Re: Help with Post-exertional Malaise?

September 13, 2006

You'd think where theres a will theres a way - somewhere...

davidhall2020 <davidhall@...> wrote: Hi, Cort.

cort johnson <cortttt@...> wrote:

Would like to do mito ATP testing and the

> Yasko - but cant.

***Got it. There's got to be a way somehow for more PWCs to get access to these

tests as they're some of the most insightful tools we've ever had to date as a

CFS community, better than the RnaseL testing and several others of note

combined!

***I wonder if any of the state or national ME/CFIDS patient organizations has

thought of annually designating a portion of their funds from donations to

covering the top three or four CFS tests available for a handful or so of PWCs

who stick out more than most as needing this boost in their path to getting

well? I wonder if that new Neveda clinic for CFS, with the 11 million dollar

grant, will provide some pro bono servicing of some PWCs in this way?

> Yasko interview is an idea if shes not too busy. I am

> gong to start trying to interview researchers for the

> newsletter.

***This could be quite powerful. These interviews could be the voice of the PWC

community asking some pointed, smart and tough, albeit respectful, questions of

these researchers and give us all a take on how each see's CFS now going into

2007 and how they see the favored hypothesis for CFS by other researcher's

integrating with their own views and if not, why not, specifically.

***Among professional researcher's,

Dr Yasko, Dr Myhill(sp?), Dr Vernon,

Dr DeM, Dr Shoemaker and Dr Cheney would be my top picks to go for at this time.

Also as much as we get and are familiar with Rich's views on this list, having

him respond to questions and on record in your newsletter format could draw out

more that we(and maybe even he) don't now know and perhaps leverage his getting

a spot on a tv panel of people being interviewed about CFS by OPRAH!

***It could happen.

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