ADHD Anyone with CFS been diagnosed with this

[Guest guest]

-

I figured I should reply to you privately, since it's not really germane

to the group discussion. You know... I agree with you about a lot of

things, and I'd never question your experience. I've seen pharma

salespeople chatting up doctors, and they're slimy, evil people.

Nonetheless, I have enormous faith in my particular psychiatrist. He

teaches at s Hopkins, and he does clinical research, besides actually

seeing patients. He's been very straightforward with me about the side

effects of all of the treatments we've considered, and the only biggie with

Wellbutrin is that it potentates seizures, so if you're at risk of seizures,

you can't take it. It can cause some of the same side effects that

stimulants cause (dry mouth, etc.), but those are trivial compared to stuff

like SSRI withdrawal.

I don't know how useful it would be at controlling the inmates. I've

felt more inclined to action while I've been on it. I've been less

irritable, but that's not the same thing as complacency. I'm also not sure

how useful Wellbutrin would be for anxiety and panic disorder. Wellbutrin

is a sort-of stimulant, while the traditional treatments for anxiety/panic

are benzodiazepines (inc. oxazepam) and SSRIs, both of which are sedatives.

I'm no psych, but it doesn't sound right for you.

And yeah, I totally agree with you that it's critical to watch the

things we eat and the drugs we take. I've become more and more of a

believer in that as I've discovered the crazy things that the chemicals in

herbs and spices can do, let alone pharmaceuticals. I'm a firm believer

that diet has a huge influence on health. Lots of drugs are based on

natural chemicals, by the way. The line isn't as sharp as most people

think.

-Steve

On 8/25/06, netsukeme <kcapel@...> wrote:

> Steve, I took oxazepam for 25 years to control generalized anxiety

> and panic disorder. Every new doctor I've seen in the last 8 or 10

> years has tried to shuttle Wellbutrin onto me. Anything I have to

> say is by virtue of anecdote, so I guess the best approach from here

> is Google. But...I know that Wellbutrin is one of the drugs that

> pharma salesmen have tried to impress doctors with and also that it's

> used in geriatric populations to " control the inmates. " Doctors

> don't have time to sit around and read research, so they listen to

> the salesmen. Yes, anecdotal, but it impresses you when you hear it

> and read it.

>

> The best advice is to just investigate and know what you're sticking

> in your hatch...before you stick it in your hatch.

>

>

>

[Guest guest]

Hi Steve. That's important -- the faith in the practitioner you're

using. I had faith in mine, too, and we fished around for something

that would work with me, which was oxazepam. Librium, no effect;

Xanax, forget it, zero except knocking me flat. I started oxazepam at

a time in life when prescribed chloral hydrate didn't even affect me.

Now I take nothing (unless the SAMe counts here) and wouldn't touch

Wellbutrin with a 10-foot pole. But that's just me. I trust me

before I trust any of the docs I've seen in recent history. Besides,

I just don't need it now.

Bad idea to categorize any subgroup of people as " slimy " or anything

else derogatory -- including pharma salesmen. I second-handedly know

a local one who was fed up with his work and left to work in radio,

taking the huge pay cut to improve his quality of life.

>

>Nonetheless, I have enormous faith in my particular psychiatrist.

> I'm no psych, but it doesn't sound right for you.

[Guest guest]

Thank you so much for the reply. I pass the VCS tests with flying colors and

have only started getting these feelings for the last 6 months or so. I have a

whole box of cholestryamine that my LLMD gave me, but it was for lyme toxins as

they were being killed (I hope). I never even thought of mold til I started

reading 's posts. I'm hearing that it's fairly benign. Do you think I

should give it a whirl?

Edy

LiveSimply <quackadillian@...> wrote:

It depended on what kind of exposure I was getting - when it was

inhalational, the entire upper

part of my body was hot and burning.. when I was getting skin

absorbtion, my hands or whatever would turn red and burn.. I would

notice a change in my skin too, its hard to describe..

Now, months later, my hands are still numb, I have much less feeling

in my hands than I used to.. I also have a numb spot on my left leg

where my leg used to make contact with the side of the bathtub that

was right underneath a crack in my bathroom wall that had stachy

behind it.. elsewhere I seem to have normal skin feeling.. Also my

sense of smell is shot.. except for mold smells which paradoxically, I

seem very sensitive to.. go figure..And I have a lot of dark spots in

my right eye.. VCS is also much worse for my right eye than left..

BTW, I used to have that prickly, tingly feeling in my hands and feet

all the time, esp. in the morning for years.. hands and feet were also

very cold.. and numb at least half of each day..

The cholestyramine and especially, getting out of that

place..gradually reduced that.. I still get the tingling sometimes,

but its nowhere near as bad as it was then..

I also got goose bumps.. nausea, carsick all the time, weakness, joint

pain, rashes, easy bruising, ringing in my ears, headaches, holes in

my memory.. It was defintely the mold..

On 8/24/06, Edy Rayfield <edyrayfield@...> wrote:

> Did the inflamation feel like parasthesia. I burn, prickle, itch and generally

feel crawly all the time and goose bumps pop up for no reason whatsoever. It's

as if my whole body is asleep, you know like your foot or something when it's

waking up and prickles you. It's driving me mad.

>

[Guest guest]

I wouldn't even begin to know what would be appropriate for anyone

else. I just know that it helped me.

You should ask your doctor.

[Guest guest]

LiveSimply <quackadillian@...> wrote:

>

> I don't know much about these things at all, but a recent

conversation with a toxicologist and other, more personal

experiences had me thinking about a mold > ADHD and a mold > CFS

connection..

> As far as my own research goes I have read many times that CFS is

indistinguishable, in terms of symptoms, from trichothecene

mycotoxicosis. Many people seem to think that mold caused their CFS

and/or MCS, but this is to say the least, controversial because of

its implications. (It would require a massive change in how we look

at CFS, for example..)

>

Also, noted mold doctor Dr. Ritchie Shoemaker (of Mold Warriors

fame) and I am sure, many other doctors have been treating CFS

patients with cholestyramine. (like mold patients are) and a search

on CFS and cholestyramine brought up a number of personal stories of

CFS sufferers who had been helped by it..

> Have you folks ever thought that CFS might be caused by (hidden)

mold exposure in some people?

>

Quack, You can read my chapter in Dr Shoemakers book " Mold

Warriors " and see that mold was present at " Ground Zero for CFS " .

This group and CFS researchers have not been particularly

interested in that little peculiarity though.

It has been of major importance to me, as mold avoidance has given

me a life that I could not have had otherwise.

-

CFS/SBS Concurrence Message List

Reply | Forward Message #59560 of 105482 < Prev | Next >

Mon Jul 7, 2003 9:06 am

Rich has referred to my insistence that many cases of CFS are

associated with a sensitivity to mycotoxins.

We may be a subset, but the Incline Village cluster is a well known

subset.

My extreme sensitivity to Stachybotrys has allowed me to perceive it

on the clothing of CFS patients in Incline Village.

I never said that it was the mold that CAUSES CFS, I said that those

who succumbed seemed to share an unusual sensitivity to

mold toxins.

If I remember correctly, the story of the conference room in Truckee

High School was that it was the only commonality that could be

identified among the cluster of CFS in teachers. One teacher who

didn't feel well in that room preferred to take his break outside in

his car and was the only one to escape chronic CFS. I heard many

years later that Stachybotrys was found there.

One of my first questions to Dr Cheney and Dr during the

Incline Village epidemic was " Why would a virus care about mold? " .

When they replied that it wouldn't, I said " Then it must be a

bacteria, because whatever got me seems to care a great deal

about mold " .

I've told my story before that when the HHV6a swept through, we

called it " The Truckee Crud " and though many people became ill with

flu-like symptoms, those of us who became chronic CFS cases seemed to

have this mold intolerance in common.

There is plenty of evidence for a particular connection to mycotoxins

that should be investigated.

-

http://infoventures.com/osh/abs/sbs0001.html

SICK-BUILDING-SYNDROME

CONCURRENT SICK BUILDING SYNDROME AND CHRONIC

FATIGUE SYNDROME: EPIDEMIC NEUROMYASTHENIS REVISITED

Cases of sick building syndrome (SBS) associated with the development

of chronic fatigue syndrome (CFS) were described.

Three apparent outbreaks of SBS were investigated: high school

teachers in Elk Grove, California in 1989; federal government

workers in Washington, D.C. in 1986; and high school teachers in

Truckee, California in the 1980s. Reported symptoms included

cough, headache, sore throat, fatigue, colds, sinusitis, dizziness,

memory loss, and weakness. Illness deemed more serious than

SBS was observed in nine of the 10 teachers who frequently used a

single conference room in Truckee, five of the 22 responding

teachers in Elk Grove, and nine of the 93 responding office workers

in

Washington, D.C. Individuals with severe fatigue tended to

have symptoms of mucous membrane irritation characteristic of SBS; in

addition, however, they frequently had neurological

complaints not typical of SBS but characteristic of CFS. The authors

conclude that CFS can apparently occur in the setting of SBS

and may occur in predisposed individuals after exposure to

noninfectious agents.

Clinical Infectious Diseases; 18(Suppl 1):S43-S48, 1994. (45

references)

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[Guest guest]

Re: ADHD Anyone with CFS been diagnosed with this

I trust me

before I trust any of the docs I've seen in recent history.

***Absolutely. Always. Only way to be safe.

. I second-handedly know

a local one who was fed up with his work and left to work in radio,

taking the huge pay cut to improve his quality of life.

***Ex-slimy?

Adrienne

.