Re: Antibiotics and CFS and Glutathione

[Guest guest]

On Jul 19, 2006, at 12:21 PM, bhammanuk@... wrote:

> HI

>

> Im wondering if other people seem to think that antibiotic over use

> was one

> of the main causes of their CFS ?

YES.

I had chronic cystitis from the age of eight forward. In my late

teens, it became a constant aggravation.

Finally, when I was 19, a gynecologist decided that 100 mg/day of

macrodantin (a powerful antibiotic) would help keep the cystitis at

bay. This was, of course, before doctors really thought very much

about the potential for abx to create resistant bacteria.

My initial illness -- a " non-EBV mono " that Rich has suggested may

have been CMV -- began just a month or two after starting this

regime. Still, I stayed on it for two years, until another doctor

decided it was probably causing my chronic yeast infections (ya

think?) and took me off of it.

Years later, I found out that my bladder problems were due to

interstitial cystitis, which is a form of irritation not caused by

bacteria at all. So the abx were totally the wrong treatment in the

first place.

Gynecology sucked in the 70s. The fact that it's so much better now

is one of the great triumphs of the women's movement.

Sara

[Guest guest]

Hey Sara, I think interstitial cystitis *is* caused by bacteria, but

often they are in the bladder lining. It can also be caused by

dysbiosis leading to toxic overflow. But guess what, a lot of

interstitial cystitis patients are now learning they have lyme.

Do you remember any tickbites that long ago? Just curious.

>

> > HI

> >

> > Im wondering if other people seem to think that antibiotic over use

> > was one

> > of the main causes of their CFS ?

>

> YES.

>

> I had chronic cystitis from the age of eight forward. In my late

> teens, it became a constant aggravation.

>

> Finally, when I was 19, a gynecologist decided that 100 mg/day of

> macrodantin (a powerful antibiotic) would help keep the cystitis at

> bay. This was, of course, before doctors really thought very much

> about the potential for abx to create resistant bacteria.

>

> My initial illness -- a " non-EBV mono " that Rich has suggested may

> have been CMV -- began just a month or two after starting this

> regime. Still, I stayed on it for two years, until another doctor

> decided it was probably causing my chronic yeast infections (ya

> think?) and took me off of it.

>

> Years later, I found out that my bladder problems were due to

> interstitial cystitis, which is a form of irritation not caused by

> bacteria at all. So the abx were totally the wrong treatment in the

> first place.

>

> Gynecology sucked in the 70s. The fact that it's so much better now

> is one of the great triumphs of the women's movement.

>

> Sara

>

[Guest guest]

On Jul 19, 2006, at 4:15 PM, jill1313 wrote:

> Hey Sara, I think interstitial cystitis *is* caused by bacteria, but

> often they are in the bladder lining. It can also be caused by

> dysbiosis leading to toxic overflow. But guess what, a lot of

> interstitial cystitis patients are now learning they have lyme.

>

> Do you remember any tickbites that long ago? Just curious.

I grew up in big-time tickbite country. Didn't get a lot of them

myself, but maybe a couple through the years.

The IC thing is hereditary in my family, and a structural issue. I

actually found a urologist who was able to cure it completely when I

was in my late 20s.

Sara

[Guest guest]

Hi CS,

I have acute-onset M.E. and antibiotics use was not a factor in the onset of

the illness. I was very healthy before M.E. struck out of the blue.

What did happen was that a lot of antibiotics in the first year(s) of being

ill led to stomach problems and candida problems.

I think that this complicated the initial problem.

Kindest regards,

Annette

---------------------------------

Try the all-new . " The New Version is radically easier to use " –

The Wall Street Journal

[Guest guest]

>

> Hey Sara, I think interstitial cystitis *is* caused by bacteria, but

> often they are in the bladder lining. It can also be caused by

> dysbiosis leading to toxic overflow. But guess what, a lot of

> interstitial cystitis patients are now learning they have lyme.

>

***Hi Jill - My interstitial cystitis wasn't a bacterial infection.

It was caused by using bath salts in the bath, something I hadn't

done before. The salts damaged the lining of my bladder. I ended up

having a bladder dilation (think that is the correct term) which made

a huge difference. I still have to be careful not to eat spicy or

acidic foods, however, I no longer require meds.

Take care.

Bernie

[Guest guest]

Both you and Sara had a bladder dilation. I wonder how this repairs

the lining. Maybe breaks up scar tissue?

> >

> > Hey Sara, I think interstitial cystitis *is* caused by bacteria, but

> > often they are in the bladder lining. It can also be caused by

> > dysbiosis leading to toxic overflow. But guess what, a lot of

> > interstitial cystitis patients are now learning they have lyme.

> >

>

>

> ***Hi Jill - My interstitial cystitis wasn't a bacterial infection.

> It was caused by using bath salts in the bath, something I hadn't

> done before. The salts damaged the lining of my bladder. I ended up

> having a bladder dilation (think that is the correct term) which made

> a huge difference. I still have to be careful not to eat spicy or

> acidic foods, however, I no longer require meds.

>

> Take care.

>

> Bernie

>

[Guest guest]

On Jul 21, 2006, at 6:02 AM, jill1313 wrote:

> Both you and Sara had a bladder dilation. I wonder how this repairs

> the lining. Maybe breaks up scar tissue?

That's the theory, anyway.

Simple. Fast. Excruciating. Effective.

Sara

[Guest guest]

Sara

DDIL's was visually irritated and bleeding when they scoped her. do you suppose

that type of dilitation would also work for her, intentionally causing increased

inflammation/ irritation and later scarring? That's interesting thought. I

can't imagine agreeing to such a torture, nor can I imagine caring for her after

that, given her sensitivities to drugs. Quinicrine was once used for a similar

purpose instilled in our daughter's lung to irritate and create scarring. I

can't recall now exactly why. She has Cystic Fibrosis, and it was a procedure

that was used during an episode of pneumothorax, if I remember right,

....probably to help close up the defective area causing the pneumo.

Diane

Re: Re: Antibiotics and CFS and Glutathione

On Jul 21, 2006, at 6:02 AM, jill1313 wrote:

> Both you and Sara had a bladder dilation. I wonder how this repairs

> the lining. Maybe breaks up scar tissue?

That's the theory, anyway.

Simple. Fast. Excruciating. Effective.

Sara

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[Guest guest]

>

> Both you and Sara had a bladder dilation. I wonder how this repairs

> the lining. Maybe breaks up scar tissue?

>

Hi Jill - The bladder dilation actually creates scar tissue. The

bladder is filled with liquid and held there for approximately 15

minutes. It causes the bladder to stretch and bleed. The bladder has a

protective jell, and the scarring protects the bladder in the same

manner as the jell.

Take care.

Bernie

[Guest guest]

>

I can't imagine agreeing to such a torture, nor can I imagine caring

for her after that, given her sensitivities to drugs.

***When I had my bladder dilation done, it was done in the operating

room with me under. There was absolutely no pain involved. After the

surgery it was instant relief and I didn't need the prescription drugs

anymore.

Take care.

Bernie

[Guest guest]

On Jul 21, 2006, at 9:51 AM, bernieanneca wrote:

>

>>

> I can't imagine agreeing to such a torture, nor can I imagine caring

> for her after that, given her sensitivities to drugs.

>

>

> ***When I had my bladder dilation done, it was done in the operating

> room with me under. There was absolutely no pain involved. After the

> surgery it was instant relief and I didn't need the prescription drugs

> anymore.

Mine was done in a regular office, during a lunch hour from work, by

a wretched old doctor who kept patting my feet and telling me I

wouldn't have these problems if I didn't have so many boyfriends (as

all the young girls do nowadays).

This was after he'd taken a remarkably careful and detailed history,

during which I'd told him about the one boyfriend I'd been dating for

two years at the time. I have seldom been so appalled or insulted by

a doctor. He absolutely took the lifetime prize.

Which is why it galls me to admit that his treatment worked.

Sara