Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 I do think that many of the things discussed on this list, or used for autistic children, can benefit many with chronic illness. In fact, I just was thinking about how variable chronic lyme is...in receiving an email newsletter just now from a shamanic healer, who as I recall in a conversation, got a bullseye rash before leaving for Egypt, and took her 3 weeks of doxycycline and never had a further lyme symptom...it is very variable. So I don't mean to say that many of the things discussed, from eliminating gluten, to all the supplements that overlap in all the protocols, would not be beneficial. However, for those who have been sick a long time and only made partial progress, the genetic testing can, from what I've viewed in these DVD's, which has gone a long way toward convincing me, make a big difference. One mother presented, I believe she is a moderator on autismanswer, who had two sons who were autistic. She did various protocols including DAN! etc for her sons. The first son did not regress until he was a few years old, if I recall. The second son was bad from day one--day one being of course, the hepB vaccination (btw, a doctor pointed out tome that we don't begin to make our own immunoglobulins unil 3 months anyway...ie nature assumes you're going to breastfeed and get passive immunity from Mom. So a vaccine on day one of your life is not a wise idea anyway!). The mutations in methylation showed why the two boys were different. The one who was sick from 'birth' (ie first vaccination) had more severe mutations. It took more insults to the other one to push him into autism, as though he had mutations, the overall picture was not as severe. How can there be a general protocol when one person might have a CBS upregulation, and another not? When as she points out, which others aren't looking at, sometimes the cycle backs up and you can't take the 'short' way you have to take the long way around. Depending on the mutations you have, for instance, her analogy was, do you have one lane blocked by a car accident, or in worst case scenario, all 4? This was said at a point where she as answering a question to a parent, and talking about CBS mutations. She explained when BH4 (a Europen 'drug') would be necessar, and when otherwise supplements called Biothyro and CCK would be enough. The European BH4 would be necessary in the more severe mutation combinations. This is why, after viewing these DVDs, even though I have to wait for results, interpret them, and do trial and error so I have no proof in my own life, but even so, I'm convinced that if you can set aside the funds to at least get the SNP panel, (which will not change, so you only have to get it once) you will be better off. It would be great to monitor yourself through urine tests at least a few times a year, in addition, but to me that seems a little less necesssary than just knowing what you're dealing with. I suspect in the next few years this will get very much more refined. Maybe some SNPs will fade into the background and others come forward. The RNA products are more expensive than they should be, though. Quote Link to comment Share on other sites More sharing options...
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