Re: SCD-diet - candida - LGS

[Guest guest]

h> I would be interested to hear from anyone who have had any success

with

SCD-diet for candida or LGS problems or other CFS issues.

I was on SCD for about two years. It did help in some small ways, but I

still have candida, LGS, and other CFS issues :-).

h> As I understand it the youghurt is an essential part of this diet. I

dont have the book Breaking the vicious cycle yet. Did you have problems

tolerating the youghurt ? Did it work better than probiotics you have

tried in the past? What about fermented vegetables ?

Anyone know why bifidus isnt allowed ?

The yoghurt was marginally helpful, but not as good as kefir. The

fermented vegetables were VERY helpful, although I learned about them

from 'Body Ecology Diet'.

Like so many ideas this one seems to help a small group of people the

most. I did learn a lot from SCD, but found that I needed more carbs

than that diet allows, so I added the ancient grains from the 'Body

Ecology Diet.'

h> I have gotten real tired in perids on this diet and assume it could

be

due to yeast dieoff. Have you noticed something similar?

CFS is not caused by a bad diet. I went through many different diets

and the only thing that helped much was kefir and fermented vegetables,

removing all simple carbs, and removing foods I react to (IgA).

Ironically my main goal with the diets was to restore friendly flora and

re-build my lost muscle mass. And none of the diets did that, but EMF

blocking did completely restore my muscle mass, and continues to work

for me.

--Kurt

[Guest guest]

I agree in part with Kurt. CFS may not be caused by a bad diet, but it

certainly isn't helped

by one. And there are reports of folks who once they got the right nutrients --

mainly

certain amino acids (usually the sulfur ones that help build glutathione) -- or

they cut out

gluten and/or glutamic acid, MSG or Nutrasweet -- they found substantial

improvment in

their CFS or fibro.

My issue with the SCD diet is that they use honey a lot (at least I think they

do!). That can't

be too good for folks with candida...

d.

>

> h> I would be interested to hear from anyone who have had any success

> with

> SCD-diet for candida or LGS problems or other CFS issues.

>

>

>

> I was on SCD for about two years. It did help in some small ways, but I

> still have candida, LGS, and other CFS issues :-).

>

>

> h> As I understand it the youghurt is an essential part of this diet. I

> dont have the book Breaking the vicious cycle yet. Did you have problems

>

> tolerating the youghurt ? Did it work better than probiotics you have

> tried in the past? What about fermented vegetables ?

> Anyone know why bifidus isnt allowed ?

>

>

>

> The yoghurt was marginally helpful, but not as good as kefir. The

> fermented vegetables were VERY helpful, although I learned about them

> from 'Body Ecology Diet'.

>

> Like so many ideas this one seems to help a small group of people the

> most. I did learn a lot from SCD, but found that I needed more carbs

> than that diet allows, so I added the ancient grains from the 'Body

> Ecology Diet.'

>

>

> h> I have gotten real tired in perids on this diet and assume it could

> be

> due to yeast dieoff. Have you noticed something similar?

>

>

>

> CFS is not caused by a bad diet. I went through many different diets

> and the only thing that helped much was kefir and fermented vegetables,

> removing all simple carbs, and removing foods I react to (IgA).

>

> Ironically my main goal with the diets was to restore friendly flora and

> re-build my lost muscle mass. And none of the diets did that, but EMF

> blocking did completely restore my muscle mass, and continues to work

> for me.

>

> --Kurt

>

>

>

>

[Guest guest]

Hi Kurt thanks for your reply.

Sorry to hear you still battle candida etc.

How do you know you still have this?

Have you taken lactulose-mannitol test, CDSA, yeast antibodies etc?

Didnt the diet improve that one bit?

I know bad diets doesnt cause CFS, but LGS could be a big part of the

puzzle for atleast a subgroup with CFS and needs to be addressed.

The thing that caught my interest about this diet was the carb

restriction is necessary for gut healing. I have tried many diets in

the past but never carb restriction to this extent.

Ill check into the body ecology diet.

You feel that kefir and fermented vegetables helped, but you still

suffer candida and dysbiosis? Have you tried abx cycling or

prescription antifungals? And retested after trials on these drugs?

Do you have any ideas what still causes you dysbiosis, candida ?

By EMF I take it you mean electro magnetic fields?

Per

> h> I would be interested to hear from anyone who have had any success

> with

> SCD-diet for candida or LGS problems or other CFS issues.

>

>

>

> I was on SCD for about two years. It did help in some small ways, but I

> still have candida, LGS, and other CFS issues :-).

>

>

> h> As I understand it the youghurt is an essential part of this diet. I

> dont have the book Breaking the vicious cycle yet. Did you have problems

>

> tolerating the youghurt ? Did it work better than probiotics you have

> tried in the past? What about fermented vegetables ?

> Anyone know why bifidus isnt allowed ?

>

>

>

> The yoghurt was marginally helpful, but not as good as kefir. The

> fermented vegetables were VERY helpful, although I learned about them

> from 'Body Ecology Diet'.

>

> Like so many ideas this one seems to help a small group of people the

> most. I did learn a lot from SCD, but found that I needed more carbs

> than that diet allows, so I added the ancient grains from the 'Body

> Ecology Diet.'

>

>

> h> I have gotten real tired in perids on this diet and assume it could

> be

> due to yeast dieoff. Have you noticed something similar?

>

>

>

> CFS is not caused by a bad diet. I went through many different diets

> and the only thing that helped much was kefir and fermented vegetables,

> removing all simple carbs, and removing foods I react to (IgA).

>

> Ironically my main goal with the diets was to restore friendly flora and

> re-build my lost muscle mass. And none of the diets did that, but EMF

> blocking did completely restore my muscle mass, and continues to work

> for me.

>

> --Kurt

>

>

>

>

[Guest guest]

I know people who have found diet helpful, but no cures I guess.

Nobody says bad diet cause CFS.

It could be possible that some people dont absorb nutrients or

amino acids correctly until they get rid of the dysbiosis. And diet

could be an vital factor in that.

Do one diet work for everyone? No, because we are a very mixed group

with different causes and triggers.

Consider the fact that SCD is being used by many parents of autistic

kids, of which many are known to suffer from yeast issues.

Pangborn also suggests in his book that SCD might top the % better

list of various diets, although they havent recorded statistics on it yet.

Per

> I agree in part with Kurt. CFS may not be caused by a bad diet, but

it certainly isn't helped

> by one. And there are reports of folks who once they got the right

nutrients -- mainly

> certain amino acids (usually the sulfur ones that help build

glutathione) -- or they cut out

> gluten and/or glutamic acid, MSG or Nutrasweet -- they found

substantial improvment in

> their CFS or fibro.

>

> My issue with the SCD diet is that they use honey a lot (at least I

think they do!). That can't

> be too good for folks with candida...

>

> d.

>

>

> >

> > h> I would be interested to hear from anyone who have had any success

> > with

> > SCD-diet for candida or LGS problems or other CFS issues.

> >

> >

> >

> > I was on SCD for about two years. It did help in some small ways,

but I

> > still have candida, LGS, and other CFS issues :-).

> >

> >

> > h> As I understand it the youghurt is an essential part of this

diet. I

> > dont have the book Breaking the vicious cycle yet. Did you have

problems

> >

> > tolerating the youghurt ? Did it work better than probiotics you have

> > tried in the past? What about fermented vegetables ?

> > Anyone know why bifidus isnt allowed ?

> >

> >

> >

> > The yoghurt was marginally helpful, but not as good as kefir. The

> > fermented vegetables were VERY helpful, although I learned about them

> > from 'Body Ecology Diet'.

> >

> > Like so many ideas this one seems to help a small group of people the

> > most. I did learn a lot from SCD, but found that I needed more carbs

> > than that diet allows, so I added the ancient grains from the 'Body

> > Ecology Diet.'

> >

> >

> > h> I have gotten real tired in perids on this diet and assume it could

> > be

> > due to yeast dieoff. Have you noticed something similar?

> >

> >

> >

> > CFS is not caused by a bad diet. I went through many different diets

> > and the only thing that helped much was kefir and fermented

vegetables,

> > removing all simple carbs, and removing foods I react to (IgA).

> >

> > Ironically my main goal with the diets was to restore friendly

flora and

> > re-build my lost muscle mass. And none of the diets did that, but EMF

> > blocking did completely restore my muscle mass, and continues to work

> > for me.

> >

> > --Kurt

> >

> >

> >

> >

[Guest guest]

On Jul 7, 2006, at 5:13 PM, per h wrote:

> I know people who have found diet helpful, but no cures I guess.

> Nobody says bad diet cause CFS.

> It could be possible that some people dont absorb nutrients or

> amino acids correctly until they get rid of the dysbiosis. And diet

> could be an vital factor in that.

And a lot of us have immune systems that go ballistic and start

overreacting, creating inflammatory reactions -- aka allergies -- to

a wide variety of substances, including some foods. Discovering and

avoiding those substances and foods can make you a whole lot more

comfortable in the short run. My allergies created tertiary effects

like arthritis and asthma -- not fun at all.

On the other hand, it's not as good as finding ways to calm the

immune system so it won't overreact in the first place. I found that

adjusting my diet helped a lot; but since I've raised my GSH, I'm not

nearly as reactive to those foods as I once was.

Sara

who had teriyaki with a soy sauce glaze for lunch, but still won't

touch the miso soup

[Guest guest]

Ive found a supplement that got rid of my candida realy quickly. I tried

diflucan and nystatin and neither worked. I met a doctor of natropathic

medicine in a waiting room and he told me about an enzyme called

cellulase. All it is is an ezyme that digests fiber, but if you take it

in high doses it disolves the cell wall of the candida. I had high

(35-45 range) ige,igg,and igm antibodies for candida. After about 3

mnths i got checked again and it was 10-15. Next time i got checked it

was 1-2 range. I have a blog post about it:

Candida Blog Post

<http://www.chronicfatiguetreatments.com/wordpress/treatments/get-rid-of\

-your-candida-in-a-month/>

[Guest guest]

Thanks for posting this. I've tried Candex once or twice, but never take enough

of it, or

take if for a long enough period of time. I'll see if I can scrape up my

pennies and go for a

two month course -- at least.

I figure I've had it for 18-20 years.

Dan

>

> Ive found a supplement that got rid of my candida realy quickly. I tried

> diflucan and nystatin and neither worked. I met a doctor of natropathic

> medicine in a waiting room and he told me about an enzyme called

> cellulase. All it is is an ezyme that digests fiber, but if you take it

> in high doses it disolves the cell wall of the candida. I had high

> (35-45 range) ige,igg,and igm antibodies for candida. After about 3

> mnths i got checked again and it was 10-15. Next time i got checked it

> was 1-2 range. I have a blog post about it:

>

> Candida Blog Post

> <http://www.chronicfatiguetreatments.com/wordpress/treatments/get-rid-of\

> -your-candida-in-a-month/>

>

>

>

>

>

[Guest guest]

Hi Kurt and all,

Can you tell me what LGS is, please?

Thanks ahead of time.

in Champaign IL

>

> H,

>

> I know I still have yeast and LGS from the symptoms after eating

mostly,

> along with discoloration of the tongue. I know the symptoms very

well

> after so many years of tests, diets, treatments, etc. And I have had

> most of those tests proving LGS, candida, etc. I even know the

specific

> candida strain I am carrying.

[Guest guest]

Sara,

How did you raise your GSH, and how did you know you had done so?

- Bob

On 7/7/06, Mercuria <mercuria@...> wrote:

>

> On the other hand, it's not as good as finding ways to calm the

> immune system so it won't overreact in the first place. I found that

> adjusting my diet helped a lot; but since I've raised my GSH, I'm not

> nearly as reactive to those foods as I once was.

>

> Sara

>

[Guest guest]

On Jul 8, 2006, at 5:26 PM, bob niederman wrote:

> Sara,

>

> How did you raise your GSH, and how did you know you had done so?

I inject 2800 mg every 48-96 hours, depending on stress levels. I

also take 1 teaspoon of liposomal GSH on the days I don't inject, and

have a scoop of RenewPro every morning. It's possible I'm the only

person on the list taking this much of the stuff, and also taking all

three known supplemental forms at once.

The effects were instant and unmistakeable; the amount of recovery

I've had since I first started on GSH last October is truly stunning.

(The ultimate test: I'm in grad school, something that would have

been cognitively impossible a year ago.) I recently went off the

shots for two weeks while on a trip, and tried to get by on the lipo

and RenewPro alone. But the health fall-off in the second week

reminded me all over again just how wrecked I was before I started on

this last year. They're better than nothing, but it's the shots that

really turn the trick.

Last month, I even managed to OD on it -- took so much that I was

starting to have reactions that looked like heavy metal toxicity.

Since it's a known fact my metal levels are high, and GSH moves metal

in the tissues, this seems like a reasonable guess. Felt like hell,

though. Not doing that again, either.

Sara

[Guest guest]

Sara,

How did you get the injectable GSH - a CFS-savvy doc?

On 7/8/06, Mercuria <mercuria@...> wrote:

>

> I inject 2800 mg every 48-96 hours, depending on stress levels. I

>

[Guest guest]

Sara

I didn't yet get that it was injectible. Is It intramuscular? I already do b12,

so I can handle injecting myself- but what does it cost? (Shudder.)

Adrienne

Re: Re: SCD-diet - candida - LGS

On Jul 8, 2006, at 5:26 PM, bob niederman wrote:

> Sara,

>

> How did you raise your GSH, and how did you know you had done so?

I inject 2800 mg every 48-96 hours, depending on stress levels. I

also take 1 teaspoon of liposomal GSH on the days I don't inject, and

have a scoop of RenewPro every morning. It's possible I'm the only

person on the list taking this much of the stuff, and also taking all

three known supplemental forms at once.

The effects were instant and unmistakeable; the amount of recovery

I've had since I first started on GSH last October is truly stunning.

(The ultimate test: I'm in grad school, something that would have

been cognitively impossible a year ago.) I recently went off the

shots for two weeks while on a trip, and tried to get by on the lipo

and RenewPro alone. But the health fall-off in the second week

reminded me all over again just how wrecked I was before I started on

this last year. They're better than nothing, but it's the shots that

really turn the trick.

Last month, I even managed to OD on it -- took so much that I was

starting to have reactions that looked like heavy metal toxicity.

Since it's a known fact my metal levels are high, and GSH moves metal

in the tissues, this seems like a reasonable guess. Felt like hell,

though. Not doing that again, either.

Sara

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Sara, you inject it yourself? As an intramuscular? I'm confused.

I get 1000 mg in an IV. I might increase it and try double. I find it

helpful but not in such an overwhelming way as you have. I have the

liposomal GSH and haven't even tried it.

>

> > Sara,

> >

> > How did you raise your GSH, and how did you know you had done so?

>

> I inject 2800 mg every 48-96 hours, depending on stress levels. I

> also take 1 teaspoon of liposomal GSH on the days I don't inject, and

> have a scoop of RenewPro every morning. It's possible I'm the only

> person on the list taking this much of the stuff, and also taking all

> three known supplemental forms at once.

>

> The effects were instant and unmistakeable; the amount of recovery

> I've had since I first started on GSH last October is truly stunning.

> (The ultimate test: I'm in grad school, something that would have

> been cognitively impossible a year ago.) I recently went off the

> shots for two weeks while on a trip, and tried to get by on the lipo

> and RenewPro alone. But the health fall-off in the second week

> reminded me all over again just how wrecked I was before I started on

> this last year. They're better than nothing, but it's the shots that

> really turn the trick.

>

> Last month, I even managed to OD on it -- took so much that I was

> starting to have reactions that looked like heavy metal toxicity.

> Since it's a known fact my metal levels are high, and GSH moves metal

> in the tissues, this seems like a reasonable guess. Felt like hell,

> though. Not doing that again, either.

>

> Sara

>

[Guest guest]

Sara, I'm still confused by the word " injectable. " I've never heard of

self-injecting that much glutathione.

By AMP do you meant ATP? I think you probably do but not sure.

>

> > Sara,

> >

> > How did you get the injectable GSH - a CFS-savvy doc?

>

> Uh, yeah. The FFC's flagship clinic in LA, in fact.

>

> But I don't get it there anymore, as of last month. I figured out the

> recipe for their cocktail (which also includes methyl B12 and AMP),

> and worked with my local doctor and compounding pharmacy to source

> the ingredients. (The IV- ready GSH comes from Wellness

> Pharmaceuticals, the same company in Alabama that makes the Essential

> GSH liposomal product. Any pharmacy can order it with an Rx from a

> doctor.)

>

> So now, rather than getting the shots overnighted 1500 miles across

> an international border -- a crazy and expensive hassle for something

> that requires refrigeration -- I'm having them prescribed and made up

> right here in the neighborhood.

>

> Sara

>

[Guest guest]

Jill,

I communicated with Caron Coats a couple of weeks ago from Wellness

Pharmacy and she wrote me this:

" We do not recommend using glutathione intra-muscularly. It can cause

severe tissue irritation and can be very painful. We do see, however,

physicians use it IM, but it is at a MUCH smaller dosage (100mg-

200mg). "

Nat

[Guest guest]

On Jul 8, 2006, at 7:54 PM, jill1313 wrote:

> Sara, you inject it yourself? As an intramuscular? I'm confused.

> I get 1000 mg in an IV. I might increase it and try double. I find it

> helpful but not in such an overwhelming way as you have. I have the

> liposomal GSH and haven't even tried it.

My husband does it, in the behind. Which is why I didn't get shots on

my trip: he didn't come along on this one, and I didn't know where

else in Athens to find someone to do the deed.

In my experience, the liposomal is a good supplementary source. Using

it daily, I can increase the interval between shots from 2-3 days to

maybe 4 or even 5, if my levels are already high. It's also useful as

a booster for pulling myself out of crashes (I also get shots as

often as every 48 hours when I'm dealing with a low spot, as I am now

post-trip). But on its own, it doesn't give me anywhere near the

benefit of the shots.

Sara

[Guest guest]

>>Can you tell me what LGS is, please?

Leaky Gut Syndrome is an explanation given for undigested sugars and I

believe sometimes even food particles in the blood stream. One theory

is that yeasts compromise the gut wall and allow the food through.

Another is that it is primarily a digestive enzyme failure. I also have

read it could be a tissue formation problem, and also could be a problem

with the mucosa in the intestinal wall. The symptom is rapid onset of

food allergies from undigested food particles in the blood.

I have been tested and had some indication of this. Also, in a live

blood cell analysis I saw the large fat particles in the blood and was

put on systemic enzymes to take care of that (Wobenzyme between meals).

--Kurt

[Guest guest]

On Jul 8, 2006, at 8:13 PM, natellite wrote:

> Jill,

>

> I communicated with Caron Coats a couple of weeks ago from Wellness

> Pharmacy and she wrote me this:

>

> " We do not recommend using glutathione intra-muscularly. It can cause

> severe tissue irritation and can be very painful. We do see, however,

> physicians use it IM, but it is at a MUCH smaller dosage (100mg-

> 200mg). "

Interesting. It's been painful on occasion, but not usually. I use a

small-bore needle that takes it pretty deep, and puts it in slowly.

Usually, if it hurts, it's because a nerve or blood vessel got in the

way.

The FFC in LA sells these things by the carload.

Sara

[Guest guest]

I'll try the liposomal. Its from wellness and sitting in my fridge so

it should still be good tho they sent it to me many months ago.

I am just in shock that you inject it like that. Ouch. And that's a

lot of cc's. I never heard of that, honestly,never. It certainly would

be easier than going to the doc's but...I'm mystified by this

approach. Are you sure its 2800 milligrams? That's such a huge amount.

>

> > Sara, you inject it yourself? As an intramuscular? I'm confused.

> > I get 1000 mg in an IV. I might increase it and try double. I find it

> > helpful but not in such an overwhelming way as you have. I have the

> > liposomal GSH and haven't even tried it.

>

> My husband does it, in the behind. Which is why I didn't get shots on

> my trip: he didn't come along on this one, and I didn't know where

> else in Athens to find someone to do the deed.

>

> In my experience, the liposomal is a good supplementary source. Using

> it daily, I can increase the interval between shots from 2-3 days to

> maybe 4 or even 5, if my levels are already high. It's also useful as

> a booster for pulling myself out of crashes (I also get shots as

> often as every 48 hours when I'm dealing with a low spot, as I am now

> post-trip). But on its own, it doesn't give me anywhere near the

> benefit of the shots.

>

> Sara

>

[Guest guest]

What is the FCC in LA? Is there a website where I can look at

glutathione IM injectables?

>

> > Jill,

> >

> > I communicated with Caron Coats a couple of weeks ago from Wellness

> > Pharmacy and she wrote me this:

> >

> > " We do not recommend using glutathione intra-muscularly. It can cause

> > severe tissue irritation and can be very painful. We do see, however,

> > physicians use it IM, but it is at a MUCH smaller dosage (100mg-

> > 200mg). "

>

> Interesting. It's been painful on occasion, but not usually. I use a

> small-bore needle that takes it pretty deep, and puts it in slowly.

> Usually, if it hurts, it's because a nerve or blood vessel got in the

> way.

>

> The FFC in LA sells these things by the carload.

>

> Sara

>

[Guest guest]

2800 mgs = 2.8 gm which if that's the volume of (water-based) solution,

would be 2.8 cc - not a huge amount ot fluid. If that's the amount of pure

GSH, then the solution to dissolve it would be more.

- Bob

On 7/9/06, jill1313 <jenbooks13@...> wrote:

>

> Are you sure its 2800 milligrams? That's such a huge amount.

>

>

>

[Guest guest]

On Jul 9, 2006, at 8:00 AM, bob niederman wrote:

> 2800 mgs = 2.8 gm which if that's the volume of (water-based)

> solution,

> would be 2.8 cc - not a huge amount ot fluid. If that's the amount

> of pure

> GSH, then the solution to dissolve it would be more.

Looking at my Rx, it's 2800 mgs of a 10% solution, which works out to

280 mgs of actual GSH.

The total shot is 5 cc, which is enough to make my bum sore for a bit

afterward.

Sara