Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 First of all I¡¦m very happy to have found this group. There are so many interesting people, news, articles, discussions, tips and opinions. However at the moment I¡¦m not able to get through all of this and by that I don¡¦t know what step to take next. Like many of us I don¡¦t have a good doctor. As a result of that I want to ask you for help. I¡¦m sure it is somewhat annoying to read individual symptoms and to give advice you already gave lots of times here. However I would really appreciate it if someone could tell me what she or he thinks about my symptoms, possible diagnoses and possible treatments. Right at the moment I have two things in mind, one is impedance cardiography the other is SNP Panel I. Especially to those who already did impedance cardiography or SNP I, what changed after you got the results? What were the first things you did or possible treatments? Do you feel better now? Do you think it was worth it? Do doctors recognize diastolic cardiomyopathy as an illness? Do they know that a lower cardiac output can lead to all the symptoms Cheney talks about? My data: Age: 22 Gender: male Weight: 120 pounds Height: 6,1 feet Symptoms: - fatigue (not housebound) - bad concentration/retentiveness/apprehension (I take Omega 3¡¦s and Tyrosine against it) - light/noise sensitivity, people are irritating to me (probably due to low threshold potentials. I take magnesium malate twice a day against it) - chronic sore throat, swollen eyes, huffed nose - low stomach acid, low digestive enzymes, Leaky Gut Syndrome „³ strong digestion problems (I take Enzymes, HCL Betaine, Glutamine) - food intolerances (especially against high glycemic index foods, milk, nuts and of course suger. I try to eat low carb. if I eat wrong foods I get strong atopic eczema. I have no problems with protein.) - low heat/cold resistance (heat is worse) - mercury has probably played a role in the development of CFS for me, that¡¦s why I let remove all of my 8 amalgam fillings by a specialist (magnesium was low, selenium also, homocystein was increased „³ I take whey protein, nac, glutamine and some molybdenum in order to detoxify) I take Whey protein and NAC in order to increase glutathione, moreover I take a couple of grams of calcium ascorbate and some Vitamin E every now and then, in addition to that I take NADH and some folic acid. I take melatonin only when I can¡¦t sleep. My cognitive impairment only seems to improve a little when I take fish oil but not always. The cognitive impairment is my biggest problem. I had to pause my studies and I¡¦m not able to resume them as long as this problem exists. It¡¦s really hard to describe but I think many of you know what I mean when I speak of cognitive impairment, processing speed, brain fog etc. Someone described it pretty good by saying it¡¦s like waking up of narcosis and getting stuck there. I have absolutely no pain at all. Two times I thought I had found the solution to my problems. The first time was when we had friends at our house and my mother pressed some fresh orange juice. I drank about 5 glasses because it tasted so good. In this night I could sleep well, my nose was not blocked, my eyes were not swollen in the morning and I felt so good. My brain was working much better and I was sure that if I could keep this process up I would get healthy again in some months. I drank lots of orange juice again but on day 2 or 3 there was absolutely no reaction, eyes were swollen (probably due to atopic eczema and MCS, I have itching eyes all the time, no matter in which house I sleep, it is worse in some rooms but it certainly has to do with food intolerances, it gets worse if I eat wrong foods) again and I felt as bad as always. I took some antihistaminics but they were of no use. The second time was 2 days after I got the rest of my amalgam tooth fillings removed. I bought some Whey protein, Vitamin C and E, Coenzyme Q10. On day 2 I felt even better as I did on the first time. I had so much energy I even was windsurfing for 2 hours. I was so optimistic to get healthy again. My brain did so well, for the first time in some years I was able to feel in what moods people were and have great conversations with them. I knew what they wanted to talk about and I had no problem adapting to it. I could write important letters for university. I had my normal life back. It was really great. But again this effect lasted about 2 days. I could not reproduce it. Like a car with no fuel. You buy some fuel, drive 1-2 days and maybe because you have no cooling water the car overheats and you are there where you started also fuel is not more the problem. I¡¦m looking forward to reading your comments. Greets Quote Link to comment Share on other sites More sharing options...
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