Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Hi all - I have done some googling, and watched and listened to some autism presentations, but I was stunned to find a note by Rich (same one no doubt!) on Blake Graham's website: http://www.nutritional-healing.com.au/content/articles-content.php?heading=Autis\ m%20treatments%20show%20promise%20in%20Chronic%20Fatigue%20Syndrome I started my CFS healing search 2 years ago with him on the phone from Perth Australia (I was in Sydney) so it is amazing to find him still connecting me with info all this time later. He connected me with Ken Lassesen, whose cfids site has been incredibly informative for me. So, thanks to Blake, if he is listening to this.... And thanks to Rich for providing the info which has been important (I hope). -- I assume richvank@... is the same Rich.(?).-- yes, must be! I am somewhat confused by the autism-centric base of all the info on Yasko's ideas, as this makes it hard to relate to me, but bouyed by the new source of hope, as I have been let down more than once in my search. I am starting with a new doctor soon, from an 'integrative' practice - http://www.akashacenter.com/ So I hope I can get on track with this new line of attack - Thanks - Colin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 After all the scythe wielders have cut themselves to ribbons and bled into the sea, only the strong men of sanity, reason, and calm will be left to survey the wreckage of the loss of potential. Yes, Colin, same Rich. And aren't we all so lucky to have them all -- and all the others here who are so smart and so generous with their efforts and time and patience? I think so. in Champaign IL >He connected me with Ken Lassesen, whose cfids site has been incredibly informative for me. > > So, thanks to Blake, if he is listening to this.... > > And thanks to Rich for providing the info which has been important (I hope). > > -- I assume richvank@... is the same Rich.(?).-- yes, must be! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Well, since I wrote that email, I have been watching Elain Gottshall speaking at an autism conference, and have had a breakthrough (?) - I had a foot taken out of my small intestine 5 years or so before my CFS symptoms started. Her presentation enlightened me to a whole new avenue of study, nothing to do (?) with Yasko. I have often wondered if this shortened bowel would cause a decrease in nutrient absorption. No idea (yet) if this means anything, but it is exciting to put the pieces together. If anyone has info/ideas about this and/or D -lacticacidosis and the connection to cognitive function, please reply with the knowldedge or notes from your own story.. Thanks - Colin netsukeme wrote: > > After all the scythe wielders have cut themselves to ribbons and bled > into the sea, only the strong men of sanity, reason, and calm will be > left to survey the wreckage of the loss of potential. > > Yes, Colin, same Rich. > > And aren't we all so lucky to have them all -- and all the others here > who are so smart and so generous with their efforts and time and > patience? > > I think so. > > > in Champaign IL > > > >He connected me with Ken Lassesen, whose cfids site has been > incredibly informative for me. > > > > So, thanks to Blake, if he is listening to this.... > > > > And thanks to Rich for providing the info which has been important > (I hope). > > > > -- I assume richvank@... is the same Rich.(?).-- yes, must be! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 mjh, >>>>It {SAMe} needs B6, folic acid and B12 as its cofactors,<<< Do you think it's crucial they be taken at the same time? AS opposed to within hours or the same day, " in the system " ... Katrina > > > > THe tested research showed the effective range of SAM-e is 800 to 1600 > mg/day in divided doses on an empty stomach early in the day. > > I, too, started SAM-e slowly and have had many benefits from it. It needs > B6, folic acid andB12 as its cofactors, which you are getting. > > > mjh > " The Basil Book " > _http://foxhillfarm.us/FireBasil/Ka_ (http://foxhillfarm.us/FireBasil/Ka) > > I started SAM-e about three weeks ago, too, and that's helping as > well. Too soon to report on how. I started slow and I'm still at > only 600 mg per day. > > ......................... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 The " niacin " line should read as follows in my list: Niacin 250 mg 2-3 per day (timed release niacin) Sorry for the correction. I copied and pasted the wrong thing. > Here's my " list. " Someone else just asked me this, so I'll just post > the whole thing here. > > ......................... > > D3 3200 IU per day, in divided doses > Fish oil 1 g 3x day > Milk of magnesia 1/2 tsp 3-4 x per day (for Mg) > B1 250 mg 2-3x day > B6 100 mg 2-3x day > Niacin 2-3 per day (I have the " flush free " kind and need to get the > flush kind) > Pantothenic acid 250 2-3x per day > B12 5000 mcg once per day > " Super " B complex 2x per day > An " over 50 " multi, which I've been forgetting too > > Vitamin C, small amounts (500 mg) 2x or more per day (sensitive guts) > Plain yogurt, at least 2 cups per day (first and last pile of pills) > > L-Tryptophan 500 mg (when I remember it) before the melatonin at night > 600 mcg melatonin > > Licorice root for adrenals > Essential oil of oregano with virgin olive oil (1:9) 3-4x per day > (antifungal) > officinalis tincture 3-4x per day (anti-herpes) > > I started SAM-e about three weeks ago, too, and that's helping as > well. Too soon to report on how. I started slow and I'm still at > only 600 mg per day. > > ......................... > > I do forget some of the stuff sometimes. I'm human. So I forgive > myself and carry on sergeant. I'd probably be dead by now, or very > close to it, if I hadn't started the D3. > > If you or someone knows more about D and brain function, I'd sure > like to hear it. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Hi, Colin. I'm curious as to from which part of your small intestine this foot of length was taken. The reason I'm wondering is that vitamin B12 is normally absorbed in the terminal ileum, the last part of the small intestine, just before it joins with the large intestine at the ileocecal valve. If this part was removed (such as is sometimes done in surgery for Crohn's disease) you would have lost some absorption capacity there, and that could mean that you went low in B12, which would have put you into pernicious anemia (with fewer than normal but oversized red blood cells) and that could also have caused a block in your methylation cycle, which would connect you directly to the DAN! and Yasko treatment approaches for autism. I realize I have gone pretty far in my speculation without knowing if it was your ileum that was resected, but it was just too tempting! Rich > > >He connected me with Ken Lassesen, whose cfids site has been > > incredibly informative for me. > > > > > > So, thanks to Blake, if he is listening to this.... > > > > > > And thanks to Rich for providing the info which has been important > > (I hope). > > > > > > -- I assume richvank@ is the same Rich.(?).-- yes, must be! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 On 8/15/06, Colin Green <colin@...> wrote: > I > had a foot taken out of my small intestine 5 years or so before my CFS > symptoms started. Good lord, man, how did a foot ever get in there??? ;-) - Bob Niederman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Hi Rich - Thanks for writing. I had a Meckles Diverticulum which is near the junction between L and S intestine, on the small. Mine filled up, necrosed, and almost killed me. The surgeon said two more hours I would have popped something, and died from the septic stuff released in my system. He said had to pull everything out of me, to find out what the culprit was. He took the Diverticulum out, along with 12 " of gut, sewed it together, put it all back in, sewed me up, and I was myself again in a few weeks. Or was I? It was 4-5 years between then and when I started going to Doctors saying " what the hell is wrong with me? " complaining of fatigue, sleep problems (insomnia, non restorative sleep) etc. Then, to make things really interesting, after 1 -2 years of this, I was back in the Hospital with a sudden and 'massive' right brain MCA (Stroke), after which I thought " well at least now someone will figure out what is going on.. " 2 1/2 years later there is no cause for the stroke identified, although there was a year of inconclusive study into hypercoagulation. I have put the intestinal history on all my new patient forms, and no one has asked me about it (except " what is a meckles diverticulum? " ) and One Irony is that my grandfather was a famous Mayo Clinic surgeon, famous in part because of this Crohn's disease surgery! I have thought of turning up at Mayo and saying " I'm not leaving until you figure this out " . But I think I would be there too long... Can the dlacticacidocis absorption problem be easily tested for by a " normal " doc? Can I accomplish a " rule out " of this easily? (Or, find out that this is the culprit, and start treating it.) Thanks to all for their input. Colin rvankonynen wrote: > > Hi, Colin. > > I'm curious as to from which part of your small intestine this foot > of length was taken. The reason I'm wondering is that vitamin B12 > is normally absorbed in the terminal ileum, the last part of the > small intestine, just before it joins with the large intestine at > the ileocecal valve. If this part was removed (such as is sometimes > done in surgery for Crohn's disease) you would have lost some > absorption capacity there, and that could mean that you went low in > B12, which would have put you into pernicious anemia (with fewer > than normal but oversized red blood cells) and that could also have > caused a block in your methylation cycle, which would connect you > directly to the DAN! and Yasko treatment approaches for autism. > > I realize I have gone pretty far in my speculation without knowing > if it was your ileum that was resected, but it was just too tempting! > > Rich > > > > > > >He connected me with Ken Lassesen, whose cfids site has been > > > incredibly informative for me. > > > > > > > > So, thanks to Blake, if he is listening to this.... > > > > > > > > And thanks to Rich for providing the info which has been > important > > > (I hope). > > > > > > > > -- I assume richvank@ is the same Rich.(?).-- yes, must be! > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Hmm. I got really, chronically, sick a while after abdominal surgery that went really wrong and left me with my gut paralyzed for weeks. Adrienne Re: Re: small world Hi Rich - Thanks for writing. I had a Meckles Diverticulum which is near the junction between L and S intestine, on the small. Mine filled up, necrosed, and almost killed me. The surgeon said two more hours I would have popped something, and died from the septic stuff released in my system. He said had to pull everything out of me, to find out what the culprit was. He took the Diverticulum out, along with 12 " of gut, sewed it together, put it all back in, sewed me up, and I was myself again in a few weeks. Or was I? It was 4-5 years between then and when I started going to Doctors saying " what the hell is wrong with me? " complaining of fatigue, sleep problems (insomnia, non restorative sleep) etc. Then, to make things really interesting, after 1 -2 years of this, I was back in the Hospital with a sudden and 'massive' right brain MCA (Stroke), after which I thought " well at least now someone will figure out what is going on.. " 2 1/2 years later there is no cause for the stroke identified, although there was a year of inconclusive study into hypercoagulation. I have put the intestinal history on all my new patient forms, and no one has asked me about it (except " what is a meckles diverticulum? " ) and One Irony is that my grandfather was a famous Mayo Clinic surgeon, famous in part because of this Crohn's disease surgery! I have thought of turning up at Mayo and saying " I'm not leaving until you figure this out " . But I think I would be there too long... Can the dlacticacidocis absorption problem be easily tested for by a " normal " doc? Can I accomplish a " rule out " of this easily? (Or, find out that this is the culprit, and start treating it.) Thanks to all for their input. Colin rvankonynen wrote: > > Hi, Colin. > > I'm curious as to from which part of your small intestine this foot > of length was taken. The reason I'm wondering is that vitamin B12 > is normally absorbed in the terminal ileum, the last part of the > small intestine, just before it joins with the large intestine at > the ileocecal valve. If this part was removed (such as is sometimes > done in surgery for Crohn's disease) you would have lost some > absorption capacity there, and that could mean that you went low in > B12, which would have put you into pernicious anemia (with fewer > than normal but oversized red blood cells) and that could also have > caused a block in your methylation cycle, which would connect you > directly to the DAN! and Yasko treatment approaches for autism. > > I realize I have gone pretty far in my speculation without knowing > if it was your ileum that was resected, but it was just too tempting! > > Rich > > > > > > >He connected me with Ken Lassesen, whose cfids site has been > > > incredibly informative for me. > > > > > > > > So, thanks to Blake, if he is listening to this.... > > > > > > > > And thanks to Rich for providing the info which has been > important > > > (I hope). > > > > > > > > -- I assume richvank@ is the same Rich.(?).-- yes, must be! > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Hi, Bob. Didn't you know that they still have cannibals in Australia? (:-) Rich > > I > > had a foot taken out of my small intestine 5 years or so before my CFS > > symptoms started. > > Good lord, man, how did a foot ever get in there??? > > ;-) > > - Bob Niederman > Quote Link to comment Share on other sites More sharing options...
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