, one

of the most debilitating symptoms.

Michele G

>

> I just had a sleep study done which showed no stage 3 or stage 4

sleep.

> The doctor prescribed a low dose of amytipiline starting at 10 mg a

day

> working up to 30 mg a day.

> I have the MAO++ SNP which means I break down serotonin slower than

> normal.

> Would amitrypiline make the situation worse ?

>

> Also, what are some other suggestions I could try to increase my stage

> 3/4 sleep ?

>

>

>

[Guest guest]

The 2006 DVD's are very helpful, but I have to say...even so...one

probably has to study the book, a GAR, and the online site and even

ask questions. I say that as someone who routinely absorbs complex

information and this has been a tough learning curve for me. I'm still

on it in fact.

>

> Hi Sue T,

>

> I have not posted it there yet but I'm getting some clues from the

> archives eg. Sufficient GABA is needed.

>

>

>

> BTW, did you read all of the old messages ? I'm working on that now

> and learning tons but I wonder if I would be better off watching the

> DVDs.

>

>

>

>

>

>

>

> Re: sleep study - amytripiline - other

> suggestions for stage 3/4 sleep

>

>

>

> Hi ,

>

> I really can't help much there . . but I am going to have a sleep study

> done, too.

>

> It would be helpful for all of us who have had the Yasko genetic testing

> done to put our testing results with our signature.

>

> I will start doing that too, soon. Also . . . have you posted this

> question on the Yasko forum, too?

>

> Best wishes, Sue T

>

> removed]

>

>

>

>

>

>

[Guest guest]

Watch and read as much as you can handle . . . I am still learning everyday and

I have been at it constantly for 8 months, It is not a quick fix .

<maryellen1909@...> wrote: Hi Sue T,

I have not posted it there yet but I'm getting some clues from the

archives eg. Sufficient GABA is needed.

BTW, did you read all of the old messages ? I'm working on that now

and learning tons but I wonder if I would be better off watching the

DVDs.

Re: sleep study - amytripiline - other

suggestions for stage 3/4 sleep

Hi ,

I really can't help much there . . but I am going to have a sleep study

done, too.

It would be helpful for all of us who have had the Yasko genetic testing

done to put our testing results with our signature.

I will start doing that too, soon. Also . . . have you posted this

question on the Yasko forum, too?

Best wishes, Sue T

removed]

[Guest guest]

> wondering why a drug that increases serotonin (elavil) was

prescribed to me for sleep ???

Sorry I am slow in responding. The med Elavil is known to not only

have the side effect of making one sleepy. But it also increases the

stage 3 & 4 sleep.

in AZ

[Guest guest]

Unlike some antidepressants, elavil affects many different receptors.

I have read that at low doses, like which were recommended for you,

elavil mainly affects histamine receptors, which causes drowsiness.

For some people, however, that's helpful enough (plus it might also

have some effect on NMDA, which imight be why elavil helps pain).

If, however, you want drugs that have studies which show them to have

significant effects on stage 3/4 sleep, look into pregabalin/neurontin,

or xyrem.

>

> I just had a sleep study done which showed no stage 3 or stage 4

sleep.

> The doctor prescribed a low dose of amytipiline starting at 10 mg a

day

> working up to 30 mg a day.

> I have the MAO++ SNP which means I break down serotonin slower than

> normal.

> Would amitrypiline make the situation worse ?

>

> Also, what are some other suggestions I could try to increase my stage

> 3/4 sleep ?

>

>

>