Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 Hi all, Glad to have found you! Looking to learn a lot from those with experience. I have tons of questions. Hope you don't mind. Our ped referred us to Cranial Technologies. We went for a visit and they suggeted PT for the head tilt and the DOC band for what they called " moderate " plagiocephaly. Now here's my question(s): How did you come to find your child needed treatment? Was it through your ped? Were you referred to a plastic surgeon or neurosurgeon? Did you get the band from those doctors? I guess I'm wondering if I should get a sceond opinion before diving straight into the Band. My husband worries that they are just trying to sell us the band. Any advice? I'm feeling overwhelmed! abj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Welcome ABJ I am farely to this myself. My daughter Mya 8 months old has only had her DOC band for 4 days. To answer your questions We were first seen by our ped and she refered us to a different ped at our hospital (we are military)and that ped then set Mya up for physical therapy for torticollis and also referred us to see a craniofacial plastic surgeon. She told us it would be in Mya's best interest to get her a DOC band even though the military wont pay for it. SHe told us she could not write the prescription for the DOC band so wed have to go to the craniofacial plastic surgeon and get his assessment and he would be the one to give her a yes or no for the DOC band and write the prescription. SO we did that and he told us Mya did have severe plagiocephaly and torticollis. And he wrote the prescription for her DOC band. And so we went ahead with the casting and that brings us up till now where she is in her band and we just cant wait to see that head of hers to start to round out. So thats our story. I dont feel in any way that we were just sold the band for no reason. My daughters head was in desperate need of something and the band can fix her poor little crooked head. Hope Ive helped you some. Any other questions feel free to ask away!! ANd again Welcome!! CHristi mom to Mya DOC band 3/6/02 -- In Plagiocephaly@y..., " abjtx " <ana@m...> wrote: > Hi all, > > Glad to have found you! Looking to learn a lot from those with > experience. I have tons of questions. Hope you don't mind. > > Our ped referred us to Cranial Technologies. We went for a visit and > they suggeted PT for the head tilt and the DOC band for what they > called " moderate " plagiocephaly. Now here's my question(s): > > How did you come to find your child needed treatment? Was it through > your ped? Were you referred to a plastic surgeon or neurosurgeon? Did > you get the band from those doctors? I guess I'm wondering if I > should get a sceond opinion before diving straight into the Band. My > husband worries that they are just trying to sell us the band. > > Any advice? I'm feeling overwhelmed! > > abj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Hi ABJ & welcome to our group, we're also glad you found us! The head tilt your son has is called torticollis. Tort. is often a leading cause of plagiocephaly. A lot of our members children have also had torticollis & I'm sure they will offer you stretching tips & other valuable information. I'm going to answer your questions below: > How did you come to find your child needed treatment? Was it through > your ped? Were you referred to a plastic surgeon or neurosurgeon? A). My daughter's plagio began in utero & was quite severe, our ped. noticed it ar her 2 wk chk up. We then were sent to get xrays to rule out craniosynostosis (premature fusing of the skull bones), then after those tests were thankfully negative, we were referred to a ped. neurosurgeon. The ped. neuro then told us it was our decision to band or not, we waited & tried repositioning for a bit but unfortunately had no success with it. We then went ahead with the band. Did > you get the band from those doctors? I guess I'm wondering if I > should get a sceond opinion before diving straight into the Band. My > husband worries that they are just trying to sell us the band. A) I have been a member of this board for 1.5 yrs already, and can honestly tell you, Cranial technologies is a wonderful group of people. I have heard of stories that they have NOT banded a child because they felt the case was too mild. They will only recommend a band if they feel your child truly needs one. I cannot say enough great things about Cranial Technologies. Of course it never hurts to get a 2nd opinion though. Does your pediatrician suggest banding your son also? This is all very overwhelming to us parents. Do whatever your gut tells you to. How old is your son? Welcome again, we're glad you found us Debbie Abby's mom DOCGrad 6/01 MI Quote Link to comment Share on other sites More sharing options...
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