Re: Symptoms of Autism which may be relevant to CFS/ME

[Guest guest]

Let's remember that ADD/ADHD is now considered part of the ASD spectrum.

I refer to my brain function for at least the last ten years as Scrambled

Brain Syndrome.

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Yea, don't you just crave some solitude, to rest the weary brain drain!!!!

(Those normals think we are just depressed, lazy, or trying to escape

reality, whereas we are a tribute to the human will to survive, despite all

this...)

I have been attempting to explain the various brain problems to some of my

more " intelligent " relatives...and they are starting to UNDERSTAND...of course,

only time will tell.

[Guest guest]

Wow. That describes me!!! My solitude is even more dear to me than before.

Lights/noises/crowds are a major energy drain, to be avoided when possible. How

interesting.

Diane in MI

Symptoms of Autism which may be relevant to

CFS/ME

As a Mental Health Therapist, I have worked with a few autistic

kids...so I was thinking, we have an " overstimulated " brain, too..but

not to the extent of the Autistic...and our brains were assaulted after

development of language and higher skills

Maybe, that is why noise can be so bothersome, lights, especially

Fluorescent lights can confuse the brain...(they seem to be confused by

the interface of their brain with the environment)

I know that I crave solitude..and that big crowds of people are

overstimulating and confusing to my brain..and to rest the brain, I

must be alone...(autistic kids seem to crave aloneness, will not

communicate with people)

I try to get in small groups of people or no people..(autistic kids

prefer inanimate objects, not people)

However, music (which is restful) is very soothing to the brain

(autistic kids do like music)

Rich..or anyone..do you think these are the symptoms that connect us to

the autistic brain?

------------------------------------------------------------------------------

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Checked by AVG Free Edition.

Version: 7.1.394 / Virus Database: 268.10.2/393 - Release Date: 7/19/2006

[Guest guest]

MJH

Figure out a more latin name for it and it'd work well ! Something like,

Disassociative Cerebral Dysfunction, or something. Today was a good example of

how much my cognitive ability has suffered, I can no longer even begin to

consider multitasking. I grieve that loss. I used to do so well at it. I

can't remember what I'm doing off the main path, on some rabbit trail, nor where

I was going or for what purpose. I seem to leave more loose ends than I am able

to keep track of and Those loose ends many times unravel into a disastrously

tiring, disorganized and nonproductive day. On the better days it's just very

strenuous to keep the thoughts organized enough to get things finished. Today

was such a day. I managed to finish what needed to be done, but it's taken the

full day to do what should have taken the morning to accomplish. The half full

approach to all of that...at least I am upright much of the day, I am able to

choose when I can take a rest, I can think rational thoughts and process more

information than I could last winter. I will not allow myself to grieve the

losses. I am thankful for what has been gained.

Diane in MI

Re: Symptoms of Autism which may be relevant to

CFS/ME

Let's remember that ADD/ADHD is now considered part of the ASD spectrum.

I refer to my brain function for at least the last ten years as Scrambled

Brain Syndrome.

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Hi, Amelia.

It certainly sounds to me as though they certainly are some of them.

You might be interested to listen to what Laurette Janak put together

for a comparison of CFS and autism. She and I were interviewed

together on http://www.autismone.com/radio. If you click on archives

at the bottom and then click on archives again at the top, and the use

the left arrow to go to the calendar for June, you can find our

interview on June 5 or 6, I can't remember which. But then click on

the bolded times, and it will bring you back to the original page.

Then click twice on the upper play arrow, and you can hear the

interview. It's 3 hours long, but you can quit and come back later if

you wish, because there is a cursor at the top that allows you to go

wherever you want to in the interview, and there is a timer that shows

where you are. I'm sorry I said " ah " so many times in this interview.

It was off the cuff, and I had to think, but it would have been better

to do it with my mouth shut! I think there is some good content in

it, though.

Rich

> Rich..or anyone..do you think these are the symptoms that connect us

to

> the autistic brain?

>

[Guest guest]

Diane,

Have hope. My brain is definitely being restored. I am constantly astonished by

how much more complexity I can handle and it keeps growing. I think I am

complexifying things just for the heck of it right now; for the fun of it.

I still have a lot of fatigue- and deconditioning, too, so I am not out of the

woods by any means, but having my mind back is so NEAT!

I had all that stuff about sensory overload, crowds, light, noise. Kind of gave

up doing much because it was impossible to think things through,as you say. I

can remember, at first, after swinging my feet onto the floor upon arising, I

had to pray about what to do next, because I couldn't figure out that I needed a

shower. I don't know how many hrs of my life in the last 3 decades I spent

staring at walls. I used to think how people meditated so much to get

empty-minded like I was with no effort.

B12 helped with my memory- and did not plateau for a couple of years, but the

real change came when I started using the products from Neuroscience. I have

been using them for 8 or so months.

The especially neat thing is that I can now participate better in my own

recovery because I can better understand the physical experiences I have. (Which

I think I will detail in a separate post.)

But keep hanging in the brain can recover!

Adrienne

----- Original Message -----

From: dphf

Today was a good example of how much my cognitive ability has suffered, I can

no longer even begin to consider multitasking. I grieve that loss. I used to

do so well at it. I can't remember what I'm doing off the main path, on some

rabbit trail, nor where I was going or for what purpose. I seem to leave more

loose ends than I am able to keep track of and Those loose ends many times

unravel into a disastrously tiring, disorganized and nonproductive day.

[Guest guest]

Diane

Actually, Scrambled Brain Syndrome does have another name.

A couple or three years ago I met for ten minutes with Crofford, MD,

a researcher then at the U of MI, who acknowledged this symptom and said it

was more commonly known as a Disregulation of the Executive Function of the

brain. She told me I was neither crazy nor going crazy. I knew that, but it

was good to have my assessment professionally validated.

Before we could continue our relationship and unscramble my brain, my kid

got even sicker and Crofford left the U of MI for KY..... and, it had taken

about a year of persistence to get an appointment with her.

What you describe below would be high functioning for me. 16 years.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

_Re: Symptoms of Autism which may be relevant to CFS/ME _

(/message/102378;_ylc=X3oDMTJxY3N\

lbjdrBF9TAzk3MzU5N

zE1BGdycElkAzkxNTc0BGdycHNwSWQDMTYwMDA2MTY0NQRtc2dJZAMxMDIzNzgEc2VjA2Rtc2cEc2x

rA3Ztc2cEc3RpbWUDMTE1MzQ1Njg1MQ--)

Posted by: " dphf " _dphf@... _ (mailto:dphf@...?Subject=

Re:%20Symptoms%20of%20Autism%20which%20may%20be%20relevant%20to%20CFS/ME)

_dphf _

(dphf)

Thu Jul 20, 2006 6:58 pm (PST)

MJH

Figure out a more latin name for it and it'd work well ! Something like,

Disassociative Cerebral Dysfunction, or something. Today was a good example of

how much my cognitive ability has suffered, I can no longer even begin to

consider multitasking. I grieve that loss. I used to do so well at it. I can't

remember what I'm doing off the main path, on some rabbit trail, nor where I

was going or for what purpose. I seem to leave more loose ends than I am able

to keep track of and Those loose ends many times unravel into a disastrously

tiring, disorganized and nonproductive day. On the better days it's just very

strenuous to keep the thoughts organized enough to get things finished. Today

was such a day. I managed to finish what needed to be done, but it's taken

the full day to do what should have taken the morning to accomplish. The half

full approach to all of that...at least I am upright much of the day, I am

able to choose when I can take a rest, I can think rational thoughts and

process more information than I could last winter. I will not allow myself to

grieve the losses. I am thankful for what has been gained.

Diane in MI

[Guest guest]

I've changed professions.... instead of being actively and productively

engaged in the outside world, I am now a full time recluse. Or, is it hermit?

I have stopped trying to explain and watch the glazed-over eyes or sense the

judgments skewed by lack of knowledge and rescripted in their own defensive

paradigm.

I hope your family and friends do fully come to understand the critical

differences... and provide you the necessary support.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

_Re: Symptoms of Autism which may be relevant to CFS/ME _

(/message/102382;_ylc=X3oDMTJxcnE\

3dWVjBF9TAzk3MzU5N

zE1BGdycElkAzkxNTc0BGdycHNwSWQDMTYwMDA2MTY0NQRtc2dJZAMxMDIzODIEc2VjA2Rtc2cEc2x

rA3Ztc2cEc3RpbWUDMTE1MzQ1Njg1MQ--)

Posted by: " sunscaper53@... " _sunscaper53@... _

(mailto:sunscaper53@...?Subject=

Re:%20Symptoms%20of%20Autism%20which%20may%20be%20relevant%20to%20CFS/ME)

_sunscaper53 _ (sunscaper53)

Thu Jul 20, 2006 7:40 pm (PST)

Yea, don't you just crave some solitude, to rest the weary brain drain!!!!

(Those normals think we are just depressed, lazy, or trying to escape

reality, whereas we are a tribute to the human will to survive, despite all

this...)

I have been attempting to explain the various brain problems to some of my

more " intelligent " relatives...more " intelligent " relatives...<WBR>andmore

" intell

only time will tell.

[Guest guest]

Likewise. I had a mad 5 mins in the garden on Wednesday with my

teenagers (for which I'm paying dearly, and for which my husband gave

me a huge ticking off), but hubby still can't understand that I can

have 5 mins of adrenaline fuelled silliness, but find it difficult to

cope with the stimuli of lots of people moving around/ bright lights/

shiny floors etc. He says if I can do one thing then I sould be able

to cope with the other. Despite all these years, even the person you

live with really doesn;t understand the eccentricities of this

illness.

I am a very gregarious person, but this is completely sublimated by

the limitations of this illness. Foutunately, I quite like my own

company too, which is just as well.

Rosie

>

> Wow. That describes me!!! My solitude is even more dear to me

than before. Lights/noises/crowds are a major energy drain, to be

avoided when possible. How interesting.

> Diane in MI

> Symptoms of Autism which may be

relevant to CFS/ME

>

>

> As a Mental Health Therapist, I have worked with a few autistic

> kids...so I was thinking, we have an " overstimulated " brain,

too..but

> not to the extent of the Autistic...and our brains were assaulted

after

> development of language and higher skills

>

> Maybe, that is why noise can be so bothersome, lights, especially

> Fluorescent lights can confuse the brain...(they seem to be

confused by

> the interface of their brain with the environment)

>

> I know that I crave solitude..and that big crowds of people are

> overstimulating and confusing to my brain..and to rest the brain,

I

> must be alone...(autistic kids seem to crave aloneness, will not

> communicate with people)

>

> I try to get in small groups of people or no people..(autistic

kids

> prefer inanimate objects, not people)

>

> However, music (which is restful) is very soothing to the brain

> (autistic kids do like music)

>

> Rich..or anyone..do you think these are the symptoms that connect

us to

> the autistic brain?

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.394 / Virus Database: 268.10.2/393 - Release Date:

7/19/2006

>

>

>

[Guest guest]

Adrienne

Thank you so much for that encouragement. I know I'm making progress, just it's

never fast enough, you know?

I have taken to doing word and number puzzles in my chair time just to see if

it'll help sharpen my function. Scared to become a vegetable at 56.

Diane

RE: Re: Symptoms of Autism which may be relevant

to CFS/ME

Diane,

Have hope. My brain is definitely being restored. I am constantly astonished

by how much more complexity I can handle and it keeps growing. I think I am

complexifying things just for the heck of it right now; for the fun of it.

.

[Guest guest]

Rosie

After your 5 minutes of fun, were you totally drained, from the adrenaline

rebound effect? Like drinking a cup of leaded coffee, feeling the buzz, then

needing a nap?

I like my own company too. I'm most of the time very content to entertain

myself (there are rare times I become restless and don't even like being with

me!) always find something interesting to occupy my time, when my brain isn't

too tired. I am also realizing that though I have deepest love and respect for

my DH, I am glad he is able to keep himself busy and not requiring my attention

or help. I sadly, even prefer isolation from him more times than I like to

admit. A little cabin on the top of a mountain with just the critters around

is my dream of heaven on earth, with or without another human companion is

debatable. I used to like people, loved my nursing career, helping others,

gaining a sense of contributing to anothers well being. It takes too much of an

emotional investment to care anymore. That's crept up slowly over the last 5 or

6 years. No emotional energy to get involved with anyone else. Not much left

of a person when you take away all of that!

Diane

Re: Symptoms of Autism which may be relevant to

CFS/ME

Likewise. I had a mad 5 mins in the garden on Wednesday with my

teenagers (for which I'm paying dearly, and for which my husband gave

me a huge ticking off), but hubby still can't understand that I can

have 5 mins of adrenaline fuelled silliness, but find it difficult to

cope with the stimuli of lots of people moving around/ bright lights/

shiny floors etc. He says if I can do one thing then I sould be able

to cope with the other. Despite all these years, even the person you

live with really doesn;t understand the eccentricities of this

illness.

I am a very gregarious person, but this is completely sublimated by

the limitations of this illness. Foutunately, I quite like my own

company too, which is just as well.

Rosie

.

[Guest guest]

Hi Diane,

Yes, I enjoyed it immensely at the time, but I have paid for it. I

know some will say don't be silly and pace better, but I've had this

for so long I feel like my life is whizzing by and I'm waiting to

start living. Consequently I do a few daft things (within reason),

acknowledge there's a price to pay but the morale boost it gives me

is worth an awful lot. I felt absolutely 'done in' and have felt

very much more tired these last two days as a result, but I have

complemented that by going to bed earlier etc, and resting even more

than normaly (which is most of the day anyway).

I'm a bit different from you in that, whilst I am pretty content with

my own company (I talk to myself, the cat, the plants, the 'ether' -

and it makes more sense than alot of people ;-) ) I would love to be

well enough to do the gregarious things that my real self would do.

I call an ME-free me 'my real self' because this illness really does

sublimate one's character hugely I think. I'm very chatty and love a

good laugh and a bit of silliness - but that could be that having had

this to one degree or another since I was 10, I'm still trying to

live/relive the youth that I couldn't fully make the most of at the

time. Pity help South Wales if I ever get well!!

Hope you get your dream cabin, or better still a healthy body - then

the world of choices is your oyster.

BW

Rosie

>

> Rosie

> After your 5 minutes of fun, were you totally drained, from the

adrenaline rebound effect? Like drinking a cup of leaded coffee,

feeling the buzz, then needing a nap?

>

> I like my own company too. I'm most of the time very content to

entertain myself (there are rare times I become restless and don't

even like being with me!) always find something interesting to occupy

my time, when my brain isn't too tired. I am also realizing that

though I have deepest love and respect for my DH, I am glad he is

able to keep himself busy and not requiring my attention or help. I

sadly, even prefer isolation from him more times than I like to

admit. A little cabin on the top of a mountain with just the

critters around is my dream of heaven on earth, with or without

another human companion is debatable. I used to like people, loved

my nursing career, helping others, gaining a sense of contributing to

anothers well being. It takes too much of an emotional investment to

care anymore. That's crept up slowly over the last 5 or 6 years. No

emotional energy to get involved with anyone else. Not much left of

a person when you take away all of that!

> Diane

> Re: Symptoms of Autism which may be

relevant to CFS/ME

>

>

> Likewise. I had a mad 5 mins in the garden on Wednesday with my

> teenagers (for which I'm paying dearly, and for which my husband

gave

> me a huge ticking off), but hubby still can't understand that I

can

> have 5 mins of adrenaline fuelled silliness, but find it

difficult to

> cope with the stimuli of lots of people moving around/ bright

lights/

> shiny floors etc. He says if I can do one thing then I sould be

able

> to cope with the other. Despite all these years, even the person

you

> live with really doesn;t understand the eccentricities of this

> illness.

> I am a very gregarious person, but this is completely sublimated

by

> the limitations of this illness. Foutunately, I quite like my own

> company too, which is just as well.

>

> Rosie

>

>

> .

>

>

[Guest guest]

Dear MJH,

You mean these docs are suppose to know about this>>Disregulation of the

Executive Function? Now I am angry.and it is so tiresome dealing with them..

I like Scramble Brain Syndrome, myself..

Amelia

[Guest guest]

Adrienne,

What has helped restore your brain functioning? and on a scale of 1-10,

with 10 being great, where do you rate it, now.

..At this point, I would say Fish Oil/Rest are helping me.

Amelia

[Guest guest]

At least CFS docs should know about this and also those doing neuropsych

testing.

I'm glad you like my definition. I had to name it something to relate it to

many docs over the years. Some even suggested that I not share that too

broadly otherwise my sanity might be suspect.

Too many docs have forgotten that the brain controls the body and to perhaps

look there, too, if not first.

That ten minutes with the researcher was the closests I've come to be

treated by a CFS doc.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

_Re: Symptoms of Autism which may be relevant to CFS/ME _

(/message/102460;_ylc=X3oDMTJxa3F\

tMG5xBF9TAzk3MzU5N

zE1BGdycElkAzkxNTc0BGdycHNwSWQDMTYwMDA2MTY0NQRtc2dJZAMxMDI0NjAEc2VjA2Rtc2cEc2x

rA3Ztc2cEc3RpbWUDMTE1MzUyMDQyNg--)

Posted by: " sunscaper53@... " _sunscaper53@... _

(mailto:sunscaper53@...?Subject=

Re:%20Symptoms%20of%20Autism%20which%20may%20be%20relevant%20to%20CFS/ME)

_sunscaper53 _ (sunscaper53)

Fri Jul 21, 2006 1:46 pm (PST)

Dear MJH,

You mean these docs are suppose to know about this>>Disregulation of the

Executive Function? Now I am angry.and it is so tiresome dealing with them..

I like Scramble Brain Syndrome, myself..

Amelia

[Guest guest]

My sanity has been questioned on more than one occasion, even though, I was

a Psychologist..I never did Neuropsychological testing , because my brain was

scrambled, and I had to retire..but I was interested in that area...so most

Neuropsychologists should know about this?! Do you know the level of

severity this diagnose means?

Yea, me too, I have not been seen or treated by a real CFS doc...I was

diagnosed with CFS by the man, Dr. Trowbridge, who wrote The Yeast

Syndrome

book, about 19 years ago..I, also, of course had the yeast syndrome, as well.

The brain does control the body...get a clue, docs! Sometimes, I think

these docs are more " brain-damaged " than me.

Amelia

[Guest guest]

I'm 67. Got really addled midlife- in the early '80's.

I never found exercising it helped. Challenging the deficits always resulted in

more confusion, fatigue and anxiety.

RE: Re: Symptoms of Autism which may be

relevant to CFS/ME

Diane,

Have hope. My brain is definitely being restored. I am constantly astonished

by how much more complexity I can handle and it keeps growing. I think I am

complexifying things just for the heck of it right now; for the fun of it.

.

[Guest guest]

MJH

You are now at the point that you know more than most of the drs. do anyway, at

least about those things that concern you. We put a lot of confidence in people

that have an education, but fail to realize they may well not have all the

answers, or have a good handle on what is right for our situation. Modern

medicine isn't all it's cracked up to be and relying on those things you have

learned about herbs and natural treatments may have you at the level of health

or better, that you might have been under a cfs drs. care anyway. Don't lament

what you haven't had, though I doubt you were doing that. You may have been in

worse shape for having had unproved or wrong treatment anyway. CFS is just so

complex and uncertain, a lot of trial and error has gone into the place you are

at right now. And a lot of that has been what you learned on your own. I'm not

in favor of raising any higher the pedestals on which most drs sit. So often

they don't deserve the confidence we place in them.

Diane

Re: Symptoms of Autism which may be relevant to

CFS/ME

<snipped>...That ten minutes with the researcher was the closests I've come to

be

treated by a CFS doc.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

.

[Guest guest]

mjh, Amelia,

Executive function is the High Priestess of thinking. It is what organizes all

the other. thus, Executive!

Yes, they know what it is. I always thought that Damage of it was only found in

severe brain injury, ahem...

THis was part of what was found in my Neuro-Psych testing...several deficits in

executive function...forgot exact wording...

Some things it rules...

Initiating tasks

Changing from one thing to another

Sense of time

Organizing

I Forgot the rest

at the time, could only find it under children, so I read up on it. Got some

tools there in advice to Mothers to help the child...

We are the Parent and the Child in one...unless we have spouse,

family,caregivers...

mjh, I can relate about the researchers...until last year, the brain testing was

closest I came too. I spoke of them in that post to Amelia...not that they knew

a darned thing about CFS...but found significant results that I could work with

(outside of nearly losing it at how poorly I did on the tests, and frustration

communicating)

Katrina

>

> At least CFS docs should know about this and also those doing neuropsych

> testing.

>

> I'm glad you like my definition. I had to name it something to relate it to

> many docs over the years. Some even suggested that I not share that too

> broadly otherwise my sanity might be suspect.

>

> Too many docs have forgotten that the brain controls the body and to perhaps

> look there, too, if not first.

>

> That ten minutes with the researcher was the closests I've come to be

> treated by a CFS doc.

>

> mjh

> " The Basil Book "

> _http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

>

>

> _Re: Symptoms of Autism which may be relevant to CFS/ME _

>

(/message/102460;_ylc=X3oDMTJxa3F\

tMG5xBF9TAzk3MzU5N

> zE1BGdycElkAzkxNTc0BGdycHNwSWQDMTYwMDA2MTY0NQRtc2dJZAMxMDI0NjAEc2VjA2Rtc2cEc2x

> rA3Ztc2cEc3RpbWUDMTE1MzUyMDQyNg--)

> Posted by: " sunscaper53@... " _sunscaper53@... _

> (mailto:sunscaper53@...?Subject=

> Re:%20Symptoms%20of%20Autism%20which%20may%20be%20relevant%20to%20CFS/ME)

_sunscaper53 _ (sunscaper53)

> Fri Jul 21, 2006 1:46 pm (PST)

> Dear MJH,

>

> You mean these docs are suppose to know about this>>Disregulation of the

> Executive Function? Now I am angry.and it is so tiresome dealing with them..

>

> I like Scramble Brain Syndrome, myself..

>

> Amelia

>

>

>

>

>

[Guest guest]

Dear Katrina,

Well, that is it!!..That is very interesting..Can you, possibly post,

all that is tested in the Psycho- Neurological testing...I am a

psychologist and have done testing, but was sidelined by this

disease, before, I got a chance to learn about THAT

testing. ACTUALLY, I wanted to be tested by a ex-friend, who did it,

but she so shocked by my illness, we are no longer friends.

Amelia>

> mjh, Amelia,

>

> Executive function is the High Priestess of thinking. It is what

organizes all the other. thus, Executive!

>

> Yes, they know what it is. I always thought that Damage of it was

only found in severe brain injury, ahem...

> THis was part of what was found in my Neuro-Psych testing...several

deficits in executive function...forgot exact wording...

>

> Some things it rules...

>

> Initiating tasks

>

> Changing from one thing to another

>

> Sense of time

>

> Organizing

>

>

> I Forgot the rest

>

>

> at the time, could only find it under children, so I read up on

it. Got some tools there in advice to Mothers to help the child...

> We are the Parent and the Child in one...unless we have spouse,

family,caregivers...

>

> mjh, I can relate about the researchers...until last year, the

brain testing was closest I came too. I spoke of them in that post to

Amelia...not that they knew a darned thing about CFS...but found

significant results that I could work with (outside of nearly losing

it at how poorly I did on the tests, and frustration communicating)

>

> Katrina

>

>

>

>

> >

> > At least CFS docs should know about this and also those doing

neuropsych

> > testing.

> >

> > I'm glad you like my definition. I had to name it something to

relate it to

> > many docs over the years. Some even suggested that I not share

that too

> > broadly otherwise my sanity might be suspect.

> >

> > Too many docs have forgotten that the brain controls the body and

to perhaps

> > look there, too, if not first.

> >

> > That ten minutes with the researcher was the closests I've come

to be

> > treated by a CFS doc.

> >

> > mjh

> > " The Basil Book "

> > _http://foxhillfarm.us/FireBasil/_

(http://foxhillfarm.us/FireBasil/)

> >

> >

> > _Re: Symptoms of Autism which may be relevant to CFS/ME _

> >

(/message/102460;_ylc=X

3oDMTJxa3FtMG5xBF9TAzk3MzU5N

> >

zE1BGdycElkAzkxNTc0BGdycHNwSWQDMTYwMDA2MTY0NQRtc2dJZAMxMDI0NjAEc2VjA2R

tc2cEc2x

> > rA3Ztc2cEc3RpbWUDMTE1MzUyMDQyNg--)

> > Posted by: " sunscaper53@ " _sunscaper53@ _

> > (mailto:sunscaper53@?Subject=

> > Re:%20Symptoms%20of%20Autism%20which%20may%20be%20relevant%20to%

20CFS/ME) _sunscaper53 _ (sunscaper53)

> > Fri Jul 21, 2006 1:46 pm (PST)

> > Dear MJH,

> >

> > You mean these docs are suppose to know about

this>>Disregulation of the

> > Executive Function? Now I am angry.and it is so tiresome dealing

with them..

> >

> > I like Scramble Brain Syndrome, myself..

> >

> > Amelia

> >

> >

> >

> >

> >

[Guest guest]

Amelia; here is a list from a recent post of mine of things that help my brain.

It does get worse if I tire, so rest is a component.

Some of these things are more significant than others. The newest " thing, " the

products from Neuroscienceinc.com, is currently the most distinctively helpful,

a quantum leap forward, but that effect is built upon all the stuff that I was

already taking. B12 (injections) was for a couple of years the most helpful, but

it only took me so far.

The first helpful supplement I took was the DLPA- and now, just in the last few

days I have stopped taking it- after 20+ years on it. Am using the St. 's

Wort less, too.

I find there is a strong correlation between what gives me energy and my mental

state.

> D,L-phenylalanine arousal, alertness, energy

> St. 's Wort- mood, energy

> Excitacor and Excitaplus, also Travacor by Neuroscience (Aminos +)

Pituitrophin

> Green tea/coffee

> Homeopathic growth hormone.

> DHEA ( a very little)

> b12 (hydroxy, im) Memory, especially, but also tranquility

I don't really know how to rate my mental condition. Pretty close to good

enough. My brain also reflects my capacity to move. I was astonished to note

this morning that I was moving about my apartment normally. I had to do some

stuff in rapid succession in various locations, and well, I just went ahead and

DID them. No inner groaning, no calculation about how to move from one area to

the other. Just moved. It's as if my brain could go off high alert and just do

the normal thing-automatic pilot.

The tiny bits of physical therapy I am dong are bringing brain and muscles into

better integration.

If any of that makes sense?

But I am on alert tonight; a wee bit of an earache for the second time this

week. My immunity is not quite keeping up and I am neglecting the vit c. So I

better take one now. And some zinc. And not do the activity I wanted to tomorrow

morning.

'Nite.

Adrienne

Re: Re: Symptoms of Autism which may be relevant

to CFS/ME

Adrienne,

What has helped restore your brain functioning? and on a scale of 1-10,

with 10 being great, where do you rate it, now.

.At this point, I would say Fish Oil/Rest are helping me.

Amelia