Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 > > Hi there, > I know about several different anti-viral protocols but curious if > there are new ones since I was on the list years ago. I have tried > Coconut oil, Olive Leaf, Apple Cider Vinegar, Elderberry, Olive Oil > with Lemon, Garlic with some success but was curious if there was > anything new in this arena. Needing something very powerful. > > Currently on acyclovir and it helps as long as I have no physical > issues. As soon as I don't sleep well, the viral symptoms return. > Doc & I have continued to up the dose - currently at 1600mg per day. > ///What are the " viral symptoms " ...swollen tender glands... Have you ever had viral testing or redlabsusa testing? there is a link to paper how DeMeirleir puts people in 3 groups and i think that is a rationale grouping. i'll have to find the link if you haven't; also i was surprised to see the high (20%) involvement in one group with HHV6a (i don't think it was HHV7) and this was CNS involvement i believe. the sicker people (closer to bedridden) would probably benefit from valcyte < " something very powerful " -doesn't get more potent than that> (valgancyclovir) which penetrates the CNS (whereas valtrex/famvir etc. won't). the study on immunesupport from stanford lasted 6 mo's and same dose as for CMV retinitis, 450 mg 2x/d. cheapest source, canadadrugs.com $1400 from what i could find. if you could show a + viral test, you might try the pt assistance program. hope this helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 Viral Symptoms are tender glands, sore throat, flu-like symptoms, brain fog, elevated temperature, bone-crushing fatigue, you know, the usual! I just found the link you mentioned below: http://www.immunesupport.com/library/showarticle.cfm? id=7245 & T=CFIDS_FM. I think I fit into Group 1. When I got sick in 1999 - the Doc I saw suggested working on the immune system rather than spending money on expensive tests. I bought into that - (big mistake). Recently, I had limited testing for several virus and tested positive for all that I was tested for including HHV6a and CMV. (Seems I have been collecting viruses over the years). Thank you for the viral med info. I will research and discuss with Doc next week. I am on County Health Insurance but Dr.'s are limited. Trying to get referral to FFC or Dr. Salvato that might be open to some of these tests. Thanks for your help. Marti Z. > > > > Currently on acyclovir and it helps as long as I have no physical > > issues. As soon as I don't sleep well, the viral symptoms return. > > Doc & I have continued to up the dose - currently at 1600mg per day. > > > ///What are the " viral symptoms " ...swollen tender glands... > Have you ever had viral testing or redlabsusa testing? > there is a link to paper how DeMeirleir puts people in 3 groups and i > think that is a rationale grouping. > i'll have to find the link if you haven't; also i was surprised to > see the high (20%) involvement in one group with HHV6a (i don't think > it was HHV7) and this was CNS involvement i believe. the sicker > people (closer to bedridden) would probably benefit from valcyte > < " something very powerful " -doesn't get more potent than that> > (valgancyclovir) which penetrates the CNS (whereas valtrex/famvir > etc. won't). the study on immunesupport from stanford lasted 6 mo's > and same dose as for CMV retinitis, 450 mg 2x/d. > cheapest source, canadadrugs.com $1400 from what i could find. > if you could show a + viral test, you might try the pt assistance > program. hope this helps. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Marti, Do you tend to get every virus that comes along such as colds and flu? I got sick in 1995 with swollen glands, tonsils, low grade fever but my diagnosis after a few months was mycoplasma incognitus and I responded to pretty much any antibiotic they gave me. (I learned 7 years later I also had borrelia or Lyme disease, but by that time I had taken enough antibiotics that I wasn't terribly sick.) Initially I had elevated EBV titres, but they returned to normal as soon as I was put on penicillin for the throat inflammation. From then on I had the cfs symptoms but literally never got any flu or colds for several years. The first cold I got was a year when I was pretty much back to normal. Understand that there seem to be two extremes in cfs - the ones like me who get nothing else and the ones who get terribly sick with everything. So I am wondering if your basic problem is viruses or bacterias? I am also wondering if those with mainly viral problems also get colds and flu? a > > Viral Symptoms are tender glands, sore throat, flu-like symptoms, > brain fog, elevated temperature, bone-crushing fatigue, you know, the > usual! > > I just found the link you mentioned below: > http://www.immunesupport.com/library/showarticle.cfm? > id=7245 & T=CFIDS_FM. I think I fit into Group 1. > > When I got sick in 1999 - the Doc I saw suggested working on the > immune system rather than spending money on expensive tests. I > bought into that - (big mistake). Recently, I had limited testing > for several virus and tested positive for all that I was tested for > including HHV6a and CMV. (Seems I have been collecting viruses over > the years). > > Thank you for the viral med info. I will research and discuss with > Doc next week. I am on County Health Insurance but Dr.'s are > limited. Trying to get referral to FFC or Dr. Salvato that might be > open to some of these tests. > > Thanks for your help. > Marti Z. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Marti- I strongly caution against intravenous hydrogen peroxide (H2O2). H2O2 is a very strong oxidizer, strong enough that it's used as bleach and rocket fuel. Because it's such a strong oxidizer, it's also an effective antiseptic. Yes, it will kill bacteria and viruses, but it might kill you too. Seriously, several people have died following IV hydrogen peroxide, at least one of which was by multiple organ failure. When H2O2 reacts with molecules in the body, it causes oxidative stress, something PWCs need less of, not more. One of the reasons we have vitamin C in our blood and vitamin E in our cell membranes is to minimize the oxidative stress caused by H2O2. Because H2O2 is so toxic, your body has an enzyme called catalase that's specifically designed to destroy it. Chronic oxidative stress is implicated in a huge number of modern diseases, like rheumatoid arthritis, Alzheimer’s, Parkinson’s, heart disease, asthma, cancer, and of course, CFS. Intravenous H2O2 is likely to hurt you much more than it hurts any viruses. I’m sorry to be such a downer, but I really don’t think this is safe. There are other antiviral therapies that are much more likely to produce results and much less likely to kill you. -Steve W. > > Hi there, > I know about several different anti-viral protocols but curious if > there are new ones since I was on the list years ago. I have tried > Coconut oil, Olive Leaf, Apple Cider Vinegar, Elderberry, Olive Oil > with Lemon, Garlic with some success but was curious if there was > anything new in this arena. Needing something very powerful. > > Currently on acyclovir and it helps as long as I have no physical > issues. As soon as I don't sleep well, the viral symptoms return. > Doc & I have continued to up the dose - currently at 1600mg per day. > > CURIOUS: Has anyone tried Hydrogen peroxide in any form such as > IV's. or otherwise for control or elimination of any type of > pathogens including viruses? > > Living north of Houston very near to sea level - still sick. > > Thanks everyone, > Marti Z. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Hi Marti. I'm using mjh's officinalis routine to beat down any herpes viruses I may have (haven't been tested). I thought I remembered reading that this was effective against CMV, too, but I may be mistaken on that. > > Hi there, > I know about several different anti-viral protocols but curious if > there are new ones since I was on the list years ago. I have tried > Coconut oil, Olive Leaf, Apple Cider Vinegar, Elderberry, Olive Oil > with Lemon, Garlic with some success but was curious if there was > anything new in this arena. Needing something very powerful. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Have you tried luteolin? Gail marti_zavala wrote: > > Hi there, > I know about several different anti-viral protocols but curious if > there are new ones since I was on the list years ago. I have tried > Coconut oil, Olive Leaf, Apple Cider Vinegar, Elderberry, Olive Oil > with Lemon, Garlic with some success but was curious if there was > anything new in this arena. Needing something very powerful. > > Currently on acyclovir and it helps as long as I have no physical > issues. As soon as I don't sleep well, the viral symptoms return. > Doc & I have continued to up the dose - currently at 1600mg per day. > > CURIOUS: Has anyone tried Hydrogen peroxide in any form such as > IV's. or otherwise for control or elimination of any type of > pathogens including viruses? > > ALSO: Are there any Dr. Salvato patients on the list? > > I would like to get referred to a more knowledgeable CFIDS Doc who > will be open to helping me with the Yasko protocol and documentation > for disability. > > Living north of Houston very near to sea level - still sick. > > Thanks everyone, > Marti Z. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Marti You do not mention which viruses you are dealing with. McCandless, MD, has good success with autistic children dealing with their viral issues using Olive Leaf Extract (a particular brand) and Virastop and Luaricidin and a couple of others. I was successful in bringing EB and CMV under control with officinalis tincture. Lots of time people on natural things do not have the right type, the correct dose and/or take it long enough. mjh " The Basil Book " _http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/) Posted by: " marti_zavala " _marti_zavala@... _ (mailto:marti_zavala@...?Subject=Re: Looking%20for%20anti-viral%20aid) _marti_zavala _ (marti_zavala) Thu Aug 24, 2006 9:43 pm (PST) Hi there, I know about several different anti-viral protocols but curious if there are new ones since I was on the list years ago. I have tried Coconut oil, Olive Leaf, Apple Cider Vinegar, Elderberry, Olive Oil with Lemon, Garlic with some success but was curious if there was anything new in this arena. Needing something very powerful. Currently on acyclovir and it helps as long as I have no physical issues. As soon as I don't sleep well, the viral symptoms return. Doc & I have continued to up the dose - currently at 1600mg per day. CURIOUS: Has anyone tried Hydrogen peroxide in any form such as IV's. or otherwise for control or elimination of any type of pathogens including viruses? ALSO: Are there any Dr. Salvato patients on the list? I would like to get referred to a more knowledgeable CFIDS Doc who will be open to helping me with the Yasko protocol and documentation for disability. Living north of Houston very near to sea level - still sick. Thanks everyone, Marti Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 , are you making your own tea as mjh did? > > > > Hi there, > > I know about several different anti-viral protocols but curious if > > there are new ones since I was on the list years ago. I have tried > > Coconut oil, Olive Leaf, Apple Cider Vinegar, Elderberry, Olive Oil > > with Lemon, Garlic with some success but was curious if there was > > anything new in this arena. Needing something very powerful. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Anything wrong with valtrex/ I'm tempted to try it even tho I don't seem to have viral issues. But there are such good responses in autistic kids, especially ones who reacted badly to the MMR vaccine, or seemingly so. However, they do manifest the virus flaring up, and getting rashes, fevers etc, usually while their behaviors improve. Since this is all anecdotal one can't say much but I've been reading about it. Even kids who don't have elevated viral titers seem to respond. However, they seem to get fungal flareups sometimes at first on the antivirals. One wonders what's happening. Are viruses and funguses together suppressing immunity? Are viruses keeping fungi in check? Is valtrex repairing methylation through reducing adenosine, and are metals dumping, causing temporary immunosuppression as they leave and flaring up fungus? There is a lot to examine. > > > > Hi there, > > I know about several different anti-viral protocols but curious if > > there are new ones since I was on the list years ago. I have tried > > Coconut oil, Olive Leaf, Apple Cider Vinegar, Elderberry, Olive Oil > > with Lemon, Garlic with some success but was curious if there was > > anything new in this arena. Needing something very powerful. > > > > Currently on acyclovir and it helps as long as I have no physical > > issues. As soon as I don't sleep well, the viral symptoms return. > > Doc & I have continued to up the dose - currently at 1600mg per day. > > > > CURIOUS: Has anyone tried Hydrogen peroxide in any form such as > > IV's. or otherwise for control or elimination of any type of > > pathogens including viruses? > > > > ALSO: Are there any Dr. Salvato patients on the list? > > > > I would like to get referred to a more knowledgeable CFIDS Doc who > > will be open to helping me with the Yasko protocol and documentation > > for disability. > > > > Living north of Houston very near to sea level - still sick. > > > > Thanks everyone, > > Marti Z. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Jill, I have had no problems with Valtrex. THis includes very high doses when the most wretchedly ill, and low, shorter dosing since then. I feel it has addressed both viral activity itself, and a kick-start of some sort, enabling other things to work, and me to feel better. When tested, I did have high antibodies to CMV, EBV, HHV6. At the high doses, I was very uneasy about the dyes and fillers, but had no obvious reaction. I think a person could wash the blue dye off of the pill, if hyper sensitive. About testing negative for viruses, don't forget that we (nor autistic children) have access to all viral tests...and/or they have not all been discovered. I haven't researched all of this lately, so can't comment on your interesting questions. Katrina > > > > > > Hi there, > > > I know about several different anti-viral protocols but curious if > > > there are new ones since I was on the list years ago. I have tried > > > Coconut oil, Olive Leaf, Apple Cider Vinegar, Elderberry, Olive Oil > > > with Lemon, Garlic with some success but was curious if there was > > > anything new in this arena. Needing something very powerful. > > > > > > Currently on acyclovir and it helps as long as I have no physical > > > issues. As soon as I don't sleep well, the viral symptoms return. > > > Doc & I have continued to up the dose - currently at 1600mg per day. > > > > > > CURIOUS: Has anyone tried Hydrogen peroxide in any form such as > > > IV's. or otherwise for control or elimination of any type of > > > pathogens including viruses? > > > > > > ALSO: Are there any Dr. Salvato patients on the list? > > > > > > I would like to get referred to a more knowledgeable CFIDS Doc who > > > will be open to helping me with the Yasko protocol and documentation > > > for disability. > > > > > > Living north of Houston very near to sea level - still sick. > > > > > > Thanks everyone, > > > Marti Z. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Hi, Marti. " marti_zavala " <marti_zavala@...> wrote: > > Hi there, > I know about several different anti-viral protocols but curious if > there are new ones since I was on the list years ago. I have tried > Coconut oil, Olive Leaf, Apple Cider Vinegar, Elderberry, Olive Oil > with Lemon, Garlic with some success but was curious if there was > anything new in this arena. Needing something very powerful. ***Yes. New at the table is nondenatured whey in the form of products like RenewPro and The True Whey, not to be confused with the inferior undnatured whey tried in PWCs since the late 90s with Dr Cheney. ***Nondenatured whey tops by far in effectiveness the drugs valtrex, acyclovir, gancyclovir and others. From personal experience, it as well tops Ampligen in keeping fluish symptoms down and RnaseL levels normalized. ***Also, a product called Lipoceutical Glutathione(LG) was tried against HHV6 by the HHV6 Foundation connected to Dr Ablashi who discovered this virus and LG was effective at killing HHV6 better than 70 agents they had tested including very potent but very toxic, Famvir. Currently on acyclovir and it helps as long as I have no physical > issues. As soon as I don't sleep well, the viral symptoms return. > Doc & I have continued to up the dose - currently at 1600mg per day. > > CURIOUS: Has anyone tried Hydrogen peroxide in any form such as > IV's. or otherwise for control or elimination of any type of > pathogens including viruses? ***Hydrogen peroxide therapy turns out is really quite a horrible choice if you have CFS. Low glutathione often found in CFS causes a rise of hydrogen peroxide in our bodies and this in turn actually causes problems with our thyroid function and probably other problems as well. ***Better to treat the underlying root problem that leads to low glutathione and strengthen your immunity to kill or suppress pathogens from that stand point. > ALSO: Are there any Dr. Salvato patients on the list? > > I would like to get referred to a more knowledgeable CFIDS Doc who > will be open to helping me with the Yasko protocol and documentation > for disability. > > Living north of Houston very near to sea level - still sick. > > Thanks everyone, > Marti Z. *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Hi , I am very confused as to why you keep posting statements like this: >>>>not to be confused with the inferior undnatured whey tried in PWCs since the late 90s with Dr Cheney.<<<<< Dr. Cheney began trials of Immunopro in 1999 and has been using it ever since. It was from his articles that I learned about Glutathione, which he had been studying/treating for several years, and because of his trials of Immunopro that I began using it in 1999. He first tried Immunoplex? and Immunocal, with mixed results. When he heard of Immunopro (I think it was brand new) and communicated with it's creator, he began trials with it. We were able to follow his and patients' results on this and other lists, because they were kind enough to report weekly, if not daily on all 3 products. This gave us a chance to fully evaluate it and see the exact results and dosing of others, before making a decision about using it. AS you know, RenewPro is made by the same company...WellWisdom. I think it is the same ?, except that is is naturally sweetened, easier to mix, and less expensive (don't know why). WHen I saw Dr. Cheney in April 05, he did tell me to continue on ImmunoPro, which I have. I'll post an article from WellWisdom's website that's taken from an interview with Dr. Cheney right before he began ImmunoPro trials. Some of the 1st patients' reports on IP are in this lists' archives from 1999. I think Dr. Cheney's articles on Glutathione and the 3 trials are on the DFW website. Since there are always new people to the scene, it certainly is brand new to them, and RenewPro is a new addition. I would be interested if anyone who's been on ImmunoPro for a long period and switched to RenewPro has seen any difference. I don't have any problem with IP taste, or mixing, once I figured it out. I use a small plastic mixer that I purchased at Walgreen's for about $4. Before that, I mixed it in a jar, but was not always strong enough to do it. I'm also taking Lipoceutical Glutathione, which I think I first heard about from you, which sounded very exciting. It was prescribed to me by Dr. Cheney in April 06. BW, Katrina > > > > Hi there, > > I know about several different anti-viral protocols but curious if > > there are new ones since I was on the list years ago. I have tried > > Coconut oil, Olive Leaf, Apple Cider Vinegar, Elderberry, Olive Oil > > with Lemon, Garlic with some success but was curious if there was > > anything new in this arena. Needing something very powerful. > > > > ***Yes. New at the table is nondenatured whey in the form of products like RenewPro and The True Whey, not to be confused with the inferior undnatured whey tried in PWCs since the late 90s with Dr Cheney. > > > ***Nondenatured whey tops by far in effectiveness the drugs valtrex, acyclovir, gancyclovir and others. From personal experience, it as well tops Ampligen in keeping fluish symptoms down and RnaseL levels normalized. > > > > ***Also, a product called Lipoceutical Glutathione(LG) was tried against HHV6 by the HHV6 Foundation connected to Dr Ablashi who discovered this virus and LG was effective at killing HHV6 better than 70 agents they had tested including very potent but very toxic, Famvir. > > > > Currently on acyclovir and it helps as long as I have no physical > > issues. As soon as I don't sleep well, the viral symptoms return. > > Doc & I have continued to up the dose - currently at 1600mg per day. > > > > CURIOUS: Has anyone tried Hydrogen peroxide in any form such as > > IV's. or otherwise for control or elimination of any type of > > pathogens including viruses? > > > > ***Hydrogen peroxide therapy turns out is really quite a horrible choice if you have CFS. Low glutathione often found in CFS causes a rise of hydrogen peroxide in our bodies and this in turn actually causes problems with our thyroid function and probably other problems as well. > > > > ***Better to treat the underlying root problem that leads to low glutathione and strengthen your immunity to kill or suppress pathogens from that stand point. > > > > > > ALSO: Are there any Dr. Salvato patients on the list? > > > > I would like to get referred to a more knowledgeable CFIDS Doc who > > will be open to helping me with the Yasko protocol and documentation > > for disability. > > > > Living north of Houston very near to sea level - still sick. > > > > Thanks everyone, > > Marti Z. > > > > *** > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 >>>>>Understand that there seem to be two extremes in cfs - the ones like me who get nothing else and the ones who get terribly sick with everything. >snip< I am also wondering if those with mainly viral problems also get colds and flu?<<<<< a, My first sudden onset in 1985 and further plunge in 90 was extreme viral type, with mutiple infections, and almost zero response to antibiotics. I began IM Gamma Globulin in 91, and for many years was in the category of getting nothing " normal " ...flu, colds. I lost the GG a few years ago, and went to hell in a handbasket. I went backwards with all symptoms, and also catching everything in pretty severe forms...but I think I had begun catching things somewhat before that.(losing GG). In those days, I responded pretty well to anti-viral Chinese and other herbs. Now, I catch things, herbs or and ABX help some, but not with the most severe. My Dr. is getting worried about this and that there are many I cannot tolerate. So, I'm trying several anti-viral approaches. One year I knocked out a flu in 2 days with Amantadine. 2 Years ago I took that during flu season, and did not get sick. Also Modulating Immune System itself. I had good results a few years ago with Moducare...I really felt better. And there is also Immunovir, among others. I think my patterns are explained by Dr. Cheney's 3 phases (on DFW website), + what I have taken,but I don't remember what all he said about it in 2005. TC, Katrina > > Marti, > Do you tend to get every virus that comes along such as colds and flu? > > I got sick in 1995 with swollen glands, tonsils, low grade fever but > my diagnosis after a few months was mycoplasma incognitus and I > responded to pretty much any antibiotic they gave me. (I learned 7 > years later I also had borrelia or Lyme disease, but by that time I > had taken enough antibiotics that I wasn't terribly sick.) Initially > I had elevated EBV titres, but they returned to normal as soon as I > was put on penicillin for the throat inflammation. From then on I had > the cfs symptoms but literally never got any flu or colds for several > years. The first cold I got was a year when I was pretty much back to > normal. > > Understand that there seem to be two extremes in cfs - the ones like > me who get nothing else and the ones who get terribly sick with > everything. > > So I am wondering if your basic problem is viruses or bacterias? I am > also wondering if those with mainly viral problems also get colds and > flu? > > a > > > > > > Viral Symptoms are tender glands, sore throat, flu-like symptoms, > > brain fog, elevated temperature, bone-crushing fatigue, you know, > the > > usual! > > > > I just found the link you mentioned below: > > http://www.immunesupport.com/library/showarticle.cfm? > > id=7245 & T=CFIDS_FM. I think I fit into Group 1. > > > > When I got sick in 1999 - the Doc I saw suggested working on the > > immune system rather than spending money on expensive tests. I > > bought into that - (big mistake). Recently, I had limited testing > > for several virus and tested positive for all that I was tested for > > including HHV6a and CMV. (Seems I have been collecting viruses > over > > the years). > > > > Thank you for the viral med info. I will research and discuss with > > Doc next week. I am on County Health Insurance but Dr.'s are > > limited. Trying to get referral to FFC or Dr. Salvato that might > be > > open to some of these tests. > > > > Thanks for your help. > > Marti Z. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Still looking for evidence that anything is effective against sackie and enteroviruses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Hi Marti, I just remembered my experience with Amantadine, an anti-viral that used to be a Parkinson's drug. THe last time I looked, it was actually mentioned, with a couple of others, on the CDC website as a flu prophyalactic. It also was 1st thought to be a drug good for the Bird flu?, but I'm not sure about now. The strain of flu it is supposed to be for (A?) was going around a few years ago. I took Amantadine and it knocked it out or down in 2 days. Then I took it prophylactically a couple of years ago, and I did not get the flu. (I did the year before and after). The problem was it seemed to also make me weaker...not good becasue I was already weak. Maybe kind of spacy too. It felt like a Blood Pressure thing, which I think is a side effect. For this reason, I began melting gel tablet in water, then drinking half. Before this experiment I had seen a PWC post who had taken it for a couple of years. Her *Neurologist* actually wanted her to be on it regularly. It was listening to her. and lookin g it up, that made me decide to take it as I did. It's hard to tell how I'd decide now...it was effective...but weakening. I'm taking several other anti-viral precautions now, which have been mentioned here. I'd expected my Doctor to balk or the supply to be low, but neither was the case, at that time. I think Selenium is important too. Katrina > > Viral Symptoms are tender glands, sore throat, flu-like symptoms, > brain fog, elevated temperature, bone-crushing fatigue, you know, the > usual! > > I just found the link you mentioned below: > http://www.immunesupport.com/library/showarticle.cfm? > id=7245 & T=CFIDS_FM. I think I fit into Group 1. > > When I got sick in 1999 - the Doc I saw suggested working on the > immune system rather than spending money on expensive tests. I > bought into that - (big mistake). Recently, I had limited testing > for several virus and tested positive for all that I was tested for > including HHV6a and CMV. (Seems I have been collecting viruses over > the years). > > Thank you for the viral med info. I will research and discuss with > Doc next week. I am on County Health Insurance but Dr.'s are > limited. Trying to get referral to FFC or Dr. Salvato that might be > open to some of these tests. > > Thanks for your help. > Marti Z. > > > > > > > > > > Currently on acyclovir and it helps as long as I have no physical > > > issues. As soon as I don't sleep well, the viral symptoms > return. > > > Doc & I have continued to up the dose - currently at 1600mg per > day. > > > > > ///What are the " viral symptoms " ...swollen tender glands... > > Have you ever had viral testing or redlabsusa testing? > > there is a link to paper how DeMeirleir puts people in 3 groups and > i > > think that is a rationale grouping. > > i'll have to find the link if you haven't; also i was surprised to > > see the high (20%) involvement in one group with HHV6a (i don't > think > > it was HHV7) and this was CNS involvement i believe. the sicker > > people (closer to bedridden) would probably benefit from valcyte > > < " something very powerful " -doesn't get more potent than that> > > (valgancyclovir) which penetrates the CNS (whereas valtrex/famvir > > etc. won't). the study on immunesupport from stanford lasted 6 > mo's > > and same dose as for CMV retinitis, 450 mg 2x/d. > > cheapest source, canadadrugs.com $1400 from what i could find. > > if you could show a + viral test, you might try the pt assistance > > program. hope this helps. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 You can contact SciClone Pharmaceuticals and order Zadaxin from Panama if you can get your doctor to write a prescription. It is an injected SYNTHETIC thymus hormone that can be helpful for patients with HCV and HIV. However, if your main problem is a bacteria, not a virus, it will not help you. It is also extremely expensive. I think the main thing you have to determine is if the viruses are a side issue with some intracellular bacteria or bacterias as your main cause. a Carnes > > Still looking for evidence that anything is effective against > sackie and enteroviruses. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Wow, Katrina, you and I could be classic examples of the two types - never get a virus (me) and get a bunch of them (you). (I have never felt Cheney's three stages exactly make sense, or maybe I just find that it is not a given that everyone progresses to stage three. Perhaps his three stages are worst case scenarios, as I know a lot of us who have gotten much better.) In any case, I wonder how Zadaxin would do for a case like yours? It can be purchased and shipped to the US from Panama. Trouble is it costs about $2,000 for six months. Given your good response to antiviral drugs I think it would be worth a try. You can call SciClone Pharmaceuticals and talk with them. Also, you have to have a US prescription. a Carnes > > > >>>>>Understand that there seem to be two extremes in cfs - the ones like me who get nothing else and the ones who get terribly sick with everything. > > >snip< > > I am also wondering if those with mainly viral problems also get colds and > flu?<<<<< > > a, > > My first sudden onset in 1985 and further plunge in 90 was extreme viral type, with mutiple infections, and almost zero response to antibiotics. > I began IM Gamma Globulin in 91, and for many years was in the category of getting nothing " normal " ...flu, colds. > > I lost the GG a few years ago, and went to hell in a handbasket. I went backwards with all symptoms, and also catching everything in pretty severe forms...but I think I had begun catching things somewhat before that.(losing GG). In those days, I responded pretty well to anti-viral Chinese and other herbs. > > Now, I catch things, herbs or and ABX help some, but not with the most severe. My Dr. is getting worried about this and that there are many I cannot tolerate. So, I'm trying several anti-viral approaches. > > One year I knocked out a flu in 2 days with Amantadine. 2 Years ago I took that during flu season, and did not get sick. > > Also Modulating Immune System itself. I had good results a few years ago with Moducare...I really felt better. And there is also Immunovir, among others. > > I think my patterns are explained by Dr. Cheney's 3 phases (on DFW website), + what I have taken,but I don't remember what all he said about it in 2005. > > TC, > Katrina > > > > > > > Marti, > > Do you tend to get every virus that comes along such as colds and flu? > > > > I got sick in 1995 with swollen glands, tonsils, low grade fever but > > my diagnosis after a few months was mycoplasma incognitus and I > > responded to pretty much any antibiotic they gave me. (I learned 7 > > years later I also had borrelia or Lyme disease, but by that time I > > had taken enough antibiotics that I wasn't terribly sick.) Initially > > I had elevated EBV titres, but they returned to normal as soon as I > > was put on penicillin for the throat inflammation. From then on I had > > the cfs symptoms but literally never got any flu or colds for several > > years. The first cold I got was a year when I was pretty much back to > > normal. > > > > Understand that there seem to be two extremes in cfs - the ones like > > me who get nothing else and the ones who get terribly sick with > > everything. > > > > So I am wondering if your basic problem is viruses or bacterias? I am > > also wondering if those with mainly viral problems also get colds and > > flu? > > > > a > > > > > > > > > > Viral Symptoms are tender glands, sore throat, flu-like symptoms, > > > brain fog, elevated temperature, bone-crushing fatigue, you know, > > the > > > usual! > > > > > > I just found the link you mentioned below: > > > http://www.immunesupport.com/library/showarticle.cfm? > > > id=7245 & T=CFIDS_FM. I think I fit into Group 1. > > > > > > When I got sick in 1999 - the Doc I saw suggested working on the > > > immune system rather than spending money on expensive tests. I > > > bought into that - (big mistake). Recently, I had limited testing > > > for several virus and tested positive for all that I was tested for > > > including HHV6a and CMV. (Seems I have been collecting viruses > > over > > > the years). > > > > > > Thank you for the viral med info. I will research and discuss with > > > Doc next week. I am on County Health Insurance but Dr.'s are > > > limited. Trying to get referral to FFC or Dr. Salvato that might > > be > > > open to some of these tests. > > > > > > Thanks for your help. > > > Marti Z. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Hi Jill. No, it's tincture. 30-40 drops in an inch or two of warm water, 3-4 times per day, to start. Just plop in the warm water, swish it around to mix it in the water, then drink it down. Gaia brand, officinalis (front of label says " Lemon Balm " ). Make sure you get the straight stuff, not the combo forms. Read the fine print. I think the cost is about $9 when bought at a local health food store. Lasts for 10-14 days. Gaia has an online catalog so you can scout this out. I don't have the link, off the top of my head now, though. Check with mjh. She grew and grows her own and brews from that. > > > > Hi Marti. I'm using mjh's officinalis routine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Hey a, In some ways that's true. But then I did have those number of years where I would have said I was in the category of *not* catching things. Very very ill, even still bedridden, but not with whatever was going around. I'm not sure about the 3 phases either, but he said you can have them overlapping or back and forth or something. I related to the 2nd one because I was not getting infections, but was severely ill. ANd the 3rd one, because if I remained very protective, and in a " box " of limiting exertion, toxins,I did not feel too bad. He described just that sort of state. I kind of messed that up tho. I felt so safe, I began having people over again, closer relationships, a few trips to family across country.(funeral,wedding,reunion,etc.) Since I had survived 10+ years of CFIDS, much of it bedridden, plus a deadly cancer, and then got on my feet with Florinef and other things...AND sitting here with people around was just as draining as being out...AND I wanted to do things while they and I were still alive...I got really driven to push, push, push, then crash. In 2000?, I had another 6 months where I was vertical about one hour a day, total. Sometimes I could barely take a breath or move a muscle, and everyone thought I was going to die. Another shorter time like that, and a night in the hospital in 2002. Later things were harder $$ and survival wise, and in 2005, I had distanced from everyone, because I really did feel like I was dying, yet not bedridden. That's when a miracle happened and Dr. Cheney came back. I'd gotten on the waiting list, and my sweet Uncle sent me to him. Except for just getting my diagnosis in 90-91, that's the first time I ever saw a CFS Specialist, in 21 years! (Except for all of the ones I talked to at Research Conference, and a couple by phone or email). I knew that's who I would see from following his research and patients over the years. I spent 3 days with him and tests, and he practically told me what I was experiencing before I finished telling him. He also identified about 18 areas to work on, said I was a " sinking ship " and could die. This only somewhat scared me. because I already knew it. He said I was one of his patients who has Diastolic Dysfunction and am " living on adrenaline " to compensate. ANd he said do not " get my affairs in order " , because he had a plan ( for the heart and 18 parts). So, I began the plan and I'm still on it, and much much stronger. But I have alot of damage from 22 years, so who knows what will happen. I am so outraged/grief-stricken at what happened to me and hundreds of other patients I have known (including for 10 years, running a CFIDS support group), the damages from toxic drugs, and many friends who have died, that's why I get so adamant about the right research, advocacy, categories,safety and all of that. At this point, I would actually feel much better, and be out even more, if I stayed off of the internet, rested more, etc. But I seem to keep being driven to learn more, pass it on, and advocate for recognition/treatment of this disease. ME/CFS patients have a wealth of accumulated knowledge, and patients directly following the ME/CFS research and helping each other is very powerful, as you know. If we leave it up to the powers that be, we will be disappeared off the face of the earth. Sorry this got so long...guess I got carried away. It's really fortunate that you did find out about the Mycoplasma and got treatment for that part. Can you imagine if all of the Specialists/Researchers pooled their knowledge and we really did get tests, sub-setted and correct treatment...early?? or anytime? lol That's what I picture... Take care, Katrina > > > > > > Marti, > > > Do you tend to get every virus that comes along such as colds and > flu? > > > > > > I got sick in 1995 with swollen glands, tonsils, low grade fever > but > > > my diagnosis after a few months was mycoplasma incognitus and I > > > responded to pretty much any antibiotic they gave me. (I learned > 7 > > > years later I also had borrelia or Lyme disease, but by that time > I > > > had taken enough antibiotics that I wasn't terribly sick.) > Initially > > > I had elevated EBV titres, but they returned to normal as soon as > I > > > was put on penicillin for the throat inflammation. From then on I > had > > > the cfs symptoms but literally never got any flu or colds for > several > > > years. The first cold I got was a year when I was pretty much > back to > > > normal. > > > > > > Understand that there seem to be two extremes in cfs - the ones > like > > > me who get nothing else and the ones who get terribly sick with > > > everything. > > > > > > So I am wondering if your basic problem is viruses or bacterias? > I am > > > also wondering if those with mainly viral problems also get colds > and > > > flu? > > > > > > a > > > > > > > > > > > > > > Viral Symptoms are tender glands, sore throat, flu-like > symptoms, > > > > brain fog, elevated temperature, bone-crushing fatigue, you > know, > > > the > > > > usual! > > > > > > > > I just found the link you mentioned below: > > > > http://www.immunesupport.com/library/showarticle.cfm? > > > > id=7245 & T=CFIDS_FM. I think I fit into Group 1. > > > > > > > > When I got sick in 1999 - the Doc I saw suggested working on > the > > > > immune system rather than spending money on expensive tests. I > > > > bought into that - (big mistake). Recently, I had limited > testing > > > > for several virus and tested positive for all that I was tested > for > > > > including HHV6a and CMV. (Seems I have been collecting viruses > > > over > > > > the years). > > > > > > > > Thank you for the viral med info. I will research and discuss > with > > > > Doc next week. I am on County Health Insurance but Dr.'s are > > > > limited. Trying to get referral to FFC or Dr. Salvato that > might > > > be > > > > open to some of these tests. > > > > > > > > Thanks for your help. > > > > Marti Z. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 DAvid, do you happen to know the difference in processing between Non-denatured and Un denatured? Thanks, Adrienne Re: Looking for anti-viral aid Hi, Marti. " marti_zavala " <marti_zavala@...> wrote: > > Hi there, > I know about several different anti-viral protocols but curious if > there are new ones since I was on the list years ago. I have tried > Coconut oil, Olive Leaf, Apple Cider Vinegar, Elderberry, Olive Oil > with Lemon, Garlic with some success but was curious if there was > anything new in this arena. Needing something very powerful. ***Yes. New at the table is nondenatured whey in the form of products like RenewPro and The True Whey, not to be confused with the inferior undnatured whey tried in PWCs since the late 90s with Dr Cheney. ***Nondenatured whey tops by far in effectiveness the drugs valtrex, acyclovir, gancyclovir and others. From personal experience, it as well tops Ampligen in keeping fluish symptoms down and RnaseL levels normalized. ***Also, a product called Lipoceutical Glutathione(LG) was tried against HHV6 by the HHV6 Foundation connected to Dr Ablashi who discovered this virus and LG was effective at killing HHV6 better than 70 agents they had tested including very potent but very toxic, Famvir. Currently on acyclovir and it helps as long as I have no physical > issues. As soon as I don't sleep well, the viral symptoms return. > Doc & I have continued to up the dose - currently at 1600mg per day. > > CURIOUS: Has anyone tried Hydrogen peroxide in any form such as > IV's. or otherwise for control or elimination of any type of > pathogens including viruses? ***Hydrogen peroxide therapy turns out is really quite a horrible choice if you have CFS. Low glutathione often found in CFS causes a rise of hydrogen peroxide in our bodies and this in turn actually causes problems with our thyroid function and probably other problems as well. ***Better to treat the underlying root problem that leads to low glutathione and strengthen your immunity to kill or suppress pathogens from that stand point. > ALSO: Are there any Dr. Salvato patients on the list? > > I would like to get referred to a more knowledgeable CFIDS Doc who > will be open to helping me with the Yasko protocol and documentation > for disability. > > Living north of Houston very near to sea level - still sick. > > Thanks everyone, > Marti Z. *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Hi, Katrina. " kattemayo " <kattemayo@...> wrote: > > > > Hi , > > I am very confused as to why you keep posting statements like this: > > >>>>not to be confused with the inferior undnatured whey tried in PWCs since the late 90s with Dr Cheney.<<<<< > > Dr. Cheney began trials of Immunopro in 1999 and has been using it ever since. ***This is probably the problem. Dr Cheney was actually using ImmuneCal in 1999 too, based on its wide promotion for AIDS patients in the 1990's, and he even recommended it to me in 2002 as the best glutathione building option available. But ImmuneCal it turns out, and this is why it failed with me then, is undenatured whey rather than the more effective nondenatured whey products like RenewPro, ImmunePro and The True Whey to build glutathione in non-sulfur sensitive PWCs. It was from his articles that I learned about Glutathione, which he had been studying/treating for several years, and because of his trials of Immunopro that I began using it in 1999. > > He first tried Immunoplex? and Immunocal, with mixed results. When he heard of Immunopro (I think it was brand new) and communicated with it's creator, he began trials with it. ***Well, actually he recommened ImmuneCal as the best for quite a while for PWCs. He's never made the distinction that Rich has that the cystine basis of ImmuneCal renders it problematic for PWCs to building glutathione vs the cysteine basis of ImmunePro, etc. to more readily help us make it. ***This missing biochemical detail in his understanding of these products may be why he is behind the times now in not recognizing glutathione depletion's critical role in the diastolic heart dysfunction in PWCs. The glutathione building measures he pioneered for the PWC community that failed early on, like ImmuneCal and ImmunePro also for too limited a trial time frame in PWC use I think, may have also lead him to erroneously believe now that glutathione is not connected to the energy deficit in our cells he acknowledges is central to the heart problem. ***This seems an odd conclusion on his part given the known science about glutathione being essential to energy production within the cell, never mind Rich's overall hypothesis for CFS for a second. > We were able to follow his and patients' results on this and other lists, because they were kind enough to report weekly, if not daily on all 3 products. > > This gave us a chance to fully evaluate it and see the exact results and dosing of others, before making a decision about using it. ***ImmuneCal was the first one studied by him though, in which my post was illuding. Since 1994, I've followed this conversation on the web and off as well as with the doc himself in 2002 & 2003 just before his heart transplant. > AS you know, RenewPro is made by the same company...WellWisdom. I think it is the same ?, except that is is naturally sweetened, easier to mix, and less expensive (don't know why). ***Yes, that's correct. > > WHen I saw Dr. Cheney in April 05, he did tell me to continue on ImmunoPro, which I have. ***Good. > I'll post an article from WellWisdom's website that's taken from an interview with Dr. Cheney right before he began ImmunoPro trials. > > Some of the 1st patients' reports on IP are in this lists' archives from 1999. > > I think Dr. Cheney's articles on Glutathione and the 3 trials are on the DFW website. ***Yes, I saw one posted at DFW in 2002 and earlier, which talked about ImmuneCal as the primary one he had studied with mixed results. Since there are always new people to the scene, it certainly is brand new to them, and RenewPro is a new addition. I would be interested if anyone who's been on ImmunoPro for a long period and switched to RenewPro has seen any difference. ***I've heard a report from one saying they feel RenewPro is better absorbed in their gut but from a technical standpoint they are essentially the same, the RenewPro having more user-friendly features being the only real difference. Also, better to get a quantitative measure, a test of some sort, for how one's glutathione status is doing in the first year or two over relying on how one feels given improved feeling may not happen early on or may not happen until heavy metals have been successfully chelated, which glutathione cannot do. I don't have any problem with IP taste, or mixing, once I figured it out. > > I use a small plastic mixer that I purchased at Walgreen's for about $4. Before that, I mixed it in a jar, but was not always strong enough to do it. ***Be careful with mixing it with a motor based mixer, if that's what you're doing, as it could ruin its potency. > I'm also taking Lipoceutical Glutathione, which I think I first heard about from you, which sounded very exciting. It was prescribed to me by Dr. Cheney in April 06. ***Good. Did he recommend any effective chelation therapies as well to follow successful glutathione repletion? > BW, > Katrina *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Hi, Adrienne. " Adrienne G. " <duckblossm@...> wrote: > > DAvid, do you happen to know the difference in processing between Non-denatured and Un denatured? > Thanks, > Adrienne ***Yes. Nondenatured whey products like RenewPro DO NOT go through a process of heating which is oxidizing and render disulfide bonding between cysteine molecules, producing cystine. ***Denatured or undenatured mean this heating process has occurred and cystine rather than cysteine is in the product. So, a PWC already suffering oxidative stress and lowered ATP production needs to use some of the little ATP they have in order to deal with the oxidized molecule, cystine, and break it down to two cysteine molecules, the rate limiting ingredient for producing glutathione, if they use one of these inferior products for this purpose. ***That's a lot of work and may not work so barring sulfur sensitivity, NONdenature wheys rather than these other types is a superior treatment choice for PWCs. *** > From: davidhall2020 ***...nondenatured whey in the form of products like RenewPro and The True Whey, not to be confused with the inferior undnatured whey tried in PWCs since the late 90s with Dr Cheney. ***Nondenatured whey tops by far in effectiveness the drugs valtrex, acyclovir, gancyclovir and others. From personal experience, it as well tops Ampligen in keeping fluish symptoms down and RnaseL levels normalized. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Katrina, Thanks for sharing your story. You have a lot of courage. I hope the things you are trying now will have a good effect on you in the months to come. I will be watching to see how you do. I actually found out about mycoplasma from Dr. Lapp at a support group meeting in Charlotte, NC. Seven years later and on antibiotics most of that time I learned that I had Lyme disease, so it really was providence that I was on antibiotics at all. Right now I am on Recuperation and hope to add the salt/C protocol again after having some problems with dental work/vertigo. a > > > Hey a, > > In some ways that's true. But then I did have those number of years where I would have said I was in the category of *not* catching things. Very very ill, even still bedridden, but not with whatever was going around. > > I'm not sure about the 3 phases either, but he said you can have them overlapping or back and forth or something. > I related to the 2nd one because I was not getting infections, but was severely ill. ANd the 3rd one, because if I remained very protective, and in a " box " of limiting exertion, toxins,I did not feel too bad. He described just that sort of state. > > I kind of messed that up tho. I felt so safe, I began having people over again, closer relationships, a few trips to family across country.(funeral,wedding,reunion,etc.) Since I had survived 10+ years of CFIDS, much of it bedridden, plus a deadly cancer, and then got on my feet with Florinef and other things...AND sitting here with people around was just as draining as being out...AND I wanted to do things while they and I were still alive...I got really driven to push, push, push, then crash. In 2000?, I had another 6 months where I was vertical about one hour a day, total. Sometimes I could barely take a breath or move a muscle, and everyone thought I was going to die. Another shorter time like that, and a night in the hospital in 2002. > Later things were harder $$ and survival wise, and in 2005, I had distanced from everyone, because I really did feel like I was dying, yet not bedridden. > That's when a miracle happened and Dr. Cheney came back. I'd gotten on the waiting list, and my sweet Uncle sent me to him. > Except for just getting my diagnosis in 90-91, that's the first time I ever saw a CFS Specialist, in 21 years! > (Except for all of the ones I talked to at Research Conference, and a couple by phone or email). > I knew that's who I would see from following his research and patients over the years. > I spent 3 days with him and tests, and he practically told me what I was experiencing before I finished telling him. > He also identified about 18 areas to work on, said I was a " sinking ship " and could die. This only somewhat scared me. because I already knew it. > He said I was one of his patients who has Diastolic Dysfunction and am " living on adrenaline " to compensate. ANd he said do not " get my affairs in order " , because he had a plan ( for the heart and 18 parts). So, I began the plan and I'm still on it, and much much stronger. > But I have alot of damage from 22 years, so who knows what will happen. > I am so outraged/grief-stricken at what happened to me and hundreds of other patients I have known (including for 10 years, running a CFIDS support group), the damages from toxic drugs, and many friends who have died, that's why I get so adamant about the right research, advocacy, categories,safety and all of that. > At this point, I would actually > feel much better, and be out even more, if I stayed off of the internet, rested more, etc. > But I seem to keep being driven to learn more, pass it on, and advocate for recognition/treatment of this disease. > ME/CFS patients have a wealth of accumulated knowledge, and patients directly following the ME/CFS research and helping each other is very powerful, as you know. > If we leave it up to the powers > that be, we will be disappeared off the face of the earth. > > Sorry this got so long...guess I got carried away. It's really fortunate that you did find out about the Mycoplasma and got treatment for that part. Can you imagine if all of the Specialists/Researchers pooled their knowledge and we really did get tests, sub-setted and correct treatment...early?? or anytime? lol > > That's what I picture... > > Take care, > > Katrina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 I have used Valtrex. After awhile it stopped working. Now I take Famvir and luteolin. jill1313 wrote: > > Anything wrong with valtrex/ I'm tempted to try it even tho I don't > seem to have viral issues. But there are such good responses in > autistic kids, especially ones who reacted badly to the MMR vaccine, > or seemingly so. However, they do manifest the virus flaring up, and > getting rashes, fevers etc, usually while their behaviors improve. > Since this is all anecdotal one can't say much but I've been reading > about it. Even kids who don't have elevated viral titers seem to > respond. However, they seem to get fungal flareups sometimes at first > on the antivirals. One wonders what's happening. Are viruses and > funguses together suppressing immunity? Are viruses keeping fungi in > check? Is valtrex repairing methylation through reducing adenosine, > and are metals dumping, causing temporary immunosuppression as they > leave and flaring up fungus? There is a lot to examine. > > > > > > > > Hi there, > > > I know about several different anti-viral protocols but curious if > > > there are new ones since I was on the list years ago. I have tried > > > Coconut oil, Olive Leaf, Apple Cider Vinegar, Elderberry, Olive Oil > > > with Lemon, Garlic with some success but was curious if there was > > > anything new in this arena. Needing something very powerful. > > > > > > Currently on acyclovir and it helps as long as I have no physical > > > issues. As soon as I don't sleep well, the viral symptoms return. > > > Doc & I have continued to up the dose - currently at 1600mg per day. > > > > > > CURIOUS: Has anyone tried Hydrogen peroxide in any form such as > > > IV's. or otherwise for control or elimination of any type of > > > pathogens including viruses? > > > > > > ALSO: Are there any Dr. Salvato patients on the list? > > > > > > I would like to get referred to a more knowledgeable CFIDS Doc who > > > will be open to helping me with the Yasko protocol and documentation > > > for disability. > > > > > > Living north of Houston very near to sea level - still sick. > > > > > > Thanks everyone, > > > Marti Z. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 > > Marti, > Do you tend to get every virus that comes along such as colds and flu? ///Not really. I seem to get sicker when I am run down. Before my relapse in 2003, I actually caught a cold which I thought was wonderful. I think this has to do with TH1/TH2 imbalance and the type of illnesses they keep your body safe from. I am TH2 overactive (I think). I have never been tested for bacteria. I just got tested for a few of the common viral pathogens. I do seem to catch what others have even if they are not ill. My immune system is obviously weakened. I am convinced I have both virus and bacteria but seems like the viral symptoms catch my attention more. Marti Quote Link to comment Share on other sites More sharing options...
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