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Re: Cheney - antihistamines

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Dear Helen,

How serious is a heart cavitating? and what kind of echo? was it the

Cardioimpedance testing?

Thanks for any help...I can't afford to go to Dr. Cheney, and his waiting

list is over a year, anyway.

I have the Cardiac Issues, now.

TC,

TIA,

Amelia

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Zippy,

Thanks for this info...i had missed this.

>>>>high histamine in some

> CFS cases could causing their hearts to cavitate, due to

> fluid volume being redistributed to other tissues.<<<<

Is fluid volume distributing to other tissue what a histamine response is? Like,

is the swelling from an allergic reaction actually fluid from other tissue?

ABout histamine...It's always been said that CFS patients are high in histamine

, which is related to why we have to be careful with anesthesia (special

instructions not to use histamine producing agent).

Thanks for posting,

Katrina

PWC 22 years

>

> I'm not the person who posted on this originally, but

> I suspect I have an ideas about it.

>

> My case has significant histamine involvement (I probably

> have some type of ill-defined mast cell disorder).

>

> I'll bet the histamine thing has to do with a cavitating

> heart. When a pump has no fluid to pump, it is said to

> be cavitating. So, when the heart has little blood to

> pump, it is said to be cavitating too.

>

> Dr. Cheney fixated on a study done on healthy, high altitude

> climbers. It was on PubMed, but don't recall the number.

> Anyway, a certain percentage of climbers would develop a

> cavitating heart at high altitudes. I think they confirmed this

> with echo, or ultrasound ? My memory is a bit fuzzy on this.

>

> ....try pubMed # 10619830 That is from my notes.

>

> Anyway, Dr. Cheney was hypothosizing that high histamine in some

> CFS cases could causing their hearts to cavitate, due to

> fluid volume being redistributed to other tissues. Something

> like that.

>

> That would be my guess on the new heart/histamine hypothesis.

> Maybe the original poster on this will chime in soon.

>

> I do benefit some from anit-histamines btw.

>

> Best,

> Zippy

> 22 years PWC

> Cheney patient

>

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I think Cheney said my heart was cavitating on the echo but I don't

remember discussing histamines with him at all. Last time I talked to

him a couple weeks ago about my current problems, he told me a bit

about FPO holes, finding them in most of his patients, some kind of

hole in the heart that is present at birth but he thinks CFIDS makes

the seal blow open. Might be PFO hole, I don't know, I am so

scrambled right now. Said it would let toxins go right into brain or

something, him trying to figure out why I am so messed up right now

but I think it's mostly hereditary with me. Then all the other stuff

on top of it. To anyone I promised anything, I am sorry I haven't

been able to do it.

Helen

>

>

> Zippy,

>

> Thanks for this info...i had missed this.

>

> >>>>high histamine in some

> > CFS cases could causing their hearts to cavitate, due to

> > fluid volume being redistributed to other tissues.<<<<

>

> Is fluid volume distributing to other tissue what a histamine

response is? Like, is the swelling from an allergic reaction actually

fluid from other tissue?

>

>

> ABout histamine...It's always been said that CFS patients are high

in histamine , which is related to why we have to be careful with

anesthesia (special instructions not to use histamine producing

agent).

>

> Thanks for posting,

>

> Katrina

> PWC 22 years

>

>

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well, I'm not sure how serious the cavitation is. But my heart does

it, esp. when upright. This test was done on the Vivid 7 echo

machine, that is different test and machine than the impedance

cardiograph. I have had both tests done twice, 3/4 of a year apart.

My numbers looked a little better the second time on both but

actually I felt worse. Now much worse but other stuff going on.

Helen

>

> Dear Helen,

>

> How serious is a heart cavitating? and what kind of echo? was it

the

> Cardioimpedance testing?

>

> Thanks for any help...I can't afford to go to Dr. Cheney, and his

waiting

> list is over a year, anyway.

>

> I have the Cardiac Issues, now.

>

> TC,

> TIA,

> Amelia

>

>

>

>

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Tim,

Which anti-histamines, and which symptoms...do you mean cardiac/pain/breathing

or?

Thanks,

Katrina

>

> I have diastolic heart failure and have gotten significant symptomatic

> relief from antihistamines. However, I've seen no improvement in cardiac

> output.

>

> Tim

>

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Katrina,

I imagine any antihistamine would work, but I've stayed on either

Benadryl or hydroxyzine. Symptoms are shortness of breath, palpitations

and fatigue.

Tim

-----------------------------------------------------------------

Tim,

Which anti-histamines, and which symptoms...do you mean

cardiac/pain/breathing or?

Thanks,

Katrina

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