Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Hi Sue, Were you bed or housebound and made these wonderful improvements? I'd love to know and congrats! Sue T <morabshadow@...> wrote: Hi Everyone, You may know I have been on the Yasko program since Feb '06. I have my my ups and downs with detox and continue to detox mostly Mercury. I've been killing off lots of microbes with her personalized program. I am making good progress and I am walking up to two miles a day and went FAST dancing this weekend for 4 hours straight. I feel great today!! I truly think the exercise is helping clear my head and helping a lot with neuro symptoms, too. I hope I continue to improve at this rate. Wanted to keep it simple with my update . . . . Thanks Rich and all the group! Best wishes to all, Sue T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Hi Edy, Thank you! I was almost(forced myself to get in the car and drive or run an errand daily) completely housebound the last 3 years until a few months ago. I am telling you(and it seems some people from this group are really fighting the Yasko idea) it is because of the Yasko program and running the Detoxigenomic testing that has helped me the most. I was bedbound 18 years ago and then it seem to change to where I was in and out of bed for several years. I have had dozens of docs give me wrong info and treatments for years that only made me worse. Yasko is the ONLY doctor that is on the right track for me. She is not perfect(no one is) .. . . but by far the best I have ever had. I know there are several people who keep challenging the Yasko program here . .. . and that is fine, but I am not here to defend the program. I am here to support you and point you in the right direction that is working for me and many many others. Please if you are not sure read the " Positive " responses on her www.autismanswer.com/forum. Please educate yourselves . . with her work and the feedback from the parents in the group.I know I am the first to take on her program from this group and one of the first adults to work her full program and to post on her forum. You need to realize I have done this on my own and it was very very difficult. So . .. . please understand I don't have the energy to defend the program. I wish everyone could follow this program and become better. I know many can not afford the tests, supplements, etc. But, neither can I. I am doing it anyway and figure someday it will work out when I am well enough to work. You can follow my improvement on the Yasko forum . . .. I need to stay positively focused and find some support for myself. I feel so worn out here at times. Best wishes to all, Sue T Edy Rayfield <edyrayfield@...> wrote: Hi Sue, Were you bed or housebound and made these wonderful improvements? I'd love to know and congrats! Sue T <morabshadow@...> wrote: Hi Everyone, You may know I have been on the Yasko program since Feb '06. I have my my ups and downs with detox and continue to detox mostly Mercury. I've been killing off lots of microbes with her personalized program. I am making good progress and I am walking up to two miles a day and went FAST dancing this weekend for 4 hours straight. I feel great today!! I truly think the exercise is helping clear my head and helping a lot with neuro symptoms, too. I hope I continue to improve at this rate. Wanted to keep it simple with my update . . . . Thanks Rich and all the group! Best wishes to all, Sue T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Hi Sue Thanks for your support. it gives us long timers help I am going to give this a shot and hope to be the second sucessful user Cheers in Singapore _____ From: [mailto: ] On Behalf Of Sue T Sent: Tuesday, 8 August 2006 12:44 AM Subject: Re: Sue T Quick update Hi Edy, Thank you! I was almost(forced myself to get in the car and drive or run an errand daily) completely housebound the last 3 years until a few months ago. I am telling you(and it seems some people from this group are really fighting the Yasko idea) it is because of the Yasko program and running the Detoxigenomic testing that has helped me the most. I was bedbound 18 years ago and then it seem to change to where I was in and out of bed for several years. I have had dozens of docs give me wrong info and treatments for years that only made me worse. Yasko is the ONLY doctor that is on the right track for me. She is not perfect(no one is) . . . but by far the best I have ever had. I know there are several people who keep challenging the Yasko program here .. . . and that is fine, but I am not here to defend the program. I am here to support you and point you in the right direction that is working for me and many many others. Please if you are not sure read the " Positive " responses on her www.autismanswer.com/forum. Please educate yourselves . . with her work and the feedback from the parents in the group.I know I am the first to take on her program from this group and one of the first adults to work her full program and to post on her forum. You need to realize I have done this on my own and it was very very difficult. So . . . please understand I don't have the energy to defend the program. I wish everyone could follow this program and become better. I know many can not afford the tests, supplements, etc. But, neither can I. I am doing it anyway and figure someday it will work out when I am well enough to work. You can follow my improvement on the Yasko forum . . .. I need to stay positively focused and find some support for myself. I feel so worn out here at times. Best wishes to all, Sue T Edy Rayfield <edyrayfield@ <mailto:edyrayfield%40sbcglobal.net> sbcglobal.net> wrote: Hi Sue, Were you bed or housebound and made these wonderful improvements? I'd love to know and congrats! Sue T <morabshadow@ <mailto:morabshadow%40> > wrote: Hi Everyone, You may know I have been on the Yasko program since Feb '06. I have my my ups and downs with detox and continue to detox mostly Mercury. I've been killing off lots of microbes with her personalized program. I am making good progress and I am walking up to two miles a day and went FAST dancing this weekend for 4 hours straight. I feel great today!! I truly think the exercise is helping clear my head and helping a lot with neuro symptoms, too. I hope I continue to improve at this rate. Wanted to keep it simple with my update . . . . Thanks Rich and all the group! Best wishes to all, Sue T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Sue, please don't feel worn out here!!!!! You have inspired me, for one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Hi, Sue. That's great news! I appreciate your letting us all know about how you're doing. I hope you won't be discouraged to share your progress with the group because of skepticism. I think that after being very ill for a long time, it's just not easy for people to risk having hope for improvement, especially after so many things have not paid off for them. You have certainly put a lot of time, effort and money into getting well, and I'm so glad that things are going in the right direction for you. Rich > > Hi Everyone, > > You may know I have been on the Yasko program since Feb '06. I have my > my ups and downs with detox and continue to detox mostly Mercury. I've > been killing off lots of microbes with her personalized program. > > I am making good progress and I am walking up to two miles a day and > went FAST dancing this weekend for 4 hours straight. > I feel great today!! I truly think the exercise is helping clear my > head and helping a lot with neuro symptoms, too. > > I hope I continue to improve at this rate. > > Wanted to keep it simple with my update . . . . > > Thanks Rich and all the group! > > Best wishes to all, > > Sue T > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 HI Jill, Thanks for your kind thoughts . . . I appreciate all the hard work you have been doing lately and glad to see you are on the Yasko track, too. Best wishes, Sue T jill1313 <jenbooks13@...> wrote: Sue, please don't feel worn out here!!!!! You have inspired me, for one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Hi Rich, Thank you for all your support, wisdom, and brilliant knowledge. I sometimes feel so overwhelmed with all the questions and skepticism.I know that is what it takes for some people to learn, but I don't have all the answers yet and feel pressured to because I am progressing so well. I really wish they would do more of their own research instead of trying to rely on others that are a bit ahead of them but not truly healed yet . . . I am still fragile at this point. The anxiety is still running high even though I want to help. It is just too much at times. I hope they understand and can look a bit away from this website and head over to the Yasko site for more explanation. I need a break . . . . I will be off camping for the rest of the week. My best, Sue T rvankonynen <richvank@...> wrote: Hi, Sue. That's great news! I appreciate your letting us all know about how you're doing. I hope you won't be discouraged to share your progress with the group because of skepticism. I think that after being very ill for a long time, it's just not easy for people to risk having hope for improvement, especially after so many things have not paid off for them. You have certainly put a lot of time, effort and money into getting well, and I'm so glad that things are going in the right direction for you. Rich > > Hi Everyone, > > You may know I have been on the Yasko program since Feb '06. I have my > my ups and downs with detox and continue to detox mostly Mercury. I've > been killing off lots of microbes with her personalized program. > > I am making good progress and I am walking up to two miles a day and > went FAST dancing this weekend for 4 hours straight. > I feel great today!! I truly think the exercise is helping clear my > head and helping a lot with neuro symptoms, too. > > I hope I continue to improve at this rate. > > Wanted to keep it simple with my update . . . . > > Thanks Rich and all the group! > > Best wishes to all, > > Sue T > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Hi, Sue. I can certainly understand. You've really been a trooper. I hope you get really refreshed on the camping trip. I've written to Dr. Amy and asked if I can relay questions to her from the group, so if she agrees, maybe that will take some of the load off you. By the way, at this point I know of 17 PWCs who have ordered Amy Yasko's SNP panel, most of whom are on this list. We should be getting some good statistics on how well this treatment program works for CFS as time goes by, if people report in on how they are doing. Rich > > Hi Rich, > > Thank you for all your support, wisdom, and brilliant knowledge. I sometimes feel so overwhelmed with all the questions and skepticism.I know that is what it takes for some people to learn, but I don't have all the answers yet and feel pressured to because I am progressing so well. > > I really wish they would do more of their own research instead of trying to rely on others that are a bit ahead of them but not truly healed yet . . . I am still fragile at this point. The anxiety is still running high even though I want to help. It is just too much at times. > I hope they understand and can look a bit away from this website and head over to the Yasko site for more explanation. > > I need a break . . . . I will be off camping for the rest of the week. > > My best, > Sue T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Rich, I just tried to send you a private message and aol tells me " mailbox not found. " I just wanted to tell you about a site which identifies supplements that are toxic for the liver. www.hcvadocate.org Janet rvankonynen <richvank@...> wrote: Hi, Sue. I can certainly understand. You've really been a trooper. I hope you get really refreshed on the camping trip. I've written to Dr. Amy and asked if I can relay questions to her from the group, so if she agrees, maybe that will take some of the load off you. By the way, at this point I know of 17 PWCs who have ordered Amy Yasko's SNP panel, most of whom are on this list. We should be getting some good statistics on how well this treatment program works for CFS as time goes by, if people report in on how they are doing. Rich > > Hi Rich, > > Thank you for all your support, wisdom, and brilliant knowledge. I sometimes feel so overwhelmed with all the questions and skepticism.I know that is what it takes for some people to learn, but I don't have all the answers yet and feel pressured to because I am progressing so well. > > I really wish they would do more of their own research instead of trying to rely on others that are a bit ahead of them but not truly healed yet . . . I am still fragile at this point. The anxiety is still running high even though I want to help. It is just too much at times. > I hope they understand and can look a bit away from this website and head over to the Yasko site for more explanation. > > I need a break . . . . I will be off camping for the rest of the week. > > My best, > Sue T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 spelt wrong: www.hcvadvocate.org Re: Re: Sue T Quick update Rich, I just tried to send you a private message and aol tells me " mailbox not found. " I just wanted to tell you about a site which identifies supplements that are toxic for the liver. www.hcvadocate.org Janet rvankonynen <richvank@...> wrote: Hi, Sue. I can certainly understand. You've really been a trooper. I hope you get really refreshed on the camping trip. I've written to Dr. Amy and asked if I can relay questions to her from the group, so if she agrees, maybe that will take some of the load off you. By the way, at this point I know of 17 PWCs who have ordered Amy Yasko's SNP panel, most of whom are on this list. We should be getting some good statistics on how well this treatment program works for CFS as time goes by, if people report in on how they are doing. Rich > > Hi Rich, > > Thank you for all your support, wisdom, and brilliant knowledge. I sometimes feel so overwhelmed with all the questions and skepticism.I know that is what it takes for some people to learn, but I don't have all the answers yet and feel pressured to because I am progressing so well. > > I really wish they would do more of their own research instead of trying to rely on others that are a bit ahead of them but not truly healed yet . . . I am still fragile at this point. The anxiety is still running high even though I want to help. It is just too much at times. > I hope they understand and can look a bit away from this website and head over to the Yasko site for more explanation. > > I need a break . . . . I will be off camping for the rest of the week. > > My best, > Sue T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Thank you. Working from memory and tired. Janet " Adrienne G. " <duckblossm@...> wrote: spelt wrong: www.hcvadvocate.org Re: Re: Sue T Quick update Rich, I just tried to send you a private message and aol tells me " mailbox not found. " I just wanted to tell you about a site which identifies supplements that are toxic for the liver. www.hcvadocate.org Janet rvankonynen <richvank@...> wrote: Hi, Sue. I can certainly understand. You've really been a trooper. I hope you get really refreshed on the camping trip. I've written to Dr. Amy and asked if I can relay questions to her from the group, so if she agrees, maybe that will take some of the load off you. By the way, at this point I know of 17 PWCs who have ordered Amy Yasko's SNP panel, most of whom are on this list. We should be getting some good statistics on how well this treatment program works for CFS as time goes by, if people report in on how they are doing. Rich > > Hi Rich, > > Thank you for all your support, wisdom, and brilliant knowledge. I sometimes feel so overwhelmed with all the questions and skepticism.I know that is what it takes for some people to learn, but I don't have all the answers yet and feel pressured to because I am progressing so well. > > I really wish they would do more of their own research instead of trying to rely on others that are a bit ahead of them but not truly healed yet . . . I am still fragile at this point. The anxiety is still running high even though I want to help. It is just too much at times. > I hope they understand and can look a bit away from this website and head over to the Yasko site for more explanation. > > I need a break . . . . I will be off camping for the rest of the week. > > My best, > Sue T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Hi, Janet (and Adrienne). Thanks for the heads-up on my email. I think my in-box was overloaded. Thanks for this link. Is there a particular place on that site where these supplements are listed? Rich > > > > Hi Rich, > > > > Thank you for all your support, wisdom, and brilliant knowledge. > I sometimes feel so overwhelmed with all the questions and > skepticism.I know that is what it takes for some people to learn, > but I don't have all the answers yet and feel pressured to because I > am progressing so well. > > > > I really wish they would do more of their own research instead > of trying to rely on others that are a bit ahead of them but not > truly healed yet . . . I am still fragile at this point. The anxiety > is still running high even though I want to help. It is just too > much at times. > > I hope they understand and can look a bit away from this website > and head over to the Yasko site for more explanation. > > > > I need a break . . . . I will be off camping for the rest of the > week. > > > > My best, > > Sue T > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Yes, Rich, I was so dead brain last night I forgot to include that. Put a search in for " Supplements to Avoid " Janet rvankonynen <richvank@...> wrote: Hi, Janet (and Adrienne). Thanks for the heads-up on my email. I think my in-box was overloaded. Thanks for this link. Is there a particular place on that site where these supplements are listed? Rich > > > > Hi Rich, > > > > Thank you for all your support, wisdom, and brilliant knowledge. > I sometimes feel so overwhelmed with all the questions and > skepticism.I know that is what it takes for some people to learn, > but I don't have all the answers yet and feel pressured to because I > am progressing so well. > > > > I really wish they would do more of their own research instead > of trying to rely on others that are a bit ahead of them but not > truly healed yet . . . I am still fragile at this point. The anxiety > is still running high even though I want to help. It is just too > much at times. > > I hope they understand and can look a bit away from this website > and head over to the Yasko site for more explanation. > > > > I need a break . . . . I will be off camping for the rest of the > week. > > > > My best, > > Sue T > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Hi, Janet. O.K., thanks, I've got it now. That's a pretty long list. I suspect that which ones are a problem for a given individual will depend on the SNPs in their detox enzymes. This list may include everything that has been a problem for someone, regardless of their particular SNPs, so it may not specifically hold for everyone, but it is a way to be on the safe side. Rich > > Yes, Rich, I was so dead brain last night I forgot to include that. > > Put a search in for " Supplements to Avoid " > > Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 HI Rich, So when I look at this list, because I do have the P450 2C9 genetic mutation in my detox profile, how do I view the supplements. ie: Butterbur??? etc. Also the list does not include garlic, St. JOhn's wort or Yucca that are on my list of things to avoid on the detoxi profile. As we all do more of these tests, we are going to need a comprehensive list of herbs to be careful of. Yasko uses alot of herbs in her program. Thank you for your help, Janet rvankonynen <richvank@...> wrote: Hi, Janet. O.K., thanks, I've got it now. That's a pretty long list. I suspect that which ones are a problem for a given individual will depend on the SNPs in their detox enzymes. This list may include everything that has been a problem for someone, regardless of their particular SNPs, so it may not specifically hold for everyone, but it is a way to be on the safe side. Rich > > Yes, Rich, I was so dead brain last night I forgot to include that. > > Put a search in for " Supplements to Avoid " > > Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 If you search " liver supplements " you get a pretty short list of known liver sensitivities. Adrienne Re: Sue T Quick update Hi, Janet. O.K., thanks, I've got it now. That's a pretty long list. I suspect that which ones are a problem for a given individual will depend on the SNPs in their detox enzymes. This list may include everything that has been a problem for someone, regardless of their particular SNPs, so it may not specifically hold for everyone, but it is a way to be on the safe side. Rich > > Yes, Rich, I was so dead brain last night I forgot to include that. > > Put a search in for " Supplements to Avoid " > > Janet This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 How did you bring that up??? Thru google or on the hcv site??? Thanks, Janet " Adrienne G. " <duckblossm@...> wrote: If you search " liver supplements " you get a pretty short list of known liver sensitivities. Adrienne Re: Sue T Quick update Hi, Janet. O.K., thanks, I've got it now. That's a pretty long list. I suspect that which ones are a problem for a given individual will depend on the SNPs in their detox enzymes. This list may include everything that has been a problem for someone, regardless of their particular SNPs, so it may not specifically hold for everyone, but it is a way to be on the safe side. Rich > > Yes, Rich, I was so dead brain last night I forgot to include that. > > Put a search in for " Supplements to Avoid " > > Janet This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 on the site. Adrienne Re: Sue T Quick update Hi, Janet. O.K., thanks, I've got it now. That's a pretty long list. I suspect that which ones are a problem for a given individual will depend on the SNPs in their detox enzymes. This list may include everything that has been a problem for someone, regardless of their particular SNPs, so it may not specifically hold for everyone, but it is a way to be on the safe side. Rich > > Yes, Rich, I was so dead brain last night I forgot to include that. > > Put a search in for " Supplements to Avoid " > > Janet This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
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